2026-01-27T07:36:50-06:00 2025-06-30 510229493 BARBACANE THORNTON & COMPANY LLP 503 CARR ROAD SUITE 100 WILMINGTON DE 198092863 990 2024-07-01 516018401 EPILEPSY FOUNDATION OF DELAWARE EPIL 3029999313 527 STANTON CHRISTIANA ROAD NEWARK DE 19713 CHRISTY POOLE PRESIDENT 3029999313 2026-01-27 1 JEFFREY A KOWALCZYK CPA P01563311 3024788940 2026-01-27 2024 2025-03-06 01:10:19Z CHRISTY POOLE 527 STANTON CHRISTIANA ROAD NEWARK DE 19713 272305 0 X WWW.EFDE.ORG X 1964 DE THE EPILEPSY FOUNDATION LEADS THE FIGHT TO STOP SEIZURES, FIND A CURE AND OVERCOME THE CHALLENGES CREATED BY EPILEPSY. 13 13 4 28 0 0 125605 146368 26692 12461 10593 11053 81383 79323 244273 249205 0 0 0 0 164155 177319 0 0 29217 60976 61948 225131 239267 19142 9938 413559 489436 7411 66618 406148 422818 X THE EPILEPSY FOUNDATION LEADS THE FIGHT TO STOP SEIZURES, FIND A CURE AND OVERCOME THE CHALLENGES CREATED BY EPILEPSY. 0 0 190842 12461 THE EPILEPSY FOUNDATION OF DELAWARE IS A PRIVATE, NON-PROFIT ORGANIZATION THAT PROVIDES PROGRAMS AND SERVICES TO INDIVIDUALS AND FAMILIES AFFECTED WITH EPILEPSY AND SEIZURE DISORDERS AND THE GENERAL COMMUNITY THROUGHOUT THE STATE OF DELAWARE. WE HAVE TWO GENERAL TYPES OF SERVICES WE PROVIDE: INFORMATION AND SUPPORT, AND TRAINING AND OUTREACH.INFORMATION AND SUPPORT-DIRECT SUPPORT FOR INDIVIDUALS WITH EPILEPSY OR WHO HAVE A LOVED ONE WITH EPILEPSY. WE HELP WITH QUESTIONS ABOUT MEDICATIONS, TRANSPORTATION, WORK, DISABILITY, ETC AND PROVIDE APPROPRIATE RESOURCES. OVER 122 SERVED IN THIS PROGRAM. -MEET AND GREET SUPPORT GROUPS ARE HELD TWICE PER MONTH (VIA ZOOM DURING COVID) AND HAVE 10-15 ATTENDEES EACH GROUP-PROJECT UPLIFT IS OUR OVER THE PHONE SKILL BASED PROGRAM FOR ADULTS WITH EPILEPSY. IT IS 8 WEEKS LONG AND COMBINES CBT (COGNITIVE BEHAVIORAL THERAPY) SKILLS WITH MINDFULNESS. WE CONDUCTED 2 COHORTS WITH AN AVERAGE OF 4 ATTENDEES (IT IS ONLY FOR SMALL GROUPS)-PACES IS ALSO AN OVER THE PHONE SMALL GROUP PROGRAM TEACHING PEOPLE WITH EPILEPSY SKILLS ON HOW TO MANAGE MEDICATIONS, TALK TO THEIR DOCTOR, AND LIVE THEIR BEST LIVES. WE ALSO CONDUCTED 1 COHORT WITH AN AVERAGE OF 4 ATTENDEES.-CDSMP IS OUR THIRD SELF MANAGEMENT PROGRAM. IT IS ALSO SMALL GROUP AND OVER THE PHONE/ZOOM. WE CONDUCTED 2 COHORTS WITH AN AVERAGE OF 4 ATTENDEES. TOPICS OF DISCUSSION VARY EACH WEEK FROM COMMUNICATING WITH YOUR DOCTOR TO HEALTHY LIVING TO RELAXATION TECHNIQUES.-DELAWARE EPILEPSY CONFERENCE-WE HAD 97 PARTICIPANTS REGISTER FOR THE CONFERENCE THIS YEAR. THE THEME WAS MENTAL HEALTH IN EPILEPSY.