Nonprofit · EIN 45-2284811
LI FRAUMENI SYNDROME ASSOCIATION
Tax-exempt · BELLINGHAM, MA 02019
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $277,931 | $275,728 | $2,203 | $114,375 | $354 | $114,021 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $0
- Program service revenue
- $277,925
- Investment income
- $6
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $0
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Travel
- $28,973
- Program services (functional)
- $270,475
- Management and general (functional)
- $5,253
Balance sheet and other
- Total assets, start of year
- $112,680
- Total assets, end of year
- $114,375
- Total liabilities, end of year
- $354
- Net assets, end of year
- $114,021
- Net assets without donor restrictions
- $114,021
- Gross receipts
- $277,931
- Employees
- 0
- Volunteers
- 130
- Year formed
- 2011
- State of legal domicile
- MA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Rob Lufkin | Med. Director Trustee or director | 5 | $0 |
| Deb Soprano | Dev. Director Trustee or director | 25 | $0 |
| Gina Vild | Comm. Trustee or director | 25 | $0 |
| Kathy Higgins | Educ. & Aware. Trustee or director | 15 | $0 |
| Sean Downing | Science Trustee or director | 3 | $0 |
| Jennifer Perry | President/Co- Founder Officer | 25 | $0 |
| Holly Fraumeni | Vice President Officer | 25 | $0 |
| Erica Kirschner | Secretary Officer | 10 | $0 |
| Michele Giovenelli | Treasurer Officer | 2 | $0 |
Address and contacts
- Address (IRS master file)
- 50 S MAIN ST, BELLINGHAM, MA 02019-2020
- In care of
- % JOHN BERKELEY
- Principal officer (990 for 2024)
- Jennifer Perry, 196 Fletcher Circle, Chicopee, MA 01020
- Signed the 990
- Jennifer Perry, President
- Phone
- (774) 266-0503
- Return prepared by
- Dugre Croteau Morton & Co PC
Mission
Li-Fraumeni Syndrome Association, Inc. provides a wide range of information, advocacy, and support services for individuals and families with Li Fraumeni Syndrome. We support a consortium of researchers, medical providers and caregivers to further research and promote optimal care for the LFS community.
Program accomplishments
- LFSA organized and financially supported the annual international LFSA Conference wherein lending researchers, providers, genetic counselors, patients and their families from all over the world shared LFSA experiences and information on the most recent LFSA cancer research, screening protocols, potential treatments, and survivorship issues. The LFSA provided patient travel scholarships for those who could otherwise not afford to attend and funded conference events and materials.Expenses $270,475
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | Check at the IRS |
IRS record
- EIN
- 45-2284811
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2014
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Health care (E86)
- Assets (IRS master file)
- $114,375
- Income (IRS master file)
- $277,931
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $277,931 | $275,728 | $114,375 | XML |
| 990-EZ | December 2022 | – | – | – | IRS |
| 990-EZ | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
| 990 | December 2017 | – | – | – | IRS |
| 990 | December 2016 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 45-2284811).
Questions about LI FRAUMENI SYNDROME ASSOCIATION
- What is the EIN of LI FRAUMENI SYNDROME ASSOCIATION?
- The employer identification number (EIN) of LI FRAUMENI SYNDROME ASSOCIATION is 45-2284811.
- Is LI FRAUMENI SYNDROME ASSOCIATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2014.
- Are donations to LI FRAUMENI SYNDROME ASSOCIATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does LI FRAUMENI SYNDROME ASSOCIATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of LI FRAUMENI SYNDROME ASSOCIATION due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did LI FRAUMENI SYNDROME ASSOCIATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of LI FRAUMENI SYNDROME ASSOCIATION?
- The 990 for the year ended December 31, 2024 names Jennifer Perry.
- Who are the officers and directors of LI FRAUMENI SYNDROME ASSOCIATION?
- The 990 for the year ended December 31, 2024 lists 9 people; 0 received compensation from the organization.
- How much revenue does LI FRAUMENI SYNDROME ASSOCIATION have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $277,931, expenses of $275,728 and total assets of $114,375 at year end.
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