Nonprofit · EIN 16-1513923
WORLD FEDERATION OF HEMOPHILIA USA
Tax-exempt · ALBANY, NY 12206
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 (amended) | $1,095,526,264 | $1,154,898,723 | -$59,372,459 | $377,644,851 | $345,276 | $377,299,575 |
| December 31, 2023 | 990 | $1,131,296,825 | $1,070,872,912 | $60,423,913 | $436,959,567 | $309,970 | $436,649,597 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $1,095,452,756
- Program service revenue
- $0
- Investment income
- $73,508
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $1,154,048,112
- Compensation of officers, directors and key employees
- $0
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Accounting fees
- $16,840
- Travel
- $18,159
- Program services (functional)
- $1,154,715,802
- Management and general (functional)
- $122,724
- Fundraising (functional)
- $60,197
Balance sheet and other
- Total assets, start of year
- $436,959,567
- Total assets, end of year
- $377,644,851
- Total liabilities, end of year
- $345,276
- Net assets, end of year
- $377,299,575
- Publicly traded securities
- $1,413,185
- Net assets without donor restrictions
- $376,152,949
- Net assets with donor restrictions
- $1,146,626
- Gross receipts
- $1,095,526,264
- Employees
- 0
- Volunteers
- 13
- Year formed
- 1996
- State of legal domicile
- NY
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Len Valentino | President Trustee or director, Officer | 1 | $0 |
| Philip Kucab | Vice-President Trustee or director, Officer | 1 | $0 |
| Sean Singh | Treasurer Trustee or director, Officer | 1 | $0 |
| Alain Baumann | Secretary Exec Director Trustee or director, Officer, Key employee | 4 | $0 |
| Paula Bell | BoD member Trustee or director | 1 | $0 |
| Jeff Blake | BoD member Trustee or director | 1 | $0 |
| Joanne A Davis | BoD member Trustee or director | 1 | $0 |
| Amy Dunn | BoD member Trustee or director | 1 | $0 |
| Rob Maloney | BoD member Trustee or director | 1 | $0 |
| Glenn Pierce | BoD member Trustee or director | 1 | $0 |
| Dawn Rotellini | BoD member Trustee or director | 1 | $0 |
| Frank Schnabel IV | BoD member Trustee or director | 1 | $0 |
| Mark Skinner | BoD member Trustee or director | 1 | $0 |
| Eric Stolte | BoD member Trustee or director | 1 | $0 |
990 for the year ended December 31, 2023: 11 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Eric Stolte | President Trustee or director, Officer | 1 | $0 |
| Len Valentino | Vice-President Trustee or director, Officer | 1 | $0 |
| Sean Singh | Treasurer Trustee or director, Officer | 1 | $0 |
| Alain Baumann | Secretary Trustee or director, Officer, Key employee | 4 | $0 |
| Paula Bell | Director Trustee or director | 1 | $0 |
| Amy Dunn | Director Trustee or director | 1 | $0 |
| Phillip Kucab | Director Trustee or director | 1 | $0 |
| Glenn Pierce | Director Trustee or director | 1 | $0 |
| Mark W Skinner | Director Trustee or director | 1 | $0 |
| Frank L Schnabel IV | Director Trustee or director | 1 | $0 |
| Dawn Rotellini | Ex-Officio NBDF Liaison Trustee or director | 1 | $0 |
Address and contacts
- Address (IRS master file)
- PMB 142 911 CENTRAL AVE, ALBANY, NY 12206-1350
- In care of
- % ALAIN BAUMANN
- Principal officer (990 for 2024)
- Alain Baumann, 1425 Rene Levesque West Suite 1200, MONTREAL, Quebec H3G 1T7, CA
- Signed the 990
- Alain, Baumann
- Phone
- (877) 417-7944
- Website
- www.wfhusa.org
Mission
The specific purpose of WFH USA is to advance the global mission of the World Federation of Hemophilia WFH within the United States to improve and sustain care for people with inherited bleeding disorders around the world by developing resources and building awareness within the US for the global vision of Treatment for All.
