2026-09-14T15:13:43-05:00 2026-01-31 994625061 CRI ADVISORS LLC 4004 SUMMIT BLVD NE SUITE 800 ATLANTA GA 30319 990 2025-02-01 581943490 ALS UNITED OF GEORGIA INC ALSU 4046369909 227 SANDY SPRINGS PLACE SUITE D 3 SANDY SPRINGS GA 30328 SARAH EMBRO EXECUTIVE DIRECTOR 4046369909 2026-09-14 1 TIFFANY T ORR CPA P01559485 7703948000 2026-09-14 2025 SARAH EMBRO 227 SANDY SPRINGS PLACE SUITE D 3 SANDY SPRINGS GA 30328 2120407 0 X WWW.ALSGEORGIA.ORG X 1988 GA THE MISSION OF THE ORGANIZATION IS TO ENHANCE THE LIVES OF GEORGIANS LIVING WITH ALS AND THEIR FAMILIES BY PROVIDING PERSONALIZED CARE SERVICES, FOSTERING A SUPPORTIVE COMMUNITY, AND ADVANCING RESEARCH FOCUSED ON TREATMENTS AND A CURE. THE ORGANIZATION IS DEDICATED TO SERVING THOSE LIVING WITH ALS IN GEORGIA, ALONG WITH THEIR FAMILIES, BY PROVIDING DIRECT EDUCATION, LOANING MEDICAL EQUIPMENT, HOSTING SUPPORT GROUPS, PROVIDING FINANCIAL ASSISTANCE THROUGH A CARE GRANT REIMBURSEMENT PROGRAM, THE SALLY PANFEL IN-HOME CARE & RESPITE PROGRAM, AND THE PAUL B. WILLIAMS ALS TRANSPORTATION PROGRAM. 12 12 10 150 0 0 2546530 1973378 0 0 54289 70740 4130 0 2604949 2044118 476467 549293 0 0 646255 694758 0 0 223831 288517 287430 1411239 1531481 1193710 512637 2310112 2832915 56785 64633 2253327 2768282 X THE MISSION OF THE ORGANIZATION IS TO ENHANCE THE LIVES OF GEORGIANS LIVING WITH ALS AND THEIR FAMILIES BY PROVIDING PERSONALIZED CARE SERVICES, FOSTERING A SUPPORTIVE COMMUNITY, AND ADVANCING RESEARCH FOCUSED ON TREATMENTS AND A CURE. 0 0 1161108 549293 CARE SERVICES -THE RELATIONSHIP BETWEEN THE CARE SERVICES TEAM AND THE PERSONS DIAGNOSED WITH ALS (PALS) AND THEIR FAMILY MEMBERS COMMENCE UPON DIAGNOSIS. THE GOAL OF THE PROGRAM IS TO ENSURE THAT INDIVIDUALS AND THEIR FAMILIES EXPERIENCE OPTIMAL EMOTIONAL FUNCTIONING GIVEN THE DEVASTATION OF THE DISEASE. OUR ATTEMPT TO SUCCESSFULLY IMPACT FAMILIES CAN BE OUTLINED WITHIN OUR EXISTING PROGRAMS: EDUCATION, KOSTIUK CARE GRANT, SUPPORT GROUPS, RICKY P. SWEAT EQUIPMENT LOANER & ASSISTIVE TECHNOLOGY PROGRAM, SALLY PANFEL IN-HOME CARE AND RESPITE PROGRAM, PAUL B. WILLIAMS ALS TRANSPORTATION PROGRAM, AND CLIENT CONSULTATIONS. INDIVIDUALS WHO ARE NEWLY DIAGNOSED OFTEN NEED TIME TO ABSORB THE IMPACT OF THEIR DIAGNOSIS, THEREFORE BASIC INFORMATION AND EDUCATION IS PROVIDED IMMEDIATELY BY ALS UNITED OF GEORGIA. THIS INFORMATION INCLUDES, BUT IS NOT LIMITED TO, THE DIAGNOSIS ITSELF, DISEASE TRAJECTORY, RESOURCES