2026-02-01T10:40:47-07:00 2025-03-31 990EZ 2024-04-01 465662435 SNYDER-ROBINSON FOUNDATION SNYD 7032030215 1443 Layman Street McLean VA 22101 Michael Raymond Executive Director 7032030215 2026-02-01 1 2024 2025-03-06 01:10:19Z X X https://snyder-robinson.org/ X X 68211 X 68211 0 0 0 0 0 0 0 0 0 0 0 0 0 0 68211 0 0 3100 0 0 0 11081 14181 54030 14489 0 68519 14489 68519 0 0 0 0 14489 68519 0 0 14489 68519 We are a rare disease patient advocacy organization. Our mission is to support medical research that will lead to safe and effective treatments for individuals with Snyder-Robinson Syndrome and related disorders; and for related scientific and charitable purposes. Snyder-Robinson Syndrome Patient Registry and Natural History Study (ongoing): This IRB-approved study gathers medical data from SRS patients to help researchers to understand SRS and to develop treatments for SRS. This includes salary expense for our Director of Research and related expenses. This line also includes related expenses incurred to find treatments for SRS patients. 0 10257 Education/Website: We incurred expenses to maintain a website and create digital content to share information about SRS, including information for health care providers. This includes payroll expense for our Director of Membership. Our website may be found at www.snyder-robinson.org. 0 586 10843 Teri Koerner Director of Research 20 2136 0 0 Michael Raymond Executive Director 1 0 0 0 Katia Luedtke General Counsel 1 0 0 0 Frank Marchetti Chief Financial Officer 1 0 0 0 Christopher Abbott Chief Information Officer 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 Michael Raymond 1443 Layman Street McLean VA 22101 7032030215 0 0 0 0 0 0 0 0 0 0 0 NONE NONE 1 X 270812 193587 58730 28210 68211 619550 0 0 0 0 0 270812 193587 58730 28210 68211 619550 7000 8000 5500 3000 3000 26500 7000 8000 5500 3000 3000 26500 593050 10000 10000 280812 193587 58730 28210 68211 629550 0.94202 0.95438 0 0 X Schedule A, Part III, Line 12 This was an employee retention tax credit. Form 990-EZ, Part I, Line 16 Description;Amount^NORD Membership;50|VA SCC filing fees;25|Misc;163|Natural History Study;10257|Website;586^Total;11081^