Nonprofit · EIN 26-3331487
GLOBAL GENES
Also known as The Project The Project-The Children's Rare Disease Network, The Project-The Children's Rare Disease Network
Tax-exempt · WASHINGTON, DC 20005
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $7,145,531 | $7,415,893 | -$270,362 | $1,538,482 | $1,351,107 | $187,375 |
| December 31, 2023 | 990 | $8,469,402 | $8,561,859 | -$92,457 | $2,099,140 | $1,641,403 | $457,737 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $5,686,341
- Program service revenue
- $1,449,717
- Investment income
- $9,473
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $175,264
- Compensation of officers, directors and key employees
- $711,308
- Other salaries and wages
- $2,848,775
- Salaries, compensation and benefits (total)
- $3,960,600
- Professional fundraising fees
- $0
- Legal fees
- $7,417
- Accounting fees
- $61,310
- Occupancy
- $78,909
- Travel
- $137,940
- Program services (functional)
- $5,861,349
- Management and general (functional)
- $954,354
- Fundraising (functional)
- $600,190
Balance sheet and other
- Total assets, start of year
- $2,099,140
- Total assets, end of year
- $1,538,482
- Total liabilities, end of year
- $1,351,107
- Net assets, end of year
- $187,375
- Net assets without donor restrictions
- -$1,318,314
- Net assets with donor restrictions
- $1,505,689
- Gross receipts
- $7,145,531
- Employees
- 38
- Volunteers
- 42
- Year formed
- 2008
- State of legal domicile
- CA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| CHARLENE SON RIGBY | CEO Officer | 40 | $319,125 | $836 |
| NICOLE R BOICE | FOUNDER & CHIEF MISSION OFFICER Trustee or director, Officer | 40 | $254,375 | $86 |
| KARMEN TRZUPEK | SENIOR DIRECTOR, SCIENTIFIC PROGRAMS Highest-paid employee | 40 | $179,287 | $6,386 |
| ZOHREH TALEBIZADEH | SENIOR DIRECTOR, RARE-X RESEARCH PROGRAM Highest-paid employee | 40 | $180,000 | $86 |
| LAUREN ALFORD | SENIOR DIRECTOR, MARKETING Highest-paid employee | 40 | $168,506 | $86 |
| CHWENWOAN KUAN | DIRECTOR, PROGRAM OPERATIONS Highest-paid employee | 40 | $146,285 | $6,062 |
| TIMOTHY EHRHARD | SENIOR DIRECTOR, IT (TERM 12/24) Highest-paid employee | 40 | $151,746 | $86 |
| VICTORIA WEISS | SENIOR DIRECTOR, FINANCE Officer | 24 | $136,800 | $86 |
| WALT KOWTONIUK | CHAIR Trustee or director, Officer | 1 | $0 | $0 |
| KATHERINE MAYNARD | VICE CHAIR Trustee or director, Officer | 1 | $0 | $0 |
| SIMON FROST | CFO Trustee or director, Officer | 1 | $0 | $0 |
| CHRISTINA HARTMAN | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| BETSY BOGARD | DIRECTOR Trustee or director | 1 | $0 | $0 |
| KHRYSTAL DAVIS | DIRECTOR Trustee or director | 1 | $0 | $0 |
| ILANA FOGELMAN | DIRECTOR Trustee or director | 1 | $0 | $0 |
11 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| PETER GOODHAND | DIRECTOR Trustee or director | 1 | $0 |
| HUGH HEMPEL | DIRECTOR Trustee or director | 1 | $0 |
| RAM IYER | DIRECTOR Trustee or director | 1 | $0 |
| NEIL KUMAR | DIRECTOR Trustee or director | 1 | $0 |
| CAROLINE LOEWY | DIRECTOR Trustee or director | 1 | $0 |
| INDU NAVAR | DIRECTOR Trustee or director | 1 | $0 |
| DAVID PEARCE | DIRECTOR Trustee or director | 1 | $0 |
| JOHN REYNDERS | DIRECTOR Trustee or director | 1 | $0 |
| MORRIE RUFFIN | DIRECTOR Trustee or director | 1 | $0 |
| ALVIN SHIH | DIRECTOR Trustee or director | 1 | $0 |
| KELLY MCVEARRY | DIRECTOR Trustee or director | 1 | $0 |
990 for the year ended December 31, 2023: 25 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| CHARLENE RIGBY | CEO Officer | 40 | $322,542 | $75 |
| NICOLE R BOICE | FOUNDER & CHIEF MISSION OFFICER Trustee or director, Officer | 40 | $257,792 | $72 |
| TIMOTHY R EHRHARD | SENIOR DIRECTOR, IT Highest-paid employee | 40 | $170,000 | $78 |
| KARMEN TRZUPEK | SENIOR DIRECTOR, SCIENTIFIC PROGRAMS Highest-paid employee | 40 | $162,097 | $6,378 |
| LAUREN ALFORD | SENIOR DIRECTOR, MARKETING COMMUNICATION Highest-paid employee | 40 | $165,000 | $78 |
| MARIA DELLA ROCCA | SENIOR DIRECTOR, SUPPORT & EDUCATION Former | 40 | $160,779 | $72 |
| VANESSA VOGEL-FARLEY | SENIOR DIRECTOR, RESEARCH DATA ANALYTICS & GOVERNA Former | 40 | $160,000 | $72 |
| VICTORIA WEISS | SENIOR DIRECTOR, FINANCE Officer | 24 | $124,450 | $0 |
| BETSY BOGARD | DIRECTOR Trustee or director | 1 | $0 | $0 |
| KHRYSTAL DAVIS | DIRECTOR Trustee or director | 1 | $0 | $0 |
| ILANA FOGELMAN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| SIMON FROST | CFO Trustee or director, Officer | 1 | $0 | $0 |
