2026-03-30T10:25:05-04:00 2025-12-31 814412823 KUDISCH OSTER & COMPANY LLC 129 GROVE ST MONTCLAIR NJ 07042 990 2025-01-01 752986661 CHILDREN'S CARDIOMYOPATHY FOUNDATION INC CHIL 8668082873 24 WEST RAILROAD AVENUE 408 TENAFLY NJ 07670 KATHY SWENSON EXECUTIVE DIRECTOR 8668082873 2026-03-27 true WILLIAM R OSTER CPA P00179043 9733387032 2026-03-28 X 2025 2025-03-06 01:10:19Z KATHY SWENSON 1154971 false X WWW.CHILDRENSCARDIOMYOPATHY.ORG X 2002 NJ TO ACCELERATE THE SEARCH FOR A CURE BY STIMULATING AND SUPPORTING PROMISING RESEARCH ON PEDIATRIC CARDIOMYOPATHY, BY EDUCATING AND ASSISTING PHYSICIANS AND PATIENTS ON THE COMPLEXITIES OF THE DISEASE, AND BY INCREASING AWARENESS AND ADVOCACY ON BEHALF OF AFFECTED CHILDREN AND THEIR FAMILIES. 7 6 4 15 0 741183 931483 0 82965 94430 -114861 -29748 709287 996165 0 0 275766 508857 0 93261 357492 205682 633258 714539 76029 281626 2858607 3323283 30 34634 2858577 3288649 X TO ACCELERATE THE SEARCH FOR A CURE BY STIMULATING AND SUPPORTING PROMISING RESEARCH ON PEDIATRIC CARDIOMYOPATHY, BY EDUCATING AND ASSISTING PHYSICIANS AND PATIENTS ON THE COMPLEXITIES OF THE DISEASE, AND BY INCREASING AWARENESS AND ADVOCACY ON BEHALF OF AFFECTED CHILDREN AND THEIR FAMILIES. false false 121350 SUPPORT INNOVATIVE RESEARCH RELEVANT TO THE CAUSE, DIAGNOSIS AND/OR TREATMENT OF PEDIATRIC CARDIOMYOPATHY THROUGH RESEARCH GRANT AWARDS AND RESEARCH COLLABORATIONS WITH THE NATIONAL CARDIOMYOPATHY REGISTRY. 119221 HEIGHTEN AWARENESS OF PEDIATRIC CARDIOMYOPATHY AMONG THE GENERAL PUBLIC, PATIENT AND MEDICAL COMMUNITY AND DEVELOP ACCESSIBLE EDUCATIONAL MATERIALS TO MEET THEIR NEEDS. 143051 OFFER SUPPORT SERVICES, RESOURCES AND NETWORKING OPPORTUNITIES TO HELP FAMILIES WITH AFFECTED CHILDREN COPE WITH THE CHALLENGES OF LIVING WITH PEDIATRIC CARDIOMYOPATHY. 124549 GENERATE WIDESPREAD AWARENESS OF THE DISEASE AMONG GOVERNMENT, MEDICAL AND LAY COMMUNITIES TO PROMOTE INCREASED FOCUS AND FUNDING ON RESEARCH. 124549 508171 true true false false false false false false false false false false false false false false true false false false false false false false true false false false false true false false false false false true false false false false false false false true false false false true 12 0 4 true false false false false false false false false X 7 6 true false false false false false false true true false false false true true true true true true true false NJ NY X LUCY CANNAVALE 2013031488 12 SMULL AVENUE CALDWELL NJ 07006 KATHY SWENSON EXECUTIVE DI 40.00 X 21603 204204 0 LISA YUE PRESIDENT 40.00 X X 0 86000 0 WON CHOI DIRECTOR 2.00 X 0 0 0 CARNEY HAWKS TREASURER 2.00 X X 0 0 0 CAROLYN KONG DIRECTOR 2.00 X 0 0 0 BRIAN NOLD MD DIRECTOR 2.00 X 0 0 0 EDDIE YU DIRECTOR 2.00 X 0 0 0 RAYMOND YUE SECRETARY 2.00 X X 0 0 0 21603 290204 false true false 557794 373689 931483 94430 94430 129058 557794 158806 -29748 996165 94430 X 328535 229020 38881 60634 165512 116339 26545 22628 14810 10410 2375 2025 75818 51248 19374 5196 11637 9302 1168 1167 5315 5315 37069 37069 6443 3221 1611 1611 WEBSITE 50845 40676 10169 FEES 12984 12984 PATIENT SUPPORT 4746 4746 EDUCATION AND AWARENESS 825 825 714539 508171 113107 93261 270862 472701 20000 2587745 2830582 2858607 3323283 30 34634 30 34634 X 2858577 3288649 2858577 3288649 2858607 3323283 281626 148446 X false true X true false X 433202 566893 566893 741183 