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Nonprofit · EIN 20-0543474

PCD KS FOUNDATION

Also known as PCD FOUNDATION

Tax-exempt · BLOOMINGTON, MN 55437

Financials

$895K$1.1M2023$2M$1.7M2024
Revenue Expenses · by fiscal year end
Financials of PCD KS FOUNDATION by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2024990$1,994,370$1,650,828$343,542$3,595,466$382,179$3,213,287
December 31, 2023990$895,288$1,054,601-$159,313$3,268,548$398,664$2,869,884
Financial details: 990 for the year ended December 31, 2024

Revenue

Contributions, gifts and grants
$1,869,124
Program service revenue
$139,470
Investment income
$98,023
Net gain from sales of assets
$2,020
Net income from fundraising events
-$112,247
Other revenue
-$112,247

Expenses

Grants and similar amounts paid
$307,873
Compensation of officers, directors and key employees
$185,000
Other salaries and wages
$256,741
Salaries, compensation and benefits (total)
$561,503
Professional fundraising fees
$0
Accounting fees
$11,200
Travel
$31,915
Program services (functional)
$1,518,368
Management and general (functional)
$86,450
Fundraising (functional)
$46,010

Balance sheet and other

Total assets, start of year
$3,268,548
Total assets, end of year
$3,595,466
Total liabilities, end of year
$382,179
Net assets, end of year
$3,213,287
Publicly traded securities
$1,614,029
Net assets without donor restrictions
$3,114,287
Net assets with donor restrictions
$99,000
Gross receipts
$2,414,447
Employees
5
Volunteers
20
Year formed
2004
State of legal domicile
MN

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2024, highest compensation first.

NameTitleHours / weekCompensation
MICHELE MANIONEXEC DIR, PR
Trustee or director, Officer
40$185,000
CARRIE WILLISDIRECTOR, VI
Trustee or director, Officer
1$0
AMY KOVLERDIRECTOR, TR
Trustee or director
2$0
BILL ANTONCHAIR
Trustee or director
5$0
GARY JOYNERVICE CHAIR
Trustee or director
2$0
TORI EASTVOLDDIRECTOR
Trustee or director
1$0
DR MARGARET LEIGHDIRECTOR
Trustee or director
5$0
990 for the year ended December 31, 2023: 8 people
NameTitleHours / weekCompensation
MICHELE MANIONEXEC DIR, PR
Trustee or director, Officer
40$168,000
LYNN EHRNEDIRECTOR, SE
Trustee or director, Officer
40$58,341
CARRIE WILLISDIRECTOR, VI
Trustee or director, Officer
4$0
AMY KOVLERDIRECTOR, TR
Trustee or director
0.75$0
BILL ANTONCHAIR
Trustee or director
5$0
GARY JOYNERVICE CHAIR
Trustee or director
5$0
TORI EASTVOLDDIRECTOR
Trustee or director
1$0
DR MARGARET LEIGHDIRECTOR
Trustee or director
1$0

Address and contacts

Address (IRS master file)
10023 MORRIS RD, BLOOMINGTON, MN 55437-2303
In care of
% MICHELE MANION
Principal officer (990 for 2024)
MICHELE MANION, 10023 MORRIS RD, BLOOMINGTON, MN 55437
Signed the 990
MICHELE MANION, EXEC DIR, PRESIDENT
Phone
(612) 386-1261
Return prepared by
OLSON CLOUGH & LEBLANC LTD

Mission

TO PROVIDE THE LEADERSHIP AND RESOURCES NEEDED TO SUPPORT INCREASED RESEARCH, ACCELERATED DIAGNOSIS, IMPROVED HEALTH, AND ULTIMATELY A CURE FOR PRIMARY CILIARY DYSKINESIA (PCD).

