2026-02-18T15:12:36-06:00 2025-06-30 390859910 BAKER TILLY ADVISORY GROUP LP 1500 RXR PLAZA WEST TOWER UNIONDALE NY 11556 990 2024-07-01 521375827 NATIONAL SCLERODERMA FOUNDATION INC NATI 8007224673 55 FERNCROFT ROAD 315 DANVERS MA 01923 MARY J WHEATLEY IOM CAE CHIEF EXECUTIVE OFFICER 8007224673 2026-02-12 1 0 X CATHERINE PETERCSAK P01357092 5167472000 2026-02-12 2024 2025-03-06 01:10:19Z X MARY J WHEATLEY 55 FERNCROFT ROAD 315 DANVERS MA 01923 8835153 0 X WWW.SCLERODERMA.ORG X 1993 IL THE NATIONAL SCLERODERMA FOUNDATION'S MISSION IS TO ADVANCE MEDICAL RESEARCH, PROMOTE DISEASE AWARENESS, AND PROVIDE SUPPORT AND EDUCATION TO PEOPLE WITH SCLERODERMA, THEIR FAMILIES AND SUPPORT NETWORKS. 19 19 33 275 0 0 3912611 5597175 0 0 970638 1165141 58473 -133664 4941722 6628652 1453529 1199988 0 0 2844993 3255131 0 0 1297685 2658330 2328155 6956852 6783274 -2015130 -154622 11162466 11259408 2809269 2926793 8353197 8332615 X THE NATIONAL SCLERODERMA FOUNDATION'S MISSION IS TO ADVANCE MEDICAL RESEARCH, PROMOTE DISEASE AWARENESS, AND PROVIDE SUPPORT AND EDUCATION TO PEOPLE WITH SCLERODERMA, THEIR FAMILIES AND SUPPORT NETWORKS. 0 0 2737760 A RELENTLESS FORCE IN FINDING A CURE AND IMPROVING THE LIVES OF PEOPLE AFFECTED BY SCLERODERMA, THE NATIONAL SCLERODERMA FOUNDATION ADVANCES MEDICAL RESEARCH, PROMOTES DISEASE AWARENESS, AND PROVIDES SUPPORT AND EDUCATION TO PEOPLE WITH SCLERODERMA, THEIR FAMILIES AND SUPPORT NETWORKS. SUPPORTED BY A NETWORK OF THOUSANDS OF INDIVIDUALS ACROSS THE UNITED STATES, THE FOUNDATION IS THE LEADING NONPROFIT FUNDER OF PEER-REVIEWED RESEARCH TO DISCOVER THE CAUSE, UNDERSTAND THE MECHANISMS, AND OVERCOME SCLERODERMA FOREVER. SUPPORT: THE FOUNDATION SERVES PEOPLE LIVING WITH SCLERODERMA, AS WELL AS THEIR CAREGIVERS AND FAMILY MEMBERS BY PROVIDING ACCESS TO SUPPORT GROUPS. IN THE WAKE OF THE PANDEMIC, THE FOUNDATION PIVOTED FROM IN-PERSON TO VIRTUAL COMMUNITY SUPPORT, ALLOWING MEMBERS OF THE SCLERODERMA COMMUNITY TO CONNECT NO MATTER WHERE THEY WERE IN THE COUNTRY. THIS ALSO ALLOWED FOR THE CREATION OF MORE TARGETED, TOPICAL SUPPORT GROUPS SUCH AS ONE FOR MEN, WHICH MAKE UP JUST 20% OF THE POPULATION IMPACTED BY SCLERODERMA, AND BIPOC, AS WELL AS YOUNG ADULTS. EDUCATION: THE FOUNDATION PROVIDES EDUCATION ABOUT HOW TO LIVE BETTER WITH SCLERODERMA FOR THOSE AFFECTED BY THE DISEASE, AS WELL AS THEIR CAREGIVERS, FAMILIES AND SUPPORT NETWORKS. THE FOUNDATION IS ALSO A CME AND CNE PROVIDER, EDUCATING HEALTHCARE PROVIDERS ABOUT SIGNS AND SYMPTOMS, TIMELY DIAGNOSIS, AND CUTTING-EDGE TREATMENTS AND THERAPIES. THE NATIONAL SCLERODERMA CONFERENCE ATTRACTS MORE THAN 400 PARTICIPANTS ANNUALLY AND PROVIDES COMMUNITY SUPPORT, WORLD CLASS EDUCATION, AND NETWORKING OPPORTUNITIES FOR PEOPLE LIVING WITH SCLERODERMA, CAREGIVERS, FAMILY MEMBERS, AND FRIENDS. THE SEMINARS SERVE AS AN EXCELLENT RESOURCE FOR PHYSICIANS AND OTHER HEALTHCARE PROFESSIONALS, WHO ALSO NEED COMPREHENSIVE INFORMATION ABOUT THE DISEASE. 