2026-09-21T09:55:10-05:00 2025-12-31 271895149 Heveron & Company CPAs PLLC 260 Plymouth Avenue South Rochester NY 14608 990 2025-01-01 141632376 Brain Injury Association of New York State Inc BRAI 5184597911 5 Pine West PlazaSuite 506 Albany NY 12205 Eileen Reardon Executive Director 5184597911 2026-09-11 1 Brenda Smith P00617844 5852322956 2026-09-11 2025 Eileen Reardon 5 Pine West Plaza/Suite 506 Albany NY 12205 2000144 0 X www.bianys.org X 1982 NY Support, educate and advocate for those impacted by brain injury and minimize through prevention. 20 20 17 20 0 0 1891791 1906845 37139 38233 32638 16366 0 0 1961568 1961444 0 0 0 0 1253410 1274532 0 0 100308 560654 362745 1814064 1637277 147504 324167 722968 1044447 212259 177398 510709 867049 X To support, educate and advocate for people and families impacted by brain injury and to minimize brain injury through prevention. 0 0 785094 Family Advocacy Counseling and Training Services Program (FACTS): The FACTS Program is a statewide support system for families and people who sustained a brain injury prior to age 22. This free program funded by the Office for People with Development Disabilities, is available in addition to waiver services and provides a connection to community resources, community education, prevention and advocacy.(Continued on Schedule O)The program includes: assistance in locating appropriate services in the community, information on and connection to state and local service systems, education, advocacy, and training for people with brain injury and their families regarding brain injury, assistance with the development of brain injury groups, assistance with repatriation and the prevention of out-of-state placements, outreach and prevention training to local service providers and supportive counseling and on-going emotional support for people and their families.The program also generates $796,902 in government grant contributions included on Form 990, Part VIII, line 1e. 300592 Continuum of Care for Neuro-Resource Facilitation (COC):The Continuum of Care for Neuro-Resource Facilitation Program addresses the needs of brain injury survivors in New York State who sustain their injury at age 22 or older. This free program is funded through the New York State Department of Health as well as the Office for People with Development Disabilities.(Continued on Schedule O)Individuals with brain injury, their families, and caregivers benefit from receiving support and assistance as they recover from a brain injury and are provided with resources and information allowing access to services in their community. The basis of this program includes planning mutually agreed upon goals that are person centered; identification of and assistance with locating resources, services, and supports; monitoring the status of goals, progress, quality and appropriateness of services and supports; and assistance to help participants advocate for themselves.Information and resource facilitation occurs through our Toll-Free Family Help Line as part of the National Brain Injury Information Center (NBIIC) with the Brain Injury Association of America. Additionally, the COC provides outreach services and training to help identify individuals who could benefit from this program and promotes professional development, so professionals are better informed to work with this population.The program also generates $300,005 in government grant contributions included on Form 990, Part VIII, line 1e. 259301 38233 BIANYS operates the family Helpline, a toll-free information and resource clearing house. Whether you are seeking information on traumatic brain injury, looking for resources on stroke rehabilitation. Or just trying to find your way, BIANYS is here to help! (Continued on Schedule O)We have resources for individuals with brain injury, family members, professionals, schools, or any other interested parties including: finding a local support group, locating brain injury rehabilitation services in your area, getting help with benefit programs and social services, resources for legal advocacy, the Medicaid TBI and NHTD waiver program, caregiver supports, training requests, services for children, including the FACTS program, and locating regional support group meetings. BIANYS advocates for brain injury survivors so that everyone has access to the services they need. These are issues we are currently working on: Continuum of Care for People with a Traumatic Brain Injury, BIANYS proposes a plan that details four recommendations to address the needs of the brain injury survivor to get the help they need from the time of their injury to the time they integrate back into their community. Amend the 2011 New York State Concussion Management Awareness Act to address the current disparate nature of brain injury services and strengthen advisory and coordination channels. BIANYS also advocates for many issues that confront the brain injury community daily through webinars, action alerts, legislative meeting and education. The BIANYS launched the Concussion Initiative Advisory Committee in 2017 as an interdisciplinary approach to issues related to concussion. Members include 40+ health care, education and advocacy professionals from across the state, all of whom share the goal of improving concussion education and care for all New Yorkers. The goal of the Concussion Initiative are to identify and implement protocols that achieve a successful Return-to-Life for all New Yorkers who sustain concussions, advocate for public policy addressing concussion, and to implement educational standards that address concussion. The Concussion