Nonprofit · EIN 43-1131436
LUPUS FOUNDATION OF AMERICA INC
Tax-exempt · WASHINGTON, DC 20037
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| September 30, 2025 | 990 | $14,997,967 | $16,743,518 | -$1,745,551 | $11,374,155 | $6,641,567 | $4,732,588 |
| September 30, 2024 | 990 | $15,428,604 | $17,103,620 | -$1,675,016 | $13,653,637 | $7,222,505 | $6,431,132 |
| September 30, 2023 | 990 | $17,248,744 | $15,165,951 | $2,082,793 | $15,514,074 | $7,523,086 | $7,990,988 |
Financial details: 990 for the year ended September 30, 2025
Revenue
- Contributions, gifts and grants
- $13,167,396
- of which government grants
- $2,417,306
- Program service revenue
- $1,612,180
- Investment income
- $194,988
- Royalties
- $4,066
- Net gain from sales of assets
- $9,184
- Net income from fundraising events
- -$5,648
- Other revenue
- $23,403
Expenses
- Grants and similar amounts paid
- $423,638
- Compensation of officers, directors and key employees
- $2,196,521
- Other salaries and wages
- $5,330,061
- Salaries, compensation and benefits (total)
- $8,968,852
- Professional fundraising fees
- $123,500
- Legal fees
- $88,104
- Accounting fees
- $96,589
- Occupancy
- $680,017
- Travel
- $393,531
- Depreciation
- $140,682
- Program services (functional)
- $12,526,704
- Management and general (functional)
- $1,448,996
- Fundraising (functional)
- $2,767,818
Balance sheet and other
- Total assets, start of year
- $13,653,637
- Total assets, end of year
- $11,374,155
- Total liabilities, end of year
- $6,641,567
- Net assets, end of year
- $4,732,588
- Land, buildings and equipment
- $367,088
- Net assets without donor restrictions
- $1,357,064
- Net assets with donor restrictions
- $3,375,524
- Gross unrelated business income
- $332,500
- Gross receipts
- $15,083,218
- Employees
- 76
- Volunteers
- 1,075
- Year formed
- 1977
- State of legal domicile
- DC
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended September 30, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| MARY T CRIMMINGS INTERIM | CEO; VP, MARKETING & COMMUNICATIONS Officer | 37.5 | $300,484 | $40,415 |
| JEANINE SMITH | VP, NETWORK DEVELOPMENT Officer | 37.5 | $224,500 | $35,633 |
| PATRICK WILDMAN | VP, ADVOCACY & GOVERNMENT Key employee | 37.5 | $212,146 | $27,369 |
| JOY BUIE | VP, RESEARCH Key employee | 37.5 | $201,167 | $24,453 |
| SUSAN J GLOOR | REGIONAL DIRECTOR, NE Highest-paid employee | 37.5 | $177,774 | $34,929 |
| AMY YALDEN | SENIOR REGIONAL DIRECTOR Highest-paid employee | 37.5 | $190,422 | $21,051 |
| MICHAEL DONNELLY | VICE PRESIDENT, COMMUNICATIONS Key employee | 37.5 | $181,534 | $28,370 |
| MATT DEGOOYER | SENIOR REGIONAL DIRECTOR Highest-paid employee | 37.5 | $175,434 | $33,867 |
| JULIE TUNE | FORMER CHIEF FINANCIAL OFFICER Former | 0 | $179,715 | $24,256 |
| TERI YODER | VP, DEVELOPMENT & FUNDRAISING Key employee | 37.5 | $188,484 | $309 |
| VALERYIA MIKHARAVA | CONTROLLER Highest-paid employee | 37.5 | $178,523 | $10,142 |
| LOUISE VETTER PRESIDENT | CHIEF EXECUTIVE OFFICER Officer | 37.5 | $183,300 | $5,205 |
| DESIREE WIENAND | DIRECTOR, CORPORATE ENGAGEMENT Highest-paid employee | 37.5 | $159,423 | $25,773 |
| CYNTHIA WHEELER | CHIEF FINANCIAL OFFICER AS OF 12/24 Officer | 37.5 | $7,538 | $28 |
| JOSEPH A ARNOLD ESQ | CHAIR Trustee or director, Officer | 5 | $0 | $0 |
