2026-01-12T14:59:35-05:00 2025-06-30 453994464 Barbara Cugini CPA PA 7621 McMullen St Boise ID 83709 990EZ 2024-07-01 271433464 Hope for Hypothalamic Hamartomas % Kimberly Ranson HOPE 6233637834 PO Box 941 Eagle ID 83616 KIMBERLY RANSON Treasurer 2089491519 2025-11-10 false true BARBARA CUGINI P00391391 2089491519 2026-01-12 2024 2025-03-06 01:10:19Z X hopeforhh.org X X 85536 X 85501 35 85536 678 1345 4888 32498 39409 46127 362500 408627 362500 408627 0 0 0 0 362500 408627 0 0 362500 408627 X See Schedule O Awareness - Hope for HH is dedicated to raising awareness of Hypothalamic Hamartomas Syndrome by building partnerships with other strategic organizations (continued on Sch O) 7820 Research - Hope for HH funds cutting edge research to advance the understanding of HH and improve quality of life for those impacted by the syndrome. (continued on Sch O) 9653 Support - Hope for HH is dedicated to supporting those diagnosed with Hypothalamic Hamartomas Syndrome as well as those caring for someone with the (continued on Sch O) 3213 20686 Erica Webster President 30.00 0 0 0 Lisa Dunn Soeby Vice President 30.00 0 0 0 Kimberly Ranson Treasurer 3.00 0 0 0 Michelle Swartz Secretary 2.00 0 0 0 Angela Donn Board Member 1.00 0 0 0 Laurel Gallant Board Member 4.00 0 0 0 X false false false false false false false false false UT RI NY NC MD Hope for Hypothalamic Hamartomas PO Box 941 Eagle ID 83616 6233637834 false false false false false false false false false false false NONE NONE true X 76633 139780 45191 64927 85501 412032 76633 139780 45191 64927 85501 412032 49740 362292 26 27 29 33 35 150 412182 0.87900 0.95380 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Description of other expenses Part I line 16 Description AmountPayroll Taxes 29Dues & Subscriptions 7,647Marketing / Website 4,044Insurance 1,533Miscellaneous 390State Filling Fee 2,829Patient Aid 3,213Travel 5,150Conferences 6,552Comorbidity Survey 1,111 Part III response or note to any other line in Part III Primary Exempt Purpose - To provide information, suport and community to Hypothalamic Hamartomas (HH) patients, caregivers and healthcare providers. We promote research into early detection, improved treatments, living with HH as a complex medical syndrome, and cure. Part III Line 28 Awareness continued - Increasing knowledge of HH worldwide by advocating at various medical conferences around the globe, and utilizing social media platforms to reach families directly impacted by the condition. Part III Line 29 - Research continued - We facilitate and seed research collaborations, hosting International Symposiums every 3 years to bring the medical community together to discuss the advances and challenges of this complex condition and drive research forward. Part III Line 30 - Support continued - the diagnosis. We offer individual request for support, provide information to families as they progress through their HH journey, empower patients to seek better treatments, and provide opportunities to meet / engage with others through social media platforms as well as live in-person events. Part V response or note to any other line in Part V Line 41 - Other states a copy of the tax return was filed in. Kansas, Illinois, Georgia, Florida, California, and Alabama.