Nonprofit · EIN 26-1359425
NEW JERSEY RETT SYNDROME ASSOCIATION
Tax-exempt · FREEHOLD, NJ 07728
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| June 30, 2025 | 990 | $44,467 | $55,261 | -$10,794 | $52,358 | $0 | $52,358 |
| June 30, 2024 | 990 | $29,783 | $5,705 | $24,078 | $63,152 | $0 | $63,152 |
| June 30, 2023 | 990 | $21,485 | $45,829 | -$24,344 | $39,074 | $0 | $39,074 |
Financial details: 990 for the year ended June 30, 2025
Revenue
- Contributions, gifts and grants
- $36,869
- Program service revenue
- $0
- Investment income
- $0
- Net income from fundraising events
- $7,598
- Other revenue
- $7,598
Expenses
- Grants and similar amounts paid
- $50,000
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Program services (functional)
- $50,000
- Management and general (functional)
- $5,261
Balance sheet and other
- Total assets, start of year
- $63,152
- Total assets, end of year
- $52,358
- Total liabilities, end of year
- $0
- Net assets, end of year
- $52,358
- Gross receipts
- $58,958
- Employees
- 0
- Year formed
- 2007
- State of legal domicile
- NJ
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended June 30, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| CARLA BENETATOS | TRUSTEE Trustee or director | 5 | $0 |
| ROBIN DIAMOND | TREASURER Trustee or director, Officer | 20 | $0 |
| LESLIE GREENFIELD | EXEC. DIRECT Trustee or director, Officer | 20 | $0 |
| CARL RASO MD | TRUSTEE Trustee or director | 20 | $0 |
| STEVE MEDLIN | TRUSTEE Trustee or director | 5 | $0 |
| GERARD SAYDAH | TRUSTEE Trustee or director | 5 | $0 |
990 for the year ended June 30, 2024: 6 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| CARLA BENETATOS | TRUSTEE Trustee or director | 5 | $0 |
| ROBIN DIAMOND | TREASURER Trustee or director, Officer | 20 | $0 |
| LESLIE GREENFIELD | EXEC. DIRECT Trustee or director, Officer | 20 | $0 |
| CARL RASO MD | TRUSTEE Trustee or director | 20 | $0 |
| STEVE MEDLIN | TRUSTEE Trustee or director | 5 | $0 |
| GERARD SAYDAH | TRUSTEE Trustee or director | 5 | $0 |
990 for the year ended June 30, 2023: 6 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| CARLA BENETATOS | TRUSTEE Trustee or director | 5 | $0 |
| ROBIN DIAMOND | TREASURER Trustee or director, Officer | 20 | $0 |
| LESLIE GREENFIELD | EXEC. DIRECT Trustee or director, Officer | 20 | $0 |
| CARL RASO MD | TRUSTEE Trustee or director | 20 | $0 |
| STEVE MEDLIN | TRUSTEE Trustee or director | 5 | $0 |
| GERARD SAYDAH | TRUSTEE Trustee or director | 5 | $0 |
Address and contacts
- Address (IRS master file)
- 417 BRICKYARD RD, FREEHOLD, NJ 07728-8467
- In care of
- % LESLIE GREENFIELD
- Principal officer (990 for 2024)
- ROBIN DIAMOND, 2 HEMLOCK COURT, EAST BRUNSWICK, NJ 08816
- Signed the 990
- ROBIN DIAMOND, TREASURER
- Phone
- (908) 204-0106
- Website
- WWW.NJRSA.ORG
- Return prepared by
- F&M ASSOCIATES OF EB INC
Mission
TO INCREASE PUBLIC UNDERSTANDING OF THE RETT SYNDROME, ITS NATURE AND TREATMENT; TO RESEARCH RETT SYNDROME AND REDUCE THE STIGMA OF THE SAME BY MEANS OF EDUCATION OF THE COMMUNITY CONCERNING RETT SYNDROME AS A DISEASE AND PUBLIC HEALTH PROBLEM; TO MAINTAIN A RETT SYNDROME.
Program accomplishments
- TO INCREASE PUBLIC UNDERSTANDING OF RETT SYNDROME, ITS NATURE AND TREATMENT TO RESEARCH RETT SYNDROME AND REDUCE THE STIGMA OF THE SAME BY MEANS OF EDUCATION OF THE COMMUNITY CONCERNING RETT SYNDROME AS A DISEASE AND PUBLIC HEALTH PROBLEM; TO MAINTAIN A RETT SYNDROME.Expenses $50,000 · grants $50,000
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in June, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | June 30, 2026 | November 16, 2026 | Not due yet |
| 2024 | June 30, 2025 | November 17, 2025 | 990 on file |
| 2023 | June 30, 2024 | November 15, 2024 | 990 on file |
IRS record
- EIN
- 26-1359425
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2008
- Accounting year ends
- June
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H80)
- Assets (IRS master file)
- $52,358
- Income (IRS master file)
- $58,958
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | June 2025 | $44,467 | $55,261 | $52,358 | IRS |
| 990 | June 2024 | $29,783 | $5,705 | $63,152 | IRS |
| 990 | June 2023 | $21,485 | $45,829 | $39,074 | XML |
| 990 | June 2022 | $56,958 | $62,199 | $63,418 | IRS |
| 990 | June 2021 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 26-1359425).
Questions about NEW JERSEY RETT SYNDROME ASSOCIATION
- What is the EIN of NEW JERSEY RETT SYNDROME ASSOCIATION?
- The employer identification number (EIN) of NEW JERSEY RETT SYNDROME ASSOCIATION is 26-1359425.
- Is NEW JERSEY RETT SYNDROME ASSOCIATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2008.
- Are donations to NEW JERSEY RETT SYNDROME ASSOCIATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does NEW JERSEY RETT SYNDROME ASSOCIATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of NEW JERSEY RETT SYNDROME ASSOCIATION due?
- The return for tax year 2025 (the year ending June 30, 2026) is due November 16, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did NEW JERSEY RETT SYNDROME ASSOCIATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended June 2025.
- Who is the principal officer of NEW JERSEY RETT SYNDROME ASSOCIATION?
- The 990 for the year ended June 30, 2025 names ROBIN DIAMOND.
- Who are the officers and directors of NEW JERSEY RETT SYNDROME ASSOCIATION?
- The 990 for the year ended June 30, 2025 lists 6 people; 0 received compensation from the organization.
- How much revenue does NEW JERSEY RETT SYNDROME ASSOCIATION have?
- On its 990 for the year ended June 30, 2025 it reported revenue of $44,467, expenses of $55,261 and total assets of $52,358 at year end.
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