Nonprofit · EIN 13-1912877
NATIONAL TAY SACHS & ALLIED DISEASES ASSOCIATION INC
Tax-exempt · BOSTON, MA 02111
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| June 30, 2025 | 990 | $1,397,598 | $1,448,700 | -$51,102 | $2,769,718 | $15,007 | $2,754,711 |
| June 30, 2024 | 990 | $1,376,815 | $1,344,428 | $32,387 | $2,853,352 | $47,297 | $2,806,055 |
| June 30, 2023 | 990 | $1,177,492 | $1,507,806 | -$330,314 | $2,868,442 | $95,923 | $2,772,519 |
Financial details: 990 for the year ended June 30, 2025
Revenue
- Contributions, gifts and grants
- $819,762
- Program service revenue
- $311,837
- Investment income
- $65,747
- Net income from fundraising events
- $200,252
- Other revenue
- $200,252
Expenses
- Grants and similar amounts paid
- $0
- Other salaries and wages
- $449,975
- Salaries, compensation and benefits (total)
- $506,441
- Professional fundraising fees
- $0
- Occupancy
- $51,536
- Travel
- $87,742
- Program services (functional)
- $1,250,852
- Management and general (functional)
- $81,367
- Fundraising (functional)
- $116,481
Balance sheet and other
- Total assets, start of year
- $2,853,352
- Total assets, end of year
- $2,769,718
- Total liabilities, end of year
- $15,007
- Net assets, end of year
- $2,754,711
- Net assets without donor restrictions
- $1,040,756
- Net assets with donor restrictions
- $1,713,955
- Gross receipts
- $1,397,598
- Employees
- 8
- Volunteers
- 0
- Year formed
- 1957
- State of legal domicile
- MA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended June 30, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| KATHLEEN FLYNN | CEO Highest-paid employee | 40 | $169,733 |
| ORALEA MARQUARDT | DIRECTOR Trustee or director | 2.5 | $0 |
| SARA SCAPAROTTI | PRESIDENT Trustee or director, Officer | 2.5 | $0 |
| MICHAEL RICHARDS | TREASURER Trustee or director, Officer | 2.5 | $0 |
| LISAJANE ROMER | SECRETARY Trustee or director, Officer | 2.5 | $0 |
| LAUREN CELANO | DIRECTOR Trustee or director | 2.5 | $0 |
| MATTHEW GOLDSTEIN | DIRECTOR Trustee or director | 2.5 | $0 |
| GERRY COX | DIRECTOR Trustee or director | 2.5 | $0 |
| BONNIE DAVIS | DIRECTOR Trustee or director | 2.5 | $0 |
| AMBER FRANZEN | DIRECTOR Trustee or director | 2.5 | $0 |
| STACI KALLISH | DIRECTOR Trustee or director | 2.5 | $0 |
| JONATHAN KATZ | DIRECTOR Trustee or director | 2.5 | $0 |
| MARTHA KLEINMAN | DIRECTOR Trustee or director | 2.5 | $0 |
| DAWN LANEY | DIRECTOR Trustee or director | 2.5 | $0 |
| JONATHAN LAWRENCE | VICE PRESIDENT Trustee or director, Officer | 2.5 | $0 |
5 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| JAMIE RING | DIRECTOR Trustee or director | 2.5 | $0 |
| SUSAN RODEN | DIRECTOR Trustee or director | 2.5 | $0 |
| ABBY ROGERS | DIRECTOR Trustee or director | 2.5 | $0 |
| DEBORAH SANDERS | DIRECTOR Trustee or director | 2.5 | $0 |
| CARLA STECKMAN | DIRECTOR Trustee or director | 2.5 | $0 |
990 for the year ended June 30, 2024: 22 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| KATHLEEN FLYNN | CEO Highest-paid employee | 40 | $160,200 |
| ORALEA MARQUARDT | PRESIDENT Trustee or director, Officer | 2.5 | $0 |
| SARA SCAPAROTTI | VICE PRESIDENT Trustee or director, Officer | 2.5 | $0 |
| MICHAEL RICHARDS | TREASURER Trustee or director, Officer | 2.5 | $0 |
| LISAJANE ROMER | SECRETARY Trustee or director, Officer | 2.5 | $0 |
