Nonprofit · EIN 43-1492959
VASCULITIS FOUNDATION
Tax-exempt · KANSAS CITY, MO 64188
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| June 30, 2025 | 990 | $2,508,810 | $2,383,106 | $125,704 | $6,087,497 | $146,118 | $5,941,379 |
| June 30, 2024 | 990 | $2,956,706 | $2,090,325 | $866,381 | $5,594,826 | $53,633 | $5,541,193 |
| June 30, 2023 | 990 | $3,247,457 | $1,290,245 | $1,957,212 | $4,528,503 | $82,762 | $4,445,741 |
Financial details: 990 for the year ended June 30, 2025
Revenue
- Contributions, gifts and grants
- $2,299,448
- Membership dues
- $70,000
- Program service revenue
- $64,436
- Investment income
- $144,926
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $246,907
- Compensation of officers, directors and key employees
- $149,468
- Other salaries and wages
- $641,639
- Salaries, compensation and benefits (total)
- $911,909
- Professional fundraising fees
- $0
- Legal fees
- $4,074
- Accounting fees
- $109,677
- Occupancy
- $115,117
- Travel
- $157,052
- Depreciation
- $55,158
- Program services (functional)
- $1,522,762
- Management and general (functional)
- $611,600
- Fundraising (functional)
- $248,744
Balance sheet and other
- Total assets, start of year
- $5,594,826
- Total assets, end of year
- $6,087,497
- Total liabilities, end of year
- $146,118
- Net assets, end of year
- $5,941,379
- Land, buildings and equipment
- $130,186
- Publicly traded securities
- $3,358,942
- Net assets without donor restrictions
- $2,566,441
- Net assets with donor restrictions
- $3,374,938
- Gross receipts
- $2,508,810
- Employees
- 11
- Volunteers
- 150
- Year formed
- 1988
- State of legal domicile
- MO
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended June 30, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| JOYCE A KULLMAN | EXECUTIVE DI Officer | 40 | $126,647 | $22,821 |
| KEVIN BYRAM MD | PRESIDENT Trustee or director, Officer | 4 | $0 | $0 |
| SARA BAIRD AMODIO MSW EDD | PAST PRESIDE Trustee or director, Officer | 4 | $0 | $0 |
| ELIZABETH BRANDT MD | SECRETARY Trustee or director, Officer | 4 | $0 | $0 |
| DON NAGLE | TREAS - ENDI Trustee or director, Officer | 4 | $0 | $0 |
| WILLIAM ANDREWS | TREAS - BEG Trustee or director, Officer | 4 | $0 | $0 |
| BRIAN GOLDMAN | VP OF RESOUR Trustee or director, Officer | 4 | $0 | $0 |
| JOCELYN ASHFORD | DIRECTOR Trustee or director | 4 | $0 | $0 |
| CAZ CAZANOV | DIRECTOR Trustee or director | 4 | $0 | $0 |
| NOELLE CREAMER | DIRECTOR Trustee or director | 4 | $0 | $0 |
| VIMAL DEREBAIL MD | DIRECTOR Trustee or director | 4 | $0 | $0 |
| ANISHA B DUA MD MPH | DIRECTOR Trustee or director | 4 | $0 | $0 |
| DAHLIA MAK | DIRECTOR Trustee or director | 4 | $0 | $0 |
| SEBASTIAN SATTUI MD | DIRECTOR Trustee or director | 4 | $0 | $0 |
990 for the year ended June 30, 2024: 12 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| JOYCE A KULLMAN | EXECUTIVE DI Officer | 40 | $110,837 | $19,490 |
| KEVIN BYRAM MD | PRESIDENT Trustee or director, Officer | 4 | $0 | $0 |
| SARA BAIRD AMODIO | PAST PRESIDE Trustee or director, Officer | 4 | $0 | $0 |
| ELIZABETH BRANDT | SECRETARY Trustee or director, Officer | 4 | $0 | $0 |
| DON NAGLE | TREASURER Trustee or director, Officer | 4 | $0 | $0 |
| BRIAN GOLDMAN | VP OF RESOUR Trustee or director, Officer | 4 | $0 | $0 |
| JOCELYN ASHFORD | DIRECTOR Trustee or director | 4 | $0 | $0 |
| CAZ CAZANOV | DIRECTOR Trustee or director | 4 | $0 | $0 |
| SUZANNE DEPAOLIS | DIRECTOR Trustee or director | 4 | $0 | $0 |
| ANISHA B DUA MD | DIRECTOR Trustee or director | 4 | $0 | $0 |
| VICTOR JAMES | DIRECTOR Trustee or director | 4 | $0 | $0 |
| JASON WADLER | DIRECTOR Trustee or director | 4 | $0 | $0 |
