Nonprofit · EIN 20-6745475
ADENOID CYSTIC CARCINOMA RESEARCHFOUNDATION
Also known as JEFFREY A KAUFMAN TTEE
Tax-exempt · NEEDHAM, MA 02494
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $1,159,582 | $1,221,810 | -$62,228 | $2,250,095 | $80,682 | $2,169,413 |
| December 31, 2024 | 990 | $1,146,195 | $1,458,198 | -$312,003 | $2,251,893 | $20,252 | $2,231,641 |
| December 31, 2023 | 990 | $1,893,545 | $1,872,720 | $20,825 | $2,690,770 | $147,126 | $2,543,644 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $887,749
- Program service revenue
- $191,061
- Investment income
- $80,772
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $401,246
- Compensation of officers, directors and key employees
- $150,000
- Other salaries and wages
- $247,883
- Salaries, compensation and benefits (total)
- $430,751
- Professional fundraising fees
- $0
- Accounting fees
- $28,703
- Program services (functional)
- $1,019,890
- Management and general (functional)
- $135,466
- Fundraising (functional)
- $66,454
Balance sheet and other
- Total assets, start of year
- $2,251,893
- Total assets, end of year
- $2,250,095
- Total liabilities, end of year
- $80,682
- Net assets, end of year
- $2,169,413
- Net assets without donor restrictions
- $2,169,413
- Gross receipts
- $1,159,582
- Employees
- 3
- Year formed
- 2005
- State of legal domicile
- MA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| JEFFREY KAUFMAN | Executive Dir. Trustee or director, Officer | 50 | $150,000 |
| NICOLE SPARDY BURR | DIRECTOR OF RESEAR | 0 | $148,750 |
| THOMAS DILENGE | BOARD VICE CHAI Trustee or director, Officer | 5 | $0 |
| MARNIE KAUFMAN | Director Trustee or director | 35 | $0 |
| RALPH MOLLIS | Treasurer Trustee or director, Officer | 5 | $0 |
| EMMA KINLOCH | Director Trustee or director | 5 | $0 |
| ELIZABETH WEHLAGE | Director Trustee or director | 5 | $0 |
| DAVID MORSE | Director Trustee or director | 5 | $0 |
| BOZHO TODORICH | Director Trustee or director | 5 | $0 |
| SHALIL GIANNONE | Director Trustee or director | 5 | $0 |
990 for the year ended December 31, 2024: 9 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| JEFFREY A KAUFMAN | EXECUTIVE DIRECTOR/BOARD C Trustee or director, Officer | 50 | $150,000 |
| NICOLE SPARDY BURR | DIRECTOR OF RESEARCH Highest-paid employee | 40 | $142,500 |
| THOMAS DILENGE | BOARD VICE CHAIR Trustee or director, Officer | 5 | $0 |
| RALPH MOLLIS | TREASURER Trustee or director, Officer | 5 | $0 |
| MARNIE A KAUFMAN | DIRECTOR & CFO Trustee or director | 35 | $0 |
| ELIZABETH WEHLAGE | DIRECTOR Trustee or director | 5 | $0 |
| DAVID MORSE | DIRECTOR Trustee or director | 5 | $0 |
| BOZHO TODORICH | DIRECTOR Trustee or director | 5 | $0 |
| EMMA KINLOCH | DIRECTOR Trustee or director | 5 | $0 |
990 for the year ended December 31, 2023: 10 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| JEFFREY A KAUFMAN | EXECUTIVE DIRECTOR/BOARD C Trustee or director, Officer | 50 | $150,000 |
| NICOLE SPARDY BURR | DIRECTOR OF RESEARCH Highest-paid employee | 40 | $135,000 |
| THOMAS DILENGE | BOARD VICE CHAIR Trustee or director, Officer | 5 | $0 |
| RALPH MOLLIS | TREASURER Trustee or director, Officer | 5 | $0 |
| MARNIE A KAUFMAN | DIRECTOR & CFO Trustee or director | 35 | $0 |
| ELIZABETH WEHLAGE | DIRECTOR Trustee or director | 5 | $0 |
| LISA BHAKRI | DIRECTOR Trustee or director | 5 | $0 |
| DAVID MORSE | DIRECTOR Trustee or director | 5 | $0 |
| BOZHO TODORICH | DIRECTOR Trustee or director | 5 | $0 |
| EMMA KINLOCH | DIRECTOR Trustee or director | 5 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 442, NEEDHAM, MA 02494-0010
- In care of
- % JEFFREY A KAUFMAN
- Principal officer (990 for 2025)
- JEFFREY KAUFMAN, PO BOX 442, NEEDHAM, MA 02494
- Signed the 990
- JEFFREY KAUFMAN, Executive Dir.
