Nonprofit · EIN 46-3749890
ALD CONNECT INC
Also known as ALD CONNECT
Tax-exempt · MIDDLETON, MA 01949
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $982,449 | $780,119 | $202,330 | $1,505,709 | $30,836 | $1,474,873 |
| December 31, 2024 | 990 | $574,309 | $353,774 | $220,535 | $1,252,052 | $16,211 | $1,235,841 |
| December 31, 2023 | 990 | $413,327 | $306,862 | $106,465 | $1,033,151 | $15,161 | $1,017,990 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $962,007
- Program service revenue
- $0
- Investment income
- $20,442
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $208,200
- Compensation of officers, directors and key employees
- $128,606
- Other salaries and wages
- $17,538
- Salaries, compensation and benefits (total)
- $147,926
- Professional fundraising fees
- $0
- Accounting fees
- $28,960
- Occupancy
- $2,186
- Travel
- $11,949
- Depreciation
- $215
- Program services (functional)
- $583,392
- Management and general (functional)
- $154,429
- Fundraising (functional)
- $42,298
Balance sheet and other
- Total assets, start of year
- $1,252,052
- Total assets, end of year
- $1,505,709
- Total liabilities, end of year
- $30,836
- Net assets, end of year
- $1,474,873
- Publicly traded securities
- $745,336
- Net assets without donor restrictions
- $861,591
- Net assets with donor restrictions
- $613,282
- Gross receipts
- $982,449
- Employees
- 1
- Volunteers
- 25
- Year formed
- 2013
- State of legal domicile
- MA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| KELLY MIETTUNEN | EXECUTIVE DIRECTOR Key employee | 28 | $128,606 |
| KATHLEEN O'SULLIVAN-FORTIN | DIRECTOR Trustee or director | 10 | $17,538 |
| FLORIAN EICHLER MD | PRESIDENT Trustee or director, Officer | 1 | $0 |
| TIMOTHY J MAGUIRE | TREASURER Trustee or director, Officer | 1 | $0 |
| GREGORY BENTON | SECRETARY Trustee or director, Officer | 1 | $0 |
| PATRICIA CHAPMAN | DIRECTOR Trustee or director | 2 | $0 |
| JOSH BONKOWSKY MD PHD | DIRECTOR Trustee or director | 1 | $0 |
| S ALI FATEMI MD | DIRECTOR Trustee or director | 1 | $0 |
| STEPHAN KEMP PHD | DIRECTOR Trustee or director | 1 | $0 |
| TROY LUND PHD MD | DIRECTOR Trustee or director | 1 | $0 |
| AMBER SALZMAN PHD | DIRECTOR Trustee or director | 1 | $0 |
| PATRICIA MUSOLINO | DIRECTOR Trustee or director | 1 | $0 |
| KEITH VAN HAREN MD | DIRECTOR Trustee or director | 1 | $0 |
| AMENA SMITH-FINE | DIRECTOR Trustee or director | 1 | $0 |
990 for the year ended December 31, 2024: 14 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| KELLY MIETTUNEN | EXECUTIVE DIRECTOR Key employee | 10 | $100,029 |
| FLORIAN EICHLER MD | PRESIDENT Trustee or director, Officer | 10 | $0 |
| KATHLEEN M O'SULLIVAN-FORTIN ESQ | TREASURER Trustee or director, Officer | 30 | $0 |
| PATRICIA CHAPMAN | SECRETARY Trustee or director, Officer | 5 | $0 |
| GREGORY BENTON | DIRECTOR Trustee or director | 2 | $0 |
| JOSH BONKOWSKY MD PHD | DIRECTOR Trustee or director | 4 | $0 |
| S ALI FATEMI MD | DIRECTOR Trustee or director | 5 | $0 |
| STEPHAN KEMP PHD | DIRECTOR Trustee or director | 5 | $0 |
| BENJAMIN LENAIL | DIRECTOR Trustee or director | 2 | $0 |
| TROY LUND PHD MD | DIRECTOR Trustee or director | 2 | $0 |
| TIMOTHY MAGUIRE | DIRECTOR Trustee or director | 2 | $0 |
| AMBER SALZMAN PHD | DIRECTOR Trustee or director | 2 | $0 |
| ALEX SHERMAN | DIRECTOR Trustee or director | 2 | $0 |
| KEITH VAN HAREN MD | DIRECTOR Trustee or director | 2 | $0 |
990 for the year ended December 31, 2023: 14 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| KELLY MIETTUNEN | EXECUTIVE DIRECTOR Key employee | 10 | $100,029 |
| FLORIAN EICHLER MD | PRESIDENT Trustee or director, Officer | 10 | $0 |
| KATHLEEN M O'SULLIVAN-FORTIN ESQ | TREASURER Trustee or director, Officer | 30 | $0 |