18 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| ANDREW BROPHY | IMMEDIATE PAST CHAIR Trustee or director, Officer | 5 | $0 |
| BARBARA POLK | VICE CHAIR Trustee or director, Officer | 5 | $0 |
| CHRISTINE SMITH TREAS UNTIL | 05/25, THEN DIRECTOR Trustee or director, Officer | 1 | $0 |
| KEVIN CHEUNG DIRECTOR | TREASURER AS OF 05/25 Trustee or director | 1 | $0 |
| PHONG NGUYEN SECRETARY UNTIL | 05/25, THEN DIRECTOR Trustee or director, Officer | 5 | $0 |
| THERESA JUDAY DIRECTOR | SECRETARY AS OF 05/25 Trustee or director, Officer | 1 | $0 |
| BRIAN ANTONSEN | DIRECTOR Trustee or director | 1 | $0 |
| JUDY BARLIN | DIRECTOR Trustee or director | 1 | $0 |
| LYNN BLANDFORD | DIRECTOR Trustee or director | 1 | $0 |
| SHANNON BOXX | DIRECTOR Trustee or director | 1 | $0 |
| LINDSAY CAFRITZ | DIRECTOR Trustee or director | 1 | $0 |
| KAREN COSTENBADER MD MPH | DIRECTOR Trustee or director | 1 | $0 |
| CONRAD GEHRMAN | DIRECTOR Trustee or director | 1 | $0 |
| SREEDHAR MANDAYAM MD MPH | DIRECTOR Trustee or director | 1 | $0 |
| SUSAN MANZI | DIRECTOR Trustee or director | 1 | $0 |
| TIM NOLAN | DIRECTOR Trustee or director | 1 | $0 |
| CHERI PERRON | DIRECTOR Trustee or director | 1 | $0 |
| ELIZABETH ROTH | DIRECTOR Trustee or director | 1 | $0 |
990 for the year ended September 30, 2024: 31 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| MARY T CRIMMINGS INTERIM | CEO; VP, MARKETING & COMMUNICATIONS Officer | 37.5 | $294,832 | $36,718 |
| JEANINE SMITH | VP, NETWORK DEVELOPMENT Officer | 37.5 | $237,267 | $32,365 |
| PATRICK WILDMAN | VP, ADVOCACY & GOVERNMENT Key employee | 37.5 | $215,299 | $29,743 |
| MICHAEL DONNELLY | VICE PRESIDENT, COMMUNICATIONS Highest-paid employee | 37.5 | $200,562 | $28,194 |
| JULIE TUNE | CHIEF FINANCIAL OFFICER UNTIL 8/2024 Officer | 37.5 | $191,822 | $22,586 |
| SUSAN J GLOOR | REGIONAL DIRECTOR, NE Highest-paid employee | 37.5 | $175,303 | $25,432 |
| AMY YALDEN | SENIOR REGIONAL DIRECTOR Highest-paid employee | 37.5 | $175,627 | $19,552 |
| MATT DEGOOYER | SENIOR REGIONAL DIRECTOR Highest-paid employee | 37.5 | $156,553 | $29,236 |
| DESIREE WIENAND | DIRECTOR, CORPORATE ENGAGE Highest-paid employee | 37.5 | $155,742 | $25,772 |
| JOY BUIE | VP, RESEARCH Key employee | 37.5 | $158,479 | $18,725 |
| JOSEPH A ARNOLD ESQ | VICE CHAIR, THEN CHAIR Trustee or director, Officer | 5 | $0 | $0 |
| ANDREW BROPHY | CHAIR, THEN IMMEDIATE PAST CHAIR Trustee or director, Officer | 5 | $0 | $0 |
| BARBARA POLK | SECRETARY, THEN VICE CHAIR Trustee or director, Officer | 5 | $0 | $0 |
| CHRISTINE SMITH | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| PHONG NGUYEN | DIRECTOR, THEN SECRETARY Trustee or director, Officer | 5 | $0 | $0 |
| BRIAN ANTONSEN | DIRECTOR AS OF 11/2023 Trustee or director | 1 | $0 | $0 |
| JUDY BARLIN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| LYNN BLANDFORD | DIRECTOR Trustee or director | 1 | $0 | $0 |
| SHANNON BOXX | DIRECTOR AS OF 9/2024 Trustee or director | 1 | $0 | $0 |
| LINDSAY CAFRITZ | DIRECTOR Trustee or director | 1 | $0 | $0 |
| KEVIN CHEUNG | DIRECTOR AS OF 9/2024 Trustee or director | 1 | $0 | $0 |
| KAREN COSTENBADER MD MPH | DIRECTOR Trustee or director | 1 | $0 | $0 |
| CONRAD GEHRMAN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| THERESA JUDAY | DIRECTOR AS OF 11/2023 Trustee or director | 1 | $0 | $0 |