- Phone
- (781) 248-9699
- Return prepared by
- Camerlengo & Associates
Mission
THE ADENOID CYCTIC CARCINOMA RESEARCH FOUNDATION (ACCRF) SUPPORTS RESEARCH INTO ADENOID CYSTIC CARCINOMA THAT WILL ACCELERATE THE DEVELOPMENT OF IMPROVED THERAPIES AND A CURE FOR THE DISEASE.
Program accomplishments
- SCIENTIFIC RESEARCH: ACCRF SUPPORTS AND COORDINATES BASIC, TRANSLATIONAL AND CLINICAL RESEARCH THAT IS LIKELY TO LEAD TO BETTER OUTCOMES FOR PATIENTS WITH ADENOID CYSTIC CARCINOMA. THE FOUNDATION FACILITATES PROJECTS THAT SPAN BIOBANKING, MODEL DEVELOPMENT, DIAGNOSTICS, FUNCTIONAL STUDIES, TARGET IDENTIFICATION, PRECLINICAL DRUG SCREENING AND CLINICAL TRIALS.Expenses $909,594 · grants $401,246 · revenue $187,661
- PATIENT EDUCATION: ACCRF PROVIDES MULTIPLE WAYS IN WHICH INDIVIDUALS WITH ADENOID CYSTIC CARCINOMA AND THEIR CAREGIVERS MAY LEARN ABOUT THEIR PATIENT JOURNEYS. BY BUILDING COMMUNITY THROUGH ITS WEBSITE, EMAILS, SOCIAL MEDIA, PATIENT MEETINGS WEBINARS AND OTHER COMMUNICATIONS, THE FOUNDATION PROVIDES KNOWLEDGE ABOUT TREATMENT OPTIONS, SUPPORTIVE NETWORKS AND HOPE FOR ITS PATIENTS.Expenses $110,296
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 20-6745475
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2006
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H12)
- Assets (IRS master file)
- $2,250,095
- Income (IRS master file)
- $1,159,582
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $1,159,582 | $1,221,810 | $2,250,095 | XML |
| 990 | December 2024 | $1,146,195 | $1,458,198 | $2,251,893 | IRS |
| 990 | December 2023 | $1,893,545 | $1,872,720 | $2,690,770 | XML |
| 990 | December 2022 | $1,386,655 | $1,618,196 | $2,659,707 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2019 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 20-6745475).
Questions about ADENOID CYSTIC CARCINOMA RESEARCHFOUNDATION
- What is the EIN of ADENOID CYSTIC CARCINOMA RESEARCHFOUNDATION?
- The employer identification number (EIN) of ADENOID CYSTIC CARCINOMA RESEARCHFOUNDATION is 20-6745475.
- Is ADENOID CYSTIC CARCINOMA RESEARCHFOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2006.
- Are donations to ADENOID CYSTIC CARCINOMA RESEARCHFOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does ADENOID CYSTIC CARCINOMA RESEARCHFOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of ADENOID CYSTIC CARCINOMA RESEARCHFOUNDATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did ADENOID CYSTIC CARCINOMA RESEARCHFOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of ADENOID CYSTIC CARCINOMA RESEARCHFOUNDATION?
- The 990 for the year ended December 31, 2025 names JEFFREY KAUFMAN.
- Who are the officers and directors of ADENOID CYSTIC CARCINOMA RESEARCHFOUNDATION?
- The 990 for the year ended December 31, 2025 lists 10 people; 2 received compensation from the organization, the highest $150,000 (JEFFREY KAUFMAN, Executive Dir.).
- How much revenue does ADENOID CYSTIC CARCINOMA RESEARCHFOUNDATION have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $1,159,582, expenses of $1,221,810 and total assets of $2,250,095 at year end.
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