2026-09-02T18:16:22-07:00 2026-04-30 990EZ 2025-05-01 881908603 LCC FOUNDATION INC LCCF 6362489930 105 Eckstein Lane Lake Saint Louis MO 63367 Ashley Dike Executive Director 6362489930 2026-09-01 2025 X X https://www.thelccfoundation.org X X 69060 X 68263 0 0 122 0 0 0 0 0 0 0 675 0 675 0 69060 7454 0 0 19021 0 26 0 26501 42559 74821 0 117380 74821 117380 0 0 0 0 74821 117380 0 0 74821 117380 To support patients and families affected by Leukoencephalopathy with Brain Calcifications and Cysts (LCC/Labrune Syndrome) through education, advocacy, research collaboration, and community support. Patient and Family Support and Education. The LCC Foundation supported 8 families across multiple countries through educational resources, peer connections, and introductions to LCC clinicians and researchers. Distributed approximately 850 information packets to hospitals. Research Collaboration and Advocacy. The LCC Foundation collaborated with leading clinical and research organizations to advance LCC natural history research, MRI scoring, registry development, biomarker discussions, and patient-centered research priorities. Awareness, Community Outreach and Conference Development. The Foundation expanded LCC awareness through community events, digital resources, social media, family outreach, and The LCC Circle podcast; also advanced planning for its inaugural Global LCC Family and Research Conference. 5116 18072 18072 Ashley Dike Founder/Executive Director 25 0 0 0 Belinda Staub Secretary 10 0 0 0 Danny Dike Co-Founder 10 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 MO Ashley Dike 105 Eckstein Lane Lake Saint Louis MO 63367 6362489930 0 0 0 0 0 0 0 0 0 0 0 NONE NONE 1 X 0 450 35341 50732 68263 154786 0 0 0 0 675 675 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 450 35341 50732 68938 155461 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 155461 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 450 35341 50732 68938 155461 X Form 990-EZ, Part I, Line 10 Child Neurology Foundation $500.00; Care Leuko in Canada $1,837.69; Anonymous family support gift $5,116.09. Total $7,453.78.