990 for the year ended June 30, 2023: 13 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| JOYCE A KULLMAN | EXECUTIVE DI Officer | 40 | $99,642 | $19,694 |
| SARA BAIRD AMODIO | PRESIDENT Trustee or director, Officer | 4 | $0 | $0 |
| KEVIN BYRAM MD | PRESIDENT-EL Trustee or director, Officer | 4 | $0 | $0 |
| SUZANNE DEPAOLIS | PAST PRESIDE Trustee or director, Officer | 4 | $0 | $0 |
| DON NAGLE | TREASURER Trustee or director, Officer | 4 | $0 | $0 |
| NONA BEAR | SECRETARY Trustee or director, Officer | 4 | $0 | $0 |
| BRIAN GOLDMAN | VP OF RESOUR Trustee or director, Officer | 4 | $0 | $0 |
| JOCELYN ASHFORD | DIRECTOR Trustee or director | 4 | $0 | $0 |
| CAZ CAZANOV | DIRECTOR Trustee or director | 4 | $0 | $0 |
| ANISHA B DUA MD | DIRECTOR Trustee or director | 4 | $0 | $0 |
| ELIZABETH BRANDT | DIRECTOR Trustee or director | 4 | $0 | $0 |
| VICTOR JAMES | DIRECTOR Trustee or director | 4 | $0 | $0 |
| JASON WADLER | DIRECTOR Trustee or director | 4 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 28660, KANSAS CITY, MO 64188-8660
- Principal officer (990 for 2024)
- KEVIN BYRAM MD
- Signed the 990
- JOYCE A KULLMAN, EXECUTIVE DIRECTOR
- Phone
- (816) 436-8211
- Website
- WWW.VASCULITISFOUNDATION.ORG
- Return prepared by
- NOVAK BIRKS PC
Mission
BUILDING UPON THE COLLECTIVE STRENGTH OF THE VASCULITIS COMMUNITY, THE VASCULITIS FOUNDATION SUPPORTS, INSPIRES AND EMPOWERS INDIVIDUALS WITH VASCULITIS AND THEIR FAMILIES THROUGH A WIDE RANGE OF EDUCATION, RESEARCH, CLINICAL, AND AWARENESS INITIATIVES. OUR VISION IS TO BE THE LEADING ORGANIZATION IN THE WORLD DEDICATED TO DIGANOSING, TREATING, AND CURING ALL FORMS OF VASCULITIS.
Program accomplishments
- BUILDING UPON THE COLLECTIVE STRENGTH OF THE VASCULITIS COMMUNITY, THE VASCULITIS FOUNDATION (VF) SUPPORTS, INSPIRES, AND EMPOWERS INDIVIDUALS WITH VASCULITIS AND THEIR FAMILIES THROUGH A WIDE RANGE OF EDUCATION, FELLOWSHIP, RESEARCH, CLINICAL, AND AWARENESS INITIATIVES. OUR VISION IS TO BE THE LEADING ORGANIZATION IN THE WORLD DEDICATED TO DIAGNOSING, TREATING, AND CURING ALL FORMS OF VASCULITIS. THE VF PROVIDES SUPPORT THROUGH ITS EXTENSIVE WEBSITE, MONTLHY E-NEWSLETTERS, ELECTRONIC AND PRINTED EDUCATIONAL MATERIALS, PHONE AND EMAIL OUTREACH. WEBSITE VISITORS: 35,000 ANNUALLY; YOUTUBE SUBSCRIBERS: 10,000+ ANNUALLY; MONTHLY E-NEWSLETTER DISTRIBUTION: MORE THAN 14,000 SUBSCRIBERS; AND 3,500 PHONE AND EMAIL REQUESTS FOR ASSISTANCE THIS YEAR. THE VF OFFERS 9 VIRTUAL SUPPORT GROUP MEETINGS MONTHLY FOR PATIENTS OF ALL AGES AND THEIR PARENTS AND CAREGIVERS, ATTRACTING AS MANY AS 275 PARTICIPANTS A MONTH. THE VF OFFERS WIDE-RANGING LIVE AND ON-DEMAND WEBINARS WHICH ADDRESS DISEASE SPOTLIGHTS, MENTAL HEALTH/WELLNESS, RESEARCH, THERAPIES AND TREATMENTS. THE VF HAD 100+ WEBINARS WITH 7,020 HOURS WATCHED, AND 150,000+ VIEWS ON VF'S YOUTUBE EDUCATION CHANNEL. THE VF TEAM HAS BEEN ON THE ROAD THIS YEAR EDUCATING OUR PATIENT COMMUNITY AT REGIONAL CONFERENCES IN AUSTIN, CLEVELAND, NASHVILLE, SANTA MONICA, SCOTTSDALE, SEATTLE, AND WASHINGTON, DC. THE VF TEAM ALSO RAISED AWARENESS IN THE MEDICAL COMMUNITY BY EXHIBITING AT INTERNATIONAL MEDICAL CONFERENCES INCLUDING THE AMERICAN COLLEGE OF RHEUMATOLOGY, AMERICAN SOCIETY OF NEPHROLOGY, AMERICAN THORACIC SOCIETY, CARRA, AND RH APP.Expenses $900,946 · revenue $64,436
