Nonprofit · EIN 45-4955538
HUNTINGTONS DISEASE YOUTH ORGANIZATION OF AMERICA
Also known as HDYO
Tax-exempt · LIVONIA, MI 48153
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $415,962 | $348,585 | $67,377 | $451,506 | $0 | $451,506 |
| December 31, 2023 | 990 | $430,447 | $297,938 | $132,509 | $384,129 | $0 | $384,129 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $415,962
- Program service revenue
- $0
- Investment income
- $0
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $55,549
- Compensation of officers, directors and key employees
- $110,000
- Salaries, compensation and benefits (total)
- $110,000
- Professional fundraising fees
- $0
- Accounting fees
- $15,356
- Travel
- $20,983
- Program services (functional)
- $328,209
- Management and general (functional)
- $20,376
Balance sheet and other
- Total assets, start of year
- $384,129
- Total assets, end of year
- $451,506
- Total liabilities, end of year
- $0
- Net assets, end of year
- $451,506
- Net assets without donor restrictions
- $425,306
- Net assets with donor restrictions
- $26,200
- Gross receipts
- $415,962
- Employees
- 0
- Volunteers
- 25
- Year formed
- 2013
- State of legal domicile
- MN
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| JENNA HEILMAN | EXECUTIVE DIRECTOR Trustee or director, Officer | 15 | $110,000 |
| DR BONNIE HENNIG-TRESTMENT | BOARD MEMBER Trustee or director | 2 | $0 |
| TREY RANDALL | TERM ENDED AUGUST 2024 Trustee or director, Officer | 15 | $0 |
| JARROD STRYDOM | TERM ENDED MARCH 2024 Trustee or director, Officer | 15 | $0 |
| DR KELLY ATKINS | VICE CHAIR, INTERIM SECRETARY Trustee or director, Officer | 2 | $0 |
| DR LAUREN BYRNE | BOARD MEMBER Trustee or director | 2 | $0 |
| LAUREN YOUNGBORG | TERM ENDED AUGUST 2024 Trustee or director | 2 | $0 |
| ASHLEY CLARKE | BOARD MEMBER Trustee or director | 2 | $0 |
| MATTHEW SHORE | TERM ENDED AUGUST 2024 Trustee or director | 2 | $0 |
| CLARE BRAITHWAITE | BOARD MEMBER Trustee or director | 2 | $0 |
| JENNY HARTE | BOARD MEMBER Trustee or director | 2 | $0 |
| ARIANA PULLIN | CHAIR Trustee or director | 2 | $0 |
| PAUL CONN | BOARD MEMBER Trustee or director | 2 | $0 |
| DR KATHERINE MCDONELL | BOARD MEMBER Trustee or director | 2 | $0 |
990 for the year ended December 31, 2023: 15 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| JENNA HEILMAN | EXECUTIVE DIRECTOR Trustee or director, Officer | 15 | $113,333 |
| DR BONNIE HENNIG-TRESTMENT | BOARD MEMBER Trustee or director | 2 | $0 |
| SETH ROTBERG | TERM ENDED 08/2023 Trustee or director | 2 | $0 |
| HAYLEY HUBBERSTEY | TERM ENDED 01/2023 Trustee or director, Officer | 15 | $0 |
| TREY RANDALL | SECRETARY Trustee or director, Officer | 15 | $0 |
| JARROD STRYDOM | TREASURER Trustee or director, Officer | 15 | $0 |
| DR KELLY ATKINS | INTERIM BOARD CHAIR Trustee or director | 2 | $0 |
| DR LAUREN BYRNE | BOARD MEMBER Trustee or director | 2 | $0 |
| LAUREN YOUNGBORG | BOARD MEMBER Trustee or director | 2 | $0 |
| ASHLEY CLARKE | BOARD MEMBER Trustee or director | 2 | $0 |
| MATTHEW SHORE | BOARD MEMBER Trustee or director | 2 | $0 |
| CLARE BRAITHWAITE | BOARD MEMBER Trustee or director | 2 | $0 |
| JENNY HARTE | BOARD MEMBER Trustee or director | 2 | $0 |
| ARIANA PULLIN | CHAIR Trustee or director | 2 | $0 |
| PAUL CONN | BOARD MEMBER Trustee or director | 2 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 530276, LIVONIA, MI 48153-0276
- In care of
- % BRYAN VIAU JR
- Mailing address (990-N for 2014)
- 17 N Loomis St 4G, Chicago IL 60607
- Principal officer (990 for 2024)
- JENNA HEILMAN, 37824 N LAUREL PARK DRIVE, LIVONIA, MI 48152
- Principal officer (990-N for 2014)
- Bryan Viau Jr, 17 N Loomis St 4G, Chicago IL 60607
- Signed the 990
- JENNA HEILMAN, EXECTUTIVE DIRECTOR
- Phone
- (952) 270-5428
- Website
- www.HDYO.org
- Return prepared by
- LEE & CROWLEY LLC
Mission
THE HUNTINGTON'S DISEASE YOUTH ORGANIZATION OF AMERICA IS A NON-PROFIT ORGANIZATION SET UP TO SPECIFICALLY PROVIDE SUPPORT FOR YOUNG PEOPLE AROUND THE WORLD IMPACTED BY HUNTINGTON'S DISEASE. THE ORGANIZATION PROVIDES SUPPORT, EDUCATION AND GUIDANCE TO YOUNG PEOPLE AND THEIR FAMILIES IMPACTED BY HUNTINGTON'S DISEASE AND PROMOTES AWARENESS AND PROVIDES EDUCATION WITHIN PROFESSIONAL SETTINGS FOR THOSE WORKING WITH HUNTINGTON'S DISEASE FAMILIES.
