2026-03-30T14:32:24-07:00 2025-12-31 990EZ 2025-01-01 920449829 PRINCESS HAILEY'S HOPE FOUNDATION PRIN 9193571911 17 CYPRESS GROVE LANE SW HUNTSVILLE AL 35824 Delia Acevedo President 9193571911 2026-03-30 2025 2025-03-06 01:10:19Z X HTTPS://PRINCESSHAILEYSHOPE.ORG X X 53373 X 50837 0 0 0 0 0 0 0 2536 755 1781 0 0 0 0 52618 34684 0 0 0 0 0 504 35188 17430 35831 0 53261 X 34233 52014 0 0 1598 1247 35831 53261 0 0 35831 53261 The primary purpose of Princess Hailey's Hope Foundation is 1) to raise funds to support pediatric brain cancer research, with an emphasis on Diffuse Intrinsic Pontine Glioma (DIPG)/Diffuse Midline Glioma (DMG); 2) to raise funds to support children fighting cancer, with an emphasis on those who have been diagnosed with DIPG and DMG; and 3) to raise awareness of childhood cancer, which is the leading cause of death by disease in children in the United States. 1. HOPE FROM HAILEY: Our organization awarded three grants in 2025 to advance research and treatment for Diffuse Instrinsic Pontine Glioma (DIPG). 1. A grant of $15,000 was given to the Hailey Acevedo Power Up Against DIPG Research Fund at St. Jude Children's Research Hospital in Memphis, TN (EIN: 62-0646012), to support their efforts to develop effective treatments for both DIPG and DMG. 2. A grant of $5,000 was awarded to the DIPG/DMG Research Funding Alliance, administered by Tough2Gether Foundation in Manhattan, KS (EIN: 92-1204987). This funding will help support a grant to Rebecca Ronsley at Seattle Children's Hospital for her research on quad target CAR-T cell therapy outcomes from the BrainChild-04 clinical trial. 3. An additional $6,500 was awarded to the DIPG/DMG Research Funding Alliance (also administered by Tough2Gether Foundation) to help support the National DIPG/DMG Brain Tumor Board, which provides referring oncologists with advice from a panel of DIPG/DMG experts on the best treatment options for their patients. This service is a free and confidential resource for families across the United States. To date, this board has reviewed over 500 DIPG/DMG patient cases. The exact number of individuals who will benefit from these grants is unknown. 26500 26500 2. HUGS FROM HAILEY: This program seeks to brighten the days of children diagnosed with cancer. Our organization sent a total of 70 personalized Hugs from Hailey care packages or gifts of support to children battling cancer in FY2025. Thirty (30) of these care packages or gifts of support were sent to children battling DIPG/DMG brain cancer across the United States. We also delivered an additional forty (40) Hugs from Hailey boxes to local childhood cancer patients receiving treatment at the St. Jude Affiliate Clinic at Huntsville Hospital for Women and Children. 6531 6531 3. HOPS FROM HAILEY: Our organization provided gas gift cards to 16 families with children battling DIPG/DMG across the United States who had to travel significant distances (50+ miles) to receive treatment as part of a clinical trial or expanded access program. 1653 1653 34684 Delia N Acevedo PhD President 40 0 0 0 Traci Cappiello Board Member 5 0 0 0 Carlos Acevedo Board Chair, Treasurer 10 0 0 0 Joseph Limberg Board Member, Vice President 5 0 0 0 Christine Carpino PhD Board Member, Secretary 5 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 AL Delia N Acevedo 17 CYPRESS GROVE LANE SW HUNTSVILLE AL 35824 9193571911 0 0 0 0 0 0 0 0 0 0 0 NONE NONE 1 X 8675 36554 34042 50837 130108 0 2077 3234 2536 7847 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 8675 38631 37276 53373 137955 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 137955 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 8675 38631 37276 53373 137955 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Form 990-EZ, Part I, Line 10 1. Hope from Hailey: $26,500 Our organization granted a total of $11,500 to Tough2Gether Foundation (Manhattan, KS, EIN 92-1204987), which administers the DIPG/DMG Research Funding Alliance (DDRFA). $5,000 of that was directed to support a research grant for Rebecca Ronsley's quad CAR-T cell research at Seattle Children's Hospital. The remaining $6,500 was directed to help fund the National DIPG/DMG Brain Tumor Board, to provide free second opinions and treatment advice to families with a child battling Diffuse Intrinsic Pontine Glioma (DIPG) or Diffuse Midline Glioma (DMG). Our organization granted an additional $15,000 to the Hailey Acevedo Power Up Against DIPG Research Fund at St. Jude Children's Research Hospital (Memphis, TN, EIN 62-0646012) to support their research and development of effective treatments for DIPG and DMG. The number of persons benefitted is unknown. 2. Hugs from Hailey: $6,531. 70 Hugs from Hailey care packages and gifts of support were sent to children battling cancer. Forty (40) of those Hugs from Hailey boxes were given to pediatric hematology and oncology patients at the St. Jude Affiliate Clinic at Huntsville Hospital for Women and Children. Thirty (30) Hugs from Hailey were sent to children battling DIPG/DMG terminal brain cancer across the United States. 3. Hops from Hailey: $1653. Sixteen (16) Hops from Hailey travel gift cards were sent to DIPG/DMG patients enrolled in clinical trials or expanded access programs in the United States to help offset the cost of treatment-related travel expenses. Form 990-EZ, Part I, Line 16 4. DIPG/DMG Awareness Expenses: $245. This expense includes the cost of the PHHF annual website and domain fees. 5. General Operating Expenses: $259. This category includes the cost of our annual registration filing fees with the AL Attorney General, change in registered agent filing, 990 filing, and Venmo/bank fees. Form 990-EZ, Part II, Line 24 Other Assets: Inventory remaining at year-end includes carryover product donations from 2024: 1) Product donation from Tito's: FMV $100, 2) Product prize pack donation by Bogey Bros, FMV $100, 3) Huntsville art donation print by Melly Luna Designs: FMV $15, 4) Jason's Deli Gift Card: FMV $25, and 5) Wish Paper Kits, FMV: $1007 (remainder after including kits in hugs boxes and as give aways at awareness events). Total Value: $1247