AND SUPPORT, AND ONGOING RESEARCH. DURING FYE 2026, ALS UNITED OF GEORGIA SAW 190 INDIVIDUALS & THEIR FAMILIES DIAGNOSED WITH ALS REGISTER WITH THE ORGANIZATION. ANNUALLY THE ORGANIZATION PROVIDES AN EDUCATIONAL SYMPOSIUM WHICH HIGHLIGHTS RESEARCH, SUPPORT AND EDUCATIONAL OPPORTUNITIES FOR PEOPLE LIVING WITH ALS, COMMUNITY PROVIDERS, AND SUPPORTERS. ALTHOUGH TO DATE THERE IS NO CURE FOR THIS DISEASE, ALS UNITED OF GEORGIA IS PASSIONATE ABOUT THE MISSION OF ONE DAY FINDING A TREATMENT AND ULTIMATELY A CURE.THE FINANCIAL HARDSHIP THAT FAMILIES INCUR AS THE RESULT OF AN ALS DIAGNOSIS CAN IMPACT THEIR QUALITY OF LIFE TREMENDOUSLY. FOR THOSE THAT MAY NEED ADDITIONAL HELP, THE KOSTIUK CARE GRANT PROGRAM STRIVES TO PROVIDE SOME RELIEF. THIS PROGRAM IS A REIMBURSEMENT PROGRAM THAT ASSISTS FAMILIES WITH EXPENSES THAT ARE NOT TRADITIONALLY COVERED BY PRIVATE INSURANCES, MEDICAID OR MEDICARE. IT WILL COVER EXPENSES RELATED TO HOME CARE ASSISTANCE (RESPITE), TRAVEL COSTS FOR ATTENDANCE TO AND FROM ALS CLINICS, HOME MODIFICATIONS, AUTO MODIFICATIONS AND COMMUNICATION DEVICES. RECIPIENTS MAY APPLY FOR AND RECEIVE UP TWO GRANTS PER YEAR IN THE AMOUNT OF $1,000 PER GRANT REQUEST. GRANTS ARE AWARDED TWICE A YEAR ON A FIRST COME FIRST SERVE BASIS AND WILL BE BASED ON AVAILABILITY OF FUNDS. DURING FYE 2026, $203,000 WAS AWARDED IN KOSTIUK CARE GRANT FUNDS, SERVING 203 INDIVIDUALS. THE SUPPORT GROUP PROGRAM PROVIDES PERSONS WITH ALS AND THEIR FAMILIES THE OPPORTUNITY TO CONNECT WITH OTHERS IN THE COMMUNITY WHO SHARE SIMILAR CHALLENGES AND NEEDS. THE GROUPS ARE DESIGNED TO PROVIDE EMOTIONAL AND PSYCHOSOCIAL SUPPORT AS WELL AS RESOURCES AND EDUCATION. KNOWING WHAT QUESTIONS TO ASK AND WHERE TO LOOK FOR RESOURCES IS VITAL. THE ORGANIZATION CURRENTLY CONDUCTS MONTHLY SUPPORT GROUPS THAT MEET THE NEEDS OF 159 COUNTIES IN THE STATE OF GEORGIA. THESE GROUPS ARE FACILITATED BY PROFESSIONALS AND COMMUNITY PARTNERS TO ENSURE MAXIMUM RESULTS. BECAUSE THE NEEDS OF CAREGIVERS AND CHILDREN CAN BE VERY SENSITIVE, THE ORGANIZATIONHAS DEVELOPED SPECIFIC GROUPS TO ADDRESS THOSE NEEDS. DURING FYE 2026, 100 SUPPORT GROUP MEETINGS WERE HELD OVER 9 LOCATIONS THROUGHOUT THE STATE, IMPACTING OVER 1,220 INDIVIDUALS WHO PARTICIPATED & ATTENDED.AS THE DISEASE PROGRESSES, INDIVIDUALS WILL EXPERIENCE A DECLINE IN FUNCTIONING AS IT RELATES TO MOBILITY AND SPEECH. THESE CHALLENGES CAN IMPACT INDEPENDENCE AND QUALITY OF LIFE. IN