| LAUREN CELANO | DIRECTOR Trustee or director | 2.5 | $0 |
| CHRIS CHAPMAN | DIRECTOR Trustee or director | 2.5 | $0 |
| GERRY COX | DIRECTOR Trustee or director | 2.5 | $0 |
| BONNIE DAVIS | DIRECTOR Trustee or director | 2.5 | $0 |
| AMBER FRANZEN | DIRECTOR Trustee or director | 2.5 | $0 |
| STACI KALLISH | DIRECTOR Trustee or director | 2.5 | $0 |
| JONATHAN KATZ | DIRECTOR Trustee or director | 2.5 | $0 |
| MARTHA KLEINMAN | DIRECTOR Trustee or director | 2.5 | $0 |
| DAWN LANEY | DIRECTOR Trustee or director | 2.5 | $0 |
| JONATHAN LAWRENCE | DIRECTOR Trustee or director | 2.5 | $0 |
| BLYTH LORD | DIRECTOR Trustee or director | 2.5 | $0 |
| JAMIE RING | DIRECTOR Trustee or director | 2.5 | $0 |
| SUSAN RODEN | DIRECTOR Trustee or director | 2.5 | $0 |
| ABBY ROGERS | DIRECTOR Trustee or director | 2.5 | $0 |
| DEBORAH SANDERS | DIRECTOR Trustee or director | 2.5 | $0 |
| SARA SCAPAROTTI | DIRECTOR Trustee or director | 2.5 | $0 |
| CARLA STECKMAN | DIRECTOR Trustee or director | 2.5 | $0 |
990 for the year ended June 30, 2023: 26 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| KATHLEEN FLYNN | CEO Highest-paid employee | 40 | $159,451 |
| ORALEA MARQUARDT | PRESIDENT Trustee or director, Officer | 2.5 | $0 |
| SARA SCAPAROTTI | VICE PRESIDENT Trustee or director, Officer | 2.5 | $0 |
| MICHAEL RICHARDS | TREASURER Trustee or director, Officer | 2.5 | $0 |
| LISAJANE ROMER | SECRETARY Trustee or director, Officer | 2.5 | $0 |
| LAUREN CELANO | DIRECTOR Trustee or director | 2.5 | $0 |
| CHRIS CHAPMAN | DIRECTOR Trustee or director | 2.5 | $0 |
| GERRY COX | DIRECTOR Trustee or director | 2.5 | $0 |
| BONNIE DAVIS | DIRECTOR Trustee or director | 2.5 | $0 |
| RUTH FELDMAN | DIRECTOR Trustee or director | 2.5 | $0 |
| STACI KALLISH | DIRECTOR Trustee or director | 2.5 | $0 |
| JONATHAN KATZ | DIRECTOR Trustee or director | 2.5 | $0 |
| MARTHA KLEINMAN | DIRECTOR Trustee or director | 2.5 | $0 |
| DAWN LANEY | DIRECTOR Trustee or director | 2.5 | $0 |
| JONATHAN LAWRENCE | DIRECTOR Trustee or director | 2.5 | $0 |
| BLYTH LORD | DIRECTOR Trustee or director | 2.5 | $0 |
| ORALEA MARQUARDT | DIRECTOR Trustee or director | 2.5 | $0 |
| MICHAEL RICHARDS | DIRECTOR Trustee or director | 2.5 | $0 |
| JAMIE RING | DIRECTOR Trustee or director | 2.5 | $0 |
| SUSAN RODEN | DIRECTOR Trustee or director | 2.5 | $0 |
| ABBY ROGERS | DIRECTOR Trustee or director | 2.5 | $0 |
| LISAJANE ROMER | DIRECTOR Trustee or director | 2.5 | $0 |
| DEBORAH SANDERS | DIRECTOR Trustee or director | 2.5 | $0 |
| SARA SCAPAROTTI | DIRECTOR Trustee or director | 2.5 | $0 |
| AMY SPEAK | DIRECTOR Trustee or director | 2.5 | $0 |
| CARLA STECKMAN | DIRECTOR Trustee or director | 2.5 | $0 |
Address and contacts
- Address (IRS master file)
- 192 SOUTH ST STE 300, BOSTON, MA 02111-2740
- Principal officer (990 for 2024)
- KATHLEEN M FLYNN, 2001 BEACON ST, BRIGHTON, MA 02135
- Signed the 990
- KATHLEEN M FLYNN, CHIEF EXECUTIVE OFFICER
- Phone
- (617) 277-4463
- Website
- WWW.NTSAD.ORG
- Return prepared by
- JAMES A GEORGE PC
Mission
NTSAD LEADS THE WORLDWIDE FIGHT TO TREAT AND CURE TAY-SACHS, CANAVAN, GM1, AND SANDHOFF DISEASES BY DRIVING RESEARCH, FORGING COLLABORATIION, AND FOSTERING COMMUNITY, SUPPORTING FAMILIES IS THE CENTER OF EVERYTHING WE DO.
