Nonprofit · EIN 36-4540878
INTERNATIONAL 22Q11 2 DELETION SYNDROME FOUNDATION INC
Tax-exempt (reinstated) · MATAWAN, NJ 07747
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990-EZ | $82,853 | $120,252 | -$37,399 | $190,374 | – | $190,374 |
| December 31, 2023 | 990 | $366,363 | $314,751 | $51,612 | $227,878 | $0 | $227,878 |
Financial details: 990-EZ for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $82,764
- Investment income
- $89
Expenses
- Compensation of officers, directors and key employees
- $0
- Professional fees and payments to contractors
- $4,142
- Printing, publications and postage
- $21,575
- Other expenses
- $94,535
- Program services (functional)
- $18,217
Balance sheet and other
- Total assets, start of year
- $227,878
- Total assets, end of year
- $190,374
- Total liabilities, end of year
- –
- Net assets, end of year
- $190,374
- Cash, savings and investments
- $190,374
- Gross receipts
- $82,853
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| MARC WEINBERG | Chairman | 5 | $0 |
| MISSY DISIBIO | Chairman | 5 | $0 |
| MELISSA MAISENBACHER | Secretary | 5 | $0 |
| SUZANNE DICAMILLO | Treasurer | 5 | $0 |
990 for the year ended December 31, 2023: 4 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| MARC WEINBERG | Chairman Trustee or director | 5 | $0 |
| MISSY DISIBIO | Chairman Trustee or director | 5 | $0 |
| MELISSA MAISENBACHER | Secretary Trustee or director | 5 | $0 |
| SUZANNE DICAMILLO | Treasurer Trustee or director | 5 | $0 |
Address and contacts
- Address (IRS master file)
- 22 TANFORAN CT, MATAWAN, NJ 07747-3521
- In care of
- % SAFFEN & WEINBERG
- Mailing address (990-N for 2008)
- 22 Tanforan Court, Matawan NJ 07747
- Principal officer (990-N for 2008)
- Wendy J Rose, 240 Country Club Drive, Moorestown NJ 08057
- Signed the 990-EZ
- CAROL CAVANA, Secretary
- Phone
- (609) 828-9315
- Website
- www.22q.org
- Return prepared by
- BOSCIA & BOSCIA PC LLC
Mission
Over the last 18 years, the International 22q11.2 Foundation has been successful in helping thousands of families by making valuable connections with top medical experts and support groups, creating awareness, supporting research, and delivering cutting edge information related to 22q. As we approach the next ten years, we want to expand our footprint and make 22q a household name
Program accomplishments
- Over the last 18 years, the International 22q11.2 Foundation has been successful in helping thousands of families by making valuable connections with top medical experts and support groups, creating awareness, supporting research, and delivering cutting edge information related to 22q. As we approach the next ten years, we want to expand our footprint and make 22q a household nameExpenses $18,217
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-EZ on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 36-4540878
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2024
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Human services (P20)
- Assets (IRS master file)
- $190,374
- Income (IRS master file)
- $82,853
Revocation and reinstatement
- Exemption revoked
- May 15, 2023
- Posted by the IRS
- August 14, 2023
- Reinstated
- Effective May 15, 2023
From the IRS automatic revocation list: organizations that did not file a required return or e-Postcard for three consecutive years.
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2024 | $82,853 | $120,252 | $190,374 | XML |
| 990-T | December 2024 | – | – | – | IRS |
| 990 | December 2023 | $366,363 | $314,751 | $227,878 | XML |
| 990-T | December 2023 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
| 990-EZ | December 2017 | – | – | – | IRS |
| 990-N for 2008 Officer: Wendy J Rose | December 31, 2008 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 36-4540878).
Questions about INTERNATIONAL 22Q11 2 DELETION SYNDROME FOUNDATION INC
- What is the EIN of INTERNATIONAL 22Q11 2 DELETION SYNDROME FOUNDATION INC?
- The employer identification number (EIN) of INTERNATIONAL 22Q11 2 DELETION SYNDROME FOUNDATION INC is 36-4540878.
- Is INTERNATIONAL 22Q11 2 DELETION SYNDROME FOUNDATION INC tax-exempt?
- Yes. The IRS revoked its exemption on May 15, 2023 and reinstated it effective May 15, 2023.
- Are donations to INTERNATIONAL 22Q11 2 DELETION SYNDROME FOUNDATION INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does INTERNATIONAL 22Q11 2 DELETION SYNDROME FOUNDATION INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of INTERNATIONAL 22Q11 2 DELETION SYNDROME FOUNDATION INC due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did INTERNATIONAL 22Q11 2 DELETION SYNDROME FOUNDATION INC last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2024.
- Who is the principal officer of INTERNATIONAL 22Q11 2 DELETION SYNDROME FOUNDATION INC?
- The 990-N for 2008 names Wendy J Rose.
- Who are the officers and directors of INTERNATIONAL 22Q11 2 DELETION SYNDROME FOUNDATION INC?
- The 990-EZ for the year ended December 31, 2024 lists 4 people; 0 received compensation from the organization.
- How much revenue does INTERNATIONAL 22Q11 2 DELETION SYNDROME FOUNDATION INC have?
- On its 990-EZ for the year ended December 31, 2024 it reported revenue of $82,853, expenses of $120,252 and total assets of $190,374 at year end.
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