| SREEDHAR MANDAYAM MD MPH | DIRECTOR AS OF 6/2024 Trustee or director | 1 | $0 | $0 |
| SUSAN MANZI | DIRECTOR Trustee or director | 1 | $0 | $0 |
| TIM NOLAN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| AMY ONDR | DIRECTOR UNTIL 5/2024 Trustee or director | 1 | $0 | $0 |
| CHERI PERRON | DIRECTOR Trustee or director | 1 | $0 | $0 |
| ELIZABETH ROTH | DIRECTOR AS OF 6/2024 Trustee or director | 1 | $0 | $0 |
| LOUISE VETTER PRESIDENT | CHIEF EXECUTIVE OFFICER AS OF 7/2024 Officer | 37.5 | $0 | $0 |
990 for the year ended September 30, 2023: 27 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| STEVAN W GIBSON | PRESIDENT & CHIEF EXECUTIVE OFFICER UNTIL 11/18/22 Officer | 37.5 | $357,970 | $30,395 |
| MARY T CRIMMINGS | INTERIM CEO AND VP, MARKETING & COMMUNICATIONS Officer | 37.5 | $236,574 | $34,379 |
| JEANINE SMITH | VP, NETWORK DEVELOPMENT Officer | 37.5 | $209,569 | $29,547 |
| PATRICK WILDMAN | VP, ADVOCACY & GOVERNMENT Key employee | 37.5 | $205,009 | $27,121 |
| JULIE TUNE | CHIEF FINANCIAL OFFICER Officer | 37.5 | $192,710 | $25,331 |
| LEIGH ANN CARDENAS | VP, INDIVIDUAL GIVING UNTIL 8/2/23 Key employee | 37.5 | $191,183 | $20,871 |
| MICHAEL DONNELLY | VICE PRESIDENT, COMMUNICATIONS Highest-paid employee | 37.5 | $179,196 | $25,632 |
| SUSAN J GLOOR | REGIONAL DIRECTOR, NE Highest-paid employee | 37.5 | $171,553 | $29,886 |
| MATT DEGOOYER | SENIOR REGIONAL DIRECTOR, PNW Highest-paid employee | 37.5 | $145,874 | $24,416 |
| DESIREE WIENAND | DIRECTOR, CORPORATE ENGAGEMENT Highest-paid employee | 37.5 | $148,052 | $21,493 |
| AMY YALDEN | SENIOR REGIONAL DIRECTOR Highest-paid employee | 37.5 | $159,953 | $5,919 |
| ANDREW BROPHY | CHAIR Trustee or director, Officer | 5 | $0 | $0 |
| JOSEPH A ARNOLD ESQ | VICE CHAIR Trustee or director, Officer | 5 | $0 | $0 |
| CHRISTINE SMITH | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| BARBARA POLK | SECRETARY Trustee or director, Officer | 5 | $0 | $0 |
| JANINE ALLEN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| JUDY BARLIN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| LYNN BLANDFORD | DIRECTOR Trustee or director | 1 | $0 | $0 |
| LINDSAY CAFRITZ | DIRECTOR Trustee or director | 1 | $0 | $0 |
| KAREN COSTENBADER MD MPH | DIRECTOR Trustee or director | 1 | $0 | $0 |
| CONRAD GEHRMAN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| JANE HAWLEY | DIRECTOR Trustee or director | 1 | $0 | $0 |
| CINDY MESSERLY | DIRECTOR Trustee or director | 1 | $0 | $0 |
| PHONG NGUYEN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| TIM NOLAN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| CHERI PERRON | DIRECTOR Trustee or director | 1 | $0 | $0 |
| SUSAN MANZI | DIRECTOR Trustee or director | 1 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 2121 K ST NW STE 200, WASHINGTON, DC 20037-1830
- Principal officer (990 for 2024)
- CYNTHIA WHEELER, 2121 K STREET NW 200, WASHINGTON, DC 20037
- Signed the 990
- CYNTHIA WHEELER, CHIEF FINANCIAL OFFICER
- Phone
- (202) 349-1155
- Website
- WWW.LUPUS.ORG
- Return prepared by
- CBIZ ADVISORS LLC
Mission
LUPUS FOUNDATION OF AMERICA, INC. (THE FOUNDATION) IS DEDICATED TO IMPROVING THE QUALITY OF LIFE FOR ALL PEOPLE AFFECTED BY LUPUS THROUGH PROGRAMS OF RESEARCH, EDUCATION, SUPPORT, AND ADVOCACY.
