Nonprofit · EIN 42-1235407
DISABILITY RIGHTS IOWA
Tax-exempt · DES MOINES, IA 50309
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| September 30, 2025 | 990 | $2,631,812 | $2,097,697 | $534,115 | $2,116,961 | $698,574 | $1,418,387 |
| September 30, 2024 | 990 | $2,070,586 | $1,921,417 | $149,169 | $1,696,657 | $869,182 | $827,475 |
| September 30, 2023 | 990 | $2,086,078 | $2,117,131 | -$31,053 | $1,625,573 | $1,027,037 | $598,536 |
Financial details: 990 for the year ended September 30, 2025
Revenue
- Contributions, gifts and grants
- $2,006,057
- of which government grants
- $1,979,418
- Program service revenue
- $578,567
- Investment income
- $20,052
- Net gain from sales of assets
- $1,514
- Other revenue
- $27,136
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $135,812
- Other salaries and wages
- $1,245,840
- Salaries, compensation and benefits (total)
- $1,621,506
- Professional fundraising fees
- $0
- Legal fees
- $193
- Accounting fees
- $24,100
- Occupancy
- $99,207
- Travel
- $31,627
- Program services (functional)
- $1,837,175
- Management and general (functional)
- $260,522
Balance sheet and other
- Total assets, start of year
- $1,696,657
- Total assets, end of year
- $2,116,961
- Total liabilities, end of year
- $698,574
- Net assets, end of year
- $1,418,387
- Net assets without donor restrictions
- $1,220,977
- Net assets with donor restrictions
- $197,410
- Gross receipts
- $2,631,812
- Employees
- 23
- Volunteers
- 15
- Year formed
- 1984
- State of legal domicile
- IA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended September 30, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| CATHERINE JOHNSON | EXECUTIVE DIRECTOR Officer | 40 | $120,831 | $14,981 |
| NICK MALCOM | PRESIDENT Trustee or director, Officer | 5 | $0 | $0 |
| SETH TALBOT | VICE PRESIDENT Trustee or director, Officer | 5 | $0 | $0 |
| BETH RYDBERG | SECRETARY TREASURER Trustee or director, Officer | 5 | $0 | $0 |
| TIFFANY DODD | PAST PRESIDENT Trustee or director | 5 | $0 | $0 |
| KENNETH CAMERON | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| RACHEL ERKKILA | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| BETH WARGO | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| WENDY ANDERSON | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| CLAIRE PADGETT | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| CHRISTIAN FASSELIUS | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| CHRISTIE CELLMAN | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| CRYSTA FIERRO | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| MORGAN RYAN | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| CANDACE HONEYCUTT | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
990 for the year ended September 30, 2024: 13 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| CATHERINE JOHNSON | EXECUTIVE DIRECTOR Officer | 40 | $116,852 | $11,177 |
| TIFFANY DODD | PRESIDENT Trustee or director, Officer | 5 | $0 | $0 |
| KENNETH CAMERON | VICE PRESIDENT Trustee or director, Officer | 5 | $0 | $0 |
| TARA ROCHLEAU | TREASURER Trustee or director, Officer | 5 | $0 | $0 |
| RACHEL ERKKILA | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| TYLER JACOB LEWIS | PAC CHAIR Trustee or director | 5 | $0 | $0 |
| BETH WARGO | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| SETH TALBOT | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| WENDY ANDERSON | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| KEVIN DALIN | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| BETH RYDBERG | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| NICK MALCOM | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| CLAIRE PADGETT | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
990 for the year ended September 30, 2023: 14 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| CATHERINE JOHNSON | EXECUTIVE DIRECTOR Officer | 40 | $101,925 | $14,227 |
| TIFFANY DODD | PRESIDENT Trustee or director, Officer | 5 | $0 | $0 |
| KENNETH CAMERON | VICE PRESIDENT Trustee or director, Officer | 5 | $0 | $0 |
| BILL STUMPF | SECRETARY Trustee or director, Officer | 5 | $0 | $0 |
| TARA ROCHLEAU | TREASURER Trustee or director, Officer | 5 | $0 | $0 |
| KYLE HAIMAN | AUDIT CHAIR Trustee or director | 5 | $0 | $0 |
| VICTORIA SPAIN | PAC CHAIR Trustee or director | 5 | $0 | $0 |
| BETH WARGO | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| JILL HARTUNG | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| FRANK TENUTA | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| KEVIN DALIN | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| GINA BATTANI | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| NICK MALCOM | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| CLAIRE DAHM | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 606 WALNUT ST STE 2220, DES MOINES, IA 50309-3979
- Principal officer (990 for 2024)
- CATHERINE JOHNSON, 606 WALNUT ST SUITE 2220, DES MOINES, IA 503093970
- Signed the 990
- CATHERINE JOHNSON, EXECUTIVE DIRECTOR
- Phone
- (515) 278-2502
- Website
- WWW.DISABILITYRIGHTSIOWA.ORG
- Return prepared by
- DENMAN CPA LLP
Mission
TO ADVANCE THROUGH ALL RESOURCES THE HUMAN AND LEGAL RIGHTS OF INDIVIDUALS WITH DISABILITIES. DISABILITY RIGHTS IOWA PROVIDES FREE LEGAL AND NON-LEGAL ADVOCACY ASSISTANCE TO PERSONS WITH MENTAL ILLNESS, DISABILITIES AND CERTAIN SOCIAL SECURITY BENEFICIARIES.
