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Nonprofit · EIN 23-7191992

TOURETTE ASSOCIATION OF AMERICA INC

Tax-exempt · BAYSIDE, NY 11361

Financials

$5M$6.6M2023$5.2M$5.8M2024
Revenue Expenses · by fiscal year end
Financials of TOURETTE ASSOCIATION OF AMERICA INC by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
February 28, 2025990$5,236,564$5,799,579-$563,015$9,502,751$1,714,865$7,787,886
February 29, 2024990$5,048,195$6,604,537-$1,556,342$10,414,671$2,262,774$8,151,897
Financial details: 990 for the year ended February 28, 2025

Revenue

Contributions, gifts and grants
$4,694,677
of which government grants
$1,221,509
Program service revenue
$105,365
Investment income
$436,522
Net gain from sales of assets
$168,240
Other revenue
$0

Expenses

Grants and similar amounts paid
$673,396
Compensation of officers, directors and key employees
$829,858
Other salaries and wages
$1,801,215
Salaries, compensation and benefits (total)
$3,208,563
Professional fundraising fees
$0
Legal fees
$12,819
Accounting fees
$46,000
Occupancy
$82,850
Travel
$287,536
Depreciation
$6,296
Program services (functional)
$4,426,082
Management and general (functional)
$638,721
Fundraising (functional)
$734,776

Balance sheet and other

Total assets, start of year
$10,414,671
Total assets, end of year
$9,502,751
Total liabilities, end of year
$1,714,865
Net assets, end of year
$7,787,886
Land, buildings and equipment
$10,080
Publicly traded securities
$7,062,228
Net assets without donor restrictions
$5,654,225
Net assets with donor restrictions
$2,133,661
Gross receipts
$9,853,155
Employees
38
Volunteers
52
Year formed
1972
State of legal domicile
NY

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended February 28, 2025, highest compensation first.

NameTitleHours / weekCompensationOther / benefits
AMANDA TALTYPRESIDENT & CEO
Officer
40$295,326$14,500
SONJA MASON-VIDALVP OF FINANCE & ADM.
Officer
40$157,479$24,262
KARON HARRISON - THRU 101624VP OF RESOURCE DEVELOPMENT & AFFILIATES SERVICES
Officer
40$134,312$23,059
JAMES SARACINIVP, MARKETING & COMMUNICATIONS
Highest-paid employee
40$145,815$4,862
KATRINA HERMETETVP, MEDICAL & SCIENTIFIC AFFAIRS
Highest-paid employee
40$104,186$9,583
JAMES NICHOLSVP OF PUBLIC POLICY
Officer
40$92,129$14,620
SCOTT STERLINGVP OF RESOURCE DEVELOPMENT & AFFILIATE SERVICES
Officer
40$69,689$0
DIANA FELNER - THRU 12024VP OF PUBLIC POLICY
Officer
40$10,943$0