Program accomplishments
- PUBLIC INFORMATION AND EDUCATION:THE FOUNDATION STRENGTHENED ITS ROLE AS THE LEADING SOURCE OF LUPUS INFORMATION. THE LUPUS.ORG WEBSITE REACHED MORE THAN 9.8 MILLION ANNUAL VIEWS, SUPPORTED BY HOMEPAGE OPTIMIZATION IMPROVEMENTS AND THE INTEGRATION OF THE DIGITAL KNOW LUPUS QUIZ TO ENHANCE ENGAGEMENT DURING LUPUS AWARENESS MONTH (LAM) AND YEAR-ROUND. SOCIAL MEDIA FOLLOWING GREW TO MORE THAN 450,000 COMBINED FOLLOWERS ACROSS PLATFORMS, SUPPORTED BY TARGETED CAMPAIGNS, INCLUDING "SPOTLIGHT SERIES" INITIATIVES HIGHLIGHTING DISPARITIES AND THE UNIQUE IMPACT OF LUPUS ACROSS POPULATIONS.LUPUS AWARENESS MONTH CONTINUED UNDER THE THEME MAKE LUPUS VISIBLE, FEATURING EDUCATIONAL RESOURCES, PERSONAL STORIES, VIDEOS, ADVOCACY EVENTS, AND PROMOTIONAL EFFORTS TIED TO MAJOR FUNDRAISING INITIATIVES AND THE NATIONAL LUPUS ADVOCACY SUMMIT. AN OMNIBUS AWARENESS SURVEY SHOWED 53% OF U.S. ADULTS STILL REPORTED LIMITED OR NO KNOWLEDGE OF THE DISEASE, UNDERSCORING THE NEED FOR CONTINUED EDUCATION.GLOBALLY, THE FOUNDATION LED WORLD LUPUS DAY ON MAY 10 THROUGH ITS WORLD LUPUS FEDERATION (WLF), EXECUTING AN INTERNATIONAL MAKE LUPUS VISIBLE CAMPAIGN. IN 2025, THE FEDERATION MARKED ITS 10TH ANNIVERSARY WITH A COMPREHENSIVE COMMUNICATIONS CAMPAIGN, NEW LOGO, AND REDESIGNED WEBSITE TO CELEBRATE A DECADE OF IMPACT. THE WORLD LUPUS FEDERATION, NOW COMPRISING APPROXIMATELY 250 ORGANIZATIONS ACROSS 75 COUNTRIES, COMPLETED KEY INITIATIVES IDENTIFIED IN ITS NEEDS ASSESSMENT, INCLUDING DEVELOPMENT OF A SPANISH-LANGUAGE "UNDERSTANDING LUPUS" FACT SHEET FOR INTERNATIONAL PARTNERS AND A GLOBAL WEBINAR ON CREATING PEER-LED SUPPORT GROUPS.Expenses $4,974,865 · grants $5,000 · revenue $102,775
- PATIENT EDUCATION AND SUPPORT:THE FOUNDATION'S NATIONAL RESOURCE CENTER ON LUPUS (NRCL) REMAINED CENTRAL TO PATIENT EDUCATION, REACHING NEARLY 2 MILLION USERS AND GENERATING 3.3 MILLION SESSIONS IN 2025 WITH A 65% ENGAGEMENT RATE. THE FOUNDATION UPDATED OR CREATED NEW 24 MEDICALLY-REVIEWED ENGLISH RESOURCES AND 20 SPANISH RESOURCES, WITH 88% OF MATERIALS NOW AVAILABLE BILINGUALLY. NEW BLOG CONTENT ADDRESSED MENTAL HEALTH, LUPUS NEPHRITIS, AND LIFESTYLE STRATEGIES.THE FOUNDATION HOSTED 29 LUPUS & YOU EMPOWERMENT CONFERENCES, ATTRACTING MORE THAN 1,500 IN-PERSON ATTENDEES, 41% OF WHOM WERE NEW TO THE ORGANIZATION. CONFERENCES PROVIDED EDUCATION, SUPPORT, AND OPPORTUNITIES FOR RESEARCH ENGAGEMENT. ADDITIONALLY, THE LUPUS & YOU: ANSWERS, ADVOCACY, ACTION WEBINAR SERIES REACHED NEARLY 7,900 INDIVIDUALS THROUGH LIVE AND RECORDED SESSIONS. SELF-MANAGEMENT EDUCATION CONTINUED TO GROW THROUGH THE SELF (STRATEGIES