| PATRICIA CHAPMAN | SECRETARY Trustee or director, Officer | 5 | $0 |
| GREGORY BENTON | DIRECTOR Trustee or director | 2 | $0 |
| JOSH BONKOWSKY MD PHD | DIRECTOR Trustee or director | 4 | $0 |
| S ALI FATEMI MD | DIRECTOR Trustee or director | 5 | $0 |
| STEPHAN KEMP PHD | DIRECTOR Trustee or director | 5 | $0 |
| BENJAMIN LENAIL | DIRECTOR Trustee or director | 2 | $0 |
| TROY LUND PHD MD | DIRECTOR Trustee or director | 2 | $0 |
| TIMOTHY MAGUIRE | DIRECTOR Trustee or director | 2 | $0 |
| AMBER SALZMAN PHD | DIRECTOR Trustee or director | 2 | $0 |
| ALEX SHERMAN | DIRECTOR Trustee or director | 2 | $0 |
| KEITH VAN HAREN MD | DIRECTOR Trustee or director | 2 | $0 |
Address and contacts
- Address (IRS master file)
- 35 VILLAGE ROAD, MIDDLETON, MA 01949-1234
- Principal officer (990 for 2025)
- TIMOTHY J MAGUIRE, 35 VILLAGE ROAD, MIDDLETON, MA 01949
- Signed the 990
- TIMOTHY J MAGUIRE, TREASURER
- Phone
- (833) 525-3266
- Website
- www.aldconnect.org
- Return prepared by
- BERNARD JOHNSON & COMPANY PC
Mission
TO IMPROVE HEALTH OUTCOMES FOR INDIVIDUALS WITH X-LINKED ADRENOLEUKODYSTROPHY (ALD) BY RAISING AWARENESS, EMPOWERING PATIENTS, AND ACCELERATING THE TRANSLATION
Program accomplishments
- ALD CONNECT IMPROVES HEALTH OUTCOMES FOR INDIVIDUALS AND FAMILIES AFFECTED BY ADRENOLEUKODYSTROPHY (ALD) THROUGH COMMUNITY ENGAGEMENT, RESEARCH, EDUCATION, PATIENT SUPPORT, AND ADVOCACY. THE ORGANIZATION PROVIDES EDUCATIONAL PROGRAMS, WEBINARS, COMMUNITY CALLS, PEER MENTORING, FINANCIAL ASSISTANCE, AND PATIENT RESOURCES; SUPPORTS RESEARCH THROUGH GRANTMAKING, THE EMERGING INVESTIGATOR PROGRAM, AND THE COLLABORATIVE RESEARCH NETWORK; CONVENES PATIENTS, CAREGIVERS, PHYSICIANS, RESEARCHERS, AND INDUSTRY STAKEHOLDERS THROUGH THE ANNUAL MEETING AND PATIENT LEARNING ACADEMY AND OTHER COLLABORATIVE INITIATIVES; AND ADVANCES AWARENESS, ADVOCACY, AND DATA-DRIVEN PROJECTS TO IMPROVE DIAGNOSIS, CARE, TREATMENT, AND QUALITY OF LIFE FOR INDIVIDUALS AFFECTED BY ALD.Expenses $583,392 · grants $216,188 · revenue $962,007
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 46-3749890
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2014
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G80)
- Assets (IRS master file)
- $1,505,709
- Income (IRS master file)
- $982,449
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $982,449 | $780,119 | $1,505,709 | XML |
| 990 | December 2024 | $574,309 | $353,774 | $1,252,052 | XML |
| 990 | December 2023 | $413,327 | $306,862 | $1,033,151 | XML |
| 990 | December 2022 | $378,350 | $486,273 | $934,444 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
| 990 | December 2017 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 46-3749890).
Questions about ALD CONNECT INC
- What is the EIN of ALD CONNECT INC?
- The employer identification number (EIN) of ALD CONNECT INC is 46-3749890.
- Is ALD CONNECT INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2014.
- Are donations to ALD CONNECT INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does ALD CONNECT INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of ALD CONNECT INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did ALD CONNECT INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of ALD CONNECT INC?
- The 990 for the year ended December 31, 2025 names TIMOTHY J MAGUIRE.
- Who are the officers and directors of ALD CONNECT INC?
- The 990 for the year ended December 31, 2025 lists 14 people; 2 received compensation from the organization, the highest $128,606 (KELLY MIETTUNEN, EXECUTIVE DIRECTOR).
- How much revenue does ALD CONNECT INC have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $982,449, expenses of $780,119 and total assets of $1,505,709 at year end.
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