Nonprofit · EIN 04-3447959
ADULT CONGENITAL HEART ASSOCIATION INC
Tax-exempt · COLUMBIA, MD 21044
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $1,858,947 | $1,831,576 | $27,371 | $2,080,624 | $628,584 | $1,452,040 |
| December 31, 2024 | 990 | $1,958,729 | $2,328,629 | -$369,900 | $1,790,426 | $473,545 | $1,316,881 |
| December 31, 2023 | 990 | $2,407,696 | $1,990,356 | $417,340 | $2,033,233 | $372,986 | $1,660,247 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $1,669,609
- Membership dues
- $20,412
- Program service revenue
- $165,174
- Investment income
- $24,164
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $85,000
- Compensation of officers, directors and key employees
- $309,685
- Other salaries and wages
- $698,280
- Salaries, compensation and benefits (total)
- $1,292,119
- Professional fundraising fees
- $0
- Legal fees
- $7,892
- Accounting fees
- $25,088
- Occupancy
- $51,105
- Travel
- $34,191
- Depreciation
- $5,637
- Program services (functional)
- $1,248,177
- Management and general (functional)
- $294,479
- Fundraising (functional)
- $288,920
Balance sheet and other
- Total assets, start of year
- $1,790,426
- Total assets, end of year
- $2,080,624
- Total liabilities, end of year
- $628,584
- Net assets, end of year
- $1,452,040
- Land, buildings and equipment
- $10,069
- Publicly traded securities
- $764,517
- Net assets without donor restrictions
- $960,205
- Net assets with donor restrictions
- $491,835
- Gross receipts
- $1,858,947
- Employees
- 16
- Volunteers
- 500
- Year formed
- 1998
- State of legal domicile
- PA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| MARK ROEDER | PRESIDENT AND CEO Officer | 50 | $169,304 | $13,750 |
| DANIELLE HILE | SR. DIRECTOR OF MEDICAL AFFAIRS Highest-paid employee | 40 | $115,716 | $10,915 |
| JAMES RUPPEL MD MS | IMMEDIATE PAST CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| STEPHEN BACK | CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| WILLIAM BROWNE | TREASURER Trustee or director, Officer | 2 | $0 | $0 |
| WILLIAM CAUSEY | VICE CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| NICOLE JUNG | SECRETARY Trustee or director, Officer | 2 | $0 | $0 |
| CHAD CHASE | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| JONATHAN CRAMER MD | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| MELISSA GARDNER-LOMAX | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| CLAUDIA NORMAN | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| MEREDITH RAHN-OAKES | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| ANNE STAPLETON-REILLY | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| ERIN WALSH-BEGUIN | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| TIFFANY HACKETT-STUART | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
5 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| TODD CRIPPIN | BOARD MEMBER Trustee or director | 2 | $0 |
| DANIJEL BRENER | BOARD MEMBER Trustee or director | 2 | $0 |
| MATT MARTINHO | BOARD MEMBER Trustee or director | 2 | $0 |
| YULI KIM | BOARD MEMBER Trustee or director | 2 | $0 |
| LINDSAY ALTIMARE | BOARD MEMBER Trustee or director | 2 | $0 |
990 for the year ended December 31, 2024: 26 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| MARK ROEDER | PRESIDENT AND CEO Officer | 50 | $171,963 | $13,190 |
| JENNIFER HOCKENHULL | DIRECTOR OF FINANCE Officer | 40 | $127,961 | $9,682 |
| DANIELLE HILE | SR. DIRECTOR OF MEDICAL AFFAIRS Highest-paid employee | 40 | $116,166 | $12,167 |
| KERRY WEVODAU | DIRECTOR OF WALK FOR 1 IN 100 Highest-paid employee | 40 | $104,868 | $10,266 |
| JANINE GUGLIELMINO | DIR. OF PATIENT RESOURCES & ADVOCACY Highest-paid employee | 40 | $100,960 | $3,029 |
| JAMES RUPPEL MD MS | CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| STEPHEN BACK | VICE CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| WILLIAM BROWNE | TREASURER Trustee or director, Officer | 2 | $0 | $0 |
| WILLIAM CAUSEY | SECRETARY Trustee or director, Officer | 2 | $0 | $0 |