SOME SITUATIONS, SPECIFIC MEDICAL AND COMMUNICATION DEVICES ARE REQUIRED BUT NOT COVERED BY PRIVATE INSURANCE, MEDICAID OR MEDICARE. THE EQUIPMENT LOANER PROGRAM PROVIDES SUCH EQUIPMENT TO PEOPLE WITH ALS AT NO COST. THIS PROGRAM WORKS DILIGENTLY TO OBTAIN, THROUGH GRANT FUNDING OR PRIVATE DONATIONS, SUCH ITEMS THAT CAN ENSURE INCREASED INDEPENDENCE. ALS UNITED OF GEORGIA, IN PARTNERSHIP WITH COMMUNITY PROVIDERS, COLLABORATE ON THE MAINTENANCE AND STORAGE OF ALL EQUIPMENT.90% OF THE CURRENT ALS COMMUNITY IN GEORGIA CONTINUES TO REMAIN IN THEIR HOME THROUGHOUT THE DISEASE PROCESS. THIS BECOMES INCREASINGLY DIFFICULT BECAUSE THEY WILL REQUIRE TOTAL ADL CARE FROM ADDITIONAL PROVIDERS. THIS SERVICE IS NOT COVERED BY MEDICARE OR PRIVATE INSURANCE COMPANIES. THE SALLY PANFEL IN-HOME CARE AND RESPITE PROGRAM PROVIDES ALS WITH UP TO 18 HOURS OF IN-HOME CARE PER WEEK. THE CARE IS PROVIDED BY LICENSED COMMUNITY PARTNERS OF THE ALS UNITED OF GEORGIA AND ELIGIBILITY IS BASED ON A NEEDS ASSESSMENT. DURING FYE 2026, 14,699 IN-HOME CARE HOURS WERE PROVIDED THROUGH THIS PROGRAM.ACCESS TO QUALITY CARE AND RESEARCH CAN BE CHALLENGING FOR THOSE IMPACTED BY ALS. AS MOBILITY DECLINES AND THE NEED FOR ASSISTIVE TECHNOLOGY INCREASES, PEOPLE WITH ALS FIND IT DIFFICULT TO ATTEND NEEDED APPOINTMENTS VIA TRADITIONAL MODES OF TRANSPORTATION. MEDICARE AND MEDICAID ARE VERY LIMITED REGARDING THE COVERAGE OF NON-EMERGENCY TRANSPORTATION. THE PAUL B. WILLIAMS ALS TRANSPORTATION PROGRAM IS FOCUSED ON ADDRESSING TRANSPORTATION NEEDS VIA: NON-EMERGENCY TRANSPORTATION, VAN RENTALS, VEHICLE MODIFICATION AND VOUCHERS. DURING FYE 2026, 150 TRANSPORTATION TRIPS WERE APPROVED AND WITH 39 OF THOSE BEING VAN RENTALS AND PROVIDED TO FAMILIES THROUGH THIS PROGRAM.INFORMATION IS VITAL TO PEOPLE WITH ALS. AS THE BODY DECLINES IT IS VERY IMPORTANT TO BE PRESENTED WITH REALISTIC EXPECTATIONS REGARDING THE DISEASE TRAJECTORY. SKILLED CARE SERVICE COORDINATORS ARE AVAILABLE TO PROVIDE ONGOING CONSULTATIONS THROUGH OUR CARE SERVICES CONSULTATION PROGRAM. THE ONGOING CONSULTATIONS PROVIDE THE OPPORTUNITY TO ASSESS, EDUCATE, AND EMPOWER INDIVIDUALS AND THEIR FAMILIES TO MAKE INFORMED DECISIONS. THE COORDINATORS ARE ALSO VERY INSTRUMENTAL IN IDENTIFYING AND MAKING COMMUNITY REFERRALS. ALS UNITED OF GEORGIA IS THE CONNECTION BETWEEN WHAT IS NEEDED AND WHAT IS AVAILABLE FOR PEOPLE WITH ALS, THEIR FAMILIES, AND CAREGIVERS. IN FYE 2026, THE CARE SERVICES COORDINATOR TEAM SERVED 616 INDIVIDUALS LIVING WITH ALS AND THEIR FAMILIES. 