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Nonprofit · EIN 43-1108833

DOWN SYNDROME ASSOCIATION OF GREATER ST LOUIS

Tax-exempt · SAINT LOUIS, MO 63144

Financials

$1.2M$917K2021$1.2M$1.3M2023$1.6M$1.6M2024
Revenue Expenses · by fiscal year end
Financials of DOWN SYNDROME ASSOCIATION OF GREATER ST LOUIS by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2024990$1,634,370$1,607,925$26,445$2,599,562$975,419$1,624,143
December 31, 2023990$1,162,034$1,341,262-$179,228$1,675,737$100,881$1,574,856
December 31, 2021990$1,178,992$917,495$261,497$1,710,185$33,380$1,676,805
Financial details: 990 for the year ended December 31, 2024

Revenue

Contributions, gifts and grants
$751,076
Program service revenue
$144,048
Investment income
$72,359
Net gain from sales of assets
$31,929
Net income from fundraising events
$656,863
Other revenue
$666,887

Expenses

Grants and similar amounts paid
$0
Salaries, compensation and benefits (total)
$803,196
Professional fundraising fees
$0
Travel
$14,917
Depreciation
$100,485
Program services (functional)
$1,346,027
Management and general (functional)
$84,773
Fundraising (functional)
$177,125

Balance sheet and other

Total assets, start of year
$1,675,737
Total assets, end of year
$2,599,562
Total liabilities, end of year
$975,419
Net assets, end of year
$1,624,143
Land, buildings and equipment
$91,370
Publicly traded securities
$1,121,873
Net assets without donor restrictions
$1,376,010
Net assets with donor restrictions
$248,133
Gross receipts
$1,938,051
Employees
14
Volunteers
0
Year formed
1976
State of legal domicile
MO

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2024, highest compensation first.