STEPHEN BARRONCHAIRMAN OF THE BOARD
Trustee or director, Officer
2$0$0
DAVID SCHOENHAARFIRST VICE CHAIR
Trustee or director, Officer
2$0$0
JASMINE TARKOFFSECOND VICE CHAIR
Trustee or director, Officer
2$0$0
JEFFREY KRAMERTHIRD VICE CHAIR
Trustee or director, Officer
2$0$0
ALICE KANEFOURTH VICE CHAIR
Trustee or director, Officer
2$0$0
CHERI DAVID CPADIRECTOR
Trustee or director
2$0$0
MONTE REDMANDIRECTOR
Trustee or director
2$0$0
12 more people on this return
NameTitleHours / weekCompensation
PAUL DEVOREDIRECTOR
Trustee or director
2$0
MARC BENSONDIRECTOR
Trustee or director
2$0
BRUCE OCHSMANDIRECTOR
Trustee or director
2$0
DANIEL MCGARVEYDIRECTOR
Trustee or director
2$0
CINDY KURTZDIRECTOR
Trustee or director
2$0
ROVENA SCHIRLINGDIRECTOR
Trustee or director
2$0
RANDI ZEMSKYDIRECTOR
Trustee or director
4$0
KARL VALENTINIDIRECTOR
Trustee or director
2$0
JOHN WALKUP MDDIRECTOR
Trustee or director
2$0
SUSAN COUREY PHDDIRECTOR
Trustee or director
2$0
ANTHONY ACAMPORA EFF 22425DIRECTOR
Trustee or director
2$0
DASH MIHOK EFF 22425DIRECTOR
Trustee or director
2$0
990 for the year ended February 29, 2024: 22 people
NameTitleHours / weekCompensationOther / benefits
AMANDA TALTYPRESIDENT & CEO
Officer
40$288,421$16,580
KARON HARRISONVP RESOURCE DEV. AND AFFILIATE SERV.
Officer
40$182,811$9,930
DIANA FELNERVICE PRES., PUBLIC POLICY
Officer
40$146,014$25,070
SONJA MASON-VIDALVP OF FINANCE & ADM.
Officer
40$155,533$7,766
JOSHUA NADEAUVP OF MED.&SCI. RESEARCH (OUTGOING)
Highest-paid employee
40$116,866$11,532
ALICE KANEFOURTH VICE CHAIR
Trustee or director, Officer
2$0$0
BRUCE D OCHSMANDIRECTOR
Trustee or director
2$0$0
CHERI G DAVID CPADIRECTOR
Trustee or director
2$0$0
CINDY KURTZDIRECTOR
Trustee or director
2$0$0
DANIEL MCGARVEYDIRECTOR
Trustee or director
2$0$0
DAVID SCHOENHAARFIRST VICE CHAIR
Trustee or director, Officer
2$0$0
JASMINE TARKOFFSECOND VICE CHAIR
Trustee or director, Officer
2$0$0
JEFFREY KRAMERTHIRD VICE CHAIR
Trustee or director, Officer
2$0$0
JOHN WALKUP MDDIRECTOR
Trustee or director
2$0$0
JULIE MOELISDIRECTOR (OUTGOING)
Trustee or director
2$0$0
MONTE REDMANDIRECTOR
Trustee or director
2$0$0
PAUL S DEVOREDIRECTOR
Trustee or director
2$0$0
RANDI ZEMSKYDIRECTOR
Trustee or director
2$0$0
ROVENA SCHIRLINGDIRECTOR
Trustee or director
2$0$0
STEPHEN BARRONCHAIR
Trustee or director, Officer
4$0$0
SUSAN COUREY PHDDIRECTOR
Trustee or director
2$0$0
KARL VALENTINIDIRECTOR
Trustee or director
2$0$0