TO EMBRACE LIVING WITH LUPUS FEARLESSLY) PROGRAM, NOW DELIVERED VIA MOBILE APP. IN 2025, MORE THAN 5,200 INDIVIDUALS REGISTERED FOR THE APP, WITH 1,200 MONTHLY ACTIVE USERS. COMPLEMENTARY TOOLS INCLUDED A PEER SELF-MANAGEMENT PILOT PROGRAM, PRINTED GUIDES, AND A HEALTH CARE PROFESSIONAL REFERRAL TOOLKIT.THE TAKE CHARGE/TOME CONTROL EMAIL SERIES GAINED 842 NEW SUBSCRIBERS IN FY2025, REACHING MORE THAN 17,000 SUBSCRIBERS OVERALL, WITH ABOUT 20% SELECTING SPANISH-LANGUAGE CONTENT. THE EXPERT SERIES PODCAST ADDED NEW EPISODES ADDRESSING FIBROMYALGIA, MENOPAUSE, AND LUPUS IN MEN.COMMUNITY-LEVEL OUTREACH INCLUDED PARTNERSHIPS WITH 20 LIBRARIES, LOCAL EVENTS REACHING NEARLY 2,000 ATTENDEES, AND THE BE FIERCE. TAKE CONTROL. AWARENESS CAMPAIGN, WHICH GENERATED 16.9 MILLION AD VIEWS AND MORE THAN 56,000 WEBSITE VISITS. HEALTH EDUCATION SPECIALISTS RESPONDED TO 2,887 INQUIRIES FROM INDIVIDUALS ACROSS 46 STATES, THREE U.S. TERRITORIES, AND MORE THAN 65 COUNTRIES. TRANSLATION SERVICES EXPANDED CULTURALLY APPROPRIATE MATERIALS AND PROGRAM ACCESS.THE FOUNDATION UPDATED 42 STATE AND LOCAL 211 SYSTEMS WITH LUPUS RESOURCES AND LAUNCHED A CONTINUING NURSING EDUCATION COURSE ACCESSED BY MORE THAN 100 NURSES SHORTLY AFTER RELEASE. THE COMMUNITY HEALTH WORKER RESOURCE HUB EXPANDED WITH UPDATED MODULES AND A SPANISH-LANGUAGE PROMOTORES DE SALUD HUB. OUTREACH EFFORTS REACHED HUNDREDS OF FRONTLINE HEALTH WORKERS, AND SPECIALIZED WORKSHOPS SUPPORTED CULTURALLY RELEVANT EDUCATION IN NATIVE AMERICAN COMMUNITIES.ADDITIONAL PROFESSIONAL ENGAGEMENT INCLUDED DEVELOPMENT OF PROVIDER REFERRAL TOOLKITS, UPDATED CLINICIAN-FOCUSED CONTENT, EDUCATIONAL VIDEOS, CONFERENCE PRESENTATIONS, AND COLLABORATIVE PARTNERSHIPS TO STRENGTHEN REFERRAL PATHWAYS AND IMPROVE LUPUS CARE DELIVERY.Expenses $4,474,306
- PROFESSIONAL RELATIONS AND EDUCATION:THE FOUNDATION'S ADVOCACY EFFORTS DELIVERED HISTORIC FUNDING GAINS. DURING THE NATIONAL LUPUS ADVOCACY SUMMIT, MORE THAN 350 ADVOCATES CONDUCTED NEARLY 200 MEETINGS ON CAPITOL HILL. THESE EFFORTS CONTRIBUTED TO SECURING $27 MILLION IN LUPUS-SPECIFIC FEDERAL FUNDING FOR FY2026 THE HIGHEST EVER APPROVED IN A SINGLE YEAR. FUNDING ALLOCATIONS INCLUDED:- $14 MILLION FOR THE CDC'S NATIONAL LUPUS PATIENT REGISTRY- $10 MILLION FOR THE DEPARTMENT OF DEFENSE LUPUS RESEARCH PROGRAM- $3 MILLION FOR THE OFFICE OF MINORITY HEALTH'S LUPUS TRAINING AND OUTREACH INITIATIVES- $49.7 BILLION OVERALL FOR THE NATIONAL INSTITUTES OF HEALTH, THE WORLD'S LARGEST PUBLIC FUNDER OF LUPUS RESEARCHTHE FOUNDATION ALSO ADVANCED PATIENT-CENTERED DRUG DEVELOPMENT BY CONTRIBUTING TO FDA PATIENT FOCUSED DRUG