2026-02-25T08:43:37-08:00 2024-12-31 251065143 Walter Hopkins & Company LLP 1168 Philipsburg Bigler Hwy PO Box Philipsburg PA 16866 990 2024-01-01 472277599 EMILY WHITEHEAD FOUNDATION EMIL 8145774784 441 S CENTRE ST PHILIPSBURG PA 16866 KARI WHITEHEAD Secretary 2026-02-25 true true DONNA M HANSEL CPA P01987244 8143422155 2024 2025-03-06 01:10:19Z X GEORGE EASTWOOD 441 S CENTRE ST PHILIPSBURG PA 16866 1167156 false X WWW.EMILYWHITEHEADFOUNDATION.ORG X 2014 PA THE FOUNDATION'S MISSION IS TO ADVOCATE FOR GREATER ACCESS TO ADVANCED THERAPIES, SUCH AS CELL AND GENE THERAPIES, AND PROVIDE SUPPORT TO INDIVIDUALS AFFECTED BY CANCER AND RARE DISEASE. SUPPORT INCLUDES EDUCATION, EMOTIONAL SUPPORT, CONNECTIONS TO TREATMENT CENTERS AND CLINICAL TRIALS, AND COMFORT PACKAGES. 16 13 3 0 371549 520981 15000 7492 19681 -9952 399003 369089 954665 0 0 76994 44198 0 128922 392576 728911 469570 773109 -100481 181556 550062 733054 28272 29708 521790 703346 THE FOUNDATION'S MISSION IS TO ADVOCATE FOR GREATER ACCESS TO ADVANCED THERAPIES, SUCH AS CELL AND GENE THERAPIES, AND PROVIDE SUPPORT TO INDIVIDUALS AFFECTED BY CANCER AND RARE DISEASE. SUPPORT INCLUDES EDUCATION, EMOTIONAL SUPPORT, CONNECTIONS TO TREATMENT CENTERS AND CLINICAL TRIALS, AND COMFORT PACKAGES. false false 350179 PROGRAM HIGHTLIGHTS - ADVOCACY & ACCESS - THE FOUNDATION ADVANCES AWARENESS, ADVOCACY, AND EQUITABLE ACCESS TO CELL, GENE AND ADVANCED THERAPIES FOR INDIVIDUALS WITH CANCER AND RARE DISEASES. ITS PROGRAMS PROMOTE EDUCATION, PATIENT AND FAMILY SUPPORT, AND COLLABORATION AMONG RESEARCHERS, CLINICIANS, AND POLICYMAKERS TO ACCELERATE THE DEVELOPMENT AND DELIVERY OF INNOVATIVE TREATMENTS. THROUGH OUTREACH, PARTNERSHIPS, AND EDUCATIONAL INITIATIVES, THE FOUNDATION HELPS THOUSANDS OF PATIENTS AND FAMILIES NAVIGATE ACCESS TO EMERGING THERAPIES WHILE FOSTERING A MORE INFORMED, CONNECTED, AND HOPEFUL PATIENT COMMUNITY. 147082 RESEARCH GRANTS TO ORGS - THE EMILY WHITEHAD FOUNDATION FUNDS INNOVATIVE RESEARCH PROJECTS THAT ADVANCE THE DEVELOPMENT AND ACCESSIBILITY OF CELL, GENE, AND IMMUNOTHERAPIES FOR PATIENTS AFFECTED BY CANCER AND RARE DISEASES. PROJECTS ARE SELECTED THROUGH A COMPETITIVE REVIEW BY LEADING SCIENTISTS AND CLINICIANS IN THE FIELD OF ADVANCED THERAPIES. THE FOUNDATION'S GRANT PROGRAM FOCUSES ON FILLING CRITICAL GAPS IN FUNDING TO HELP PROMISING RESEARCH MOVE FROM EARLY DISCOVERY TO CLINICAL APPLICATION. WE SUPPORT EMERGING INVESTIGATORS AND INSTITUTIONS WORKING TO DEVELOP MORE EFFECTIVE, LESS TOXIC TREATMENTS, ENSURING THAT INNOVATION TRANSLATES INTO REAL-WORLD HOPE FOR PATIENTS AND FAMILIES. 497261 true false false false false false false false false false true false false false false false true false false false false false false false true false false false false false false false false false false false false false false false false false false false false false false true 3 0 true 3 true false false false false false false false 0 false false false false false false false X 16 13 false false false false false false false true false false false true true true true true true false false false X KARI WHITEHEAD 8145774784 606 PAULINE