-TRANSPORTATION PROGRAM- AS OF FEBRUARY 2025, EFDE OFFERS A FREE TRANSPORTATION PROGRAM TO ALL ADULTS LIVING WITH EPILEPSY IN DELAWARE. THROUGH UBER HEALTH, WE HAVE PROVIDED 142 RIDES FROM FEBRUARY UNTIL JUNE 30, 2025. TRAINING AND OUTREACH-TEENS-THIS IS A SEIZURE FIRST AID AND AWARENESS PROGRAM FOR TEENS IN SCHOOL HEALTH CLASSES. WE TRAINED 221 TEENS.-SCHOOL PERSONNEL- WE TRAINED 80 SCHOOL PERSONNEL ON SEIZURE FIRST AID IN THE CLASSROOM. -LAW ENFORCEMENT-WE TRAINED 281 LOCAL LAW ENFORCEMENT RECRUITS ON HOW TO IDENTIFY AND PROPERLY PROVIDE AID TO INDIVIDUALS HAVING SEIZURES. VAL ALSO TRAINS LAW ENFORCEMENT OFFICIALS ON A NATIONAL LEVEL. MEDICAL/OTHER-WE TRAINED 155 MEDICAL PROFESSIONALS, CAMP COUNSELORS AND OTHERS WHO ASKED TO KNOW HOW TO HELP SOMEONE HAVING A SEIZURE.-SEIZURE FIRST AID-THIS IS A NATIONAL CERTIFICATION PROGRAM AND VAL AND LINDSAY ARE A CERTIFIED INSTRUCTOR ON THE NATIONAL LEVEL. WE HAVE ALSO PROVIDED LOCAL SEIZURE FIRST AID CERTIFICATION AND OFFERED THIS TO ALL THE GROUPS ABOVE. IN ADDITION TO THE NUMBERS ABOVE, WE HAVE CERTIFIED 242 DELAWAREANS IN SEIZURE FIRST AID.OUTREACH EVENTS- THROUGH COMMUNITY EVENTS, HEALTH FAIRS AND CONFERENCES, WE HAVE REACHED 660 FOLKS, SPREADING AWARENESS ABOUT EPILEPSY. 190842 1 1 0 0 0 0 0 0 0 0 1 1 0 1 1 1 1 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 4 1 0 0 0 0 0 0 0 0 0 0 0 0 X 13 13 0 0 0 0 0 0 0 1 1 0 0 0 1 1 1 1 1 1 0 0 X X MANAGEMENT 3029999313 527 STANTON-CHRISTIANA ROAD NEWARK DE 19713 CHRISTY POOLE PRESIDENT 2.00 X X 0 0 0 TOM JOSIAH TREASURER 1.00 X X 0 0 0 MICHAEL J BROWN BOARD MEMBER 1.00 X 0 0 0 GABRIELLA TANTILLO BOARD MEMBER 1.00 X 0 0 0 TERESA CRISAFULLI BOARD MEMBER 1.00 X 0 0 0 KATHY WILSON NEAL BOARD MEMBER 1.00 X 0 0 0 MICHAEL CRISAFULLI BOARD MEMBER 1.00 X 0 0 0 JOHN R POLLARD MD BOARD MEMBER 1.00 X 0 0 0 S CHARLES BEAN MD BOARD MEMBER 1.00 X 0 0 0 ANN HELBE BOARD MEMBER 1.00 X 0 0 0 JESSICA LOWE BOARD MEMBER 1.00 X 0 0 0 MARLA HANDY BOARD MEMBER 1.00 X 0 0 0 CHRISTOPHER MALMSTROM BOARD MEMBER 1.00 X 0 0 0 VAL BUDISCHAK EXECUTIVE DIRECTOR 37.50 X X 73253 0 0 73253 0 0 0 0 0 0 0 1021 49847 95500 146368 PROGRAM INCOME 624100 12461 12461 12461 11053 11053 102423 23100 79323 79323 249205 12461 0 90376 73253 58602 5128 9523 91405 73124 6398 11883 12661 10129 886 1646 11030 8824 772 1434 9443 8811 571 61 5778 4622 347 809 14836 11869 1039 1928 10100 8080 1010 1010 3535 2828 212 495 DUES 5690 2845 2845 MISCELLANEOUS 965 965 MERCHANT FEES 571 143 428 239267 190842 19208 29217 78887 77771 99711 103066 17870 17870 0 0 229760 244191 5201 64408 413559 489436 2618 2618 4793 64000 7411 66618 X 406148 402818 20000 406148 422818 413559 489436 9938 6732 0 X X 0 1 X 0 0 X 126587 108734 118409 125605 146368 625703 126587 108734 