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Nonprofit · EIN 26-1577154

USHER SYNDROME SOCIETY INC

Tax-exempt · NEEDHAM, MA 02492

Financials

$500K$448K2023$1.5M$451K2024$1.3M$1M2025
Revenue Expenses · by fiscal year end
Financials of USHER SYNDROME SOCIETY INC by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2025990$1,294,589$1,009,795$284,794$2,313,420$1,985$2,311,435
December 31, 2024990$1,540,380$450,758$1,089,622$2,032,699$6,058$2,026,641
December 31, 2023990$499,989$448,421$51,568$681,044$0$681,044
Financial details: 990 for the year ended December 31, 2025

Revenue

Contributions, gifts and grants
$1,136,281
Program service revenue
$0
Investment income
$44,024
Net income from fundraising events
$113,766
Other revenue
$114,284

Expenses

Grants and similar amounts paid
$767,343
Salaries, compensation and benefits (total)
$0
Professional fundraising fees
$0
Legal fees
$2,341
Accounting fees
$12,136
Travel
$29
Program services (functional)
$892,446
Management and general (functional)
$41,353
Fundraising (functional)
$75,996

Balance sheet and other

Total assets, start of year
$2,032,699
Total assets, end of year
$2,313,420
Total liabilities, end of year
$1,985
Net assets, end of year
$2,311,435
Net assets without donor restrictions
$1,505,385
Net assets with donor restrictions
$806,050
Gross receipts
$1,368,892
Employees
0
Volunteers
50
Year formed
2008
State of legal domicile
MA

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2025, highest compensation first.

NameTitleHours / weekCompensation
Nancy CordermanPresident
Trustee or director, Officer
50$0
David CordermanVice President
Trustee or director, Officer
5$0
Alan PintoDirector
Trustee or director
5$0
Rebecca AlexanderDirector
Trustee or director
5$0
Tori BanuDirector
Trustee or director
1$0
Peggy BorstDirector
Trustee or director
10$0
Hannah CordermanDirector
Trustee or director
5$0
Sophia BoccardDirector
Trustee or director
1$0
990 for the year ended December 31, 2024: 9 people
NameTitleHours / weekCompensation
Alan PintoDirector
Trustee or director
5$0
Rebecca AlexanderDirector
Trustee or director
5$0
Tori BanuDirector
Trustee or director
1$0
Peggy BorstDirector
Trustee or director
10$0
Hannah CordermanDirector
Trustee or director
5$0
Sophia BoccardDirector
Trustee or director
1$0
Michael ConnDirector
Trustee or director
5$0
Nancy CordermanPresident
Trustee or director, Officer
50$0
David CordermanChair
Trustee or director, Officer
5$0
990 for the year ended December 31, 2023: 8 people
NameTitleHours / weekCompensation
REBECCA ALEXANDERDIRECTOR
Trustee or director
20$0
TORI BANUDIRECTOR
Trustee or director
20$0
SOPHIA BOCCARDDIRECTOR
Trustee or director
1$0
PEGGY BORSTDIRECTOR
Trustee or director
1$0
ALAN PINTODIRECTOR
Trustee or director
1$0
HANNAH CORDERMANDIRECTOR
Trustee or director
5$0
NANCY CORDERMANPRESIDENT, DIRECTOR
Trustee or director
40$0
DAVID CORDERMANCHAIRMAN
Trustee or director
2$0

Address and contacts

Address (IRS master file)
1544 CENTRAL AVE, NEEDHAM, MA 02492-1467
In care of
% NANCY CORDERMAN
Principal officer (990 for 2025)
Nancy Corderman, 1544 Central Avenue, Needham, MA 02492
Signed the 990
NANCY CORDERMAN, President
Phone
(781) 838-0204
Return prepared by
Mullins PC

Mission

To use the arts to create empathy in order to raise awareness and funding for Usher Syndrome to ultimately find a cure.

990 for the year ended December 31, 2025

Program accomplishments

  • In 2025, the Usher Syndrome Society continued its award-winning Every Second Counts campaign with a new commercial bringing total impressions to more than 500 million. The campaign returned to Times Square for a second time, featuring members of the Usher syndrome community and generating national coverage, including an ABC News segment highlighting the powerful story of a newly diagnosed family. Our awareness efforts also included a first-of-its-kind immersive exhibit in New York City attended by more than 200 guests, an event featuring a singer-songwriter sharing his experience of vision loss, and a traveling exhibit displayed in five building lobbies across Boston. Together, these initiatives helped generate the funding needed to award $763,000 for research, representing a 188% increase in research support from the prior year. The cutting edge PUSH research program funded by the Usher syndrome Society, reached major scientific milestones, with new data supporting a promising platform that may lead to treatments for certain forms of Usher syndrome.
    Expenses $892,446 · grants $767,343

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026990 on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990 on file

IRS record

EIN
26-1577154
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
2008
Accounting year ends
December
Files
Form 990 or 990-EZ
Assets (IRS master file)
$2,313,420
Income (IRS master file)
$1,368,892

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2025$1,294,589$1,009,795$2,313,420XML
990December 2024$1,540,380$450,758$2,032,699XML
990December 2023$499,989$448,421$681,044XML
990December 2022$473,469$409,823$629,476IRS
990December 2021–––IRS
990December 2020–––IRS
990December 2019–––IRS
990-EZDecember 2018–––IRS

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 26-1577154).

Questions about USHER SYNDROME SOCIETY INC

What is the EIN of USHER SYNDROME SOCIETY INC?
The employer identification number (EIN) of USHER SYNDROME SOCIETY INC is 26-1577154.
Is USHER SYNDROME SOCIETY INC tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2008.
Are donations to USHER SYNDROME SOCIETY INC tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does USHER SYNDROME SOCIETY INC file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of USHER SYNDROME SOCIETY INC due?
The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
When did USHER SYNDROME SOCIETY INC last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2025.
Who is the principal officer of USHER SYNDROME SOCIETY INC?
The 990 for the year ended December 31, 2025 names Nancy Corderman.
Who are the officers and directors of USHER SYNDROME SOCIETY INC?
The 990 for the year ended December 31, 2025 lists 8 people; 0 received compensation from the organization.
How much revenue does USHER SYNDROME SOCIETY INC have?
On its 990 for the year ended December 31, 2025 it reported revenue of $1,294,589, expenses of $1,009,795 and total assets of $2,313,420 at year end.

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