ST PHILIPSBURG PA 16866 GEORGE EASTWOOD Chairman 25.00 0.00 X 99000 0 0 JODIE POTTER Treasurer 12.00 0.00 X 15083 0 0 THOMAS WHITEHEAD Vice Chairman 15.00 0.00 X 12000 0 0 KARI WHITEHEAD Secretary 15.00 0.00 X 12000 0 0 TOM SMITH Director 2.00 0.00 X 0 0 0 TOM GARRETT Director 12.00 0.00 X 0 0 0 JON CONDO Director 2.00 0.00 X 0 0 0 CHRIS STOTT Director 2.00 0.00 X 0 0 0 BOB MADONNA Director 2.00 0.00 X 0 0 0 DARSHAN KULKARNI Director 2.00 0.00 X 0 0 0 DMITRI SIEGEL Director 2.00 0.00 X 0 0 0 MICHELLE BERG Director 2.00 0.00 X 0 0 0 KELLY GANJEI Director 2.00 0.00 X 0 0 0 SUE HAGER Director 2.00 0.00 X 0 0 0 SHARON KING Director 2.00 0.00 X 0 0 0 ROB DOUGLAS Director 2.00 0.00 X 0 0 0 138083 0 false false false 0 520981 520981 HONORARIUMS 611000 15000 15000 15000 19681 19681 0 0 0 0 611494 212491 399003 0 0 MISCELLANEOUS INCOME 900099 0 954665 34681 X 0 0 0 0 40265 24016 9016 7233 0 0 0 0 3933 2354 876 703 0 0 4340 4340 0 0 0 0 0 6744 1330 5356 58 0 0 9083 2725 3633 2725 46822 33928 1178 11716 0 0 0 0 361 361 2209 238 1899 72 INDEPENDENT CONTRACTORS 261303 125496 61948 73859 RESEARCH GRANTS TO ORGS 147082 147082 MARKETING, ADVERTISING & PROMO 91688 45633 45633 422 FAMILY SUPPORT 50414 50414 108865 64045 12686 32134 773109 497261 146926 128922 526062 330813 375797 0 0 0 0 0 0 4000 0 1805 361 1444 0 0 0 0 20000 25000 550062 733054 28272 29708 28272 29708 X 521790 703346 521790 703346 550062 733054 181556 X false true X false false X 152224 235538 355910 371549 520982 1636203 0 0 152224 235538 355910 371549 520982 1636203 0 1636203 7492 19681 27173 0 196907 184769 -9952 414003 785727 2449103 0.66810 0.77640 X 1805 361 1444 1444 1166078 212492 212492 953586 1079 1079 954665 984522 212492 212492 772030 1079 1079 773109 Part XI, Line 2d: Other revenue amounts included in F/S but not included on form 990 DIRECT EXPENSES OF FUNDRAISING $212492 FORM 990, PART VIII, LINE 8b $0 Part XII, Line 2d: Other expenses and losses per audited F/S DIRECT EXPENSES OF FUNDRAISING $212492 X X X false PA BELIEVE BALL 571327 571327 33035 75197 2000 80336 GOLF OUTING 40167 40167 7723 14200 611494 611494 33035 82920 2000 94536 212491 399003 THOMAS WHITEHEAD LLC LLC LANDLORD 6000 OFFICE SPACE RENTAL false Form 990, Part VI, Section B, Line 11b FORM 990 WAS REVIEWED BY OFFICERS & DIRECTORS PRIOR TO FILING. Form 990, Part VI, Section B, Line 12c THE ORGANIZATION REQUIRES DIRECTOR, OFFICERS OR MEMBERS OF A COMMITTEE TO DISCLOSE ANY POTENTIAL CONFLICTS OF INTEREST ANNUALLY. THE BOARD REVIEWS ALL DISCLOSURE STATEMENTS ANNUALLY. COMPLIANCE IS MONITORED THROUGH BOARD OVERSIGHT AND DOCUMENTATION IN MEETING MINUTES. Form 990, Part VI, Section C, Line 19 No documents available to the public. Form 990, Part IX, Line 24e AUDIO VISUAL: Column (A) - Total = $41; Column (B) - Program Services = $41; Column (C) - Management & General = $0; Column (D) - Fundraising = $0 Form 990, Part IX, Line 24e BANK FEES: Column (A) - Total = $10023; Column (B) - Program Services = $0; Column (C) - Management & General = $2004; Column (D) - Fundraising = $8019 Form 990, Part IX, Line 24e CHARITY REGISTRATION FEES: Column (A) - Total = $1095; Column (B) - Program Services = $0; Column (C) - Management & General = $0; Column (D) - Fundraising = $1095 Form 990, Part IX, Line 24e CONFERENCES: Column (A) - Total = $3875; Column (B) - Program Services = $3875; Column (C) - Management & General = $0; Column (D) - Fundraising = $0 Form 990, Part IX, Line 24e EDUCATION, AWARENESS & ADVOCAC: Column (A) - Total = $37250; Column (B) - Program Services = $37250; Column (C) - Management & General = $0; Column (D) - Fundraising = $0 Form 990, Part IX, Line 24e FUNDRAISING EXPENSE: Column (A) - Total = $15927; Column (B) - Program Services = $0; Column (C) - Management & General = $0; Column (D) - Fundraising = $15927 Form 990, Part IX, Line 24e INVESTMENT FEES: Column (A) - Total = $1080; Column (B) - Program Services = $0; Column (C) - Management & General = $1080; Column (D) - Fundraising = $0 Form 990, Part IX, Line 24e MEALS AND ENTERTAINMENT: Column (A) - Total = $4795; Column (B) - Program Services = $2713; Column (C) - Management & General = $441; Column (D) - Fundraising = $1641 Form 990, Part IX, Line 24e MISCELLANEOUS: Column (A) - Total = $1390; Column (B) - Program Services = $766; Column (C) - Management & General = $511; Column (D) - Fundraising = $113 Form 990, Part IX, Line 24e PAYROLL PROCESSING FEES: Column (A) - Total = $1198; Column (B) - Program Services = $719; Column (C) - Management & General = $263; Column (D) - Fundraising = $216 Form 990, Part IX, Line 24e Postage and Shipping: Column (A) - Total = $1754; Column (B) - Program Services = $395; Column (C) - Management & General = $1359; Column (D) - Fundraising = $0 Form 990, Part IX, Line 24e SOFTWARE: Column (A) - Total = $14366; Column (B) - Program Services = $2468; Column (C) - Management & General = $6868; Column (D) - Fundraising = $5030 Form 990, Part IX, Line 24e VENUE RENTAL: Column (A) - Total = $15540; Column (B) - Program Services = $15540; Column (C) - Management & General = $0; Column (D) - Fundraising = $0 Form 990, Part IX, Line 24e WEBSITE / HOSTING: Column (A) - Total = $531; Column (B) - Program Services = $278; Column (C) - Management & General = $160; Column (D) - Fundraising = $93 FORM 990, AMENDED RETURN EXPLANATION THIS AMENDED RETURN CORRECTS CERTAIN GOVERNANCE AND COMPLIANCE DISCLOSURES INCLUDED IN THE ORIGINALLY FILED RETURN TO ACCURATELY REFLECT THE ORGANIZATIONS POLICIES, PROCEDURES, AND FILING REQUIREMENTS IN EFFECT DURING THE TAX YEAR.THE ORIGINAL FILING INADVERTENTLY MISREPORTED CERTAIN CHECKLIST RESPONSES AND GOVERNANCE POLICY DISCLOSURES. THESE AMENDMENTS DO NOT AFFECT THE ORGANIZATIONS FINANCIAL STATEMENTS, REVENUES, EXPENSES, NET ASSETS, OR TAX-EXEMPT STATUS. NO OTHER CHANGES WERE MADE. PART I, LINE 4 NUMBER OF INDEPENDENT VOTING MEMBERS CHANGE PART IV, LINE 12a INDEPENDENT AUDITED FINANCIAL STATEMENTS PART VI, SECTION A, LINE 8 CONTEMPORANEOUS DOCUMENTATION PART VI, SECTION B LINE 14 DOCUMENT RETENTION AND DESTRUCTION POLICY PART VI, SECTION B, LINE 12 CONFLICT OF INTEREST POLICY PART VI, SECTION B, LINE 13 WHISTLEBLOWER POLICY SCHEDULE D, PARTS XI, XII, AND XIII RECONCILIATION OF AUDITED FINANCIAL STATEMENT WITH REVENUE AND EXPENSES PER RETURN