Program accomplishments
- DEVELOPMENTAL DISABILITIES - PROVIDES ADVOCACY TO REMEDY ABUSE OR NEGLECT OF INDIVIDUALS WITH DEVELOPMENTAL DISABILITIES AND ASSISTANCE ACCESSING ENTITLEMENTS AND SERVICES (E.G., SPECIAL EDUCATION, DAY PROGRAMS, AND RESIDENTIAL SERVICES). A DEVELOPMENTAL DISABILITY IS A SEVERE PHYSICAL, COGNITIVE, OR EMOTIONAL IMPAIRMENT THAT BEGINS BEFORE AGE 22, LIKELY TO CONTINUE INDEFINITELY, AND INTERFERES WITH THREE OR MORE MAJOR LIFE ACTIVITIES.Expenses $436,999 · revenue $675
- MENTAL HEALTH - PROVIDES ADVOCACY TO REMEDY ABUSE OR NEGLECT OF INDIVIDUALS WITH MENTAL ILLNESS WHO ARE RESIDENTS OF CERTAIN CARE AND TREATMENT FACILITIES (E.G., MENTAL HEALTH INSTITUTES, NURSING FACILITIES, COMMUNITY HOSPITALS, ASSISTED LIVING FACILITIES, AND MENTAL HEALTH FACILITIES FOR CHILDREN) OR IN HOME AND COMMUNITY BASED SETTINGS. LEGAL ASSISTANCE TO PROTECT RIGHTS AND ADVOCATE FOR SERVICES TO INDIVIDUALS WITH MENTAL ILLNESS, LIVING IN FACILITIES OR THE COMMUNITY AND EVEN IN THEIR HOMES.Expenses $375,641 · revenue $130
- WORK INCENTIVES PLANNING AND ASSISTANCE (WIPA) - THE PROGRAM IS FUNDED BY SOCIAL SECURITY ADMINISTRATION (SSA) TO PROVIDE BENEFITS PLANNING AND ASSISTANCE TO SOCIAL SECURITY BENEFICIARIESExpenses $237,558 · revenue $51
- PROTECTION AND ADVOCACY FOR BENEFITS REPRESENTATIVE PAYEE THE PROGRAM WAS FORMED TO MITIGATE THE RISK OF ORGANIZATIONAL FRAUD AND ABUSE TO BENEFICIARIES WHOSE REPRESENTATIVE PAYEES ARE ALSO THEIR EMPLOYERS BY CONDUCTING SITE REVIEWS OF REPRESENTATIVE PAYEE ORGANIZATIONS ON BEHALF OF THE SOCIAL SECURITY ADMINISTRATION.Expenses $230,936 · revenue $48
- PROTECTION AND ADVOCACY OF INDIVIDUAL RIGHTS PROVIDES ADVOCACY TO INDIVIDUALS WITH DISABILITIES WHO ARE NOT ELIGIBLE FOR THE MENTAL HEALTH OR DEVELOPMENTAL DISABILITIES PROGRAMS DESCRIBED ABOVE AND WHO REQUIRE ADVOCACY ASSISTANCE TO OVERCOME DISCRIMINATION OR BARRIERS TO LIVING INDEPENDENTLY.Expenses $167,013 · revenue $31,210
- PROTECTION AND ADVOCACY FOR BENEFICIARIES OF SOCIAL SECURITY THE PROGRAM ASSISTS SOCIAL SECURITY BENEFICIARIES WHO ARE TRYING TO OBTAIN, MAINTAIN, OR REGAIN EMPLOYMENT AND PROVIDES LEGAL AND ADVOCACY ASSISTANCE WITH TICKET TO WORK ISSUES.Expenses $121,649 · revenue $30
- PROTECTION AND ADVOCACY OF VOTING ACCESS FUNDED BY THE HELP AMERICA VOTE ACT OF 2002, THE PROGRAM HAS BEEN ESTABLISHED TO ADVANCE THE PARTICIPATION OF INDIVIDUALS WITH DISABILITIES IN THE ELECTORAL PROCESS. EACH STATE MUST USE THEIR ALLOTTED MONEY BY MEANS OF TRAINING, EDUCATION, AND ASSISTANCE WITH VOTER RIGHTS, RESPONSIBILITIES, REGISTRATION, AND ELECTION DAY PROCESS.Expenses $107,160 · revenue $28
- PROTECTION AND ADVOCACY OF ASSISTIVE TECHNOLOGY PROVIDES PROTECTION AND ADVOCACY SERVICES TO ASSIST INDIVIDUALS OF ALL AGES WITH DISABILITIES IN THE ACQUISITION, UTILIZATION OR MAINTENANCE OF ASSISTIVE TECHNOLOGY SERVICES OR DEVICES.Expenses $51,615 · revenue $57
