Nonprofit · EIN 45-0593226
HANNAHS HOPE FOR GIANT AXONAL NEUROPATHY INC
Tax-exempt · REXFORD, NY 12148
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $198,405 | $538,454 | -$340,049 | $2,879,947 | $220,033 | $2,659,914 |
| December 31, 2023 | 990 | $97,225 | $6,029,768 | -$5,932,543 | $4,672,730 | $1,822,104 | $2,850,626 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $12,283
- Program service revenue
- $0
- Investment income
- $186,122
- Net gain from sales of assets
- $67,927
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $232,248
- Other salaries and wages
- $190,500
- Salaries, compensation and benefits (total)
- $223,424
- Professional fundraising fees
- $0
- Legal fees
- $24,106
- Accounting fees
- $1,497
- Travel
- $7,929
- Program services (functional)
- $470,784
- Management and general (functional)
- $67,670
Balance sheet and other
- Total assets, start of year
- $4,672,730
- Total assets, end of year
- $2,879,947
- Total liabilities, end of year
- $220,033
- Net assets, end of year
- $2,659,914
- Publicly traded securities
- $2,408,334
- Net assets without donor restrictions
- $2,659,914
- Gross receipts
- $2,034,718
- Employees
- 1
- Year formed
- 2008
- State of legal domicile
- NY
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| LORI SAMES | EXECUTIVE DI Key employee | – | $190,500 | $19,779 |
| ALLISON T MOORE | PRESIDENT Trustee or director, Officer | – | $0 | $0 |
| KATIE HOGAN | SECRETARY Trustee or director, Officer | – | $0 | $0 |
| KATHY BUCKLEY | TREASURER Trustee or director, Officer | – | $0 | $0 |
| JOSEPH GERARD HACIA PHD | DIRECTOR Trustee or director | – | $0 | $0 |
| CHRISTA GAGNON | DIRECTOR Trustee or director | – | $0 | $0 |
| AMBER N FREED | DIRECTOR Trustee or director | – | $0 | $0 |
990 for the year ended December 31, 2023: 7 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| LORI SAMES | EXECUTIVE DI Key employee | – | $190,500 | $25,953 |
| ALLISON T MOORE | PRESIDENT Trustee or director, Officer | – | $0 | $0 |
| KATIE HOGAN | SECRETARY Trustee or director, Officer | – | $0 | $0 |
| KATHY BUCKLEY | TREASURER Trustee or director, Officer | – | $0 | $0 |
| JOSEPH GERARD HACIA PHD | DIRECTOR Trustee or director | – | $0 | $0 |
| CHRISTA GAGNON | DIRECTOR Trustee or director | – | $0 | $0 |
| AMBER N FREED | DIRECTOR Trustee or director | – | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 19 BLUE JAY WAY, REXFORD, NY 12148-1333
- In care of
- % MATT SAMES
- Principal officer (990 for 2024)
- ALLISON T MOORE, 70 RAILROAD PL APT 305, SARATOGA SPRINGS, NY 128663058
- Signed the 990
- ALLISON T MOORE, PRESIDENT
- Phone
- (518) 275-5359
- Website
- HANNAHSHOPEFUND.COM
- Return prepared by
- BOULRICE & WOOD CPAS PC
Mission
DEDICATED TO FUNDING RESEARCH FOR A TREATMENT AND/OR A CURE FOR GIANT AXONAL NEUROPATHY.
Program accomplishments
- GRANTS TO FUND GAN GENE THERAPY TRANSDUCTION TO NEURONS RESEARCH TO IMPACT DISEASE PROGRESSIONExpenses $470,784 · grants $232,248
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 45-0593226
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2008
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H12)
- Assets (IRS master file)
- $2,879,947
- Income (IRS master file)
- $2,034,718
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $198,405 | $538,454 | $2,879,947 | XML |
| 990 | December 2023 | $97,225 | $6,029,768 | $4,672,730 | XML |
| 990 | December 2022 | -$717,738 | $620,035 | $8,206,230 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
| 990 | December 2017 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 45-0593226).
Questions about HANNAHS HOPE FOR GIANT AXONAL NEUROPATHY INC
- What is the EIN of HANNAHS HOPE FOR GIANT AXONAL NEUROPATHY INC?
- The employer identification number (EIN) of HANNAHS HOPE FOR GIANT AXONAL NEUROPATHY INC is 45-0593226.
- Is HANNAHS HOPE FOR GIANT AXONAL NEUROPATHY INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2008.
- Are donations to HANNAHS HOPE FOR GIANT AXONAL NEUROPATHY INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does HANNAHS HOPE FOR GIANT AXONAL NEUROPATHY INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of HANNAHS HOPE FOR GIANT AXONAL NEUROPATHY INC due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did HANNAHS HOPE FOR GIANT AXONAL NEUROPATHY INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of HANNAHS HOPE FOR GIANT AXONAL NEUROPATHY INC?
- The 990 for the year ended December 31, 2024 names ALLISON T MOORE.
- Who are the officers and directors of HANNAHS HOPE FOR GIANT AXONAL NEUROPATHY INC?
- The 990 for the year ended December 31, 2024 lists 7 people; 1 received compensation from the organization, the highest $190,500 (LORI SAMES, EXECUTIVE DI).
- How much revenue does HANNAHS HOPE FOR GIANT AXONAL NEUROPATHY INC have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $198,405, expenses of $538,454 and total assets of $2,879,947 at year end.
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