990 for the year ended December 31, 2024

Program accomplishments

  • DEVELOPMENT OF CLINICAL CENTERS AT MAJOR HOSPITALS THROUGHOUT THE UNITED STATES. THESE CLINICAL CENTERS WILL MAKE INFORMATION AVAILABLE TO THE MEDICAL COMMUNITY ABOUT THE NATURE OF PCD AND PROVIDE UPDATED RESEARCH INFORMATION.
    Expenses $587,546 · grants $127,948
  • PATIENT REGISTRY AND OTHER DEVELOPMENT COSTS TO DOCUMENT PCD AFFLICTED INDIVIDUALS. THE REGISTRY CAN ONLY BE UPDATED BY QUALIFIED MEDICAL PERSONNEL.
    Expenses $644,170 · grants $179,925
  • OUR CAPACITY-BUILDING ACTIVITIES INCLUDE EXPANDING, DEVELOPING AND STRENGTHENING THE SKILLS, ABILITIES, PROCESSES, OPERATIONS, TECHNOLOGIES, AND RESOURCES THAT ALLOW US TO COMPLETE OUR MISSION AND MANAGE OUR MISSION-CRITICAL PROGRAMS. THIS INCLUDES ADDING CRITICAL STAFF WITH SKILLS IN BUSINESS DEVELOPMENT (WE HIRED 1 FTE IN THIS CAPACITY), CONTRACTING WITH CONSULTANTS WHO HAVE EXPERTISE IN AREAS OUR INTERNAL EXPERTISE WAS LACKING (THREAD STRATEGIES, CRM AND OTHER DEVELOPMENT GUIDANCE), AND UPGRADING OUR TECHNOLOGY TO BE ABLE TO HANDLE OUR EXPANDING NEEDS. ADDITIONALLY, WE WERE ABLE TO SEND STAFF TO MEETINGS AND CONVENINGS RELATED TO CAPACITY BUILDING.
    Expenses $286,652
  • OUR CAPACITY-BUILDING ACTIVITIES INCLUDE EXPANDING, DEVELOPING AND STRENGTHENING THE SKILLS, ABILITIES, PROCESSES, OPERATIONS, TECHNOLOGIES, AND RESOURCES THAT ALLOW US TO COMPLETE OUR MISSION AND MANAGE OUR MISSION-CRITICAL PROGRAMS. THIS INCLUDES ADDING CRITICAL STAFF WITH SKILLS IN BUSINESS DEVELOPMENT (WE HIRED 1 FTE IN THIS CAPACITY), CONTRACTING WITH CONSULTANTS WHO HAVE EXPERTISE IN AREAS OUR INTERNAL EXPERTISE WAS LACKING (WOLF ASSOCIATES FOR PAYROLL, 401K AND OTHER HR GUIDANCE), AND UPGRADING OUR TECHNOLOGY TO BE ABLE TO HANDLE OUR EXPANDING NEEDS. ADDITIONALLY, WE WERE ABLE TO SEND STAFF TO MEETINGS AND CONFRENCES RELATED TO CAPACITY BUILDING.

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026Not on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990 on file

IRS record

EIN
20-0543474
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
2004
Accounting year ends
December
Files
Form 990 or 990-EZ
Category (NTEE)
Medical research (H40)
Assets (IRS master file)
$3,595,466
Income (IRS master file)
$2,414,447

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2024$1,994,370$1,650,828$3,595,466IRS
990December 2023$895,288$1,054,601$3,268,548XML
990December 2022$1,109,263$827,296$3,346,050IRS
990December 2021–––IRS
990December 2020–––IRS
990December 2018–––IRS

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 20-0543474).

Questions about PCD KS FOUNDATION

What is the EIN of PCD KS FOUNDATION?
The employer identification number (EIN) of PCD KS FOUNDATION is 20-0543474.
Is PCD KS FOUNDATION tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2004.
Are donations to PCD KS FOUNDATION tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does PCD KS FOUNDATION file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of PCD KS FOUNDATION due?
The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
When did PCD KS FOUNDATION last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2024.
Who is the principal officer of PCD KS FOUNDATION?
The 990 for the year ended December 31, 2024 names MICHELE MANION.
Who are the officers and directors of PCD KS FOUNDATION?
The 990 for the year ended December 31, 2024 lists 7 people; 1 received compensation from the organization, the highest $185,000 (MICHELE MANION, EXEC DIR, PR).
How much revenue does PCD KS FOUNDATION have?
On its 990 for the year ended December 31, 2024 it reported revenue of $1,994,370, expenses of $1,650,828 and total assets of $3,595,466 at year end.

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