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IRS-authorized e-file provider · not the IRS

Nonprofit · EIN 47-4771677

SICKLE CELL CONSORTIUM

Tax-exempt · CUMMING, GA 30028

Financials

$918K$1M2023$1.4M$1.1M2024
Revenue Expenses · by fiscal year end
Financials of SICKLE CELL CONSORTIUM by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2024990$1,379,541$1,085,537$294,004$418,216$0$418,216
December 31, 2023990$918,223$1,019,227-$101,004$124,212$0$124,212
Financial details: 990 for the year ended December 31, 2024

Revenue

Contributions, gifts and grants
$1,376,794
Program service revenue
$0
Investment income
$0
Other revenue
$2,747

Expenses

Grants and similar amounts paid
$10,637
Compensation of officers, directors and key employees
$133,200
Other salaries and wages
$38,500
Salaries, compensation and benefits (total)
$171,700
Professional fundraising fees
$0
Travel
$22,876
Program services (functional)
$1,057,955
Management and general (functional)
$27,582

Balance sheet and other

Total assets, start of year
$124,212
Total assets, end of year
$418,216
Total liabilities, end of year
$0
Net assets, end of year
$418,216
Gross receipts
$1,379,541
Employees
0
Volunteers
21
Year formed
2013
State of legal domicile
GA

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2024, highest compensation first.

NameTitleHours / weekCompensation
LAKIEA BAILEYEXECUTIVE DIRECTOR
Trustee or director, Officer, Key employee
160$54,700
DORIS BAILEYASSOCIATE FINANCE DIRECTOR
Trustee or director, Officer, Key employee
160$31,000
SHARONDA HUDSONDIRECTOR OF OPERATIONS
Trustee or director, Officer, Key employee
160$25,950
DOMINIQUE GOODSONADMINISTRATIVE DIRECTOR
Officer
160$16,500
MIA ROBINSONPRESIDENT OF THE GENERAL ASSEMBLY
Key employee
30$4,300
RAYMONA HOLLOWAY LAWRENCEDIRECTOR OF RESEARCH
Trustee or director, Institutional trustee, Officer, Key employee
30$750
ERIC NTI FREMPONGDIRECTOR OF FINANCE
Trustee or director, Officer, Key employee
10$0
990 for the year ended December 31, 2023: 6 people
NameTitleHours / weekCompensation
LAKIEA BAILEYEXECUTIVE DIRECTOR
Trustee or director, Officer, Key employee
160$53,133
DORIS BAILEYASSOCIATE FINANCE DIRECTOR
Trustee or director, Officer, Key employee
160$25,900
SHARONDA HUDSONDIRECTOR OF OPERATIONS
Trustee or director, Officer, Key employee
160$15,300
RAMONA HOLLOWAY LAWRENCEDIRECTOR OF RESEARCH
Trustee or director, Institutional trustee, Officer, Key employee
30$6,333
MIA ROBINSONPRESIDENT OF THE GENERAL ASSEMBLY
Key employee
30$3,300
ERIC NTI FREMPONGDIRECTOR OF FINANCE
Trustee or director, Officer, Key employee
10$0

Address and contacts

Address (IRS master file)
PO BOX 1195, CUMMING, GA 30028-1195
In care of
% LAKIEA BAILEY
Mailing address (990-N for 2016)
2265 LEXINGTON LANE, CUMMING GA 30040
Principal officer (990 for 2024)
LAKIEA BAILEY, P O BOX 1195, CUMMING, GA 30040
Principal officer (990-N for 2016)
DR LAKIEA J BAILEY, 2265 LEXINGTON LANE, CUMMING GA 30040
Signed the 990
LAKIEA BAILEY, EXECUTIVE DIRECTOR
Phone
(706) 825-3487
Return prepared by
FREMPONG CPA

Mission

To harness and amplify the power of the patient s voice. Ensuring that the sickle cell patient and caregiver are at the center of research, education, advocacy, policy and legislation. Nothing for us without us.

990 for the year ended December 31, 2024

Program accomplishments

  • The Leadership Summit is the primary meeting of the Sickle Cell Consortium (SC3). The meeting convenes SC3 partners to identify and prioritize problems, needs, and gaps in the sickle cell community and then works collectively with other partnered groups to define and execute mutually beneficial and sustainable solutions.
    Expenses $212,787
  • The Annual Warriors Convention is the premier patient-powered gathering in the sickle cell community. It serves as a national platform for education, empowerment, and connection, bringing together patients, caregivers, healthcare, professionals, researchers, advocates, and industry partners from across the country.
    Expenses $493,018
  • The Caregivers Summit provides a platform for caregivers to obtain support, education, encouragement, and community. It is a place for caregivers to connect and encourage one another.
    Expenses $71,602

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026Not on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990 on file

IRS record

EIN
47-4771677
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (509(a)(2))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
2015
Accounting year ends
December
Files
Form 990 or 990-EZ
Category (NTEE)
Health care (E01)
Assets (IRS master file)
$418,216
Income (IRS master file)
$1,379,541

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2024$1,379,541$1,085,537$418,216XML
990December 2023$918,223$1,019,227$124,212XML
990December 2022$686,666$742,697$190,766IRS
990December 2021–––IRS
990December 2020–––IRS
990December 2019–––IRS
990December 2018–––IRS
990-EZDecember 2017–––IRS
990-N for 2016
Officer: DR LAKIEA J BAILEY
December 31, 2016≤ $50,000 receipts––e-Postcard

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 47-4771677).

Questions about SICKLE CELL CONSORTIUM

What is the EIN of SICKLE CELL CONSORTIUM?
The employer identification number (EIN) of SICKLE CELL CONSORTIUM is 47-4771677.
Is SICKLE CELL CONSORTIUM tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2015.
Are donations to SICKLE CELL CONSORTIUM tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does SICKLE CELL CONSORTIUM file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of SICKLE CELL CONSORTIUM due?
The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
When did SICKLE CELL CONSORTIUM last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2024.
Who is the principal officer of SICKLE CELL CONSORTIUM?
The 990 for the year ended December 31, 2024 names LAKIEA BAILEY.
Who are the officers and directors of SICKLE CELL CONSORTIUM?
The 990 for the year ended December 31, 2024 lists 7 people; 6 received compensation from the organization, the highest $54,700 (LAKIEA BAILEY, EXECUTIVE DIRECTOR).
How much revenue does SICKLE CELL CONSORTIUM have?
On its 990 for the year ended December 31, 2024 it reported revenue of $1,379,541, expenses of $1,085,537 and total assets of $418,216 at year end.

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