Nonprofit · EIN 33-4330209
HELENS PINK SKY FOUNDATION
Tax-exempt · MINNETRISTA, MN 55331
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $2,248,524 | $1,189,032 | $1,059,492 | $1,059,492 | $0 | $1,059,492 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $2,130,266
- Program service revenue
- $0
- Investment income
- $0
- Net income from fundraising events
- $118,258
- Other revenue
- $118,258
Expenses
- Grants and similar amounts paid
- $1,187,000
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Program services (functional)
- $1,187,000
- Management and general (functional)
- $2,032
Balance sheet and other
- Total assets, start of year
- $0
- Total assets, end of year
- $1,059,492
- Total liabilities, end of year
- $0
- Net assets, end of year
- $1,059,492
- Gross receipts
- $2,577,311
- Employees
- 0
- Volunteers
- 20
- Year formed
- 2025
- State of legal domicile
- MN
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| MARK SCHNEIDER | PRESIDENT Trustee or director, Officer | 1 | $0 |
| DAN BORN | VICE-PRESIDENT Trustee or director, Officer | 1 | $0 |
| STEPHANIE BORN | CO-VICE PRESIDENT Trustee or director, Officer | 1 | $0 |
| NICK SCHNEIDER | CO-VICE PRESIDENT Trustee or director, Officer | 1 | $0 |
| DAVE BORN | TREASURER Trustee or director, Officer | 1 | $0 |
| MEG JACKSON | SECRETARY Trustee or director, Officer | 1 | $0 |
| TIM MEYER | DIRECTOR Trustee or director | 1 | $0 |
Address and contacts
- Address (IRS master file)
- 6736 BELLFLOWER DR, MINNETRISTA, MN 55331-2803
- In care of
- % MARK SCHNEIDER
- Principal officer (990 for 2025)
- MARK SCHNEIDER, 6736 BELLFLOWER DR, MINNETRISTA, MN 55331
- Signed the 990
- MARK SCHNEIDER, PRESIDENT
- Phone
- (612) 868-1070
- Website
- HTTPS://WWW.HOPE4HELEN.ORG/
- Return prepared by
- WIPFLI ADVISORY LLC
Mission
HELEN'S PINK SKY FOUNDATION IS COMMITTED TO ADVOCACY, RESEARCH AND CARE FOR THOSE WITH BATTEN DISEASE & CLN2. THROUGH OUR PLATFORM, YOU CAN STAY UPDATED ON HELEN'S JOURNEY, CONTRIBUTE TO THE CAUSE, AND BE A PART OF OUR GROWING COMMUNITY DEDICATED TO SUPPORTING AFFECTED FAMILIES.
Program accomplishments
- HELEN'S PINK SKY FOUNDATION (HOPE4HELEN) ADVANCED ITS MISSION TO ACCELERATE RESEARCH, ADVOCACY, AND AWARENESS FOR CLN2 BATTEN DISEASE BY FUNDING HIGH-IMPACT SCIENTIFIC INITIATIVES AIMED AT DEVELOPING EFFECTIVE TREATMENTS AND ULTIMATELY A CURE. TO FURTHER THESE GOALS, THE FOUNDATION AWARDED $1,187,000 IN RESEARCH GRANTS TO LEADING INSTITUTIONS.THE FOUNDATION ALSO CONTINUED ITS BROADER MISSION PILLARS: ADVOCACY, AWARENESS, AND FAMILY SUPPORT BY EDUCATING THE PUBLIC ABOUT CLN2 BATTEN DISEASE, ENGAGING WITH AFFECTED FAMILIES, AND PROMOTING SCIENTIFIC UNDERSTANDING OF RARE PEDIATRIC NEURODEGENERATIVE DISEASES. THESE EFFORTS COLLECTIVELY ADVANCE THE FOUNDATION'S PURPOSE: TO BRING HOPE, PROGRESS, AND ULTIMATELY A CURE FOR CHILDREN LIKE HELEN.Expenses $1,187,000 · grants $1,187,000
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | Check at the IRS |
| 2023 | December 31, 2023 | May 15, 2024 | Check at the IRS |
IRS record
- EIN
- 33-4330209
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2025
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Assets (IRS master file)
- $1,059,492
- Income (IRS master file)
- $2,577,311
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $2,248,524 | $1,189,032 | $1,059,492 | XML |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 33-4330209).
Questions about HELENS PINK SKY FOUNDATION
- What is the EIN of HELENS PINK SKY FOUNDATION?
- The employer identification number (EIN) of HELENS PINK SKY FOUNDATION is 33-4330209.
- Is HELENS PINK SKY FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2025.
- Are donations to HELENS PINK SKY FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does HELENS PINK SKY FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of HELENS PINK SKY FOUNDATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did HELENS PINK SKY FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of HELENS PINK SKY FOUNDATION?
- The 990 for the year ended December 31, 2025 names MARK SCHNEIDER.
- Who are the officers and directors of HELENS PINK SKY FOUNDATION?
- The 990 for the year ended December 31, 2025 lists 7 people; 0 received compensation from the organization.
- How much revenue does HELENS PINK SKY FOUNDATION have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $2,248,524, expenses of $1,189,032 and total assets of $1,059,492 at year end.
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