931483 3239654 433202 566893 566893 741183 931483 3239654 173419 3066235 34542 51994 51994 82965 94430 315925 3555579 294537 0.86240 0.91990 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1144611 148446 148446 996165 996165 714539 714539 714539 FAMILY FUNDRAIS 140622 140622 98 HOLIDAY APPEAL 68654 68654 14379 12 477576 348518 129058 1000 123533 19796 686852 557794 129058 1000 123533 34273 158806 -29748 false false false false false false false false false KATHY SWENSON EXECUTIVE DIRECTOR 204204 21603 21603 204204 LISA YUE PRESIDENT 86000 SEE SUPPLEMENTAL false SCHEDULE L, PART V THE ORGANIZATION HAS A CONTRACT WITH AN ENTITY THAT THE PRESIDENT HAS AN INTEREST IN TO PROVIDE SERVICES RELATED TO: PATIENT REGISTRY DEVELOPMENT AND LAUNCH STRATEGIC GUIDANCE AND PROJECT CONSULTATION CREATIVE DIRECTION ON AWARENESS CAMPAIGNS, WEBSITE AND SOCIAL MEDIA FORM 990 - ORGANIZATION'S MISSION TO ACCELERATE THE SEARCH FOR A CURE BY STIMULATING AND SUPPORTING PROMISING RESEARCH ON PEDIATRIC CARDIOMYOPATHY, BY EDUCATING AND ASSISTING PHYSICIANS AND PATIENTS ON THE COMPLEXITIES OF THE DISEASE, AND BY INCREASING AWARENESS AND ADVOCACY ON BEHALF OF AFFECTED CHILDREN AND THEIR FAMILIES. FORM 990, PAGE 1, PART I, LINE 6 INDIVIDUALS VOLUNTEERING THEIR TIME TO SUPPORT THE ORGANIZATION'S MISSION. FORM 990, PAGE 2, PART III, LINE 4D GENERATE WIDESPREAD AWARENESS OF THE DISEASE AMONG GOVERNMENT, MEDICAL AND LAY COMMUNITIES TO PROMOTE INCREASED FOCUS AND FUNDING ON RESEARCH. FORM 990, PAGE 6, PART VI, LINE 2 LISA YUE RAYMOND YUE PRESIDENT SECRETARY RELATIVE LISA YUE EDDIE YU PRESIDENT DIRECTOR FORMER SPOUSE LISA YUE CAROLYN KONG PRESIDENT DIRECTOR RELATIVE CARNEY HAWKS BRIAN NOLD TREASURER DIRECTOR RELATIVE FORM 990, PAGE 6, PART VI, LINE 11B FORM 990 IS REVIEWED BY BOARD PRIOR TO SUBMISSION. FORM 990, PAGE 6, PART VI, LINE 12C BOARD MEMBERS ARE REQUIRED TO SUBMIT A CONFLICT OF INTEREST DISCLOSURE STATEMENT ON AN ANNUAL BASIS. THE DISCLOSURE STATEMENTS ARE REVIEWED FOR ANY POTENTIAL OR ACTUAL CONFLICTS THAT MAY EXIST. FORM 990, PAGE 6, PART VI, LINE 15A COMPENSATION IS COMPARED TO SIMILAR ORGANIZATIONS WITH SIMILAR RESPONSIBILITIES. BOARD OF DIRECTORS/COMPENSATION COMMITTEE REVIEW AND APPROVE ALL MANAGEMENT AND KEY EMPLOYEE SALARIES, AS WELL AS REVIEW AND APPROVE ANY INCREASES. FORM 990, PAGE 6, PART VI, LINE 15B COMPENSATION IS COMPARED TO SIMILAR ORGANIZATIONS WITH SIMILAR RESPONSIBILITIES. BOARD OF DIRECTORS/COMPENSATION COMMITTEE REVIEW AND APPROVE ALL MANAGEMENT AND KEY EMPLOYEE SALARIES, AS WELL AS REVIEW AND APPROVE ANY INCREASES. FORM 990, PAGE 6, PART VI, LINE 19 GOVERNING DOCUMENTS ARE MADE AVAILABLE UPON WRITTEN REQUEST, AS WELL AS OTHER INFORMATION AVAILABLE FROM THE STATE ATTORNEY GENERAL'S OFFICE. FORM 990, PART IX, LINE 11G PROFESSIONAL FEES 3,020 15,098 3,020 PROFESSIONAL FEES 3,020 0 0 PROFESSIONAL FEES 3,020 0 0 PROFESSIONAL FEES 3,020 0 0 CONTRACTED SERVICES 8,704 4,276 2,176 CONTRACTED SERVICES 8,704 0 0 CONTRACTED SERVICES 10,880 0 0 CONTRACTED SERVICES 10,880 0 0 TOTAL 51,248 19,374 5,196 RESEARCH FOUNDATION FOR SUNY UB 418 CROFTS HALL BUFFALO NY 14260 141368361 SUPPORT NY 501C3 4 N/A false false false false false false false false false false false false false true false false false false false false RESEARCH FOUNDATION FOR SUNY UB M 220930 FAIR VALUE SPARK STRATEGIC CONSULTING LLC M 86000 FAIR VALUE