Nonprofit · EIN 43-1568496
SOTOS SYNDROME SUPPORT ASSOCIATION
Also known as C-O JEAN NESHEK-DOWE
Tax-exempt · WHEATON, IL 60189
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990-EZ | $109,127 | $44,038 | $65,089 | $294,367 | – | $294,367 |
| December 31, 2024 | 990-EZ | $119,595 | $116,140 | $3,455 | $229,278 | – | $229,278 |
| December 31, 2023 | 990-EZ | $64,185 | $97,804 | -$33,619 | $225,823 | – | $225,823 |
Financial details: 990-EZ for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $28,211
- Membership dues
- $7,630
- Program service revenue
- $43,355
- Investment income
- $2,347
- Net income from fundraising events
- $26,558
- Other revenue
- $1,026
Expenses
- Compensation of officers, directors and key employees
- $0
- Occupancy
- $1,667
- Printing, publications and postage
- $1,449
- Other expenses
- $40,922
- Program services (functional)
- $38,264
Balance sheet and other
- Total assets, start of year
- $229,278
- Total assets, end of year
- $294,367
- Total liabilities, end of year
- –
- Net assets, end of year
- $294,367
- Cash, savings and investments
- $293,533
- Gross receipts
- $109,127
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| MICHELLE MERCADO | PRESIDENT & | 0 | $0 |
| BRIAN HAYS | VICE PRESIDE | 0 | $0 |
| DEJA CRUZ | VICE PRESIDE | 0 | $0 |
| KAYLA SEIF | SECRETARY | 0 | $0 |
| MICHELE MARSHAL | TREASURER | 0 | $0 |
| LINNEA DUGAN | DIRECTOR | 0 | $0 |
| RACHEAL RIEFLER | DIRECTOR | 0 | $0 |
| ROBERTA MORGAN | DIRECTOR | 0 | $0 |
| OWEN EIGENBERG | DIRECTOR | 0 | $0 |
| SONNY MERCADO | DIRECTOR | 0 | $0 |
| DESRAY REEB | DIRECTOR | 0 | $0 |
| ROBERT NAKAO | DIRECTOR | 0 | $0 |
| MONIQUE ALLOWAY | DIRECTOR | 0 | $0 |
990-EZ for the year ended December 31, 2024: 13 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| MICHELLE MERCADO | PRESIDENT & | 0 | $0 |
| BRIAN HAYS | VICE PRESIDE | 0 | $0 |
| DEJA CRUZ | VICE PRESIDE | 0 | $0 |
| KAYLA SEIF | SECRETARY | 0 | $0 |
| MICHELE MARSHAL | TREASURER | 0 | $0 |
| LINNEA DUGAN | DIRECTOR | 0 | $0 |
| RACHEAL RIEFLER | DIRECTOR | 0 | $0 |
| ROBERTA MORGAN | DIRECTOR | 0 | $0 |
| OWEN EIGENBERG | DIRECTOR | 0 | $0 |
| SONNY MERCADO | DIRECTOR | 0 | $0 |
| DESRAY REEB | DIRECTOR | 0 | $0 |
| ROBERT NAKAO | DIRECTOR | 0 | $0 |
| MONIQUE ALLOWAY | DIRECTOR | 0 | $0 |
990-EZ for the year ended December 31, 2023: 13 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| MICHELLE MERCADO | PRESIDENT & | 0 | $0 |
| BRIAN HAYS | VICE PRESIDE | 0 | $0 |
| DEJA CRUZ | VICE PRESIDE | 0 | $0 |
| KAYLA SEIF | SECRETARY | 0 | $0 |
| MICHELE MARSHAL | TREASURER | 0 | $0 |
| LINNEA DUGAN | DIRECTOR | 0 | $0 |
| RACHEAL RIEFLER | DIRECTOR | 0 | $0 |
| ROBERTA MORGAN | DIRECTOR | 0 | $0 |
| OWEN EIGENBERG | DIRECTOR | 0 | $0 |
| SONNY MERCADO | DIRECTOR | 0 | $0 |
| DESRAY REEB | DIRECTOR | 0 | $0 |
| ROBERT NAKAO | DIRECTOR | 0 | $0 |
| MONIQUE ALLOWAY | DIRECTOR | 0 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 4626, WHEATON, IL 60189-4626
- In care of
- % LISA CRUSE
- Mailing address (990-N for 2015)
- POBOX4626, WHEATON IL 601894626
- Principal officer (990-N for 2015)
- MonicaJacobs, 375WSunsetSt, Gardner IL 66030
- Signed the 990-EZ
- MICHELLE MERCADO, PRESIDENT & DIRECTOR
- Phone
- (888) 246-7772
- Website
- www.sotossyndrome.org
- Return prepared by
- GORENZ AND ASSOCIATES LTD
Mission
SUPPORT AND EDUCATION FOR SOTOS SYNDROME FAMILIES
Program accomplishments
- ONLINE REGISTRATION FOR CONFERENCE, WEBSITE, NEWSLETTERS, EDUCATIONAL INFORMATION TO ASSIST SOTOS SYNDROME FAMILIES, FRIENDS, DOCTORS, TEACHERS, AND PROFESSIONALS IN DEALING WITH THE SYNDROME WHICH ARE UTILIZED BY OVER 300 MEMBERS DURING THE YEAR.Expenses $38,264
- AMORTIZATION EXPENSE
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990-EZ on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-EZ on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-EZ on file |
IRS record
- EIN
- 43-1568496
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (509(a)(2))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1991
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G80M)
- Assets (IRS master file)
- $294,367
- Income (IRS master file)
- $109,127
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2025 | $109,127 | $44,038 | $294,367 | XML |
| 990-EZ | December 2024 | $119,595 | $116,140 | $229,278 | XML |
| 990-EZ | December 2023 | $64,185 | $97,804 | $225,823 | XML |
| 990-EZ | December 2022 | – | – | – | IRS |
| 990-EZ | December 2021 | – | – | – | IRS |
| 990-EZ | December 2020 | – | – | – | IRS |
| 990-N for 2015 Officer: MonicaJacobs | December 31, 2015 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 43-1568496).
Questions about SOTOS SYNDROME SUPPORT ASSOCIATION
- What is the EIN of SOTOS SYNDROME SUPPORT ASSOCIATION?
- The employer identification number (EIN) of SOTOS SYNDROME SUPPORT ASSOCIATION is 43-1568496.
- Is SOTOS SYNDROME SUPPORT ASSOCIATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1991.
- Are donations to SOTOS SYNDROME SUPPORT ASSOCIATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does SOTOS SYNDROME SUPPORT ASSOCIATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of SOTOS SYNDROME SUPPORT ASSOCIATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did SOTOS SYNDROME SUPPORT ASSOCIATION last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2025.
- Who is the principal officer of SOTOS SYNDROME SUPPORT ASSOCIATION?
- The 990-N for 2015 names MonicaJacobs.
- Who are the officers and directors of SOTOS SYNDROME SUPPORT ASSOCIATION?
- The 990-EZ for the year ended December 31, 2025 lists 13 people; 0 received compensation from the organization.
- How much revenue does SOTOS SYNDROME SUPPORT ASSOCIATION have?
- On its 990-EZ for the year ended December 31, 2025 it reported revenue of $109,127, expenses of $44,038 and total assets of $294,367 at year end.
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All nonprofits in WHEATON · Illinois · Voluntary health associations and medical disciplines