| PETER GOODHAND | DIRECTOR Trustee or director | 1 | $0 | $0 |
| CHRISTINA HARTMAN | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| HUGH HEMPEL | DIRECTOR Trustee or director | 1 | $0 | $0 |
| RAM IYER | DIRECTOR Trustee or director | 1 | $0 | $0 |
| WALT KOWTONIUK | CHAIR Trustee or director, Officer | 1 | $0 | $0 |
| NEIL KUMAR | DIRECTOR Trustee or director | 1 | $0 | $0 |
| CAROLINE LOEWY | DIRECTOR Trustee or director | 1 | $0 | $0 |
| KATHERINE MAYNARD | VICE CHAIR Trustee or director, Officer | 1 | $0 | $0 |
| INDU NAVAR | DIRECTOR Trustee or director | 1 | $0 | $0 |
| DAVID PEARCE | DIRECTOR Trustee or director | 1 | $0 | $0 |
| JOHN REYNDERS | DIRECTOR Trustee or director | 1 | $0 | $0 |
| MORRIE RUFFIN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| ALVIN SHIH | DIRECTOR Trustee or director | 1 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 1012 14TH ST NW STE 500, WASHINGTON, DC 20005-3406
- Principal officer (990 for 2024)
- CHARLENE SON RIGBY, 1012 14TH STREET NW SUITE 500, WASHINGTON, DC 20005
- Signed the 990
- CHARLENE SON RIGBY, CEO
- Phone
- (949) 248-7273
- Website
- GLOBALGENES.ORG
- 990-N for 2008 filed under this EIN
- Most likely by a chapter, club or affiliate (it says receipts are normally $50,000 or less). Officer: Nicole Boice Founder CEO, 24338 El Toro Road-Suite507, Laguna Woods CA 92637. Mailing address: 24338 El Toro Road-Suite507, Laguna Woods CA 92637. Website: www.theprojectcharity.org
- Return prepared by
- CLIFTONLARSONALLEN LLP
Mission
GLOBAL GENES' MISSION IS TO DRIVE CHANGE THROUGH THE SUPPORT OF RARE DISEASE PATIENTS AND FAMILIES WHILE EQUIPPING ADVOCACY LEADERS WITH IMPORTANT TOOLS, RESOURCES, MENTORING, AND CONNECTIONS TO FURTHER ADVANCE AWARENESS, EDUCATION, AND RESEARCH.
Program accomplishments
- GLOBAL GENES' PROGRAMS PROVIDE NEXT-GENERATION PATIENT ADVOCATES WITH A CONTINUUM OF SERVICES TO ACCELERATE THEIR PATH FROM EARLY SUPPORT AND AWARENESS THROUGH RESEARCH READINESS, USING A COLLABORATIVE APPROACH THAT INVOLVES BIOPHARMA, RESEARCHERS AND FUNDERS, WITH DATA AS A CENTRAL CORE. WE AIM TO HAVE SIGNIFICANT IMPACT ON THE LIVES OF PEOPLE LIVING WITH RARE DISEASES BY BRINGING THE COMMUNITY TOGETHER THROUGH OUR PROGRAMS, WHICH ARE DESIGNED TO HELP PARTICIPANTS DEVELOP THE SKILLS THEY SEEK TO BUILD AND LEAD ORGANIZATIONS, BECOME RESEARCH READY, AND PURSUE THE DEVELOPMENT OF TREATMENTS. WE EQUIP ADVOCATES WITH THE KNOWLEDGE, SKILLS, AND CONNECTIONS THEY NEED TO ADVANCE THERAPIES AND AWARENESS FOR THEIR COMMUNITIES.Expenses $5,861,349 · grants $175,264 · revenue $1,449,717
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 26-3331487
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2009
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G12)
- Assets (IRS master file)
- $1,538,482
- Income (IRS master file)
- $7,145,531
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $7,145,531 | $7,415,893 | $1,538,482 | XML |
| 990 | December 2023 | $8,469,402 | $8,561,859 | $2,099,140 | XML |
| 990 | December 2022 | $5,557,435 | $7,700,189 | $2,294,462 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
| 990 | December 2017 | – | – | – | IRS |
| 990-N for 2008 Officer: Nicole Boice Founder CEO Filed under this EIN, most likely by a chapter or affiliate | December 31, 2008 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 26-3331487).
Questions about GLOBAL GENES
- What is the EIN of GLOBAL GENES?
- The employer identification number (EIN) of GLOBAL GENES is 26-3331487.
- Is GLOBAL GENES tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2009.
- Are donations to GLOBAL GENES tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does GLOBAL GENES file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of GLOBAL GENES due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did GLOBAL GENES last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of GLOBAL GENES?
- The 990 for the year ended December 31, 2024 names CHARLENE SON RIGBY.
- Who are the officers and directors of GLOBAL GENES?
- The 990 for the year ended December 31, 2024 lists 26 people; 8 received compensation from the organization, the highest $319,125 (CHARLENE SON RIGBY, CEO).
- How much revenue does GLOBAL GENES have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $7,145,531, expenses of $7,415,893 and total assets of $1,538,482 at year end.
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