Nonprofit · EIN 35-1813225
DOWN SYNDROME FAMILY SUPPORT & ADVOCACY GROUP
Tax-exempt · GRANGER, IN 46530
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990-EZ | $74,620 | $64,801 | $9,819 | $334,392 | $0 | $334,392 |
| December 31, 2024 | 990-EZ | $73,805 | $57,117 | $16,688 | $325,784 | $1,211 | $324,573 |
| December 31, 2023 | 990-EZ | $63,676 | $37,109 | $26,567 | $308,193 | $0 | $308,193 |
Financial details: 990-EZ for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $46,641
- Investment income
- $25,473
- Net gain from sales of assets
- -$4,432
- Net income from fundraising events
- $6,938
Expenses
- Grants and similar amounts paid
- $18,890
- Benefits paid to members
- $8,688
- Compensation of officers, directors and key employees
- $0
- Professional fees and payments to contractors
- $4,013
- Occupancy
- $20,629
- Printing, publications and postage
- $276
- Other expenses
- $12,305
- Program services (functional)
- $47,558
Balance sheet and other
- Total assets, start of year
- $325,784
- Total assets, end of year
- $334,392
- Total liabilities, end of year
- $0
- Net assets, end of year
- $334,392
- Cash, savings and investments
- $334,392
- Gross receipts
- $151,991
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| VICKY BAVAR | Director | 1 | $0 |
| SUSAN MEYER | Treasurer | 2 | $0 |
| CHERYL SPEHEGER | President | 2 | $0 |
| DIANE SCHULTZ | Board Secretary | 2 | $0 |
| BOBBI HALL | Board Vice President | 2 | $0 |
| SEAN HALL | Director | 1 | $0 |
| DENISE SIMONS | Director | 1 | $0 |
| AAMANDA BUCHHOLZ | Director | 1 | $0 |
990-EZ for the year ended December 31, 2024: 10 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| VICKY BAVAR | Director | 1 | $0 |
| ELLEN ADAMS | Director | 1 | $0 |
| MICAH LAMBERT | Director | 1 | $0 |
| SUSAN MEYER | Treasurer | 2 | $0 |
| CHERYL SPEHEGER | President | 2 | $0 |
| HEATHER SOBIERALSKI | Board Vice President | 2 | $0 |
| DIANE SCHULTZ | Board Secretary | 2 | $0 |
| BOBBI HALL | Director | 1 | $0 |
| SEAN HALL | Director | 1 | $0 |
| DENISE SIMONS | Director | 1 | $0 |
990-EZ for the year ended December 31, 2023: 9 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| VICKY BAVAR | Director | 1 | $0 |
| ELLEN ADAMS | Director | 1 | $0 |
| MICAH LAMBERT | Director | 1 | $0 |
| SUSAN MEYER | Treasurer | 2 | $0 |
| CHERYL SPEHEGER | President | 2 | $0 |
| HEATHER SOBIERALSKI | Board Vice President | 2 | $0 |
| DIANE SCHULTZ | Board Secretary | 2 | $0 |
| BOBBI HALL | Director | 1 | $0 |
| SEAN HALL | Director | 1 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 1454, GRANGER, IN 46530-1454
- In care of
- % CHERYL SPEHEGER
- Signed the 990-EZ
- CHERYL SPEHEGER, President
- Phone
- (574) 334-7734
- Website
- www.michianadownsyndrome.org
Mission
support Down syndrome persons and their families
Program accomplishments
- fundraising and social activities for persons w/Down syndrome andExpenses $47,558 · grants $18,890
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990-EZ on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-EZ on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-EZ on file |
IRS record
- EIN
- 35-1813225
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1991
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G25Z)
- Assets (IRS master file)
- $334,392
- Income (IRS master file)
- $151,991
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2025 | $74,620 | $64,801 | $334,392 | IRS |
| 990-EZ | December 2024 | $73,805 | $57,117 | $325,784 | IRS |
| 990-EZ | December 2023 | $63,676 | $37,109 | $308,193 | XML |
| 990-EZ | December 2022 | – | – | – | IRS |
| 990-EZ | December 2021 | – | – | – | IRS |
| 990-EZ | December 2020 | – | – | – | IRS |
| 990-EZ | December 2019 | – | – | – | IRS |
| 990-EZ | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 35-1813225).
Questions about DOWN SYNDROME FAMILY SUPPORT & ADVOCACY GROUP
- What is the EIN of DOWN SYNDROME FAMILY SUPPORT & ADVOCACY GROUP?
- The employer identification number (EIN) of DOWN SYNDROME FAMILY SUPPORT & ADVOCACY GROUP is 35-1813225.
- Is DOWN SYNDROME FAMILY SUPPORT & ADVOCACY GROUP tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1991.
- Are donations to DOWN SYNDROME FAMILY SUPPORT & ADVOCACY GROUP tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does DOWN SYNDROME FAMILY SUPPORT & ADVOCACY GROUP file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of DOWN SYNDROME FAMILY SUPPORT & ADVOCACY GROUP due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did DOWN SYNDROME FAMILY SUPPORT & ADVOCACY GROUP last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2025.
- Who are the officers and directors of DOWN SYNDROME FAMILY SUPPORT & ADVOCACY GROUP?
- The 990-EZ for the year ended December 31, 2025 lists 8 people; 0 received compensation from the organization.
- How much revenue does DOWN SYNDROME FAMILY SUPPORT & ADVOCACY GROUP have?
- On its 990-EZ for the year ended December 31, 2025 it reported revenue of $74,620, expenses of $64,801 and total assets of $334,392 at year end.
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