Nonprofit · EIN 26-4431001
GLOBAL DOWN SYNDROME FOUNDATION
Tax-exempt · DENVER, CO 80206
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| July 31, 2025 | 990 | $4,716,290 | $4,697,476 | $18,814 | $8,688,920 | $1,403,074 | $7,285,846 |
| July 31, 2024 | 990 | $4,313,796 | $4,670,703 | -$356,907 | $8,646,012 | $1,396,303 | $7,249,709 |
| July 31, 2023 | 990 | $3,826,365 | $3,562,334 | $264,031 | $9,055,430 | $1,396,875 | $7,658,555 |
Financial details: 990 for the year ended July 31, 2025
Revenue
- Contributions, gifts and grants
- $4,520,184
- Membership dues
- $80,785
- Program service revenue
- $4,017
- Investment income
- $192,089
- Net gain from sales of assets
- -$16,607
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $789,464
- Compensation of officers, directors and key employees
- $322,790
- Other salaries and wages
- $1,425,102
- Salaries, compensation and benefits (total)
- $2,028,714
- Professional fundraising fees
- $0
- Legal fees
- $2,340
- Travel
- $306,761
- Depreciation
- $136,322
- Program services (functional)
- $3,405,300
- Management and general (functional)
- $724,918
- Fundraising (functional)
- $567,258
Balance sheet and other
- Total assets, start of year
- $8,646,012
- Total assets, end of year
- $8,688,920
- Total liabilities, end of year
- $1,403,074
- Net assets, end of year
- $7,285,846
- Land, buildings and equipment
- $1,281,888
- Publicly traded securities
- $2,851,549
- Net assets without donor restrictions
- $5,931,451
- Net assets with donor restrictions
- $1,354,395
- Gross receipts
- $5,534,784
- Employees
- 25
- Volunteers
- 239
- Year formed
- 2009
- State of legal domicile
- CO
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended July 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | From related orgs | Other / benefits |
|---|---|---|---|---|---|
| MICHELLE SIE WHITTEN | PRESIDENT AN Trustee or director, Officer | 20 | $154,756 | $154,756 | $37,764 |
| JOHN J SIE | CHAIR Trustee or director, Officer | 1.5 | $0 | $0 | $0 |
| MARY BETH WALLINGFORD | TREASURER Trustee or director, Officer | 3 | $0 | $0 | $0 |
| RICHARD WAYSDORF | SECRETARY Trustee or director, Officer | 1 | $0 | $0 | $0 |
| JOHN C MCGINLEY | DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
| JAY MILLS | DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
| RICKI REST | DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
| TOMAGO COLLINS | DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
| CHARLIE MONFORT | DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
| FRANK STEPHENS | DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
| PETER KUDLA | DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
| JAMIE NIELSEN | DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
990 for the year ended July 31, 2024: 13 people
| Name | Title | Hours / week | Compensation | From related orgs | Other / benefits |
|---|---|---|---|---|---|
| MICHELLE SIE WHITTEN | PRESIDENT AN Trustee or director, Officer | 20 | $129,332 | $129,332 | $36,436 |
| JOHN J SIE | CHAIR Trustee or director, Officer | 1.5 | $0 | $12,000 | $11,355 |
| ANNA M SIE | DIRECTOR Trustee or director | 1.5 | $0 | $0 | $0 |