1545164 1199988 RESEARCH: IN FY 2025, THE FOUNDATION MADE A COMMITMENT OF $1.2 MILLION TO FUND RESEARCH. THIS FUNDING AIMS TO STIMULATE AND SUPPORT INVESTIGATIONS INTO BETTER UNDERSTANDING THE MECHANISMS THAT CAUSE THE DISEASE, HOW TO PREVENT AND ACCURATELY DIAGNOSIS AND TREAT THE DISEASE, AND ULTIMATELY FIND A CURE FOR SCLERODERMA. EACH AWARD IS $200,000 SPREAD OVER MULTIPLE YEARS. IN FY 2025, FOUR AWARDS WERE TWO-YEAR ESTABLISHED INVESTIGATOR AWARDS, AND TWO AWARDS WERE THREE-YEAR NEW INVESTIGATOR AWARDS. NEW INVESTIGATOR AWARDS ARE INTENDED TO HELP EMERGING SCIENTISTS GATHER SUFFICIENT DATA TO DEMONSTRATE THE VALUE OF THEIR AREA OF INVESTIGATION AND ATTRACT LARGER FUNDING FROM OTHER SOURCES. THE FOUNDATION'S PEER REVIEWED RESEARCH GRANTS PROGRAM PRIORITIZES SCIENTIFIC MERIT AND IS ADMINISTERED BY THE FOUNDATION'S RESEARCH COMMITTEE. THIS COMMITTEE, COMPOSED OF SCLERODERMA EXPERTS FROM ACROSS THE COUNTRY, MAKES FUNDING RECOMMENDATIONS TO THE BOARD OF DIRECTORS ANNUALLY AFTER A RIGOROUS PEER REVIEW PROCESS.THE PEER-REVIEW RESEARCH COMMITTEE IS COMPOSED OF HIGHLY RESPECTED SCIENTIFIC EXPERTS WHO REVIEW, CRITIQUE, AND RANK ALL APPLICATIONS BASED ON THE NATIONAL INSTITUTES OF HEALTH'S RANKING SYSTEM. ONLY PROJECTS OF SIGNIFICANT SCIENTIFIC MERIT ARE FUNDED. EACH GRANT APPLICATION CONTAINS VERY SPECIFIC ELIGIBILITY AND REVIEW CRITERIA. DETAILS REGARDING THESE REQUIREMENTS ARE AVAILABLE AT WWW.SCLERODERMA.ORG. ALL APPLICATIONS UNDERGO RIGOROUS PEER REVIEW AND ARE SCORED AND RANKED ACCORDING TO THE REVIEW CRITERIA AND OVERALL MERIT OF THE PROPOSAL. PEER REVIEW RANKINGS ARE SENT TO THE FOUNDATION'S RESEARCH COMMITTEE FOR QUALIFICATION BEFORE BEING PRESENTED TO THE FOUNDATION BOARD OF DIRECTORS FOR FINAL APPROVAL OF FUNDING. AFTER THE AWARDS ARE MADE, ALL RECIPIENTS ARE REQUIRED TO COMPLETE FUNDING CONTRACTS WITH INSTITUTIONAL SIGN-OFF AND MUST ALSO SUBMIT ANNUAL REPORTS ON THEIR PROGRESS. ALL REPORTS ARE REVIEWED BY THE FOUNDATION'S RESEARCH COMMITTEE TO ENSURE COMPLIANCE WITH PROGRAMMATIC, SCIENTIFIC, AND FISCAL AND ADMINISTRATIVE POLICES AND REQUIREMENTS. 4282924 1 1 0 0 0 0 0 0 0 1 1 0 0 0 1 1 1 0 0 0 0 0 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 16 0 33 1 0 0 0 0 0 1 0 0 0 0 0 0 0 X 19 19 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 AL AK AR CA CO CT FL GA HI IL KS KY ME MD MA MI MN MS NH NJ NM NY NC ND OH OK OR PA RI SC TN UT VA WA WV WI NV X X MICHAEL B HYDE VP OF FINANCE 8007224673 55 FERNCROFT ROAD SUITE 315 DANVERS MA 01923 KEVIN BOYANOWSKI CHAIR 2.00 X X 0 0 0 CAROL FEGHALI-BOSTWICK PH D VICE CHAIR 2.00 X X 0 0 0 BLAKE EMBREE TREASURER 2.00 X X 0 0 0 MARCIA WALKER SECRETARY 2.00 X X 0 0 0 LINDA BORNSTEIN BAUM OD DIRECTOR 2.00 X 0 0 0 MARY BLADES DIRECTOR 2.00 X 0 0 0 COURTNEY CALIENDO ESQ DIRECTOR 