Nonprofit · EIN 04-3030760
NEUROFIBROMATOSIS INC
Tax-exempt · WHEATON, IL 60187
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| September 30, 2025 | 990 | $575,060 | $565,578 | $9,482 | $1,271,970 | $9,518 | $1,262,452 |
| September 30, 2024 | 990 | $452,414 | $491,468 | -$39,054 | $1,228,709 | $7,605 | $1,221,104 |
| September 30, 2023 | 990 | $410,383 | $488,110 | -$77,727 | $1,185,451 | $16,744 | $1,168,707 |
Financial details: 990 for the year ended September 30, 2025
Revenue
- Contributions, gifts and grants
- $551,083
- Program service revenue
- $0
- Investment income
- $43,519
- Net income from fundraising events
- -$19,542
- Other revenue
- -$19,542
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $116,843
- Other salaries and wages
- $143,779
- Salaries, compensation and benefits (total)
- $279,245
- Professional fundraising fees
- $0
- Accounting fees
- $9,073
- Occupancy
- $12,417
- Travel
- $359
- Program services (functional)
- $474,026
- Management and general (functional)
- $31,882
- Fundraising (functional)
- $59,670
Balance sheet and other
- Total assets, start of year
- $1,228,709
- Total assets, end of year
- $1,271,970
- Total liabilities, end of year
- $9,518
- Net assets, end of year
- $1,262,452
- Publicly traded securities
- $653,795
- Net assets without donor restrictions
- $1,185,457
- Net assets with donor restrictions
- $76,995
- Gross receipts
- $667,972
- Employees
- 5
- Volunteers
- 170
- Year formed
- 1990
- State of legal domicile
- MA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended September 30, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| KIM BISCHOFF | EXECUTIVE DI Officer | 40 | $116,843 |
| ROSEMARY ANDERSON | BOARD MEMBER Trustee or director | 5 | $0 |
| DR FRANK BUONO | BOARD MEMBER Trustee or director | 5 | $0 |
| GREGG ERICKSON | TREASURER Trustee or director, Officer | 15 | $0 |
| RYAN GEIER | VICE PRESIDE Trustee or director, Officer | 15 | $0 |
| NICOLE HICKS | BOARD MEMBER Trustee or director | 5 | $0 |
| JUSTIN JORDAN | BOARD MEMBER Trustee or director | 5 | $0 |
| SHARON KLEIN | BOARD MEMBER Trustee or director | 5 | $0 |
| SHARON LOFTSPRING | SECRETARY Trustee or director, Officer | 15 | $0 |
| PAUL MOOTS | BOARD MEMBER Trustee or director | 5 | $0 |
| JOHN MANTH | PRESIDENT Trustee or director, Officer | 15 | $0 |
| TERRI RAUSCH | BOARD MEMBER Trustee or director | 5 | $0 |
| ADAM ROSENBERG | BOARD MEMBER Trustee or director | 5 | $0 |
| BEAU SHEEDY | BOARD MEMBER Trustee or director | 5 | $0 |
| KATIE SPERRING | BOARD MEMBER Trustee or director | 5 | $0 |
4 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| MICHAEL SHEEDY | BOARD MEMBER Trustee or director | 5 | $0 |
| MICHELLE SLIMKO | BOARD MEMBER Trustee or director | 5 | $0 |
| SHANE SMITH | BOARD MEMBER Trustee or director | 5 | $0 |
| CHERI STEWART | BOARD MEMBER Trustee or director | 5 | $0 |
990 for the year ended September 30, 2024: 18 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| KIM BISCHOFF | EXECUTIVE DI Officer | 40 | $104,158 |
| ROSEMARY ANDERSON | BOARD MEMBER Trustee or director | 5 | $0 |
| DR FRANK BUONO | BOARD MEMBER Trustee or director | 5 | $0 |
| GREGG ERICKSON | TREASURER Trustee or director, Officer | 15 | $0 |
| RYAN GEIER | VICE PRESIDE Trustee or director, Officer | 15 | $0 |
| NICOLE HICKS | BOARD MEMBER Trustee or director | 5 | $0 |
| JUSTIN JORDAN | BOARD MEMBER Trustee or director | 5 | $0 |
| SHARON KLEIN | BOARD MEMBER Trustee or director | 5 | $0 |
| SHARON LOFTSPRING | SECRETARY Trustee or director, Officer | 15 | $0 |
| PAUL MOOTS | BOARD MEMBER Trustee or director | 5 | $0 |
| JOHN MANTH | PRESIDENT Trustee or director, Officer | 15 | $0 |
| MARIA POWELL | BOARD MEMBER Trustee or director | 5 | $0 |
| TERRI RAUSCH | BOARD MEMBER Trustee or director | 5 | $0 |
| ADAM ROSENBERG | BOARD MEMBER Trustee or director | 5 | $0 |
| MICHAEL SHEEDY | BOARD MEMBER Trustee or director | 5 | $0 |
| MICHELLE SLIMKO | BOARD MEMBER Trustee or director | 5 | $0 |
| SHANE SMITH | BOARD MEMBER Trustee or director | 5 | $0 |
| CHERI STEWART | BOARD MEMBER Trustee or director | 5 | $0 |
990 for the year ended September 30, 2023: 18 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| KIM BISCHOFF | EXECUTIVE DI Highest-paid employee | 40 | $104,158 |
