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Nonprofit · EIN 13-3349708

GALACTOSEMIA FOUNDATION

Tax-exempt · ALBANY, NY 12204

Financials

$477K$258K2023$386K$351K2024
Revenue Expenses · by fiscal year end
Financials of GALACTOSEMIA FOUNDATION by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2024990$385,642$350,856$34,786$818,648$0$818,648
December 31, 2023990$477,376$258,143$219,233$781,746$0$781,746
Financial details: 990 for the year ended December 31, 2024

Revenue

Contributions, gifts and grants
$388,753
Program service revenue
$6,533
Investment income
$8
Net income from fundraising events
-$9,652
Other revenue
-$9,652

Expenses

Grants and similar amounts paid
$89,329
Salaries, compensation and benefits (total)
$0
Professional fundraising fees
$0
Program services (functional)
$330,124
Management and general (functional)
$20,732

Balance sheet and other

Total assets, start of year
$781,746
Total assets, end of year
$818,648
Total liabilities, end of year
$0
Net assets, end of year
$818,648
Net assets without donor restrictions
$768,132
Net assets with donor restrictions
$50,516
Gross receipts
$395,294
Employees
0
Volunteers
12
Year formed
1985
State of legal domicile
DE

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2024, highest compensation first.

NameTitleHours / weekCompensation
NICOLE CASALEPRESIDENT
Trustee or director, Officer
10$0
JESSICA TAYLORTREASURER
Trustee or director, Officer
5$0
MARY LEIMBACHSECRETARY
Trustee or director, Officer
2$0
BRITTANY CUDZILOVICE PRESIDENT
Trustee or director, Officer
2$0
JODI SOLARICOMMUNICATIONS LEAD
Trustee or director
2$0
KEITH TOPPERMEMBER AT LARGE
Trustee or director
1$0
KELLY FOLEYMEMBER AT LARGE
Trustee or director
1$0
GILLAIN SAPIAMEMBER AT LARGE
Trustee or director
1$0
SCOTT SAYLORMEMBER AT LARGE
Trustee or director
1$0
990 for the year ended December 31, 2023: 7 people
NameTitleHours / weekCompensation
Nicole CasalePRESIDENT
Trustee or director, Officer
10$0
Scott SaylorTREASURER
Trustee or director, Officer
5$0
CARI MILLERSECRETARY
Trustee or director, Officer
2$0
Brittany CudziloVice President
Trustee or director, Officer
2$0
JODI SOLARICOMMUNICATIONS LEAD
Trustee or director
2$0
KEITH TOPPERMEMBER AT LARGE
Trustee or director
1$0
Kelly FoleyMEMBER AT LARGE
Trustee or director
1$0

Address and contacts

Address (IRS master file)
350 NORTHERN BLVD STE 324-1079, ALBANY, NY 12204-1000
In care of
% SCOTT SAYLOR
Principal officer (990 for 2024)
SCOTT SAYLOR, 350 NORTHERN BLVD STE 324-1079, ALBANY, NY 122041000
Signed the 990
SCOTT SAYLOR, TREASURER
Phone
(866) 900-7421
Return prepared by
CITRIN COOPERMAN ADVISORS LLC

Mission

TO EDUCATE, SUPPORT AND PROVIDE ADVOCACY FOR THOSE AFFECTED BY GALACTOSEMIA.

990 for the year ended December 31, 2024

Program accomplishments

  • PROVIDED SUPPORT TO INDIVIDUALS WITH GALACTOSEMIA AND SPREAD AWARENESS BY PUBLISHING TWO NEWSLETTERS WORLDWIDE, SETTING UP A NATIONWIDE WEBSITE DISCUSSION FORUM, THROUGH TELEPHONE SUPPORT, AND A BIENNIAL CONFERENCE.
    Expenses $209,697 · revenue $6,533
  • HOSTED A BI-ANNUAL CONFERENCE FOR THOSE SUFFERING FOR GALACTOSEMIA AS WELL AS MEDICAL PROFESSIONALS AND RESEARCHERS.
    Expenses $31,098
  • FUNDING RESEARCH GRANTS TO MEDICAL PROFESSIONAL/RESEARCH HOSPITALS.
    Expenses $89,329 · grants $89,329

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026Not on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990 on file

IRS record

EIN
13-3349708
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
1990
Accounting year ends
December
Files
Form 990 or 990-EZ
Assets (IRS master file)
$818,648
Income (IRS master file)
$395,294

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2024$385,642$350,856$818,648XML
990December 2023$477,376$258,143$781,746XML
990December 2022$376,578$301,012$564,223IRS
990December 2021–––IRS
990December 2020–––IRS
990December 2018–––IRS
990December 2017–––IRS

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 13-3349708).

Questions about GALACTOSEMIA FOUNDATION

What is the EIN of GALACTOSEMIA FOUNDATION?
The employer identification number (EIN) of GALACTOSEMIA FOUNDATION is 13-3349708.
Is GALACTOSEMIA FOUNDATION tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1990.
Are donations to GALACTOSEMIA FOUNDATION tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does GALACTOSEMIA FOUNDATION file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of GALACTOSEMIA FOUNDATION due?
The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
When did GALACTOSEMIA FOUNDATION last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2024.
Who is the principal officer of GALACTOSEMIA FOUNDATION?
The 990 for the year ended December 31, 2024 names SCOTT SAYLOR.
Who are the officers and directors of GALACTOSEMIA FOUNDATION?
The 990 for the year ended December 31, 2024 lists 9 people; 0 received compensation from the organization.
How much revenue does GALACTOSEMIA FOUNDATION have?
On its 990 for the year ended December 31, 2024 it reported revenue of $385,642, expenses of $350,856 and total assets of $818,648 at year end.

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