2.00 X 0 0 0 TERA CARTER DIRECTOR 2.00 X 0 0 0 SCOTT CERESNAK MD DIRECTOR 2.00 X 0 0 0 ZEBA HYDER DIRECTOR 2.00 X 0 0 0 AJ NAHMAD DIRECTOR 2.00 X 0 0 0 TRACY PORTER MED SPHR DIRECTOR 2.00 X 0 0 0 NANCY WALTERMIRE DIRECTOR 2.00 X 0 0 0 CHRISTINA LOCCKE DIRECTOR 2.00 X 0 0 0 JANE LADAS DIRECTOR 2.00 X 0 0 0 COS MALLOZZI DIRECTOR 2.00 X 0 0 0 MARK OROZCO III MBA DIRECTOR 2.00 X 0 0 0 J MICHAEL LEVENGOOD ESQ DIRECTOR 2.00 X 0 0 0 PEGGY COLLINS DIRECTOR 2.00 X 0 0 0 MARY J WHEATLEY CEO 37.50 X 253027 0 24976 MICHAEL B HYDE VP OF FINANCE 37.50 X 131092 0 37566 ASHLEY M PRUETT VP OF COMMUNITY ENGAGEMENT 37.50 X 144410 0 25629 CATHERINE M ANASTASIA SENIOR DIRECTOR, MISSION DELIVERY 37.50 X 113309 0 15021 ELIZABETH J MULROY SENIOR DIRECTOR, CHAPTER OPERATIONS 37.50 X 113580 0 3892 755418 0 107084 5 0 1 0 1PATH MANAGED SERVICES LLC 2300 WINDY RIDGE PKWY SE 685 S ATLANTA GA 30339 IT SERVICES 154829 1 946703 4650472 5597175 233654 233654 2863632 1932145 931487 931487 931487 140692 946703 274356 -133664 -133664 6628652 0 0 1031477 1199988 1199988 549811 186921 330662 32228 2056745 1505378 380079 171288 46451 34414 8145 3892 386932 279647 74538 32747 215192 142027 56165 17000 26158 15694 5232 5232 47800 28680 9560 9560 67652 67652 347443 173944 36663 136836 3588 1620 540 1428 178126 27889 9045 141192 414034 248420 82807 82807 177362 101509 33284 42569 192716 117696 37510 37510 548871 64351 18660 465860 28704 17222 5741 5741 84705 50823 16941 16941 FEES AND LICENSES 178742 86701 29441 62600 OUTREACH 32254 32254 6783274 4282924 1202665 1297685 878390 404938 602650 1686370 268330 315284 354368 280530 48920 73838 9255822 8454497 108354 324481 11162466 11259408 377001 826364 2166680 1650007 174024 153388 91564 297034 2809269 2926793 X 5825611 4595071 2527586 3737544 8353197 8332615 11162466 11259408 X -154622 -112011 246051 X 0 1 X 1 0 X 3721793 4462430 6057608 3912063 5597175 23751069 3721793 4462430 6057608 3912063 5597175 23751069 2262371 21488698 167751 175431 203947 240318 233654 1021101 142546 238586 140692 521824 25293994 0.84960 0.88670 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: SPECIAL EVENT INCOME - 2022 AMOUNT: $ 142,546. 2023 AMOUNT: $ 238,586. 2024 AMOUNT: $ 140,692. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 2527586 1110000 204883 104925 3737544 2180308 200000 238530 91252 2527586 1655912 452455 159524 87583 2180308 1881204 -155307 69985 1655912 1658720 293349 70865 1881204 0.00000 1.00000 0.00000 0 0 23606 21329 2277 203684 173211 30473 127078 85990 41088 73838 OPERATING LEASE LIABILITIES 297034 297034 X 6695040 -112011 246051 134040 6561000 67652 67652 6628652 6715622 0 6715622 67652 67652 6783274 PART V, LINE 4: THE ENDOWMENT CONSISTS OF FUNDS RESTRICTED IN PERPETUITY ESTABLISHED IN 2007 AND BOARD DESIGNATED ENDOWMENT FUNDS. THE ENDOWMENT IS TO SUPPORT SCLERODERMA RESEARCH. PART X, LINE 