| ROSEMARY ANDERSON | BOARD MEMBER Trustee or director | 5 | $0 |
| DR FRANK BUONO | BOARD MEMBER Trustee or director | 5 | $0 |
| GREGG ERICKSON | TREASURER Trustee or director, Officer | 15 | $0 |
| RYAN GEIER | VICE PRESIDE Trustee or director, Officer | 15 | $0 |
| NICOLE HICKS | BOARD MEMBER Trustee or director | 5 | $0 |
| JUSTIN JORDAN | BOARD MEMBER Trustee or director | 5 | $0 |
| SHARON KLEIN | BOARD MEMBER Trustee or director | 5 | $0 |
| SHARON LOFTSPRING | SECRETARY Trustee or director, Officer | 15 | $0 |
| PAUL MOOTS | BOARD MEMBER Trustee or director | 5 | $0 |
| JOHN MANTH | PRESIDENT Trustee or director, Officer | 15 | $0 |
| MARIA POWELL | BOARD MEMBER Trustee or director | 5 | $0 |
| TERRI RAUSCH | BOARD MEMBER Trustee or director | 5 | $0 |
| ADAM ROSENBERG | BOARD MEMBER Trustee or director | 5 | $0 |
| MICHAEL SHEEDY | BOARD MEMBER Trustee or director | 5 | $0 |
| MICHELLE SLIMKO | BOARD MEMBER Trustee or director | 5 | $0 |
| SHANE SMITH | BOARD MEMBER Trustee or director | 5 | $0 |
| CHERI STEWART | BOARD MEMBER Trustee or director | 5 | $0 |
Address and contacts
- Address (IRS master file)
- 330 S NAPERVILLE RD STE 304, WHEATON, IL 60187-5442
- In care of
- % LESSING
- Principal officer (990 for 2024)
- GREGG ERICKSON, 4095 STONE POINT DRIVE NE, ROCHESTER, MN 55906
- Signed the 990
- GREGG ERICKSON, TREASURER
- Phone
- (630) 510-1115
- Website
- WWW.NFNETWORK.ORG
- Return prepared by
- KOLNICKI PETERSON & WIRTH CPA'S
Mission
TO PROVIDE INFORMATION ABOUT THE DISORDER NEUROFIBROMATOSIS TO THOSE AFFECTED AND HELP FAMILIES FIND MEDICAL, SOCIAL AND GENETIC COUNSELING. TO RAISE AND SEEK FUNDS FOR RESEARCH FOR A CURE.
Program accomplishments
- TO PROVIDE THOSE WITH NEUROFIBROMATOSIS WITH INFORMATION ABOUT THE DISORDER AND HELP FAMILIES FIND MEDICAL, SOCIAL, AND GENETIC COUNSELING. TO RAISE AND SEEK FUNDS FOR RESEARCH FOR A CURE.Expenses $474,026 · revenue $319,974
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in September, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | September 30, 2026 | February 16, 2027 | Not due yet |
| 2024 | September 30, 2025 | February 17, 2026 | 990 on file |
| 2023 | September 30, 2024 | February 18, 2025 | 990 on file |
IRS record
- EIN
- 04-3030760
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1990
- Accounting year ends
- September
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H30Z)
- Assets (IRS master file)
- $1,271,970
- Income (IRS master file)
- $667,972
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | September 2025 | $575,060 | $565,578 | $1,271,970 | IRS |
| 990 | September 2024 | $452,414 | $491,468 | $1,228,709 | XML |
| 990 | September 2023 | $410,383 | $488,110 | $1,185,451 | XML |
| 990 | September 2022 | $548,640 | $377,639 | $1,209,936 | IRS |
| 990 | September 2021 | – | – | – | IRS |
| 990 | September 2020 | – | – | – | IRS |
| 990 | September 2019 | – | – | – | IRS |
| 990 | September 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 04-3030760).
Questions about NEUROFIBROMATOSIS INC
- What is the EIN of NEUROFIBROMATOSIS INC?
- The employer identification number (EIN) of NEUROFIBROMATOSIS INC is 04-3030760.
- Is NEUROFIBROMATOSIS INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1990.
- Are donations to NEUROFIBROMATOSIS INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does NEUROFIBROMATOSIS INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of NEUROFIBROMATOSIS INC due?
- The return for tax year 2025 (the year ending September 30, 2026) is due February 16, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did NEUROFIBROMATOSIS INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended September 2025.
- Who is the principal officer of NEUROFIBROMATOSIS INC?
- The 990 for the year ended September 30, 2025 names GREGG ERICKSON.
- Who are the officers and directors of NEUROFIBROMATOSIS INC?
- The 990 for the year ended September 30, 2025 lists 19 people; 1 received compensation from the organization, the highest $116,843 (KIM BISCHOFF, EXECUTIVE DI).
- How much revenue does NEUROFIBROMATOSIS INC have?
- On its 990 for the year ended September 30, 2025 it reported revenue of $575,060, expenses of $565,578 and total assets of $1,271,970 at year end.
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