Program accomplishments
- The WFH Humanitarian Aid program improves the lack of access to care and treatment by providing support to national member organizations hemophilia treatment centres and healthcare practitioners in emerging countries. This support comes in the form of education training and donated factor and non-factor replacement therapy.The reported $59.37 million deficit is primarily attributable to fluctuations in the value of donated pharmaceutical products which are recorded as in-kind revenue and expense. These are non-cash transactions impacting the total change in net assets without reflecting a change in operating cash flow or program delivery. WFH USA provides tens of thousands of people with hemophilia reliable access to care enabling prophylaxis and elective surgeries in over seventy countries worldwide. Per the Collaboration Agreement with the WFH WFH USA is exclusively responsible for soliciting in-kind contributions of pharmaceutical products and monetary donations for the program. WFH USA periodically grants the received contributions to the WFH as needed to carry out the program.Expenses $1,153,880,637 · grants $1,153,186,208 · revenue $1,094,378,239
- The WFH Training and Education program provides the global bleeding disorders community with the information and tools required to improve access to diagnosis and ensure reliable access to safe treatment and care. Training and education may be delivered through healthcare development programs in-person and virtual workshops and educational events and the development and distribution of educational resources that are available in printed and electronic format. In accordance with the Collaboration agreement between WFH USA and the WFH WFH USA periodically grants contributions received to support the WFH Training and Education programs to the WFH as needed to carry out the WFHs responsibilities with respect to the WFH Training and Education Program.Expenses $647,000 · grants $582,300 · revenue $647,000
- The WFH Research and Data Collection Program includes the Annual Global Survey the World Bleeding Disorder Registry the Gene Therapy Registry and their accompanying education and capacity-building programs. The objective of this program is to provide National Member Organizations NMOs and Hemophilia Treatment Centers HTCs with the tools to increase their capacity the framework to collect data on people with bleeding disorders and the education and training to use that data to conduct research and advocate for better care. In accordance with the Collaboration Agreement between the WFH USA and the WFH WFH USA periodically grants contributions received to support the WFH Research Program to the WFH as needed to carry out the WFHs responsibilities with respect to the WFH Research Program.Expenses $155,000 · grants $139,500 · revenue $155,000
- Other programs include the Awareness Building and Travel Fund. This initiative is dedicated to increasing awareness about bleeding disorders in the United States and worldwide.Expenses $33,165
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 16-1513923
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1997
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G20)
- Assets (IRS master file)
- $377,644,851
- Income (IRS master file)
- $1,095,526,264
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $1,095,526,264 | $1,154,898,723 | $377,644,851 | XML |
| 990 | December 2023 | $1,131,296,825 | $1,070,872,912 | $436,959,567 | XML |
| 990 | December 2022 | $684,615,118 | $684,510,863 | $1,856,452 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 16-1513923).
Questions about WORLD FEDERATION OF HEMOPHILIA USA
- What is the EIN of WORLD FEDERATION OF HEMOPHILIA USA?
- The employer identification number (EIN) of WORLD FEDERATION OF HEMOPHILIA USA is 16-1513923.
- Is WORLD FEDERATION OF HEMOPHILIA USA tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1997.
- Are donations to WORLD FEDERATION OF HEMOPHILIA USA tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does WORLD FEDERATION OF HEMOPHILIA USA file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of WORLD FEDERATION OF HEMOPHILIA USA due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did WORLD FEDERATION OF HEMOPHILIA USA last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of WORLD FEDERATION OF HEMOPHILIA USA?
- The 990 for the year ended December 31, 2024 names Alain Baumann.
- Who are the officers and directors of WORLD FEDERATION OF HEMOPHILIA USA?
- The 990 for the year ended December 31, 2024 lists 14 people; 0 received compensation from the organization.
- How much revenue does WORLD FEDERATION OF HEMOPHILIA USA have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $1,095,526,264, expenses of $1,154,898,723 and total assets of $377,644,851 at year end.
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