DEVELOPMENT GUIDANCE, AND IT ENGAGED IN FEDERAL AND STATE ADVOCACY TO ELIMINATE RESTRICTIVE INSURANCE PRACTICES SUCH AS STEP THERAPY AND CO-PAY ACCUMULATORS. THE FOUNDATION ALSO MOBILIZED A NETWORK OF MORE THAN 40,000 GRASSROOTS ADVOCATES NATIONWIDE.THROUGH LEADERSHIP OF THE MAPRX COALITION, REPRESENTING MORE THAN 60 NATIONAL PATIENT ORGANIZATIONS, THE FOUNDATION WORKED TO PROTECT MEDICARE PART D BENEFITS FOR 44 MILLION AMERICANS. EFFORTS INCLUDED CONGRESSIONAL BRIEFINGS AND ENGAGEMENT WITH THE CENTERS FOR MEDICARE AND MEDICAID SERVICES REGARDING IMPLEMENTATION OF THE MEDICARE PRESCRIPTION PAYMENT PLAN.Expenses $2,265,504 · grants $408,638 · revenue $21,285
- NETWORK SUPPORT AND SERVICES:THE FOUNDATION'S NATIONAL NETWORK OF CHAPTERS, AMBASSADORS, AND SUPPORT GROUPS CONTINUED TO EXPAND. MORE THAN 200 TRAINED NATIONAL AMBASSADORS PROVIDED PEER EDUCATION AND OUTREACH. THE ORGANIZATION SUPPORTED MORE THAN 45 NATIONAL SUPPORT GROUPS WITH EXPANDED OFFERINGS FOR MEN, YOUTH UNDER 25, HISPANIC/LATINO COMMUNITIES, ASIAN COMMUNITIES, CAREGIVERS, AND BLACK/AFRICAN AMERICAN WOMEN. BOTH IN-PERSON AND VIRTUAL FORMATS INCREASED ACCESSIBILITY. SIX NEW NATIONAL AND EIGHT NEW REGIONAL SUPPORT GROUPS LAUNCHED, AND 142 FACILITATORS COMPLETED TRAINING, WITH 94% REPORTING READINESS TO LEAD. MORE THAN 90% OF PARTICIPANTS REPORTED INCREASED SUPPORT, IMPROVED KNOWLEDGE, AND REDUCED ISOLATION. THE LUPUSCONNECT ONLINE COMMUNITY GREW TO 27,416 MEMBERS.COMMUNITY FUNDRAISING AND ENGAGEMENT REMAINED STRONG. THE FOUNDATION HELD 29 WALK TO END LUPUS NOW EVENTS NATIONWIDE AND A VIRTUAL CELEBRATION FOR BROADER PARTICIPATION. THE VIRTUAL 6 CHALLENGE PROVIDED FLEXIBLE ENGAGEMENT OPPORTUNITIES. GAME ON! TO END LUPUS, A THREE-DAY LIVESTREAM FUNDRAISING EVENT, ENGAGED MORE THAN 188 CONTENT CREATORS AND SURPASSED THE $1 MILLION MILESTONE IN CUMULATIVE FUNDRAISING.Expenses $408,272 · grants $10,000 · revenue $92,126
- RESEARCH:RECENT THERAPEUTIC ADVANCES HAVE SIGNIFICANTLY IMPROVED OUTCOMES FOR PEOPLE WITH LUPUS, WITH APPROXIMATELY 97 PERCENT OF PATIENTS NOW LIVING AT LEAST FIVE YEARS AFTER DIAGNOSIS. DESPITE THIS PROGRESS, CONTINUED RESEARCH IS ESSENTIAL TO ENHANCE QUALITY OF LIFE AND DEEPEN UNDERSTANDING OF THE DISEASE. THE LUPUS FOUNDATION OF AMERICA ANCHORS ITS RESEARCH EFFORTS IN THREE INTERCONNECTED PRIORITIES: ADVANCING CLINICAL CARE, EXPANDING EQUITABLE ACCESS TO CARE, AND ACCELERATING DRUG DEVELOPMENT. A CORNERSTONE INITIATIVE IS THE ADDRESSING LUPUS PILLARS FOR HEALTH ADVANCEMENT (ALPHA) PROJECT, A GLOBAL, MULTI-PHASE EFFORT TO IDENTIFY URGENT UNMET NEEDS IN LUPUS CARE. IN 2025, ALPHA EXPANDED ITS FOCUS