2: THE ORGANIZATION IS A NONPROFIT ORGANIZATION AS DESCRIBED IN SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AND IS EXEMPT FROM FEDERAL AND STATE INCOME TAXES ON TRADE OR BUSINESS PROFITS GENERATED BY ACTIVITIES RELATED TO THE ORGANIZATION'S EXEMPT FUNCTION. THE ORGANIZATION MAY BE SUBJECT TO FEDERAL AND STATE INCOME TAXES FOR PROFITS GENERATED FROM TRADE OR BUSINESS ACTIVITIES UNRELATED TO THE ORGANIZATION'S EXEMPT FUNCTION. AS OF JUNE 30, 2025, MANAGEMENT BELIEVES THAT THE ORGANIZATION HAS NOT GENERATED ANY UNRELATED BUSINESS TAXABLE INCOME. THE ORGANIZATION ASSESSES THE RECORDING OF UNCERTAIN TAX POSITIONS BY EVALUATING THE MINIMUM RECOGNITION THRESHOLD AND MEASUREMENT REQUIREMENTS A TAX POSITION MUST MEET BEFORE BEING RECOGNIZED AS A BENEFIT IN THE FINANCIAL STATEMENTS. THE ORGANIZATION'S POLICY IS TO RECOGNIZE INTEREST AND PENALTIES ACCRUED ON ANY UNCERTAIN TAX POSITIONS AS A COMPONENT OF INCOME TAX EXPENSE, IF ANY, IN ITS STATEMENT OF ACTIVITIES. THE ORGANIZATION HAS NOT RECOGNIZED ANY LIABILITIES FOR UNCERTAIN TAX POSITIONS OR UNRECOGNIZED BENEFITS AS OF JUNE 30, 2025. THE ORGANIZATION DOES NOT EXPECT ANY MATERIAL CHANGE IN UNCERTAIN TAX BENEFITS WITHIN THE NEXT 12 MONTHS. PART XI, LINE 2D - OTHER ADJUSTMENTS: RETURNED GRANT AWARDS FROM PRIOR YEARS 246,051. SF NEW ENGLAND GOLF TOURNY 146724 81554 65170 60125 5045 6561 ROCKY MOUNTAIN FOOD FIGHT 61785 40520 21265 19985 1280 24575 32 878886 824629 54257 43694 10563 102528 1087395 946703 140692 123804 16888 133664 274356 -133664 1 THE REGENTS OF THE UNIVERSITY OF MICHIGAN C/O BNY MELLON BOX 223131 PITTSBURGH PA 15251 386006309 501(C)3 199998 0 RESEARCH YALE UNIVERSITY SPONSORED PROJECTS FINANCIAL ADMIN PO BOX 1873 NEW HAVEN CT 06508 060646973 501(C)3 199998 0 RESEARCH UNIVERSITY OF WASHINGTON GRANTS CONTRACTS ACCOUNTING 12455 COLLECTIONS DR CHICAGO IL 60693 916001537 501(C)3 199998 0 RESEARCH JOHN HOPKINS UNIVERSITY BANK OF AMERICA CENTRAL LOCKBOX 12529 COLLECTIONS CTR DR CHICAGO IL 60693 520595110 501(C)3 199998 0 RESEARCH YALE UNIVERSITY SPONSORED PROJECTS FINANCIAL ADMIN PO BOX 1873 NEW HAVEN CT 06508 060646973 501(C)3 199998 0 RESEARCH TRUSTEES OF DARTMOUTH COLLEGE SPONSORED PROJECTS OFFICE 11 ROPE FERRY RD 6210 HANOVER NH 03755 020222111 501(C)3 199998 0 RESEARCH 5 0 PART I, LINE 2: THE FOUNDATION IS THE LEADING NONPROFIT FUNDING SCLERODERMA RESEARCH IN THE UNITED STATES. THROUGH THIS PROGRAM, THE FOUNDATION IS COMMITTED TO DISCOVERING THE CAUSE OF THIS DISEASE, UNDERSTANDING THE MECHANISMS BEHIND IT, AND OVERCOMING SCLERODERMA FOREVER. SINCE ITS INCEPTION, THE FOUNDATION HAS COMMITTED $30 MILLION TO THIS MISSION PRIORITY. THROUGH ITS PEER REVIEWED RESEARCH GRANTS PROGRAM, THE NATIONAL SCLERODERMA FOUNDATION FOSTERS THE DEVELOPMENT OF INNOVATIVE, HIGH-QUALITY RESEARCH BY NEW AND ESTABLISHED INVESTIGATORS IN FIELDS RELATED TO SCLERODERMA. TO THAT