- PROTECTION AND ADVOCACY OF TRAUMATIC BRAIN INJURY FUNDED BY THE CHILDREN'S HEALTH ACT OF 2000, THE PROGRAM HAS BEEN ESTABLISHED TO PROVIDE SERVICES TO INDIVIDUALS WITH TRAUMATIC BRAIN INJURY. SERVICES MAY INCLUDE THE PROVISION OF (1) INFORMATION, REFERRALS, AND ADVICE; (2) INDIVIDUAL AND FAMILY ADVOCACY; (3) LEGAL REPRESENTATION; AND (4) SPECIFIC ASSISTANCE IN SELF-ADVOCACY.Expenses $48,037 · revenue $32
- OTHER PROGRAM SERVICES INCLUDES, BUT IS NOT LIMITED TO, ANY ADVOCACY SERVICES THE ORGANIZATION PROVIDES THAT DO NOT FALL INTO ONE PARTICULAR FEDERAL GRANT AS OUTLINED IN THE OTHER PROGRAMS ABOVE.Expenses $60,567 · revenue $26,055
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in September, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | September 30, 2026 | February 16, 2027 | Not due yet |
| 2024 | September 30, 2025 | February 17, 2026 | 990 on file |
| 2023 | September 30, 2024 | February 18, 2025 | 990 on file |
IRS record
- EIN
- 42-1235407
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1985
- Accounting year ends
- September
- Files
- Form 990 or 990-EZ
- Assets (IRS master file)
- $2,116,961
- Income (IRS master file)
- $2,631,812
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | September 2025 | $2,631,812 | $2,097,697 | $2,116,961 | XML |
| 990 | September 2024 | $2,070,586 | $1,921,417 | $1,696,657 | XML |
| 990 | September 2023 | $2,086,078 | $2,117,131 | $1,625,573 | XML |
| 990 | September 2022 | $2,446,975 | $1,876,555 | $721,651 | IRS |
| 990 | September 2021 | – | – | – | IRS |
| 990 | September 2020 | – | – | – | IRS |
| 990 | September 2019 | – | – | – | IRS |
| 990 | September 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 42-1235407).
Questions about DISABILITY RIGHTS IOWA
- What is the EIN of DISABILITY RIGHTS IOWA?
- The employer identification number (EIN) of DISABILITY RIGHTS IOWA is 42-1235407.
- Is DISABILITY RIGHTS IOWA tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1985.
- Are donations to DISABILITY RIGHTS IOWA tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does DISABILITY RIGHTS IOWA file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of DISABILITY RIGHTS IOWA due?
- The return for tax year 2025 (the year ending September 30, 2026) is due February 16, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did DISABILITY RIGHTS IOWA last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended September 2025.
- Who is the principal officer of DISABILITY RIGHTS IOWA?
- The 990 for the year ended September 30, 2025 names CATHERINE JOHNSON.
- Who are the officers and directors of DISABILITY RIGHTS IOWA?
- The 990 for the year ended September 30, 2025 lists 15 people; 1 received compensation from the organization, the highest $120,831 (CATHERINE JOHNSON, EXECUTIVE DIRECTOR).
- How much revenue does DISABILITY RIGHTS IOWA have?
- On its 990 for the year ended September 30, 2025 it reported revenue of $2,631,812, expenses of $2,097,697 and total assets of $2,116,961 at year end.
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- COMMUNITY FDN OF GREATER DES MOINES EIN 42-6139033 · last filed 990 for 2024
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