1161108 1 1 0 1 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 0 0 0 0 1 0 0 1 1 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 1 0 0 10 1 0 0 0 0 0 1 1 0 0 0 0 X 12 12 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 GA X X X SARAH EMBRO 4046369909 227 SANDY SPRINGS PLACE SUITE D 304 SANDY SPRINGS GA 30328 PETER GLEICHMAN CHAIR 2.50 X X 0 0 0 CHRISTINE MCKENZIE VICE CHAIR 1.00 X X 0 0 0 PATRICK WILLIS TREASURER 2.00 X X 0 0 0 MITZI HILL SECRETARY 0.50 X X 0 0 0 JOSHUA I BOSIN DIRECTOR 0.50 X 0 0 0 NED DOUTHAT DIRECTOR 0.75 X 0 0 0 HILLARY GARDNER DIRECTOR 0.50 X 0 0 0 HEATHER LARSON DIRECTOR 0.50 X 0 0 0 JACOB PANFEL DIRECTOR 0.50 X 0 0 0 ANDY SUGGS DIRECTOR 0.50 X 0 0 0 KISHA MORRIS WESLEY DIRECTOR 0.50 X 0 0 0 BETH WARCHOL DIRECTOR 0.50 X 0 0 0 SARAH EMBRO EXECUTIVE DIRECTOR 40.00 X 118462 0 11627 118462 0 11627 1 0 0 0 0 X 575845 80185 1317348 1938 1973378 70740 70740 76289 575845 76289 0 2044118 0 0 70740 96150 96150 453143 453143 130089 83119 15645 31325 455216 290854 54747 109615 15512 9911 1866 3735 44126 28194 5307 10625 49815 31829 5990 11996 19200 1920 15360 1920 31063 3106 24851 3106 21697 16756 1085 3856 97815 68470 4891 24454 3815 3051 382 382 22144 21037 1107 1405 983 141 281 250 250 7976 5007 1048 1921 MEMBERSHIP DUES 39976 27982 3998 7996 OTHER EXPENSE 25294 11199 9874 4221 MERCHANT AND BANK FEE 16795 8397 8398 1531481 1161108 146542 223831 593256 464358 1714223 1894450 750 1883 4737 83766 83766 0 0 469370 2310112 2832915 56785 64633 56785 64633 X 645844 1344360 1607483 1423922 2253327 2768282 2310112 2832915 512637 2318 0 X 0 1 X 1 0 X 1651746 1487276 1149278 2546530 1973378 8808208 1651746 1487276 1149278 2546530 1973378 8808208 2742848 6065360 1033 7461 42984 54289 70740 176507 208250 4130 212380 9197095 0.65950 0.71190 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 1 0 0 0 0 1 0 0 0 0 PART II-B, LINE 1: IN FISCAL YEAR 2026, THE ORGANIZATION'S PUBLIC POLICY INITIATIVES FOCUSED TO RAISE AWARENESS, ADVOCATE FOR ISSUES, AND SEEK FUNDING FOR ALS PATIENTS AND THEIR FAMILIES AT THE STATE AND FEDERAL LEVEL. IN WORKING TO ACHIEVE THESE GOALS, THE ORGANIZATION INCURRED $0 EXPENSES. GEORGIA ALS PATIENTS, VOLUNTEERS, STAFF AND BOARD MEMBERS MET WITH GEORGIA CONGRESSMEN & WOMEN VIRTUALLY THROUGH WEBINARS AND TELEPHONE CONFERENCE CALLS. 