Nonprofit · EIN 45-3768161
CYSTIC FIBROSIS RESEARCH FUND
Also known as EMILYS ENTOURAGE
Tax-exempt (reinstated) · ARDMORE, PA 19003
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $3,033,288 | $2,762,609 | $270,679 | $5,622,025 | $25,249 | $5,596,776 |
| December 31, 2024 | 990 | $3,451,167 | $2,959,423 | $491,744 | $5,958,828 | $632,731 | $5,326,097 |
| December 31, 2023 | 990 | $2,799,957 | $2,119,809 | $680,148 | $5,004,389 | $170,036 | $4,834,353 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $2,953,840
- Program service revenue
- $0
- Investment income
- $207,704
- Net income from fundraising events
- -$175,067
- Other revenue
- -$128,256
Expenses
- Grants and similar amounts paid
- $1,270,594
- Compensation of officers, directors and key employees
- $0
- Other salaries and wages
- $799,335
- Salaries, compensation and benefits (total)
- $823,516
- Professional fundraising fees
- $0
- Travel
- $57,051
- Depreciation
- $241
- Program services (functional)
- $2,302,449
- Management and general (functional)
- $191,227
- Fundraising (functional)
- $268,933
Balance sheet and other
- Total assets, start of year
- $5,958,828
- Total assets, end of year
- $5,622,025
- Total liabilities, end of year
- $25,249
- Net assets, end of year
- $5,596,776
- Land, buildings and equipment
- $2,173
- Net assets without donor restrictions
- $5,596,776
- Gross receipts
- $3,208,355
- Employees
- 11
- Year formed
- 1987
- State of legal domicile
- PA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Greg Reh | Director Trustee or director | 0.5 | $0 |
| Jessica Rutstein Lazarus | Director Trustee or director | 0.5 | $0 |
| Beth Shapiro Lavin | Director Trustee or director | 2 | $0 |
| Julie Wertheimer | Director Trustee or director | 0.2 | $0 |
| Coby Kramer Golinkoff | Director Trustee or director | 5 | $0 |
| Danielle Selber | Director Trustee or director | 0.5 | $0 |
| Doug Young | Director Trustee or director | 0.2 | $0 |
| Nickie Boston | Director Trustee or director | 1 | $0 |
| Emily Kramer Golinkoff | Director Trustee or director | 10 | $0 |
| Nick Dinges | Director Trustee or director | 1 | $0 |
| Joan Denenberg | Director Trustee or director | 2 | $0 |
| Michael Golinkoff | President Trustee or director, Officer | 10 | $0 |
| Elizabeth Kramer | Secretary Trustee or director, Officer | 20 | $0 |
| Nancy Astor Fox | Director Trustee or director | 0.2 | $0 |
990 for the year ended December 31, 2024: 14 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Greg Reh | Director Trustee or director | 0.5 | $0 |
| Jessica Rutstein Lazarus | Director Trustee or director | 0.5 | $0 |
| Beth Shapiro Lavin | Director Trustee or director | 2 | $0 |
| Julie Wertheimer | Director Trustee or director | 0.2 | $0 |
| Coby Kramer Golinkoff | Director Trustee or director | 5 | $0 |
| Danielle Selber | Director Trustee or director | 0.5 | $0 |
| Doug Young | Director Trustee or director | 0.2 | $0 |
| Nickie Boston | Director Trustee or director | 1 | $0 |
| Emily Kramer Golinkoff | Director Trustee or director | 10 | $0 |
| Nick Dinges | Director Trustee or director | 1 | $0 |
| Joan Denenberg | Director Trustee or director | 2 | $0 |
| Michael Golinkoff | President Trustee or director, Officer | 10 | $0 |
| Elizabeth Kramer | Secretary Trustee or director, Officer | 20 | $0 |
| Nancy Astor Fox | Director Trustee or director | 0.2 | $0 |
990 for the year ended December 31, 2023: 14 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Greg Reh | Director Trustee or director | 0.5 | $0 |
| Jessica Rutstein Lazarus | Director Trustee or director | 0.5 | $0 |
| Beth Shapiro Lavin | Director Trustee or director | 2 | $0 |