- VASCULITIS - BUILDING OUTCOMES, LEADING DISCOVERIES (V-BOLD) PROGRAM COMBINES RESEARCH, FELLOWSHIPS, VASCULITIS CENTERS, AND THE VPPRN WITH THE GOAL TO IMPROVE THE QUALITY OF LIFE FOR PATIENTS WITH VASCULITIS, AND ULTIMATELY FIND THE CAUSE(S) AND CURE FOR VASCULITIS. RESEARCH: THE VF YOUNG INVESTIGATOR AWARD PROVIDES ONE OR TWO-YEAR GRANTS OF UP TO 50,000 TO SUPPORT RESEARCHERS WITHIN FIVE YEARS OF THE COMPLETION OF THEIR FELLOWSHIPS. THE FUNDING SUPPORTS PILOT STUDIES IN RESEARCHING DIAGNOSIS, ETIOLOGY/PATHOGENESIS, EPIDEMIOLOGY, AND TREATMENT/MANAGEMENT. FELLOWSHIPS: THE VF PARTNERS WITH ACADEMIC INSTITUTIONS AND THE VASCULITIS CLINICAL RESEARCH CONSORTIUM (VCRC) TO PROVIDE FELLOWSHIPS FOR PHYSICIAN- INVESTIGATORS WHO HAVE A STRONG INTEREST IN VASCULITIS. THIS MENTORED TRAINING PROGRAM EMPHASIZES CLINICAL, PATIENT-ORIENTED INVESTIGATION. VASCULITIS CENTERS ARE ESSENTIAL IN THE PATIENT JOURNEY - FROM DIAGNOSIS TO TREATMENT TO REMISSION, WITH THE POTENTIAL FOR CURES. VASCULITIS CENTERS PROVIDE COMPREHENSIVE, HIGH-QUALITY, AND COMPASSIONATE CARE TO PATIENTS WITH VASCULITIS. IN ADDITION, THEY HAVE THE CAPACITY TO ADVANCE OUR UNDERSTANDING OF VASCULITIS THROUGH RESEARCH. WITH EXPERTS IN THE MANAGEMENT AND STUDY OF THE DISEASE, VASCULITIS CENTERS ARE AT THE FOREFRONT OF SPECIALTY CARE AND CLINICAL RESEARCH, WHILE TREATING ALL TYPES OF VASCULITIS. IN 2024-25, VF FUNDED 10 GRANTS TOTALLING 246,907. VASCULITIS PATIENT-POWERED RESEARCH NETWORK (VPPRN) IS THE INTERNATIONAL RESEARCH NETWORK OF PATIENTS, SCIENTISTS, CLINICIANS, ADVOCATES AND FAMILY MEMBERS WHO WORK TO IMPROVE THE HEALTH CARE AND QUALITY OF LIFE FOR PEOPLE WITH VASCULITIS THROUGH HIGH-LEVEL CLINICAL RESEARCH.Expenses $621,816 · grants $246,907
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in June, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | June 30, 2026 | November 16, 2026 | Not due yet |
| 2024 | June 30, 2025 | November 17, 2025 | 990 on file |
| 2023 | June 30, 2024 | November 15, 2024 | 990 on file |
IRS record
- EIN
- 43-1492959
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (509(a)(2))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1990
- Accounting year ends
- June
- Files
- Form 990 or 990-EZ
- Assets (IRS master file)
- $6,087,497
- Income (IRS master file)
- $2,508,810
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | June 2025 | $2,508,810 | $2,383,106 | $6,087,497 | XML |
| 990 | June 2024 | $2,956,706 | $2,090,325 | $5,594,826 | XML |
| 990 | June 2023 | $3,247,457 | $1,290,245 | $4,528,503 | XML |
| 990 | June 2022 | – | – | – | IRS |
| 990 | June 2021 | – | – | – | IRS |
| 990 | June 2020 | – | – | – | IRS |
| 990 | June 2019 | – | – | – | IRS |
| 990 | June 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 43-1492959).
Questions about VASCULITIS FOUNDATION
- What is the EIN of VASCULITIS FOUNDATION?
- The employer identification number (EIN) of VASCULITIS FOUNDATION is 43-1492959.
- Is VASCULITIS FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1990.
- Are donations to VASCULITIS FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does VASCULITIS FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of VASCULITIS FOUNDATION due?
- The return for tax year 2025 (the year ending June 30, 2026) is due November 16, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did VASCULITIS FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended June 2025.
- Who is the principal officer of VASCULITIS FOUNDATION?
- The 990 for the year ended June 30, 2025 names KEVIN BYRAM MD.
- Who are the officers and directors of VASCULITIS FOUNDATION?
- The 990 for the year ended June 30, 2025 lists 14 people; 1 received compensation from the organization, the highest $126,647 (JOYCE A KULLMAN, EXECUTIVE DI).
- How much revenue does VASCULITIS FOUNDATION have?
- On its 990 for the year ended June 30, 2025 it reported revenue of $2,508,810, expenses of $2,383,106 and total assets of $6,087,497 at year end.
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