| MARY BETH WALLINGFORD | TREASURER Trustee or director, Officer | 3 | $0 | $0 | $0 |
| RICHARD WAYSDORF | SECRETARY Trustee or director, Officer | 1 | $0 | $0 | $0 |
| JOHN C MCGINLEY | DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
| JAY MILLS | DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
| RICKI REST | DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
| TOMAGO COLLINS | DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
| CHARLIE MONFORT | DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
| FRANK STEPHENS | DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
| PETER KUDLA | DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
| JAMIE NIELSEN | DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
990 for the year ended July 31, 2023: 11 people
| Name | Title | Hours / week | Compensation | From related orgs | Other / benefits |
|---|---|---|---|---|---|
| MICHELLE SIE WHITTEN | PRESIDENT AN Trustee or director, Officer | 20 | $127,416 | $127,418 | $26,119 |
| JOHN J SIE | CHAIR Trustee or director, Officer | 1.5 | $0 | $12,000 | $34,588 |
| ANNA M SIE | DIRECTOR Trustee or director | 1.5 | $0 | $0 | $0 |
| MARY BETH WALLINGFORD | TREASURER Trustee or director, Officer | 3 | $0 | $0 | $0 |
| RICHARD WAYSDORF | SECRETARY Trustee or director, Officer | 1 | $0 | $0 | $0 |
| JOHN C MCGINLEY | DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
| JAY MILLS | DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
| RICKI REST | DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
| TOMAGO COLLINS | DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
| CHARLIE MONFORT | DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
| FRANK STEPHENS | DIRECTOR Trustee or director | 1 | $0 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 3239 E 2ND AVE, DENVER, CO 80206-5203
- In care of
- % MICHELLE SIE WHITTEN
- Principal officer (990 for 2024)
- MICHELLE SIE WHITTEN, 3239 E 2ND AVENUE, DENVER, CO 80206
- Signed the 990
- MICHELLE SIE WHITTEN, PRESIDENT AND CEO
- Phone
- (720) 548-5618
- Website
- WWW.GLOBALDOWNSYNDROME.ORG
- Return prepared by
- KUNDINGER CORDER & MONTOYA PC
Mission
TO SIGNIFICANTLY IMPROVE THE LIVES OF PEOPLE WITH DOWN SYNDROME THROUGH RESEARCH, MEDICAL CARE, EDUCATION AND ADVOCACY. AN IMPORTANT PART OF THIS MISSION IS TO SUPPORT THE GLOBAL AFFILIATE ORGANIZATIONS THAT WE HELPED ESTABLISH AND CONTINUE TO FUNDRAISE FOR. GLOBAL AND OUR AFFILIATES WORK TOGETHER TO ELONGATE LIFE AND DRAMATICALLY IMPROVE HEALTH OUTCOMES TO ENSURE PEOPLE WITH THE CONDITION CAN REACH THEIR TRUE POTENTIAL. GLOBAL AFFILIATES INCLUDE: CRNIC INSTITUTE FOR DOWN SYNDROME, ALZHEIMER'S & COGNITION CENTER, SIE CENTER FOR DOWN SYNDROME, AND GLOBAL ADULT CLINIC. ANOTHER IMPORTANT PART OF OUR MISSION IS TO ENGAGE IN GOVERNMENT ADVOCACY THAT LEADS TO TRANSFORMATIVE INCREASES IN GOVERNMENT FUNDING FOR DOWN SYNDROME RESEARCH AND MEDICAL CARE WHICH IN TURN WILL CREATE A PIPELINE OF YOUNG TALENT DEDICATED TO THIS POPULATION. BECAUSE OF GLOBAL'S WORK, SCIENTISTS ARE DEVELOPING BETTER METHODS TO UNDERSTAND HOW THE TRIPLICATION LEADS TO A MUCH HIGHER INCIDENCE OF CERTAIN DISEASES (FOR EXAM