TO PATIENT-PROVIDER COMMUNICATION AND BARRIERS TO HIGH-QUALITY CARE. THE TEAM CONDUCTED A REVIEW OF MORE THAN 2,300 ARTICLES, DEVELOPED A DECISION-MAKING FRAMEWORK, AND HELD FOCUS GROUPS WITH INDIVIDUALS LIVING WITH LUPUS TO BETTER UNDERSTAND TREATMENT CHALLENGES. THESE EFFORTS LED TO THE CREATION OF A PROTOTYPE SHARED DECISION-MAKING TOOLAVAILABLE IN PAPER AND MOBILE FORMATSTO HELP PATIENTS BETTER UNDERSTAND TREATMENT OPTIONS AND COLLABORATE EFFECTIVELY WITH PROVIDERS.A ROADMAP IDENTIFYING U.S. "RHEUMATOLOGY DESERTS" WAS DEVELOPED TO IMPROVE ACCESS TO TIMELY DIAGNOSIS AND CARE. ADDITIONALLY, A CONSENSUS-BASED MANUSCRIPT OUTLINING SOLUTIONS TO RACIAL AND ETHNIC DISPARITIES WAS PUBLISHED IN ARTHRITIS CARE AND RESEARCH AND FEATURED IN HEALIO MAGAZINE.THE FOUNDATION ALSO FUNDS FELLOWSHIPS AND EARLY-CAREER DEVELOPMENT GRANTS TO ENSURE TRAINING SUPPORT FOR LUPUS RESEARCHERS. IT PARTNERS WITH LUPUS CANADA TO ADMINISTER THE CATALYST GRANT AND ACTIVELY PURSUES FEDERAL, STATE, AND INDUSTRY FUNDING TO STRENGTHEN LUPUS RESEARCH PIPELINES. RESEARCH INVESTMENTS INCLUDE SUPPORT FOR A MULTI-YEAR STUDY OF MESENCHYMAL STROMAL CELLS AS A POTENTIAL LUPUS TREATMENT, LED BY THE MEDICAL UNIVERSITY OF SOUTH CAROLINA IN PARTNERSHIP WITH THE NATIONAL INSTITUTE FOR ALLERGY AND INFECTIOUS DISEASES. ALL PARTICIPANTS HAVE COMPLETED THE STUDY, AND RESULTS ARE EXPECTED IN 2026. ADDITIONALLY, THE LFA-FUNDED CARE LUPUS STUDY, PART OF THE PREDICT AND PREVENT LUPUS PROGRAM, HAS MADE SIGNIFICANT PROGRESS IN IDENTIFYING FIRST-DEGREE RELATIVES AT RISK OF DEVELOPING LUPUS.THE FOUNDATION ALSO SUPPORTS THE SYSTEMIC LUPUS ERYTHEMATOSUS COLLABORATING CLINICS (SLICC) IN UPDATING THE FDA-ACCEPTED SLICC DAMAGE INDEX, PARTICIPATES IN LUPUS ABC TO IMPROVE CLINICAL TRIAL OUTCOME MEASURES, AND PARTNERS IN THE TREATMENT RESPONSE MEASURE FOR SLE (TRM-SLE) PROJECT TO ELEVATE THE PATIENT VOICE.THE RAY REGISTRY CONTINUES TO EXPAND AS A VITAL PATIENT DATA PLATFORM. SINCE OCTOBER 2024, 473 NEW PARTICIPANTS ENROLLED, BRINGING TOTAL ENROLLMENT TO 7,163. RECRUITMENT EFFORTS HAVE INCREASED REPRESENTATION AMONG BLACK/AFRICAN AMERICAN PARTICIPANTS AND OTHER RACIAL AND ETHNIC GROUPS. MOST NEW ENROLLEES HAVE SYSTEMIC LUPUS ERYTHEMATOSUS (SLE), WITH A MEDIAN AGE OF 45. IN 2025, THE RAY PLATFORM WAS UPGRADED TO ENHANCE COMMUNICATION, EXPAND GLOBAL REACH, AND IMPROVE PATIENT-REPORTED DATA COLLECTION TO ACCELERATE RESEARCH AND CLINICAL TRIAL PARTICIPATION.Expenses $403,757 · revenue $1,063,494
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in September, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | September 30, 2026 | February 16, 2027 | Not due yet |
