2026-04-16T06:19:48-07:00 2025-12-31 811585294 CNRG Accounting Advisory LLC 1031 33rd St Denver CO 80205 990EZ 2025-01-01 465424047 Turner Syndrome Global Alliance TURN 9132208177 10708 W 129th St Overland Park KS 66213 Kelly Ranallo President 2026-04-16 true Chyla Graham P02016884 8449322674 2025 2025-03-06 01:10:19Z X X http://tsgalliance.org/ X X 1698 X 1695 3 0 0 0 0 1698 10000 8044 1450 19494 -17796 40972 3899 27075 40972 27075 40972 27075 40972 27075 The mission, duty and purpose of the Turner Syndrome Global Alliance, Inc. is to connect science, resources, and funding to the Turner Syndrome community. TSGA continues to focus on funding research on Turner syndrome through the InsighTS Registry research. This is a collaborative project with a shared IRB working with clinic directors from multiple childrens hospitals across the country. In 2025, TSGA actively supported the recruitment of additional registry sites as well as shared patient friendly information to support patient recruitment. By the end of 2025, over 800 participants from 14 hospitals nationwide were enrolled, with additional hospitals onboarding to join the Registry. This year, the Registry has been highlighted in research abstracts and presented at professional conferences, and the Registry data is supporting multiple research initiatives. Results will be able to be quickly translated to care through the TSGA network of clinics, which TSGA continues to grow. In addition, TSGA funded summer research interns to support the InsighTS Registry with data confirmation and entry. Finally, TSGA supported an application to the NIH Rare Diseases Clinical Research Network (RDCRN) which was funded in the fall of 2025. This is an exciting collaborative effort that will change the future of care for all individuals with Turner syndrome. 17600 TSGA collaborates with a network of more than 40 Turner syndrome clinics and serves as a resource for information on developing clinic services. We also help clinicians connect with other specialists in their field who are working with girls and women with Turner syndrome and develop multi-institutional collaborations. TSGA maintains an active social media presence on Facebook that shares evidence-based information and resources to girls, women, and families living with Turner syndrome. This information has helped to dispel many of the preconceived notions of what life is like for those with Turner syndrome, providing hope to many families. We also maintain a website as a resource for information, especially for families with a new diagnosis. 324 17924 Kelly Ranallo President 2.00 0 Denise Culin Secretary 0.10 0 Angie Dunbar Director 0.10 0 Stephen Pool Treasurer 0.10 0 Ashley Abbott Director 0.10 0 Danny Miller Director 0.10 0 false false false false false false false 0 0 0 false 0 0 false Marybel Good 11269 Lamar St Westminster CO 80020 7206286907 false false false false false false false false false false false NONE NONE true X 20268 10393 4411 6379 1695 43146 0 0 20268 10393 4411 6379 1695 43146 0 43146 50 3 53 0 0 43199 0.99880 0.99910 X Grants and Similar Amounts Paid In Excess of $5,000.4 | Donee's Name: Children's Hospital | Cash Amount Given: $10000 Other Expenses.1002 Office Expenses $293 Other Expenses.1003 Information Technology $365 Other Expenses.1012 Insurance $468 Other Expenses.1 Program Expenses $324 Prior Period Adjustment A prior period adjustment was recorded to update the balance sheet so that the year-end cash balance agrees to the current bank statement.