Program accomplishments
- RESEARCH AND CLINICAL CARE: DOWN SYNDROME IS WHEN A PERSON IS BORN WITH THREE COPIES OF CHROMOSOME 21 INSTEAD OF THE USUAL TWO. BEFORE GLOBAL WAS ESTABLISHED, DOWN SYNDROME WAS THE LEAST FUNDED GENETIC CONDITION BY THE NATIONAL INSTITUTES OF HEALTH (NIH) AND VERY LITTLE WAS BEING DONE TO INCREASE RESEARCH OR CREATE EVIDENCE-BASED MEDICAL CARE GUIDELINES. -GLOBAL ESTABLISHED THE FIRST DOWN SYNDROME RESEARCH AND MEDICAL CARE INSTITUTE IN OUR COUNTRY - OUR AFFILIATE, THE CRNIC INSTITUTE FOR DOWN SYNDROME. -GLOBAL ESTABLISHED ONE OF THE LARGEST DOWN SYNDROME MEDICAL CENTERS IN THE WORLD SERVING 2,500+ CHILDREN WITH DOWN SYNDROME FROM 35 STATES AND 11 COUNTRYS - OUR AFFILIATE THE SIE CENTER FOR DOWN SYNDROME. -GLOBAL SUCCESSFULLY LOBBIED AND ADVOCATED FOR THE ESTABLISHMENT OF THE TRANS-NIH DOWN SYNDROME RESEARCH PROGRAM CALLED "INCLUDE- AND HAVE LED TO THE RENAISSANCE OF DOWN SYNDROME RESEARCH TODAY. -GLOBAL SUCCESSFULLY LOBBIED AND ADVOCATED FOR THE NATIONAL INSTITUTES OF AGING TO LAUNCH THEIR LONGITUDINAL AD-DS BIOMARKER GRANTS. -GLOBAL CREATED THE FIRST EVIDENCED-BASED GLOBAL MEDICAL CARE GUIDELINES FOR ADULTS WITH DOWN SYNDROME PUBLISHED IN THE JOURNAL OF AMERICAN MEDICAL JOURNAL (JAMA) -GLOBAL ESTABLISHED THE BE BEAUTIFUL BE YOURSELF FASHION SHOW, THE WORLD'S LARGEST FUNDRAISER BENEFITTING PEOPLE WITH DOWN SYNDROME AND THE ACCEPTABILITY GALA, THE FIRST DOWN SYNDROME RESEARCH FUNDRAISER IN WASHINGTON DC, -GLOBAL ORGANIZED THE: FIRST DOWN SYNDROME RESEARCH SUMMIT IN THE US IN 2006 HEADED BY NOBEL LAUREATE TOM CECH FIRST DOWN SYNDROME RESEARCH CONFERENCE AT NIH IN 2010 FOCUSED ON DATABASES, BIOBANKS & REGISTRIES WHICH RESULTED IN NIH CREATING THE DSCONNECTS DOWN SYNDROME REGISTRY FIRST DOWN SYNDROME & ALZHEIMER'S DISEASE WORKSHOP IN COLLABORATION WITH THE ALZHEIMER'S ASSOCIATION AND NIA IN 2012 FIRST DOWN SYNDROME & ALZHEIMER'S DISEASE RESEARCH GRANTS CO-FUNDED BY GLOBAL AND THE ALZHEIMER'S ASSOCIATION. GLOBAL IS DELIVERING ON OUR MISSION THROUGH GROUNDBREAKING RESEARCH WITH OUR AFFILIATES. FOR EXAMPLE WE HAVE: - DISCOVERED THAT DOWN SYNDROME IS AN IMMUNE SYSTEM DISORDER AND WE HAVE CONDUCTED TWO CLINICAL TRIALS TESTING DRUGS THAT NORMALIZE THE IMMUNE SYSTEM AND HAVE HAD PROFOUND RESULTS; WE ARE CURRENTLY ORGANIZING A 3RD SUCH CLINICAL TRIAL - HOLD AN NIH INCLUDE CLINICAL TRIAL GRANT AIMED AT EFFECTIVELY TREATING DOWN SYNDROME REGRESSION DISORDER - DISCOVERED THAT PEOPLE WITH DOWN SYNDROME ARE HYPOXIC - DISCOVERED THREE DISTINCT PHENOTYPES IN DOWN SYNDROME THAT COULD LEAD TO MORE EFFECTIVE "PRECISION MEDICINE" - SUPPORTED THE FIRST CLINICAL TRIALS TESTING PROMISING ALZHEIMER'S DRUGS IN PEOPLE WITH DOWN SYNDROME - PUBLISHED "THE" BEHAVIORAL GUIDELINES FOR CHILDREN WITH DOWN SYNDROME - CREATED A RUBRIC FOR TEST CHILDREN WITH DOWN SYNDROME FOR DYSPHAGIA - PUBLISHED GROUNDBREAKING NATURAL HISTORY STUDIES IN INFANTILE SPASMS, PHYSICAL THERAPY, NEUROLOGY AND MORE.Expenses $1,668,619 · grants $627,200
