Nonprofit · EIN 04-3180414
VHL ALLIANCE INC
Also known as CURING CANCER THROUGH VHL
Tax-exempt · BOSTON, MA 02284
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| June 30, 2025 | 990 | $1,175,753 | $1,030,955 | $144,798 | $2,563,651 | $326,368 | $2,237,283 |
| June 30, 2024 | 990 (amended) | $1,537,754 | $962,808 | $574,946 | $2,316,168 | $222,617 | $2,093,551 |
| June 30, 2023 | 990 | $949,933 | $1,124,446 | -$174,513 | $1,871,941 | $357,980 | $1,513,961 |
Financial details: 990 for the year ended June 30, 2025
Revenue
- Contributions, gifts and grants
- $1,066,511
- Program service revenue
- $0
- Investment income
- $104,473
- Other revenue
- $4,769
Expenses
- Grants and similar amounts paid
- $100,000
- Compensation of officers, directors and key employees
- $113,803
- Other salaries and wages
- $373,124
- Salaries, compensation and benefits (total)
- $525,012
- Professional fundraising fees
- $0
- Legal fees
- $7,190
- Accounting fees
- $15,550
- Occupancy
- $1,410
- Travel
- $37,983
- Program services (functional)
- $792,854
- Management and general (functional)
- $102,412
- Fundraising (functional)
- $135,689
Balance sheet and other
- Total assets, start of year
- $2,316,168
- Total assets, end of year
- $2,563,651
- Total liabilities, end of year
- $326,368
- Net assets, end of year
- $2,237,283
- Publicly traded securities
- $1,937,225
- Net assets without donor restrictions
- $1,937,283
- Net assets with donor restrictions
- $300,000
- Gross receipts
- $1,175,753
- Employees
- 6
- Volunteers
- 15
- Year formed
- 1993
- State of legal domicile
- MA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended June 30, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| WILLIAM ENGEL | CHAIR Trustee or director, Officer | 5 | $0 |
| KWAME GARRETT PRICE | VICE CHAIR Trustee or director, Officer | 5 | $0 |
| DAFFODIL BAEZ | DIRECTOR Trustee or director | 5 | $0 |
| STACY YATES | DIRECTOR Trustee or director | 5 | $0 |
| ROHAN NIRODY | DIRECTOR Trustee or director | 5 | $0 |
| MICHAEL VAN LOON | DIRECTOR Trustee or director | 5 | $0 |
| DANIEL BATTEN | DIRECTOR Trustee or director | 5 | $0 |
| CARY SCHWANITZ | DIRECTOR Trustee or director | 5 | $0 |
| JACQUELINE ZARRO | SECRETARY Trustee or director, Officer | 5 | $0 |
| PRASHANT KUDVA | DIRECTOR Trustee or director | 5 | $0 |
| LEE WILLER SPECTOR | DIRECTOR Trustee or director | 5 | $0 |
| OTHON ILIOPOULOS MD PHD | DIRECTOR Trustee or director | 5 | $0 |
| JOHN JOSEY | DIRECTOR Trustee or director | 5 | $0 |
| SETH HORWITZ | TREASURER Trustee or director, Officer | 5 | $0 |
| RUHEE DERE | DIRECTOR Trustee or director | 5 | $0 |
990 for the year ended June 30, 2024: 15 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| WILLIAM ENGEL | DIRECTOR Trustee or director | 5 | $0 |
| KWAME GARRETT PRICE | DIRECTOR Trustee or director | 5 | $0 |
| DAFFODIL BAEZ | DIRECTOR Trustee or director | 5 | $0 |
| STACY YATES | DIRECTOR Trustee or director | 5 | $0 |
| ROHAN NIRODY | VICE CHAIRPERSON Trustee or director | 5 | $0 |
| MICHAEL VAN LOON | DIRECTOR Trustee or director | 5 | $0 |
| DANIEL BATTEN | DIRECTOR Trustee or director | 5 | $0 |
| CONNIE RATH ED | DIRECTOR Trustee or director | 5 | $0 |
| CARY SCHWANITZ | SECRETARY & DIRECTOR Trustee or director, Officer | 5 | $0 |
| JACQUELINE ZARRO | DIRECTOR Trustee or director | 5 | $0 |
| PRASHANT KUDVA | DIRECTOR Trustee or director | 5 | $0 |
| LEE WILLER SPECTOR | TREASURER & DIRECTOR Trustee or director, Officer | 5 | $0 |
| STACY LLOYD MPH | CHAIRPERSON Trustee or director, Officer | 5 | $0 |
| OTHON ILIOPOULOS MD PHD | DIRECTOR Trustee or director | 5 | $0 |
| JOHN JOSEY | DIRECTOR Trustee or director | 5 | $0 |
990 for the year ended June 30, 2023: 15 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| WILLIAM ENGEL | DIRECTOR Trustee or director | 5 | $0 |
| KWAME GARRETT PRICE | DIRECTOR Trustee or director | 5 | $0 |
| LEE WILLER SPECTOR | DIRECTOR Trustee or director | 5 | $0 |
| STACY YATES | DIRECTOR Trustee or director | 5 | $0 |
| ROHAN NIRODY | VICE CHAIRPERSON Trustee or director | 5 | $0 |