83766 83766 0 0 X 2123925 2318 1200 3518 2120407 -76289 -76289 2044118 1608970 1200 76289 77489 1531481 0 1531481 PART X, LINE 2: UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE, THE ORGANIZATION IS EXEMPT FROM TAXES ON INCOME OTHER THAN UNRELATED BUSINESS INCOME. THE ORGANIZATION DOES NOT HAVE ANY UNRELATED BUSINESS INCOME. THE ORGANIZATION UTILIZES THE ACCOUNTING REQUIREMENTS ASSOCIATED WITH UNCERTAINTY IN INCOME TAXES USING THE PROVISIONS OF FASB ASC 740, INCOME TAXES. USING THAT GUIDANCE, TAX POSITIONS INITIALLY NEED TO BE RECOGNIZED IN THE FINANCIAL STATEMENTS WHEN IT IS MORE-LIKELY-THAN-NOT THE POSITIONS WILL BE SUSTAINED UPON EXAMINATION BY THE TAX AUTHORITIES. IT ALSO PROVIDES GUIDANCE FOR DERECOGNITION, CLASSIFICATION, INTEREST AND PENALTIES, ACCOUNTING IN INTERIM PERIODS, DISCLOSURE AND TRANSITION. AS OF JANUARY 31, 2026 AND 2025, THE ORGANIZATION HAS NO UNCERTAIN TAX POSITIONS THAT QUALIFY FOR RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS. PART XI, LINE 4B - OTHER ADJUSTMENTS: SPECIAL EVENT EXPENSE -76,289. PART XII, LINE 2D - OTHER ADJUSTMENTS: SPECIAL EVENT EXPENSE 76,289. ALS WALK 652134 575845 76289 12306 45864 1812 5808 10499 652134 575845 76289 12306 45864 1812 5808 10499 76289 0 1 AUGUSTA ALS CLINIC - AUGUSTA UNIVERSITY HOSPITAL 1120 15TH STREET BP 4390 AUGUSTA GA 30912 352310573 501(C)(3) 25000 0 CASH CLINIC FINANCIAL SUPPORT EMORY ALS CENTER - EMORY UNIVERSITY HOSPITAL 1762 CLIFTON ROAD SUITE 1400 ATLANTA GA 30322 580566256 501(C)(3) 40150 0 CASH CLINIC FINANCIAL SUPPORT MACON ALS CLINIC ATRIUM HEALTH NAVICENT REHABILITATION HOSPITAL 4035 ELNORA DR MACON GA 31210 300371539 501(C)(3) 5000 0 CASH CLINIC FINANCIAL SUPPORT ALS UNITED 9450 SW GEMINI DR PMB 49685 BEAVERTON OR 970087105 883176104 501(C)(3) 26000 0 CASH RESEARCH SUPPORT 4 0 THE KOSTIUK ALS CARE GRANT PROGRAM - A FINANCIAL REIMBURSEMENT TO GEORGIA PATIENTS DIAGNOSED WITH ALS AND PLS TO ADDRESS NEEDS NOT COVERED BY TRADITIONAL INSURANCE, MEDICAID AND MEDICARE. 163 170110 THE PAUL B. WILLIAMS ALS TRANSPORTATION PROGRAM - TO ADDRESS THE TRANSPORTATION NEEDS OF INDIVIDUALS WHO HAVE BEEN DIAGNOSED WITH ALS. BECAUSE OF THE DEBILITATING NATURE OF THIS DISEASE, PALS ARE OFTENTIMES UNABLE TO UTILIZE BASIC FORMS OF TRANSPORTATION TO MEET THEIR DAILY NEEDS. 150 47282 THE SALLY PANFEL ALS IN-HOME CARE & RESPITE PROGRAM - TO PROVIDE PERSONS WITH ALS AND THEIR FAMILIES THE OPPORTUNITY TO RECEIVE IN HOME CARE AND RESPITE WHO CURRENTLY DO NOT HAVE THE FINANCIAL RESOURCES TO SECURE ASSISTANCE INDEPENDENT OF COMMUNITY SUPPORT. 