Initiative developed sub-committees that specialize in four significant areas. They are: Legislation and policy which reviews current New York State legislation and policies, issues recommendations, and works with elected leaders and other stakeholders to increase awareness, diagnosis and management of concussion; Public awareness and funding which focuses on developing greater public awareness and pursuing sustainable financial support for the work of the Concussion Initiative; Centers for Excellence which analyzes health care systems and issues recommendations for innovative ideas that expand access to interdisciplinary concussion evaluation and treatment centers, including the integration of updated evidence based guidelines; Return to Life which reviews guidelines and protocols related to concussion management and generates specific recommendations for integration of "Return to Life and Activity" protocols within medical, educational, vocational settings.The BIANYS Family Fund provides emergency support to individuals with brain injury and their families. Applications are reviewed on a case-by-case basis, following Fund guidelines. 1344987 1 1 0 1 0 0 0 0 0 0 1 0 0 0 1 0 1 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 11 0 1 17 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 20 20 1 0 0 0 1 1 1 1 1 0 1 1 0 1 1 1 1 1 1 1 0 NY X X The Organization 5184597911 5 Pine West Plaza/Suite 506 Albany NY 12205 Robert C Gundersen President 1.40 X X 0 0 0 Kristine O'Rourke Second Vice President 0.70 X X 0 0 0 John Quinan Member 0.50 X 0 0 0 Joe Vollaro Treasurer 0.50 X X 0 0 0 Andrew Siegel Esq Member 0.50 X 0 0 0 Judith Delasi First Vice President 0.90 X X 0 0 0 Londina Cruz Member 0.20 X 0 0 0 Michael Hayes Member 0.20 X 0 0 0 Jamie Ullman Member 0.50 X 0 0 0 Conan O'Rourke Member 0.70 X 0 0 0 Paul Akers Member 0.50 X 0 0 0 Wendell Miller Member 0.50 X 0 0 0 Barry Dain Member 0.70 X 0 0 0 Brian Im Member 0.50 X 0 0 0 Kaiti Pierce Secretary 0.50 X X 0 0 0 Dan Cohen Member 0.70 X 0 0 0 John Kirkwood Member 0.50 X 0 0 0 Kara Moran Member 0.70 X 0 0 0 Maribeth Affeldt-Smith Member 0.20 X 0 0 0 Cindy Solomita Member 0.50 X 0 0 0 Eileen Reardon Executive Director 40.00 X 115477 0 15184 Kristin Griffin Director of Finance 40.00 X 80390 0 15184 195867 0 30368 1 0 0 0 0 159937 1322294 424614 1906845 Conference Revenue 900099 35527 35527 Training Income 900099 2706 2706 38233 14254 14254 8577 6465 2112 2112 2112 32235 159937 32235 0 1961444 38233 0 16366 226234 118538 75031 32665 836904 773324 35838 27742 134833 124696 4878 5259 76561 64967 7397 4197 1179 1179 26800 26800 78107 62688 2553 12866 80428 62378 5533 12517 14144 14144 50966 43920 1984 5062 9856 7497 2359 2063 1031 1032 4652 3337 1315 Public Relations 54675 54675 Scholarship Expense 27936 27936 11939 11939 1637277 1344987 191982 100308 206487 17653 5062 342186 217627 366757 39237 38624 33012 27062 8013 5950 228277 267057 18265 6220 722968 1044447 44610 25479 149330 145699 18319 6220 212259 177398 X 466606 842431 44103 24618 510709 867049 722968 1044447 324167 32173 0 X 0 1 X 1 0 X 1294231 1204781 1631229 1891791 1906845 7928877 1294231 1204781 1631229 1891791 1906845 7928877 352740 7576137 2495 4284 5354 14254 26387 9988 17496 10096 31406 32235 101221 8056485 156500 0.94040 0.95610 X Schedule A, Part II, Line 10, Explanation of Other Income: Other Revenue Special Events Gross Income RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 1 1 24000 0 0 0 0 0 1 30000 54000 0 Part II-B, Line 1: Buzz Media provide communication support including press releases, media outreach, social media and collateral materials. Harter, Secrest & Emery LLP provides support in our advocacy and lobbying efforts for the Continuum of Care and COPE. They assist in setting up meetings, strategies and communications to key legislative leaders. 33012 27062 5950 5950 Operating Lease Liabilities 6220 6220 2005637 32173 12020 44193 1961444 0 1961444 1649297 12020 12020 1637277 0 1637277 Gala 65590 34455 31135 9385 21750 March for Brain Injury 126582 125482 1100 1100 0 192172 159937 32235 10485 21750 32235 0 Form 990, Part VI, Section A, line 2 Kristine and Conan O'Rourke have a family relationship. Form 990, Part VI, Section A, line 6 The organization has members. Form 990, Part VI, Section A, line 7a Members in a particular geographic area, as outlined by the by-laws, have the opportunity to elect a board representative. Form 990, Part VI, Section A, line 7b The membership has the right to vote on changes to the by-laws. The audit committee and executive committee can act on behalf of the board. Form 990, Part VI, Section B, line 11b The 990 is reviewed by the executive committee prior to filing, once filed it is made available to the full board. Form 990, Part VI, Section B, line 12c Persons covered by this policy will annually disclose or update to the President of the Board of Directors on a form provided by the BIANYS their interests that could give rise to conflicts of interest, such as a list of family members, substantial business or investment holdings, and other transactions or affiliations with businesses and other organizations or those of family members. Form 990, Part VI, Section B, line 15 The process for determining compensation of the Executive Director and key employees of the organization includes the review and approval by the Board of Directors, use of data as to comparable compensation, and contemporaneous documentation and recordkeeping. Form 990, Part VI, Section C, line 19 The governing documents, conflict of interest policy, and financial statements are available upon request.