Nonprofit · EIN 46-2762646
RARE TRAIT HOPE FUND
Tax-exempt · BELLE CHASSE, LA 70037
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990-EZ | $103,771 | $93,647 | $10,124 | $55,991 | $20,000 | $35,991 |
| December 31, 2023 | 990-EZ | $73,805 | $222,183 | -$148,378 | $25,867 | $0 | $25,867 |
Financial details: 990-EZ for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $103,771
- Program service revenue
- $0
- Investment income
- $0
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $0
- Salaries, compensation and benefits (total)
- $0
- Professional fees and payments to contractors
- $360
- Printing, publications and postage
- $182
- Other expenses
- $93,105
- Program services (functional)
- $90,943
Balance sheet and other
- Total assets, start of year
- $25,867
- Total assets, end of year
- $55,991
- Total liabilities, end of year
- $20,000
- Net assets, end of year
- $35,991
- Cash, savings and investments
- $55,991
- Gross receipts
- $103,771
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Julia Taravella | President, Executive Director | 40 | $0 |
| Alla Comardelle | Medical Director | 20 | $0 |
| Emily Moran | Director | 5 | $0 |
| Guzel Bilyalova | Secretary, Treasure | 5 | $0 |
| Erik Heywood | Director | 2 | $0 |
| Jody Taravella | Director | 5 | $0 |
990-EZ for the year ended December 31, 2023: 6 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Julia Taravella | President, Executive Director | 50 | $0 |
| Alla Comardelle | Medical Director | 10 | $0 |
| Emily Moran | Director | 5 | $0 |
| Guzel Bilyalova | Secretary, Treasure | 5 | $0 |
| Erik Heywood | Director | 5 | $0 |
| Jody Taravella | Director | 5 | $0 |
Address and contacts
- Address (IRS master file)
- 406 SCHLIEF DR, BELLE CHASSE, LA 70037-2321
- Mailing address (990-N for 2013)
- 406 Schlief Drive, Belle Chasse LA 70037
- Principal officer (990-N for 2013)
- Julia Taravella, 406 Schlief Drive, Belle Chasse LA 70037
- Signed the 990-EZ
- Julia Taravella, Director
- Phone
- (504) 408-1126
- Website
- Www.raretrait.com
Mission
The mission and primary exepmt purpose is to facilitate research, raise funds and support development of treatments for Aspartylglucosaminuria (AGU); to be the resource for doctors, scientists and families world-wide; to increase awareness of rare diseases in general and Aspartylglucosaminuria in particular.
Program accomplishments
- Per FDA feedback from pre-IND meeting in 2018, gene therapy product production is complete. It will be used in a clinical trial for AGU treatment.Expenses $38,643
- AGA drug product vector safety and toxicology study per task order 1, agreement #AGR00026049 signed October 17, 2022Expenses $52,000
- Setting up AGU patient registryExpenses $300
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-EZ on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-EZ on file |
IRS record
- EIN
- 46-2762646
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2013
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H128)
- Assets (IRS master file)
- $55,991
- Income (IRS master file)
- $103,771
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2024 | $103,771 | $93,647 | $55,991 | IRS |
| 990-EZ | December 2023 | $73,805 | $222,183 | $25,867 | XML |
| 990 | December 2022 | $260,648 | $627,071 | $174,245 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990-EZ | December 2020 | – | – | – | IRS |
| 990-N for 2013 Officer: Julia Taravella | December 31, 2013 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 46-2762646).
Questions about RARE TRAIT HOPE FUND
- What is the EIN of RARE TRAIT HOPE FUND?
- The employer identification number (EIN) of RARE TRAIT HOPE FUND is 46-2762646.
- Is RARE TRAIT HOPE FUND tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2013.
- Are donations to RARE TRAIT HOPE FUND tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does RARE TRAIT HOPE FUND file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of RARE TRAIT HOPE FUND due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did RARE TRAIT HOPE FUND last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2024.
- Who is the principal officer of RARE TRAIT HOPE FUND?
- The 990-N for 2013 names Julia Taravella.
- Who are the officers and directors of RARE TRAIT HOPE FUND?
- The 990-EZ for the year ended December 31, 2024 lists 6 people; 0 received compensation from the organization.
- How much revenue does RARE TRAIT HOPE FUND have?
- On its 990-EZ for the year ended December 31, 2024 it reported revenue of $103,771, expenses of $93,647 and total assets of $55,991 at year end.
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