| Julie Wertheimer | Director Trustee or director | 0.2 | $0 |
| Coby Kramer Golinkoff | Director Trustee or director | 5 | $0 |
| Danielle Selber | Director Trustee or director | 0.5 | $0 |
| Doug Young | Director Trustee or director | 0.2 | $0 |
| Nickie Boston | Director Trustee or director | 1 | $0 |
| Emily Kramer Golinkoff | Director Trustee or director | 10 | $0 |
| Nick Dinges | Director Trustee or director | 1 | $0 |
| Nancy Astor Fox | Director Trustee or director | 0.2 | $0 |
| Joan Denenberg | Director Trustee or director | 2 | $0 |
| Michael Golinkoff | President Trustee or director, Officer | 10 | $0 |
| Elizabeth Kramer | Secretary Trustee or director, Officer | 20 | $0 |
Address and contacts
- Address (IRS master file)
- 100 SAINT GEORGES RD UNIT G1, ARDMORE, PA 19003-2531
- In care of
- % MICHAEL GOLINKOFF
- Principal officer (990 for 2025)
- Michael Golinkoff, 100 St Georges Road STE G1, Ardmore, PA 19003
- Signed the 990
- Michael Golinkoff, President
- Phone
- (215) 341-6720
- Website
- www.emilysentourage.org
- Return prepared by
- Michael Rosen & Company
Mission
The organization accelerates research and drug development for the final 10 of the cystic fibrosis community that do not benefit from the currently available mutation-targeted therapies.
Program accomplishments
- The organization raises money for cystic fibrosis research through direct solicitation activities.Expenses $2,302,449 · revenue $1,281,477
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 45-3768161
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2012
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G20)
- Assets (IRS master file)
- $5,622,025
- Income (IRS master file)
- $3,208,355
Revocation and reinstatement
- Exemption revoked
- May 15, 2010
- Posted by the IRS
- June 11, 2012
- Reinstated
- Effective May 15, 2010
From the IRS automatic revocation list: organizations that did not file a required return or e-Postcard for three consecutive years.
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $3,033,288 | $2,762,609 | $5,622,025 | IRS |
| 990 | December 2024 | $3,451,167 | $2,959,423 | $5,958,828 | IRS |
| 990 | December 2023 | $2,799,957 | $2,119,809 | $5,004,389 | XML |
| 990 | December 2022 | $1,789,652 | $1,954,560 | $4,247,786 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 45-3768161).
Questions about CYSTIC FIBROSIS RESEARCH FUND
- What is the EIN of CYSTIC FIBROSIS RESEARCH FUND?
- The employer identification number (EIN) of CYSTIC FIBROSIS RESEARCH FUND is 45-3768161.
- Is CYSTIC FIBROSIS RESEARCH FUND tax-exempt?
- Yes. The IRS revoked its exemption on May 15, 2010 and reinstated it effective May 15, 2010.
- Are donations to CYSTIC FIBROSIS RESEARCH FUND tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does CYSTIC FIBROSIS RESEARCH FUND file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of CYSTIC FIBROSIS RESEARCH FUND due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did CYSTIC FIBROSIS RESEARCH FUND last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of CYSTIC FIBROSIS RESEARCH FUND?
- The 990 for the year ended December 31, 2025 names Michael Golinkoff.
- Who are the officers and directors of CYSTIC FIBROSIS RESEARCH FUND?
- The 990 for the year ended December 31, 2025 lists 14 people; 0 received compensation from the organization.
- How much revenue does CYSTIC FIBROSIS RESEARCH FUND have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $3,033,288, expenses of $2,762,609 and total assets of $5,622,025 at year end.
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All nonprofits in ARDMORE · Pennsylvania · Voluntary health associations and medical disciplines