- OUTREACH, EDUCATION, AND CONFERENCES: GLOBAL OFFERS A VARIETY OF RESEARCH AND MEDICAL OUTREACH MEETINGS, WORKSHOPS, WEBINARS, EDUCATIONAL PROGRAMS, AND CLASSES DESIGNED TO SUPPORT AND IMPROVE THE LIVES OF GLOBAL 'S SELF- ADVOCATES, FAMILY MEMBERS AND PROFESSIONALS SERVING OUR COMMUNITY. MANY OF OUR EDUCATIONAL PROGRAMS INVOLVE BUILDING SKILLS, BUILDING SELF-ESTEEM AND FOSTERING INDEPENDENCE.Expenses $1,736,681 · grants $162,264 · revenue $4,017
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in July, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | July 31, 2026 | December 15, 2026 | Not due yet |
| 2024 | July 31, 2025 | December 15, 2025 | 990 on file |
| 2023 | July 31, 2024 | December 16, 2024 | 990 on file |
IRS record
- EIN
- 26-4431001
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2009
- Accounting year ends
- July
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Health care (E12)
- Assets (IRS master file)
- $8,688,920
- Income (IRS master file)
- $5,534,784
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | July 2025 | $4,716,290 | $4,697,476 | $8,688,920 | XML |
| 990 | July 2024 | $4,313,796 | $4,670,703 | $8,646,012 | XML |
| 990 | July 2023 | $3,826,365 | $3,562,334 | $9,055,430 | XML |
| 990 | July 2022 | $946,045 | $1,207,187 | $8,604,160 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2019 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 26-4431001).
Questions about GLOBAL DOWN SYNDROME FOUNDATION
- What is the EIN of GLOBAL DOWN SYNDROME FOUNDATION?
- The employer identification number (EIN) of GLOBAL DOWN SYNDROME FOUNDATION is 26-4431001.
- Is GLOBAL DOWN SYNDROME FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2009.
- Are donations to GLOBAL DOWN SYNDROME FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does GLOBAL DOWN SYNDROME FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of GLOBAL DOWN SYNDROME FOUNDATION due?
- The return for tax year 2025 (the year ending July 31, 2026) is due December 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did GLOBAL DOWN SYNDROME FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended July 2025.
- Who is the principal officer of GLOBAL DOWN SYNDROME FOUNDATION?
- The 990 for the year ended July 31, 2025 names MICHELLE SIE WHITTEN.
- Who are the officers and directors of GLOBAL DOWN SYNDROME FOUNDATION?
- The 990 for the year ended July 31, 2025 lists 12 people; 1 received compensation from the organization, the highest $154,756 (MICHELLE SIE WHITTEN, PRESIDENT AN).
- How much revenue does GLOBAL DOWN SYNDROME FOUNDATION have?
- On its 990 for the year ended July 31, 2025 it reported revenue of $4,716,290, expenses of $4,697,476 and total assets of $8,688,920 at year end.
Other nonprofits in DENVER
- SAINT JOSEPH HOSPITAL EIN 84-0417134 · last filed 990 for 2024
- NATIONAL JEWISH HEALTH EIN 74-2044647 · last filed 990 for 2025
- INTERNATIONAL MEDICAL RELIEF EIN 46-0494595 · last filed 990 for 2024
- THE COLORADO HEALTH FOUNDATION EIN 74-2568941 · last filed 990-PF for 2024
- COLORADO HEALTH BENEFIT EXCHANGE EIN 45-3733823 · last filed 990 for 2025
- DONOR ALLIANCE INC EIN 84-1003771 · last filed 990 for 2024
- ROCKY MOUNTAIN PLANNED PARENTHOOD INC EIN 84-0404253 · last filed 990 for 2025
- NEXTFIFTY INITIATIVE EIN 26-2700185 · last filed 990-PF for 2025