Nonprofit · EIN 04-3638491
CHILDRENS FUND FOR GLYCOGEN STORAGE DISEASE RESEARCH
Tax-exempt · CHESHIRE, CT 06410
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $274,249 | $402,174 | -$127,925 | $1,477,714 | $0 | $1,477,714 |
| December 31, 2024 | 990 | $231,044 | $44,219 | $186,825 | $1,592,478 | $0 | $1,592,478 |
| December 31, 2023 | 990 | $292,913 | $84,668 | $208,245 | $1,354,107 | $0 | $1,354,107 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $190,758
- Program service revenue
- $0
- Investment income
- $39,210
- Net income from fundraising events
- $44,281
- Other revenue
- $44,281
Expenses
- Grants and similar amounts paid
- $324,927
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Legal fees
- $15,938
- Accounting fees
- $2,600
- Travel
- $2,186
- Program services (functional)
- $402,174
Balance sheet and other
- Total assets, start of year
- $1,592,478
- Total assets, end of year
- $1,477,714
- Total liabilities, end of year
- $0
- Net assets, end of year
- $1,477,714
- Publicly traded securities
- $1,242,429
- Net assets without donor restrictions
- $1,477,714
- Gross receipts
- $282,068
- Employees
- 0
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| WENDY-BECKER FELDMAN | PRESIDENT Trustee or director, Officer | 5 | $0 |
| LISA HODES | VICE PRESIDE Trustee or director, Officer | 5 | $0 |
| DAVID FELDMAN | SECTRY/TREAS Trustee or director, Officer | 5 | $0 |
| VALARIE ROSEN | DIRECTOR Trustee or director | 2 | $0 |
| TERI REED | DIRECTOR Trustee or director | 2 | $0 |
| FRAN REED | DIRECTOR Trustee or director | 2 | $0 |
| MICHAEL JULIUS | DIRECTOR Trustee or director | 2 | $0 |
| HARRIET BONELLI | DIRECTOR Trustee or director | 2 | $0 |
| MERI GUSSIN | DIRECTOR Trustee or director | 2 | $0 |
| SANFORD HODES | DIRECTOR Trustee or director | 2 | $0 |
990 for the year ended December 31, 2024: 10 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| WENDY-BECKER FELDMAN | PRESIDENT Trustee or director, Officer | 2 | $0 |
| LISA HODES | VICE PRESIDE Trustee or director, Officer | 2 | $0 |
| DAVID FELDMAN | SECTRY/TREAS Trustee or director, Officer | 2 | $0 |
| VALARIE ROSEN | DIRECTOR Trustee or director | 2 | $0 |
| TERI REED | DIRECTOR Trustee or director | 2 | $0 |
| FRAN REED | DIRECTOR Trustee or director | 2 | $0 |
| MICHAEL JULIUS | DIRECTOR Trustee or director | 2 | $0 |
| HARRIET BONELLI | DIRECTOR Trustee or director | 2 | $0 |
| MERI GUSSIN | DIRECTOR Trustee or director | 2 | $0 |
| SANFORD HODES | DIRECTOR Trustee or director | 2 | $0 |
990 for the year ended December 31, 2023: 10 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| WENDY-BECKER FELDMAN | PRESIDENT Trustee or director, Officer | 3 | $0 |
| LISA HODES | VICE PRESIDE Trustee or director, Officer | 3 | $0 |
| DAVID FELDMAN | SECTRY/TREAS Trustee or director, Officer | 3 | $0 |
| VALARIE ROSEN | DIRECTOR Trustee or director | 1 | $0 |
| TERI REED | DIRECTOR Trustee or director | 1 | $0 |
| FRAN REED | DIRECTOR Trustee or director | 1 | $0 |
| MICHAEL JULIUS | DIRECTOR Trustee or director | 1 | $0 |
| HARRIET BONELLI | DIRECTOR Trustee or director | 1 | $0 |
| MERI GUSSIN | DIRECTOR Trustee or director | 1 | $0 |
| SANFORD HODES | DIRECTOR Trustee or director | 1 | $0 |
Address and contacts
- Address (IRS master file)
- 20 SHERWOOD LN, CHESHIRE, CT 06410-3560
- Principal officer (990 for 2025)
- DAVID FELDMAN, 20 SHERWOOD LANE, CHESHIRE, CT 06410
- Signed the 990
- DAVID FELDMAN, SECTRY/TREAS
- Phone
- (203) 272-7744
- Website
- WWW.CUREGSD.ORG
- Return prepared by
- BUDWITZ & MEYERJACK PC
Mission
THE EXEMPT PURPOSE OF THE ORGANIZATION IS TO RAISE AND DISBURSE FUNDS TO SUPPORT INDIVIDUALS AND LABORATORIES AND OR CORPORATE ENTITIES WHO ARE INVOLVED IN ACTIVITIES THAT WILL AID IN THE DIAGNOSIS, TREATMENT AND EVENTUAL CURE OF GLYCOGEN STORAGE DISEASE TYPE 1A. ONE HUNDRED PERCENT OF THE ORGANIZATIONS TIME, MONETARY AND HUMAN RESOURCES ARE UTILIZED TOWARD THIS ACTIVITY.
Program accomplishments
- THE CHARITABLE PURPOSE OF THE FOUNDATION IS TO SUPPORT, ENCOURAGE, AND ADVANCE MEDICAL RESEARCH REGARDING AND THE TREATMENT OF GLYCOGEN STORAGE DISEASE.Expenses $402,174 · grants $324,927 · revenue $190,758
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 04-3638491
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2002
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Philanthropy, voluntarism and grantmaking foundations (T22)
- Assets (IRS master file)
- $1,477,714
- Income (IRS master file)
- $282,068
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $274,249 | $402,174 | $1,477,714 | XML |
| 990 | December 2024 | $231,044 | $44,219 | $1,592,478 | XML |
| 990 | December 2023 | $292,913 | $84,668 | $1,354,107 | XML |
| 990 | December 2022 | $552,956 | $214,144 | $1,108,745 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 04-3638491).
Questions about CHILDRENS FUND FOR GLYCOGEN STORAGE DISEASE RESEARCH
- What is the EIN of CHILDRENS FUND FOR GLYCOGEN STORAGE DISEASE RESEARCH?
- The employer identification number (EIN) of CHILDRENS FUND FOR GLYCOGEN STORAGE DISEASE RESEARCH is 04-3638491.
- Is CHILDRENS FUND FOR GLYCOGEN STORAGE DISEASE RESEARCH tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2002.
- Are donations to CHILDRENS FUND FOR GLYCOGEN STORAGE DISEASE RESEARCH tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does CHILDRENS FUND FOR GLYCOGEN STORAGE DISEASE RESEARCH file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of CHILDRENS FUND FOR GLYCOGEN STORAGE DISEASE RESEARCH due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did CHILDRENS FUND FOR GLYCOGEN STORAGE DISEASE RESEARCH last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of CHILDRENS FUND FOR GLYCOGEN STORAGE DISEASE RESEARCH?
- The 990 for the year ended December 31, 2025 names DAVID FELDMAN.
- Who are the officers and directors of CHILDRENS FUND FOR GLYCOGEN STORAGE DISEASE RESEARCH?
- The 990 for the year ended December 31, 2025 lists 10 people; 0 received compensation from the organization.
- How much revenue does CHILDRENS FUND FOR GLYCOGEN STORAGE DISEASE RESEARCH have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $274,249, expenses of $402,174 and total assets of $1,477,714 at year end.
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