| CARY SCHWANITZ | DIRECTOR Trustee or director | 5 | $0 |
| CAMRON KING | DIRECTOR Trustee or director | 5 | $0 |
| CONNIE RATH ED | DIRECTOR Trustee or director | 5 | $0 |
| EMILY BILLCHECK | SECRETARY & DIRECTOR Trustee or director, Officer | 5 | $0 |
| JENNIFER GALENKAMP | DIRECTOR Trustee or director | 5 | $0 |
| PRASHANT KUDVA | DIRECTOR Trustee or director | 5 | $0 |
| SETH HORWITZ | TREASURER & DIRECTOR Trustee or director, Officer | 5 | $0 |
| STACY LLOYD MPH | CHAIRPERSON Trustee or director, Officer | 5 | $0 |
| OTHON ILIOPOULOS MD PHD | DIRECTOR Trustee or director | 5 | $0 |
| JOHN JOSEY | DIRECTOR Trustee or director | 5 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 844682, BOSTON, MA 02284-4682
- Principal officer (990 for 2024)
- SETH HORWITZ, PO BOX 844682, BOSTON, MA 022844682
- Signed the 990
- SETH HORWITZ, TREASURER
- Phone
- (800) 767-4845
- Website
- WWW.VHL.ORG
- Return prepared by
- RAFFOL AND COMPANY INC
Mission
THE VHL ALLIANCE IS DEDICATED TO RESEARCH, EDUCATION AND SUPPORT TO IMPROVE AWARENESS, DIAGNOSIS, TREATMENT AND QUALITY OF LIFE FOR THOSE AFFECTED BY VHL DISEASE.
Program accomplishments
- THE VHL ALLIANCE IS THE LARGEST PRIVATE FUNDER OF VHL RESEARCH WORLDWIDE, WE INVEST CRUCIAL CAPITAL INTO PEER-REVIEWED SCIENCE, DIRECTLY FUELING THE WORK OF LEADING VHL SCIENTISTS TO FIND BETTER TREATMENTS AND A CURE. WE BRING THE VHL COMMUNITY TOGETHER BY HOSTING SYMPOSIUMS AND IN-PERSON EVENTS THAT UNITE FAMILIES AND THE MEDICAL PROFESSIONALS WHO TREAT THEM, FOSTERING A COLLABORATIVE APPROACH TO HEALTH AND DISCOVERY. WE PROVIDE VITAL, EXPERTLY DESIGNED EDUCATIONAL TOOLS THAT GIVE PATIENTS AND FAMILIES THE KNOWLEDGE THEY NEED TO CONFIDENTLY ADVOCATE FOR THE BEST POSSIBLE VHL CARE. WE SUPPORT AND CERTIFY A NETWORK OF MORE THAN 40 VHL CLINICAL CARE CENTERS, ENSURING THAT THE HIGHEST QUALITY, COMPREHENSIVE VHL CARE IS ACCESSIBLE THROUGHOUT THE COUNTRY.Expenses $792,854 · grants $100,000 · revenue $4,769
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in June, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | June 30, 2026 | November 16, 2026 | Not due yet |
| 2024 | June 30, 2025 | November 17, 2025 | 990 on file |
| 2023 | June 30, 2024 | November 15, 2024 | 990 on file |
IRS record
- EIN
- 04-3180414
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1993
- Accounting year ends
- June
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Health care (E20Z)
- Assets (IRS master file)
- $2,563,651
- Income (IRS master file)
- $1,175,753
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | June 2025 | $1,175,753 | $1,030,955 | $2,563,651 | IRS |
| 990 | June 2024 | $1,537,754 | $962,808 | $2,316,168 | XML |
| 990 | June 2023 | $949,933 | $1,124,446 | $1,871,941 | XML |
| 990 | June 2022 | – | – | – | IRS |
| 990 | June 2021 | – | – | – | IRS |
| 990 | June 2019 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 04-3180414).
Questions about VHL ALLIANCE INC
- What is the EIN of VHL ALLIANCE INC?
- The employer identification number (EIN) of VHL ALLIANCE INC is 04-3180414.
- Is VHL ALLIANCE INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1993.
- Are donations to VHL ALLIANCE INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does VHL ALLIANCE INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of VHL ALLIANCE INC due?
- The return for tax year 2025 (the year ending June 30, 2026) is due November 16, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did VHL ALLIANCE INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended June 2025.
- Who is the principal officer of VHL ALLIANCE INC?
- The 990 for the year ended June 30, 2025 names SETH HORWITZ.
- Who are the officers and directors of VHL ALLIANCE INC?
- The 990 for the year ended June 30, 2025 lists 15 people; 0 received compensation from the organization.
- How much revenue does VHL ALLIANCE INC have?
- On its 990 for the year ended June 30, 2025 it reported revenue of $1,175,753, expenses of $1,030,955 and total assets of $2,563,651 at year end.
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