118409 125605 146368 625703 625703 1130 224 224 10593 11053 23224 44128 67250 72545 81383 79323 344629 993556 82508 0.62980 0.62980 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 17870 17870 0 0 DELAWARE COMMUNITY FOUNDATION 81549 C CERTIFICATE OF DEPOSIT 162642 C 244191 RENT DEPOSIT 408 RIGHT OF USE LEASE ASSET 64000 64408 LEASE LIABILITY 64000 64000 X 255937 6732 6732 249205 0 249205 239267 0 239267 0 239267 PART X, LINE 2: THE ORGANIZATION IS EXEMPT FROM FEDERAL INCOME TAX UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. HOWEVER, INCOME FROM CERTAIN ACTIVITIES NOT DIRECTLY RELATED TO THE ORGANIZATION'S TAX-EXEMPT PURPOSE MAY BE SUBJECT TO TAXATION AS UNRELATED BUSINESS INCOME. GENERALLY ACCEPTED ACCOUNTING PRINCIPLES PRESCRIBE RULES FOR THE RECOGNITION, MEASUREMENT, CLASSIFICATION AND DISCLOSURE IN THE FINANCIAL STATEMENTS OF UNCERTAIN TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN IN THE ORGANIZATION'S TAX RETURNS. MANAGEMENT HAS DETERMINED THAT THE ORGANIZATION DOES NOT HAVE ANY UNCERTAIN TAX POSITIONS OR ASSOCIATED UNRECOGNIZED BENEFITS THAT MATERIALLY IMPACT THE FINANCIAL STATEMENTS OR RELATED DISCLOSURES. SINCE TAX MATTERS ARE SUBJECT TO SOME DEGREE OF UNCERTAINTY, THERE CAN BE NO ASSURANCE THAT THE ORGANIZATION'S TAX RETURNS WILL NOT BE CHALLENGED BY THE TAXING AUTHORITIES AND THAT THE ORGANIZATION WILL NOT BE SUBJECT TO ADDITIONAL TAX, PENALTIES AND INTEREST AS A RESULT OF SUCH CHALLENGE. RUN/WALK 47416 47416 10851 SPRING GALA 32990 32990 8436 3 22017 22017 3813 102423 102423 23100 23100 79323 FORM 990, PART VI, SECTION B, LINE 11B A COPY OF THE ORGANIZATION'S 990 IS REVIEWED BY THE FINANCE COMMITTEE, WHICH THEN MAKES A RECOMMENDATION TO THE BOARD TO APPROVE IT. FORM 990, PART VI, SECTION B, LINE 12C CONFLICT OF INTEREST IS MONITORED PER THE WRITTEN CONFLICT OF INTEREST POLICY. OFFICERS, DIRECTORS AND KEY EMPLOYEES ARE REQUIRED TO SUBMIT IN WRITING WHETHER OR NOT THERE ARE KNOWN CONFLICTS OF INTEREST EACH FISCAL YEAR. FORM 990, PART VI, SECTION B, LINE 15A THE EXECUTIVE DIRECTOR'S COMPENSATION IS DETERMINED BY THE BOARD OF DIRECTORS. THE BOARD OF DIRECTORS DOCUMENTS ITS DELIBERATION AND DECISION IN ADMINISTRATIVE RECORDS. FORM 990, PART VI, SECTION C, LINE 18 THE ORGANIZATION MAKES FORM 990 AND FORM 1023 AVAILABLE UPON REQUEST. ADDITIONALLY, FORM 990 IS AVAILABLE ON GUIDESTAR.ORG. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE UPON REQUEST. FORM 990, PART XI, LINE 2C THE ORGANIZATION'S PROCESS GOVERNING OVERSIGHT OF THE AUDIT AND SELECTION OF AN INDEPENDENT AUDITOR, MANAGED BY THE FINANCE COMMITTEE, HAS NOT CHANGED FROM THE PRIOR YEAR.