NameTitleHours / weekCompensation
MATTHEW KANEPRESIDENT
Trustee or director, Officer
0.5$0
MICHELLE ABOUNADERVICE PRESIDENT
Trustee or director, Officer
0.5$0
JOE NIEMEYERTREASURER
Trustee or director, Officer
0.5$0
DWAYNE WORLEYSECRETARY
Trustee or director, Officer
0.5$0
BEAU ANCESDIRECTOR
Trustee or director
0.5$0
CHRIS CANFIELDDIRECTOR
Trustee or director
0.5$0
ANDY CONOVERDIRECTOR
Trustee or director
0.5$0
KEVIN COURTNEYDIRECTOR
Trustee or director
0.5$0
TIFFANY FIZERDIRECTOR
Trustee or director
0.5$0
MATTHEW FLOYDDIRECTOR
Trustee or director
0.5$0
DAIN GIESIEDIRECTOR
Trustee or director
0.5$0
ANNA HARTWEGERDIRECTOR
Trustee or director
0.5$0
RENATA KEYSDIRECTOR
Trustee or director
0.5$0
RAY KLEEMANDIRECTOR
Trustee or director
0.5$0
JOE LAMARTINADIRECTOR
Trustee or director
0.5$0
8 more people on this return
NameTitleHours / weekCompensation
JESSECA LEGGETTDIRECTOR
Trustee or director
0.5$0
MICHELLE MCCLAYDIRECTOR
Trustee or director
0.5$0
ROCHELLE NICHOLSDIRECTOR
Trustee or director
0.5$0
EMORY REHKOPDIRECTOR
Trustee or director
0.5$0
BEAU REINBERGDIRECTOR
Trustee or director
0.5$0
SUSIE STUFFLEBAUMDIRECTOR
Trustee or director
0.5$0
JONATHAN WALDRONDIRECTOR
Trustee or director
0.5$0
CLAIRE WATSONDIRECTOR
Trustee or director
0.5$0
990 for the year ended December 31, 2023: 22 people
NameTitleHours / weekCompensation
GREG SZCZEPANPRESIDENT
Trustee or director, Officer
0.5$0
MATTHEW KANEVICE PRESIDENT
Trustee or director, Officer
0.5$0
ANDY CONOVERDIRECTOR
Trustee or director
0.5$0
MICHELLE ABOUNADERDIRECTOR
Trustee or director
0.5$0
CHRIS CANFIELDDIRECTOR
Trustee or director
0.5$0
BRIAN HADICANDIRECTOR
Trustee or director
0.5$0
KEVIN COURTNEYDIRECTOR
Trustee or director
0.5$0
PAULA MASSDIRECTOR
Trustee or director
0.5$0
MATTHEW FLOYDDIRECTOR
Trustee or director
0.5$0
DAIN GIESIEDIRECTOR
Trustee or director
0.5$0
ROCHELLE NICHOLSDIRECTOR
Trustee or director
0.5$0
CLAIRE WATSONDIRECTOR
Trustee or director
0.5$0
DWAYNE WORLEYSECRETARY
Trustee or director, Officer
0.5$0
RENATA KEYSDIRECTOR
Trustee or director
0.5$0
JESSECA LEGGETTDIRECTOR
Trustee or director
0.5$0
JOE NIEMEYERTREASURER
Trustee or director, Officer
0.5$0
ANNA HARTWEGERDIRECTOR
Trustee or director
0.5$0
RAY KLEEMANDIRECTOR
Trustee or director
0.5$0
JONATHAN WALDRONDIRECTOR
Trustee or director
0.5$0
TIFFANY FIZERDIRECTOR
Trustee or director
0.5$0
JOE LAMARTINADIRECTOR
Trustee or director
0.5$0
BEAU REINBERGDIRECTOR
Trustee or director
0.5$0
990 for the year ended December 31, 2021: 19 people
NameTitleHours / weekCompensation
GREG SZCZEPANPRESIDENT
Trustee or director, Officer
0.5$0
MATTHEW KANEVICE PRESIDENT
Trustee or director, Officer
0.5$0
ANDY CONOVERDIRECTOR
Trustee or director
0.5$0
MICHELLE ABOUNADERDIRECTOR
Trustee or director
0.5$0
CHRIS CANFIELDDIRECTOR
Trustee or director
0.5$0
BRIAN HADICANDIRECTOR
Trustee or director
0.5$0
MEGAN LAYTONDIRECTOR
Trustee or director
0.5$0
PAULA MASSDIRECTOR
Trustee or director
0.5$0
JONATHAN WALDRONDIRECTOR
Trustee or director
0.5$0
DAIN GIESIEDIRECTOR
Trustee or director
0.5$0
ROCHELLE NICHOLSDIRECTOR
Trustee or director
0.5$0
CLAIRE WATSONDIRECTOR
Trustee or director
0.5$0
DWAYNE WORLEYSECRETARY
Trustee or director, Officer
0.5$0
ELIZABETH HALLDIRECTOR
Trustee or director
0.5$0
RENATA KEYSDIRECTOR
Trustee or director
0.5$0
JESSECA LEGGETTDIRECTOR
Trustee or director
0.5$0
JOE NIEMEYERTREASURER
Trustee or director, Officer
0.5$0
ALI SIEGEL-KERINSDIRECTOR
Trustee or director
0.5$0
ALLIE WARGELDIRECTOR
Trustee or director
0.5$0

Address and contacts

Address (IRS master file)
1201 HANLEY INDUSTRIAL CT SUITE A, SAINT LOUIS, MO 63144-1911
In care of
% ERIN SUELMANN
Principal officer (990 for 2024)
ERIN SUELMANN, 1201 HANLEY INDUSTRIAL CT SUITE A, BRENTWOOD, MO 63144
Signed the 990
ERIN SUELMANN, EXECUTIVE DIRECTOR
Phone
(314) 833-7554
Return prepared by
SFW PARTNERS LLC

Mission

THE DSAGSL SERVES, SUPPORTS, AND CELEBRATES THE LIVES OF INDIVIDUALS WITH DOWN SYNDROME AND THEIR FAMILIES, THROUGH EVERY STAGE OF LIFE.