42 215439 OTHER ASSISTANCE - EQUIPMENT LOAN PROGRAM, SUPPORT GROUPS AND OUTREACH EFFORTS 1432 20312 PART I, LINE 2: THE ORGANIZATION MONITORS GRANTS THROUGH REVIEW OF INVOICES AND CONTINUED FOLLOW-UP WITH GRANT RECIPIENTS. ELIZABETH NORDMARK FAMILY MEMBER OF FORMER DIRECTOR BILL NORDMARK 64963 ELIZABETH NORDMARK WAS EMPLOYED BY THE ORGANIZATION. 0 FORM 990, PART VI, SECTION A, LINE 2 NON-VOTING HONORARY BOARD MEMBER, WILLIAM NORDMARK IV, IS MARRIED TO EMPLOYEE ELIZABETH (LIZA) NORDMARK, THE SR. DIR OF PHILANTHROPY FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 IS PROVIDED TO THE FINANCE COMMITTEE OF THE BOARD OF DIRECTORS TO REVIEW AND RECOMMEND TO THE BOARD FOR APPROVAL. FORM 990, PART VI, SECTION B, LINE 12C THE BOARD OF DIRECTORS IS REQUIRED TO SIGN A CONFICT OF INTEREST POLICY STATEMENT ANNUALLY. SHOULD THERE BE A KNOWN CONFLICT, THE GOVERNANCE COMMITTEE WOULD REVIEW. FORM 990, PART VI, SECTION B, LINE 15 THE EXECUTIVE & FINANCE COMMITTEES REVIEW THE EXECUTIVE DIRECTOR'S COMPENSATION DURING THE BUDGET REVIEW PROCESS ANNUALLY. EXECUTIVE & FINANCE COMMITTEES APPROVE THE COMPENSATION ARRANGEMENTS WITH THE EXECUTIVE DIRECTOR. FORM 990, PART VI, SECTION C, LINE 18 WWW.ALSGEORGIA.ORG FORM 990, PART VI, SECTION C, LINE 19 AUDITED FINANCIAL STATEMENTS AND FORM 990 ARE POSTED ON ORGANIZATION'S WEBSITE. HTTPS://ALSGEORGIA.ORG/WHO-WE-ARE/FINANCIAL-INFORMATION/ FORM 990, PART VIII, LINE 1E AND SCHEDULE B CONTRIBUTOR #3 EXPLANATION OF EMPLOYEE RETENTION TAX CREDIT (ERTC) REFUND DURING THE TAX YEAR, THE ORGANIZATION RECEIVED AN EMPLOYEE RETENTION TAX CREDIT (ERTC) PAYROLL TAX REFUND IN THE AMOUNT OF $80,185 FROM THE U.S. DEPARTMENT OF THE TREASURY. THE ERTC IS A REFUNDABLE PAYROLL TAX CREDIT ESTABLISHED UNDER FEDERAL COVID-19 RELIEF LEGISLATION TO SUPPORT ELIGIBLE EMPLOYERS IN RETAINING EMPLOYEES DURING PERIODS OF ECONOMIC DISRUPTION. THE ORGANIZATION HAS REPORTED THIS AMOUNT AS A GOVERNMENT GRANT ON FORM 990, PART VIII, LINE 1E. IN ADDITION, THE FUNDING SOURCE IS DISCLOSED ON SCHEDULE B (SCHEDULE OF CONTRIBUTORS) AS A CONTRIBUTION FROM THE U.S. DEPARTMENT OF THE TREASURY (CONTRIBUTOR #3). THIS TREATMENT REFLECTS MANAGEMENT'S DETERMINATION THAT THE ERTC REPRESENTS A GOVERNMENT ASSISTANCE PROGRAM CONSISTENT WITH CONTRIBUTION REPORTING REQUIREMENTS FOR NONPROFIT ORGANIZATIONS.