Program accomplishments
- RESEARCH: MAKES GRANTS TO SCIENTISTS THROUGH A REQUEST FOR PROPOSAL PROCESS. THESE GRANTS ARE FOR RESEARCH PROJECTS THAT INVOLVE BASIC RESEARCH, TRANSLATIONAL STUDIES OR CLINICAL STUDIES IN THE AREAS OF NEURODEGENERATIVE DISORDERS AFFECTION THE CENTRAL NERVOUS SYSTEM.Expenses $731,729
- FAMILY SERVICES: PROVIDES SUPPORT TO, AND ADVOCATE FOR, NEWLY DIAGNOSED FAMILIES AND INDIVIDUALS, FAMILIES AND CAREGIVERS ACTIVELY CARING FOR AN AFFECTED LOVED ONE WITH TAY-SACHS, CANAVAN, GM1, OR SANDHOFF DISEASE, AND BEREAVED FAMILIES AND INDIVIDUALS. CONNECT PATIENT COMMUNITY WITH RESEARCHERS AND INDUSTRY PARTNERS. FACILITATE PRIVIATE SOCIAL MEDIA GROUP FOR AFFECTED INDIVIDUALS, FAMILIES AND CAREGIVERS.Expenses $434,965
- EDUCATION: DEVELOP AND DISSEMINATE RESOURCES ON TAY-SACHS, CANAVAN, GM1, AND SANDHOFF DISEASES TO AFFECTED INDIVIDUALS, FAMILIES, AND CAREGIVERS. RESPOND TO INQUIRIES. HOST AN ANNUAL FAMILY CONFERENCE THAT INCLUDES FAMILY INTERACTION, SUPPORT SESSIONS, AND RESEARCH UPDATES BY CLINICIANS, RESEARCHERS, AND INDUSTRY LEADERS, CONSULT WITH MEMBERS OF THE SCIENTIFIC COMMUNITY.Expenses $84,158 · revenue $311,837
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in June, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | June 30, 2026 | November 16, 2026 | Not due yet |
| 2024 | June 30, 2025 | November 17, 2025 | 990 on file |
| 2023 | June 30, 2024 | November 15, 2024 | 990 on file |
IRS record
- EIN
- 13-1912877
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (509(a)(2))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1959
- Accounting year ends
- June
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G2XZ)
- Assets (IRS master file)
- $2,769,718
- Income (IRS master file)
- $1,397,598
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | June 2025 | $1,397,598 | $1,448,700 | $2,769,718 | XML |
| 990 | June 2024 | $1,376,815 | $1,344,428 | $2,853,352 | XML |
| 990 | June 2023 | $1,177,492 | $1,507,806 | $2,868,442 | XML |
| 990 | June 2022 | – | – | – | IRS |
| 990 | June 2021 | – | – | – | IRS |
| 990 | June 2020 | – | – | – | IRS |
| 990 | June 2019 | – | – | – | IRS |
| 990 | June 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 13-1912877).
Questions about NATIONAL TAY SACHS & ALLIED DISEASES ASSOCIATION INC
- What is the EIN of NATIONAL TAY SACHS & ALLIED DISEASES ASSOCIATION INC?
- The employer identification number (EIN) of NATIONAL TAY SACHS & ALLIED DISEASES ASSOCIATION INC is 13-1912877.
- Is NATIONAL TAY SACHS & ALLIED DISEASES ASSOCIATION INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1959.
- Are donations to NATIONAL TAY SACHS & ALLIED DISEASES ASSOCIATION INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does NATIONAL TAY SACHS & ALLIED DISEASES ASSOCIATION INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of NATIONAL TAY SACHS & ALLIED DISEASES ASSOCIATION INC due?
- The return for tax year 2025 (the year ending June 30, 2026) is due November 16, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did NATIONAL TAY SACHS & ALLIED DISEASES ASSOCIATION INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended June 2025.
- Who is the principal officer of NATIONAL TAY SACHS & ALLIED DISEASES ASSOCIATION INC?
- The 990 for the year ended June 30, 2025 names KATHLEEN M FLYNN.
- Who are the officers and directors of NATIONAL TAY SACHS & ALLIED DISEASES ASSOCIATION INC?
- The 990 for the year ended June 30, 2025 lists 20 people; 1 received compensation from the organization, the highest $169,733 (KATHLEEN FLYNN, CEO).
- How much revenue does NATIONAL TAY SACHS & ALLIED DISEASES ASSOCIATION INC have?
- On its 990 for the year ended June 30, 2025 it reported revenue of $1,397,598, expenses of $1,448,700 and total assets of $2,769,718 at year end.
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