990 for the year ended December 31, 2024

Program accomplishments

  • THE ORGANIZATION SUPPORTED INDIVIDUALS AND FAMILIES THROUGH THE FOLLOWING PROGRAMS: NEW PARENT SUPPORT, FIRST BIRTHDAY PROGRAM/CELEBRATION BASKETS, PARENT TO PARENT NETWORK AND MENTOR PROGRAM, AGES AND STAGES BOOK PROGRAM, VOLUNTEER STAFFING FOR DOWN SYNDROME CENTER AT CHILDREN'S HOSPITAL, REGIONAL COMMUNITY GROUPS, FAMILY EVENTS (FAMILY PICNICS, HOLIDAY PARTY), SHARING OUR STRATEGIES RESOURCE NETWORK, INFORMATION AND REFERRAL, RESOURCE LIBRARY, HEALTH PROFESSIONAL OUTREACH, SUPPORT CAREGIVERS OF AGING ADULTS WITH DOWN SYNDROME, AND EDUCATIONAL ADVOCACY AND SUPPORT.
    Expenses $494,989 · revenue $79,116
  • THE ORGANIZATION PROVIDED THE FOLLOWING EDUCATIONAL PROGRAMS: SMALL STEPS THERAPY CAMP AND THERAPEUTIC PLAYGROUPS, DSAGL ROCKS MUSIC PROGRAM, CONFERENCES, SEMINARS & WORKSHOPS, STEPS TO INDEPENDENCE CLASSES FOR ADULTS WITH DOWN SYNDROME, DOWN SYNDROME EDUCATION SPECIALISTS PROGRAM, READY TO WORK EMPLOYMENT INITIATIVE, COMMUNITY EDUCATION AND OUTREACH, AND POP UP SNACK SHOP SOCIAL ENTERPRISE AND JOB TRAINING PROGRAM.
    Expenses $433,548 · revenue $64,932
  • THE ORGANIZATION PROVIDED THE FOLLOWING PUBLIC AWARENESS AND ADVOCACY PROGRAMS: STEP UP FOR DOWN SYNDROME (SUDS) AWARENESS WALK, WALK IN THE PARK, RUN FOR 21, WORLD DOWN SYNDROME DAY, DOWN SYNDROME AWARENESS MONTH, FRIENDS FOR ALL SEASONS CALENDAR, AWARENESS BRACELETS AND APPAREL, SOCIAL MEDIA CAMPAIGNS, E-COMMUNICATIONS, PUBLICATIONS, AND LEGISLATIVE ADVOCACY.
    Expenses $417,490 · revenue $10,024

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026Not on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990 on file

IRS record

EIN
43-1108833
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
1977
Accounting year ends
December
Files
Form 990 or 990-EZ
Assets (IRS master file)
$2,599,562
Income (IRS master file)
$1,938,051

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2024$1,634,370$1,607,925$2,599,562XML
990December 2023$1,162,034$1,341,262$1,675,737XML
990December 2022$1,150,647$1,046,936$1,734,878IRS
990December 2021$1,178,992$917,495$1,710,185XML
990December 2020–––IRS
990December 2018–––IRS

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 43-1108833).

Questions about DOWN SYNDROME ASSOCIATION OF GREATER ST LOUIS

What is the EIN of DOWN SYNDROME ASSOCIATION OF GREATER ST LOUIS?
The employer identification number (EIN) of DOWN SYNDROME ASSOCIATION OF GREATER ST LOUIS is 43-1108833.
Is DOWN SYNDROME ASSOCIATION OF GREATER ST LOUIS tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1977.
Are donations to DOWN SYNDROME ASSOCIATION OF GREATER ST LOUIS tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does DOWN SYNDROME ASSOCIATION OF GREATER ST LOUIS file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of DOWN SYNDROME ASSOCIATION OF GREATER ST LOUIS due?
The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
When did DOWN SYNDROME ASSOCIATION OF GREATER ST LOUIS last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2024.
Who is the principal officer of DOWN SYNDROME ASSOCIATION OF GREATER ST LOUIS?
The 990 for the year ended December 31, 2024 names ERIN SUELMANN.
Who are the officers and directors of DOWN SYNDROME ASSOCIATION OF GREATER ST LOUIS?
The 990 for the year ended December 31, 2024 lists 23 people; 0 received compensation from the organization.
How much revenue does DOWN SYNDROME ASSOCIATION OF GREATER ST LOUIS have?
On its 990 for the year ended December 31, 2024 it reported revenue of $1,634,370, expenses of $1,607,925 and total assets of $2,599,562 at year end.

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