| BINTA BAUDY | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| CHAD CHASE | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| JENNIFER CORTES | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| JONATHAN CRAMER MD | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| NICOLE JUNG | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| YULI KIM MD | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| RICHARD KRASUSKI MD | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| MATT MARTINHO | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| CLAUDIA NORMAN | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| MEREDITH RAHN-OAKES | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| KRISTI RYAN | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| TIM SINGLETARY | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| ANNE STAPLETON-REILLY | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| ERIN WALSH-BEGUIN | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| CYNTHIA FELIX JEFFERS | BOARD MEMBER UNTIL 12/9/24 Trustee or director | 2 | $0 | $0 |
| JOANNE NICHOLS | BOARD MEMBER UNTIL 8/30/2024 Trustee or director | 2 | $0 | $0 |
| MARY JANE EAZER | SECRETARY UNTIL 9/30/24 Trustee or director, Officer | 2 | $0 | $0 |
990 for the year ended December 31, 2023: 24 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| MARK ROEDER | PRESIDENT AND CEO Officer | 50 | $183,612 | $13,347 |
| JENNIFER HOCKENHULL | DIRECTOR OF FINANCE Officer | 40 | $119,483 | $10,976 |
| DANIELLE HILE | SR. DIRECTOR OF MEDICAL AFFAIRS Highest-paid employee | 40 | $105,237 | $9,766 |
| JAMES RUPPEL MD MS | CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| ALIZA MARLIN | VICE CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| TOM WIX | TREASURER Trustee or director, Officer | 2 | $0 | $0 |
| SUSAN TIMMINS | SECRETARY AND CLERK Trustee or director, Officer | 2 | $0 | $0 |
| STEPHEN BACK | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| BINTA BAUDY | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| MINDY BEYER | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| WILLIAM BROWNE | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| WILLIAM CAUSEY | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| JENNIFER CORTES | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| MARY JANE EAZER | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| JEFF ISHIDA | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| NICOLE JUNG | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| YULI KIM MD | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| RICHARD KRASUSKI MD | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| MATT MARTINHO | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| JOANNE NICHOLS | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| CLAUDIA NORMAN | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| ANNE STAPLETON-REILLY | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| KRISTI RYAN | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
| ARWA SAIDI MD | BOARD MEMBER Trustee or director | 2 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 5950 SYMPHONY WOODS RD STE 212, COLUMBIA, MD 21044-3589
- Principal officer (990 for 2025)
- MARK ROEDER, 5950 SYMPHONY WOODS ROAD 212, COLUMBIA, MD 21044
- Signed the 990
- MARK ROEDER, PRESIDENT AND CEO
- Phone
- (888) 921-2242
- Website
- WWW.ACHAHEART.ORG
- Return prepared by
- CLIFTONLARSONALLEN LLP
Mission
TO EMPOWER THE CONGENITAL HEART DISEASE (CHD) COMMUNITY BY ADVANCING ACCESS TO RESOURCES AND SPECIALIZED CARE THAT IMPROVE PATIENT-CENTERED OUTCOMES.
Program accomplishments
