Nonprofit · EIN 45-5308117
THE SNOW FOUNDATION
Tax-exempt · CLAYTON, MO 63105
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $607,564 | $237,983 | $369,581 | $972,917 | -$54 | $972,971 |
| December 31, 2023 | 990 | $477,435 | $224,873 | $252,562 | $603,694 | $304 | $603,390 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $630,248
- Program service revenue
- $0
- Investment income
- $0
- Net income from fundraising events
- -$22,684
- Other revenue
- -$22,684
Expenses
- Grants and similar amounts paid
- $56,910
- Compensation of officers, directors and key employees
- $84,000
- Salaries, compensation and benefits (total)
- $86,322
- Professional fundraising fees
- $0
- Accounting fees
- $6,769
- Travel
- $15,275
- Depreciation
- $1,956
- Program services (functional)
- $206,701
- Management and general (functional)
- $22,766
- Fundraising (functional)
- $8,516
Balance sheet and other
- Total assets, start of year
- $603,694
- Total assets, end of year
- $972,917
- Total liabilities, end of year
- -$54
- Net assets, end of year
- $972,971
- Land, buildings and equipment
- $3,401
- Net assets without donor restrictions
- $972,971
- Gross receipts
- $667,712
- Employees
- 0
- Volunteers
- 8
- Year formed
- 2012
- State of legal domicile
- MO
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| STEPHANIE S GEBEL | PRESIDENT Trustee or director, Officer | 40 | $60,000 |
| PATRICIA M GIBILISCO | PATIENT ADVOCACY LIAISON Trustee or director | 18 | $24,000 |
| SPENCER W OWENS ESQ | SECRETARY Trustee or director, Officer | 1 | $0 |
| ROBERT W HAGGERTY | TREASURER Trustee or director, Officer | 2 | $0 |
| SARAH J GLADSTONE MD | CHIEF SCIENTIFIC OFFICER Trustee or director, Officer | 8 | $0 |
| JACK THOMAS SNOW | DIRECTOR COMMUNICATIONS Trustee or director | 2 | $0 |
990 for the year ended December 31, 2023: 6 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| STEPHANIE S GEBEL | PRESIDENT Trustee or director, Officer | 40 | $20,000 |
| PATRICIA M GIBILISCO | DIRECTOR PATIENT ADVOCACY Trustee or director | 5 | $18,000 |
| TOD STEPHENS | SECRETARY Trustee or director, Officer | 1 | $0 |
| ROBERT HAGGERTY | TREASURER Trustee or director, Officer | 2 | $0 |
| SAAD NASEER | DIRECTOR MEDICAL ADVISOR Trustee or director, Officer | 8 | $0 |
| JACK THOMAS SNOW | DIRECTOR COMMUNICATIONS Trustee or director | 2 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 50224, CLAYTON, MO 63105-5224
- In care of
- % STEPHANIE GEBEL
- Mailing address (990-N for 2012)
- 17703 Gardenview Place Court, Wildwood MO 63038
- Principal officer (990 for 2024)
- STEPHANIE GEBEL, PO BOX 50224, CLAYTON, MO 63105
- Principal officer (990-N for 2012)
- David Bruns, 17703 Gardenview Place Court, Wildwood MO 63038
- Signed the 990
- STEPHANIE GEBEL, PRESIDENT
- Phone
- (636) 448-4134
- Website
- www.thesnowfoundation.org
- Return prepared by
- DONOVAN ROSEMAN & RENFRO LLC
Mission
THE SNOW FOUNDATION IS A COLLECTIVE VOICE FOR WOLFRAM SYNDROME PATIENTS, WORKING TOWARDS A CURE FOR WOLFRAM SYNDROME AND DEVELOPING NOVEL THERAPIES FOR DIABETES, VISION LOSS, HEARING LOSS AND NEURODEGENERATION.WOLFRAM SYNDROME SUPPORTS AND COORDINATES INTERNATIONAL COLLABORATIVE RESEARCH EFFORTS. THE FOUNDATION ALSO PROVIDES VALUABLE INSIGHT, RESOURCES, AND SUPPORT TO THE PATIENTS AND THEIRFAMILIES. THIS EMPOWERS THEM WITH THE KNOWLEDGE NECESSARY TO PARTICIPATE IN THEIR CARE AND POSITIVELY IMPACT THEIR FUTURE.
Program accomplishments
- THE FOUNDATION SUPPORTS AND COORDINATES INTERNATIONAL COLLABORATIVE RESEARCH EFFORTS. THE FOUNDATION IS FOCUSED ON FUELING KNOWLEDGE, SPEEDING BETTER TREATMENTS AND SYMPTOM MANAGEMENT THERAPIES, AND DRIVING ENHANCEMENTS IN THE HEALTH CARE DELIVERY FOR WOLFRAM SYNDROME PATIENTS.THE FOUNDATION ALSO ENCOURAGES THE ENTIRE WOLFRAM SYNDROME COMMUNITY TO COME TOGETHER AND SHARE COMMON LIFE EXPERIENCES, EDUCATION AND MUTUAL AID. BY PROVIDING THESE CRITICAL RESOURCES AND SUPPORT SERVICES, THE FOUNDATION ENABLES WOLFRAM SYNDROME PATIENTS, THEIR FAMILIES AND CAREGIVERS TO POWERFULLY ADVOCATE FOR WHAT THEY NEED, WHEN AND HOW THEY NEED IT.Expenses $206,701 · grants $56,910
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 45-5308117
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2013
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Philanthropy, voluntarism and grantmaking foundations (T30)
- Assets (IRS master file)
- $972,917
- Income (IRS master file)
- $667,712
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $607,564 | $237,983 | $972,917 | XML |
| 990 | December 2023 | $477,435 | $224,873 | $603,694 | XML |
| 990 | December 2022 | $297,516 | $282,674 | $351,722 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
| 990-N for 2012 Officer: David Bruns | December 31, 2012 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 45-5308117).
Questions about THE SNOW FOUNDATION
- What is the EIN of THE SNOW FOUNDATION?
- The employer identification number (EIN) of THE SNOW FOUNDATION is 45-5308117.
- Is THE SNOW FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2013.
- Are donations to THE SNOW FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does THE SNOW FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of THE SNOW FOUNDATION due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did THE SNOW FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of THE SNOW FOUNDATION?
- The 990 for the year ended December 31, 2024 names STEPHANIE GEBEL.
- Who are the officers and directors of THE SNOW FOUNDATION?
- The 990 for the year ended December 31, 2024 lists 6 people; 2 received compensation from the organization, the highest $60,000 (STEPHANIE S GEBEL, PRESIDENT).
- How much revenue does THE SNOW FOUNDATION have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $607,564, expenses of $237,983 and total assets of $972,917 at year end.
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