Nonprofit · EIN 45-4470463
FORGOTTEN DISEASES RESEARCH FOUNDATION
Tax-exempt · SANTA CLARA, CA 95050
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990-EZ | $136,775 | $100,328 | $36,447 | $156,872 | $0 | $156,872 |
| December 31, 2024 | 990-EZ | $87,074 | $83,404 | $3,670 | $120,425 | – | $120,425 |
| December 31, 2023 | 990-EZ | $72,404 | $78,617 | -$6,213 | $116,755 | – | $116,755 |
Financial details: 990-EZ for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $135,998
- Investment income
- $777
Expenses
- Compensation of officers, directors and key employees
- $86,420
- Salaries, compensation and benefits (total)
- $92,449
- Printing, publications and postage
- $11
- Other expenses
- $7,868
- Program services (functional)
- $98,520
Balance sheet and other
- Total assets, start of year
- $120,425
- Total assets, end of year
- $156,872
- Total liabilities, end of year
- $0
- Net assets, end of year
- $156,872
- Cash, savings and investments
- $156,872
- Gross receipts
- $136,775
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| VALERIE NATALE | TREASURER | 40 | $73,500 |
| MARTIN O'CONNOR | PRESIDENT | 4 | $12,920 |
| NATALIA LUKOMSKI QUIROZ | SECRETARY | 0.5 | $0 |
| HEATHER KERR | BOARD MEMBER | 0.5 | $0 |
990-EZ for the year ended December 31, 2024: 4 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| VALERIE NATALE | TREASURER | 40 | $59,625 |
| MARTIN OCONNOR | PRESIDENT | 4 | $6,360 |
| NATALIA LUKOMSKI QUIROZ | SECRETARY | 0.5 | $0 |
| HEATHER KERR | BOARD MEMBER | 0.5 | $0 |
990-EZ for the year ended December 31, 2023: 4 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| VALERIE NATALE | TREASURER | 40 | $51,150 |
| MARTIN OCONNOR | PRESIDENT | 4 | $8,080 |
| NATALIA LUKOMSKI QUIROZ | SECRETARY | 0.5 | $0 |
| HEATHER KERR | BOARD MEMBER | 0.5 | $0 |
Address and contacts
- Address (IRS master file)
- 604 MALARIN AVE, SANTA CLARA, CA 95050-6942
- In care of
- % VALERIE NATALE
- Signed the 990-EZ
- MARTIN O CONNOR, PRESIDENT
- Phone
- (408) 529-5755
- Website
- WWW.FORGOTTENDISEASES.ORG
- Return prepared by
- Block Advisors
California records
California keeps its own records of charities and corporations. Search them by EIN 45-4470463 or by the name FORGOTTEN DISEASES RESEARCH FOUNDATION.
- Attorney General, Registry of Charities and Fundraisers
- Registration status and filed reports (CT-TR-1, RRF-1)
- Secretary of State, bizfile Online
- Corporation status, entity number, agent for service
- Franchise Tax Board
- Entity status letter (state tax exemption, good standing)
Mission
FORGOTTON DISEASES RESEARCH FOUNDATION IS A NONPROFIT DEDICATED TO VERY RARE DISORDERS. THE GOALS ARE TO IMPROVE THE QUALITY OF LIFE OF PATIENTS WITH THESE DISORDERS AND TO IMPROVE RESEARCH PRACTICES IN THE FOLLOWING WAYS: -CREATING A SINGLE PLACE FOR DISSEMINATING INFORMATION ABOUT VERY RARE DISEASES. -HELPING PEOPLE DIAGNOSE VERY RARE DISEASES. -DISCOVERING THE MOST ROBUST SCIENTIFIC APPROACHES TO STUDYING RARE DISEASES. -DISSEMINATING INFORMATION TO FAMILIES THAT WILL HELP THEM CARE FOR SICK FAMILY MEMBERS. -EDUCATING THE PUBLIC ABOUT WHAT CAN BE LEARNED FROM THE STUDY OF RARE DISEASES. -MAKING PHYSICIANS MORE KNOWLEDGEABLE ABOUT THESE DISEASES.
Program accomplishments
- CREATED WEBSITE WHICH IS LARGE REPOSITORY OF GROWTH INFORMATION FOR CHILDREN AROUND THE WORLD INCLUDING 35 COUNTRIES. SUBMITTED LARGE STUDY FOR PUBLICATION. THE STUDY COMPARES GROWTH IN CHILDREN AROUND THE WORLD WITH THE WORLD HEALTH ORGANIZATION'S INTERNATIONAL GROWTH CURVES.Expenses $98,520
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990-EZ on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-EZ on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-EZ on file |
IRS record
- EIN
- 45-4470463
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2012
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H99)
- Assets (IRS master file)
- $156,872
- Income (IRS master file)
- $136,775
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2025 | $136,775 | $100,328 | $156,872 | IRS |
| 990-EZ | December 2024 | $87,074 | $83,404 | $120,425 | XML |
| 990-EZ | December 2023 | $72,404 | $78,617 | $116,755 | XML |
| 990-EZ | December 2022 | – | – | – | IRS |
| 990-EZ | December 2021 | – | – | – | IRS |
| 990-EZ | December 2020 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 45-4470463).
Questions about FORGOTTEN DISEASES RESEARCH FOUNDATION
- What is the EIN of FORGOTTEN DISEASES RESEARCH FOUNDATION?
- The employer identification number (EIN) of FORGOTTEN DISEASES RESEARCH FOUNDATION is 45-4470463.
- Is FORGOTTEN DISEASES RESEARCH FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2012.
- Are donations to FORGOTTEN DISEASES RESEARCH FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does FORGOTTEN DISEASES RESEARCH FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of FORGOTTEN DISEASES RESEARCH FOUNDATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did FORGOTTEN DISEASES RESEARCH FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2025.
- Who are the officers and directors of FORGOTTEN DISEASES RESEARCH FOUNDATION?
- The 990-EZ for the year ended December 31, 2025 lists 4 people; 2 received compensation from the organization, the highest $73,500 (VALERIE NATALE, TREASURER).
- How much revenue does FORGOTTEN DISEASES RESEARCH FOUNDATION have?
- On its 990-EZ for the year ended December 31, 2025 it reported revenue of $136,775, expenses of $100,328 and total assets of $156,872 at year end.
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