Program accomplishments
- YOUNG ADULT CONGRESS EVENT: INTERNATIONAL YOUNG ADULT EVENT FOR SUPPORT AND EDUCATION.Expenses $33,315 · revenue $20,000
- HDYO CAMP - CAMP OFFERS YOUNG PEOPLE THE CHANCE TO MEET OTHERS IMPACTED BY HD TO LEARN ABOUT HD THROUGH EDUCATIONAL WORKSHOPS, SHARE EXPERIENCES AND ALSO HAVE PLENTY OF FUN PARTICIPATING IN THE MANY ON-SITE ACTIVITIES LIKE SWIMMING, ROCK CLIMBING, HIKING, ARCHERY AND MUCH MORE. THIS WAS HOSTED AT CAMP ST. CHARLES IN MARYLAND. WE WELCOMED 34 CAMPERS AND 26 VOLUNTEERS FOR 5 DAYS OF INTENSE SUPPORT AND COMMUNITY BUILDING. THIS WAS HELD ON AUGUST 11-15.Expenses $72,064 · grants $35,549 · revenue $60,000
- HDYO UK GRANT SUPPORT: HDYO OF AMERICA SUPPORTED OUR SISTER ORGANIZATION, ALSO KNOWN AS HDYO, REGISTERED AS A CHARITY UNDER THE UNITED KINGDOM CHARITY COMISSION. OUR GRANTS PROVIDED FUNDS FOR THE CREATION AND SHARING OF JOINT RESOURCES INCLUDING A WEBSITE, BROCHURES, EDUCATIONAL PROGRAMS, AND MUCH MORE. OUR SISTER ORGANIZATION WORKS INSYNC WITH HDYO-AMERICA TO COMBINE OUR EFFORTS TO PROVIDE THE BEST SUPPORT POSSIBLE FOR ALL YOUNG PEOPLE AROUND THE WORLD IMPACTED BY HD.Expenses $20,000 · grants $20,000
- Expenses $202,830
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 45-4955538
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2014
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G192)
- Assets (IRS master file)
- $451,506
- Income (IRS master file)
- $415,962
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $415,962 | $348,585 | $451,506 | XML |
| 990 | December 2023 | $430,447 | $297,938 | $384,129 | XML |
| 990 | December 2022 | $220,565 | $229,787 | $251,620 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2019 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
| 990-N for 2014 Officer: Bryan Viau Jr | December 31, 2014 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 45-4955538).
Questions about HUNTINGTONS DISEASE YOUTH ORGANIZATION OF AMERICA
- What is the EIN of HUNTINGTONS DISEASE YOUTH ORGANIZATION OF AMERICA?
- The employer identification number (EIN) of HUNTINGTONS DISEASE YOUTH ORGANIZATION OF AMERICA is 45-4955538.
- Is HUNTINGTONS DISEASE YOUTH ORGANIZATION OF AMERICA tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2014.
- Are donations to HUNTINGTONS DISEASE YOUTH ORGANIZATION OF AMERICA tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does HUNTINGTONS DISEASE YOUTH ORGANIZATION OF AMERICA file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of HUNTINGTONS DISEASE YOUTH ORGANIZATION OF AMERICA due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did HUNTINGTONS DISEASE YOUTH ORGANIZATION OF AMERICA last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of HUNTINGTONS DISEASE YOUTH ORGANIZATION OF AMERICA?
- The 990 for the year ended December 31, 2024 names JENNA HEILMAN.
- Who are the officers and directors of HUNTINGTONS DISEASE YOUTH ORGANIZATION OF AMERICA?
- The 990 for the year ended December 31, 2024 lists 14 people; 1 received compensation from the organization, the highest $110,000 (JENNA HEILMAN, EXECUTIVE DIRECTOR).
- How much revenue does HUNTINGTONS DISEASE YOUTH ORGANIZATION OF AMERICA have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $415,962, expenses of $348,585 and total assets of $451,506 at year end.
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All nonprofits in LIVONIA · Michigan · Voluntary health associations and medical disciplines