- ACCREDITATION, SUPPORT, EDUCATION, AND AWARENESS ACTIVITIES:-MEDICAL CENTER ACCREDITATION PROGRAM: THE ACCREDITATION PROGRAM STARTED IN 2014. AS OF DECEMBER 2025, THERE ARE A TOTAL OF 59 ACCREDITED SITES IN THE US. THERE ARE SEVERAL ADDITIONAL SITES CURRENTLY IN VARIOUS STAGES OF THE ACCREDITATION PROCESS.-PEER SUPPORT PROGRAM: ADULT CONGENITAL HEART ASSOCIATION (ACHA) MANAGES VOLUNTEERS TO PROVIDE ONE-ON-ONE SUPPORT TO ACHD PATIENTS, AND THOSE AFFECTED BY CHD, SEEKING SUCH HELP.(CONTINUED ON SCHEDULE O).- EDUCATIONAL MATERIALS AND WEBINARS: THROUGH ITS WEBSITE, WEBINARS, VIDEOS, AND SOCIAL MEDIA CHANNELS, ACHA PROVIDES 24-HOUR ACCESS TO RELEVANT, UP-TO-DATE INFORMATION AND RESOURCES. FROM THE WEBINARS AND VIDEOS, PATIENTS LEARN MORE ABOUT SPECIFIC CHD CONDITIONS AND DEFECTS, AND THE ISSUES THAT AFFECT THEIR LIVES. LEADING EXPERTS AND ADVOCATES COVER A RANGE OF INTERESTING, DIVERSE, AND TIMELY TOPICS IN PATIENT-FRIENDLY LANGUAGE.- ACHD CLINIC DIRECTORY: ACHA EXPANDED ITS ONLINE LISTING WITH CLOSE TO 400 ACHD CLINICS (INCLUDING SATELLITE CLINICS) IN THE UNITED STATES; EACH LISTING HIGHLIGHTS THE BOARD-CERTIFIED ACHD PROVIDERS, AND THE DIRECTORY CONTINUES TO BE THE ONLY RESOURCE OF ITS KIND AVAILABLE IN THE UNITED STATES. - ACHD PATIENT DIRECTORY: THE ACHA ACHD PATIENT RESOURCE DIRECTORY PROVIDES INFORMATION, RESOURCES, AND TOOLS FOR ACHD PATIENTS AND FAMILIES WHO MIGHT EXPERIENCE BARRIERS TO ACCESSING RECOMMENDED SPECIALIZED CARE. THESE SEARCHABLE RESOURCES ARE PROVIDED TO HELP PATIENTS TAKE AN ACTIVE ROLE IN THEIR CARDIAC CARE. PATIENTS CAN SEARCH FOR TOPICS IN AREAS SUCH AS ACHD/CHD ORGANIZATIONS, OTHER HEALTH ADVOCACY ORGANIZATIONS, ACCESS TO CARE, AND OTHER HEALTH RESOURCES.Expenses $856,408 · revenue $158,904
- ADVOCACY, OUTREACH AND RESEARCH ACTIVITIES:ADVOCACY- THE CONGENITAL HEART FUTURES REAUTHORIZATION ACT OF 2024 WAS SIGNED INTO LAW IN NOVEMBER 2024 AND REAUTHORIZED FUNDING OF UP TO $10 MILLION ANNUALLY THROUGH FY 2029. ACHA EDUCATED ELECTED OFFICIALS AND OUR COMMUNITY MEMBERS ABOUT THE LEGISLATION AND OTHER POLICIES THAT IMPROVE HEALTH AND PSYCHOSOCIAL OUTCOMES FOR CHD PATIENTS. THIS INCLUDES ADDRESSING THE ACHD WORKFORCE SHORTAGE BY IDENTIFYING BARRIERS TO TRAINING NEW FELLOWS TO FOLLOW AN ACHD CAREER PATH. (CONTINUED ON SCHEDULE O).RESEARCH - IN 2025, ACHA FUNDED 4 RESEARCH GRANTS, BRINGING THE TOTAL NUMBER OF GRANTS ISSUED TO 24 AND OVER $700,000 SINCE ITS INCEPTION IN 2019.Expenses $391,769 · grants $85,000 · revenue $6,270
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 04-3447959
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1999
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G43)
- Assets (IRS master file)
- $2,080,624
- Income (IRS master file)
- $1,858,947
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $1,858,947 | $1,831,576 | $2,080,624 | XML |
| 990 | December 2024 | $1,958,729 | $2,328,629 | $1,790,426 | XML |
| 990 | December 2023 | $2,407,696 | $1,990,356 | $2,033,233 | XML |
| 990 | December 2022 | $1,698,174 | $2,007,489 | $1,503,657 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 04-3447959).
Questions about ADULT CONGENITAL HEART ASSOCIATION INC
- What is the EIN of ADULT CONGENITAL HEART ASSOCIATION INC?
- The employer identification number (EIN) of ADULT CONGENITAL HEART ASSOCIATION INC is 04-3447959.
- Is ADULT CONGENITAL HEART ASSOCIATION INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1999.
- Are donations to ADULT CONGENITAL HEART ASSOCIATION INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does ADULT CONGENITAL HEART ASSOCIATION INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of ADULT CONGENITAL HEART ASSOCIATION INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did ADULT CONGENITAL HEART ASSOCIATION INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of ADULT CONGENITAL HEART ASSOCIATION INC?
- The 990 for the year ended December 31, 2025 names MARK ROEDER.
- Who are the officers and directors of ADULT CONGENITAL HEART ASSOCIATION INC?
- The 990 for the year ended December 31, 2025 lists 20 people; 2 received compensation from the organization, the highest $169,304 (MARK ROEDER, PRESIDENT AND CEO).
- How much revenue does ADULT CONGENITAL HEART ASSOCIATION INC have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $1,858,947, expenses of $1,831,576 and total assets of $2,080,624 at year end.
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