| 2024 | September 30, 2025 | February 17, 2026 | 990 on file |
| 2023 | September 30, 2024 | February 18, 2025 | 990 on file |
IRS record
- EIN
- 43-1131436
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1978
- Accounting year ends
- September
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G89Z)
- Assets (IRS master file)
- $11,374,155
- Income (IRS master file)
- $15,083,218
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | September 2025 | $14,997,967 | $16,743,518 | $11,374,155 | IRS |
| 990-T | September 2025 | – | – | – | IRS |
| 990 | September 2024 | $15,428,604 | $17,103,620 | $13,653,637 | IRS |
| 990-T | September 2024 | – | – | – | IRS |
| 990 | September 2023 | $17,248,744 | $15,165,951 | $15,514,074 | XML |
| 990-T | September 2023 | – | – | – | IRS |
| 990 | September 2022 | $17,263,965 | $15,418,407 | $9,829,433 | IRS |
| 990 | September 2021 | – | – | – | IRS |
| 990 | September 2020 | – | – | – | IRS |
| 990 | September 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 43-1131436).
Questions about LUPUS FOUNDATION OF AMERICA INC
- What is the EIN of LUPUS FOUNDATION OF AMERICA INC?
- The employer identification number (EIN) of LUPUS FOUNDATION OF AMERICA INC is 43-1131436.
- Is LUPUS FOUNDATION OF AMERICA INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1978.
- Are donations to LUPUS FOUNDATION OF AMERICA INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does LUPUS FOUNDATION OF AMERICA INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of LUPUS FOUNDATION OF AMERICA INC due?
- The return for tax year 2025 (the year ending September 30, 2026) is due February 16, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did LUPUS FOUNDATION OF AMERICA INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended September 2025.
- Who is the principal officer of LUPUS FOUNDATION OF AMERICA INC?
- The 990 for the year ended September 30, 2025 names CYNTHIA WHEELER.
- Who are the officers and directors of LUPUS FOUNDATION OF AMERICA INC?
- The 990 for the year ended September 30, 2025 lists 33 people; 14 received compensation from the organization, the highest $300,484 (MARY T CRIMMINGS INTERIM, CEO; VP, MARKETING & COMMUNICATIONS).
- How much revenue does LUPUS FOUNDATION OF AMERICA INC have?
- On its 990 for the year ended September 30, 2025 it reported revenue of $14,997,967, expenses of $16,743,518 and total assets of $11,374,155 at year end.
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All nonprofits in WASHINGTON · District of Columbia · Voluntary health associations and medical disciplines