Address and contacts

Address (IRS master file)
4240 BELL BLVD STE 507, BAYSIDE, NY 11361-2861
Mailing address (990-N for 2025)
20 Thomas Jefferson La, Snyder NY 14226
Principal officer (990 for 2024)
ANDREW JULIA, 42-40 BELL BOULEVARD, BAYSIDE, NY 113612332
Principal officer (990-N for 2025)
Susan Conners, 20 Thomas Jefferson La, Snyder NY 14226
Signed the 990
ANDREW JULIA, VP OF FINANCE & ADMINISTRATION
Phone
(718) 224-2999
Return prepared by
SCHULTHEIS & PANETTIERI LLP

Mission

TO IDENTIFY THE CAUSE OF, FIND THE CURE FOR, AND CONTROL THE EFFECTS OF TOURETTE SYNDROME. THE TOURETTE ASSOCIATION IS DEDICATED TO MAKING LIFE BETTER FOR ALL PEOPLE AFFECTED BY TOURETTE AND TIC DISORDERS.

990 for the year ended February 28, 2025

Program accomplishments

  • PUBLIC EDUCATION - PROVIDE EDUCATION AND AWARENESS BY RAISING PUBLIC AWARENESS AND FOSTERING SOCIAL ACCEPTANCE. EDUCATING PROFESSIONALS TO BETTER SERVE THE NEEDS OF CHILDREN, ADULTS AND FAMILIES CHALLENGED BY TOURETTE AND TIC DISORDERS. ADVOCATING FOR PUBLIC POLICIES AND SERVICES THAT PROMOTE POSITIVE SCHOOL, WORK AND SOCIAL ENVIRONMENTS. PROVIDING HELP, HOPE AND A SUPPORTIVE COMMUNITY ACROSS THE NATION. EMPOWERING OUR COMMUNITY TO DEAL WITH THE COMPLEXITIES OF THIS SPECTRUM OF DISORDERS.
    Expenses $2,225,237 · revenue $105,365
  • RESEARCH & MEDICAL PROGRAMS - WORKING TO ADVANCE SCIENTIFICUNDERSTANDING, TREATMENT OPTIONS AND CARE OPTIONS FOR THE DISORDER BYPROVIDING FUNDING FOR RESEARCH INVESTIGATIONS IN THE AREAS OFNEUROSCIENCES, GENETICS, BEHAVIORIAL THERAPY, CLINICAL TRIALS.
    Expenses $949,883 · grants $600,000
  • CENTERS FOR DISEASE CONTROL (CDC) PARTNERSHIP - THE ASSOCIATION ANDCDC WORK TOGETHER TO PROVIDE EXPERT EDUCATION ABOUT TOURETTE SYNDROMETO PHYSICIANS AND ALLIED PROFESSIONALS AND TO ENCOURAGE PHYSICIANS TOAPPLY TO THE ASSOCIATION'S REFERRAL LISTS. INCLUDES PROGRAMS TOEDUCATE SCHOOLS AND COMMUNITIES ABOUT TOURETTE SYNDROME.
    Expenses $1,124,707 · grants $73,396
  • PROFESSIONAL EDUCATION - PROVIDES FOR THE EDUCATION AND AWARENESS OFTOURETTE SYNDROME TO MEDICAL PROFESSIONALS, THROUGH AMONG OTHER THINGS,SEMINARS AND DISTRIBUTION OF RESEARCH UPDATES.
    Expenses $126,255

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in February, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025February 28, 2026July 15, 2026990-N on file
2024February 28, 2025July 15, 2025990 on file
2023February 29, 2024July 15, 2024990-N on file

IRS record

EIN
23-7191992
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Group exemption
Exempt since
1982
Accounting year ends
February
Files
Form 990 or 990-EZ
Group exemption
9116 (17 member organizations)
Assets (IRS master file)
$9,502,751
Income (IRS master file)
$9,853,155

Filing history

FormYear endedRevenueExpensesAssetsReturn
990-N for 2025
Officer: Susan Conners
February 28, 2026≤ $50,000 receipts––e-Postcard
990February 2025$5,236,564$5,799,579$9,502,751XML
990-N for 2023
Officer: Susan Conners
February 29, 2024≤ $50,000 receipts––e-Postcard
990February 2024$5,048,195$6,604,537$10,414,671XML
990-N for 2022
Officer: Susan Conners
February 28, 2023≤ $50,000 receipts––e-Postcard
990February 2023$4,883,886$5,207,884$11,157,402IRS
990February 2022–––IRS
990-N for 2020
Officer: Susan Conners
February 28, 2021≤ $50,000 receipts––e-Postcard
990February 2021–––IRS
990-N for 2019
Officer: Susan Conners
February 29, 2020≤ $50,000 receipts––e-Postcard
990February 2020–––IRS
990February 2019–––IRS

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 23-7191992).

Questions about TOURETTE ASSOCIATION OF AMERICA INC

What is the EIN of TOURETTE ASSOCIATION OF AMERICA INC?
The employer identification number (EIN) of TOURETTE ASSOCIATION OF AMERICA INC is 23-7191992.
Is TOURETTE ASSOCIATION OF AMERICA INC tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1982.
Are donations to TOURETTE ASSOCIATION OF AMERICA INC tax-deductible?
Yes. It is listed in IRS Publication 78 (Group exemption).
Which annual return does TOURETTE ASSOCIATION OF AMERICA INC file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of TOURETTE ASSOCIATION OF AMERICA INC due?
The return for tax year 2026 (the year ending February 28, 2027) is due July 15, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
When did TOURETTE ASSOCIATION OF AMERICA INC last file with the IRS?
The latest return in the IRS public files is the 990-N for 2025 for the year ended February 28, 2026.
Who is the principal officer of TOURETTE ASSOCIATION OF AMERICA INC?
The 990 for the year ended February 28, 2025 names ANDREW JULIA.
Who are the officers and directors of TOURETTE ASSOCIATION OF AMERICA INC?
The 990 for the year ended February 28, 2025 lists 27 people; 8 received compensation from the organization, the highest $295,326 (AMANDA TALTY, PRESIDENT & CEO).
How much revenue does TOURETTE ASSOCIATION OF AMERICA INC have?
On its 990 for the year ended February 28, 2025 it reported revenue of $5,236,564, expenses of $5,799,579 and total assets of $9,502,751 at year end.

Organizations in its group exemption (17)

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