END, THE FOUNDATION OFFERS TWO DISTINCT RESEARCH GRANTS: NATIONAL SCLERODERMA FOUNDATION NEW INVESTIGATOR GRANT AND THE NATIONAL SCLERODERMA FOUNDATION ESTABLISHED INVESTIGATOR GRANT. EACH GRANT APPLICATION DETAILS SPECIFIC ELIGIBILITY AND REVIEW CRITERIA (DETAILS REGARDING THESE REQUIREMENTS ARE AVAILABLE AT WWW.SCLERODERMA.ORG). ALL APPLICATIONS UNDERGO A RIGOROUS PEER REVIEW PROCESS COMPARABLE TO THAT OF THE NIH. THE FOUNDATION'S PEER REVIEWED RESEARCH COMMITTEE IS COMPRISED OF MEDICAL AND RESEARCH EXPERTS FROM ACROSS THE UNITED STATES, WHO USE THE SAME MERIT-BASED SCORING SYSTEM AS THE NATIONAL INSTITUTES OF HEALTH. EACH APPLICATION IS CRITIQUED, SCORED AND RANKED ACCORDING TO THE REVIEW CRITERIA AND OVERALL MERIT OF THE PROPOSED PROJECT. ONCE THE STUDY SECTION HAS REVIEWED, DISCUSSED AND RANKED THE FINAL SLATE, THE COMMITTEE ON RESEARCH PUTS FORTH FUNDING RECOMMENDATIONS TO THE BOARD OF DIRECTORS FOR FINAL APPROVAL. PENDING NOTICE OF AWARD, EACH RECIPIENT IS REQUIRED TO COMPLETE A FUNDING CONTRACT SIGNED BY THEIR SPONSORING ORGANIZATION COMMITTING TO COMPLETE THE PROJECT WITHIN A SPECIFIED PERIOD OF TIME, AND WITH NO SCIENTIFIC OR BUDGETARY OVERLAP. RECIPIENTS MUST ALSO SUBMIT ANNUAL PROGRESS REPORTS AND FINANCIAL RECONCILIATIONS, AND COMPLY WITH FOUNDATION POLICIES. X 0 0 0 0 0 0 0 1 0 MARY J WHEATLEY CEO 234901 0 18126 0 0 0 7318 0 17658 0 278003 0 0 0 ASHLEY M PRUETT VP OF COMMUNITY ENGAGEMENT 142126 0 2284 0 0 0 4603 0 21026 0 170039 0 0 0 MICHAEL B HYDE VP OF FINANCE 128063 0 3029 0 0 0 4003 0 33563 0 168658 0 0 0 PART I, LINE 7 AN ANNUAL INCENTIVE BONUS AMOUNT WILL BE UP TO TEN PERCENT OF BASE SALARY, PER BOARD APPROVAL. A REVIEW OF OVERALL PERFORMANCE WILL BE CONDUCTED ANNUALLY AND A POTENTIAL ANNUAL INCENTIVE BONUS REWARD WILL BE TIED TO COMPILED RESULTS OF THE ANNUAL REVIEW, AND PROGRESS TOWARDS GOALS IDENTIFIED DURING THE PRIOR YEAR'S REVIEW. FORM 990, PART VI, SECTION B, LINE 11B BEFORE IT IS FILED WITH THE IRS, THE FORM 990 IS REVIEWED AND APPROVED BY MANAGEMENT. THE FORM 990 IS THEN GIVEN TO ALL BOARD MEMBERS FOR REVIEW. ANY QUESTIONS ARE ANSWERED BY EITHER MANGEMENT OF THE ORGANIZATION OR THE INDEPENDENT AUDITOR. FORM 990, PART VI, SECTION B, LINE 12C ALL MEMBERS OF THE BOARD OF DIRECTORS SUBMIT ANNUAL DISCLOSURE STATEMENTS, WHICH ARE THEN REVIEWED BY THE COMMITTEE ON CORPORATE GOVERNANCE AND NOMINATIONS AND FILED WITH LEGAL COUNSEL. ANY MEMBER WHO GIVES NOTICE OF POTENTIAL CONFLICT IS ADVISED TO ABSTAIN FROM PARTICIPATING IN ANY ITEM OF BUSINESS RELATED TO THAT CONFLICT(S) WHICH MAY COME BEFORE THE BOARD. FORM 990, PART VI, SECTION B, LINE 15 THE EXECUTIVE COMMITTEE VOTES AND APPROVES THE COMPENSATION OF THE CHIEF EXECUTIVE OFFICER (CEO) AND INFORMS THE BOARD OF DIRECTORS OF THE RESULTS DURING AN EXECUTIVE SESSION. THE CEO ESTABLISHES THE COMPENSATION FOR ALL OTHER EMPLOYEES OF THE ORGANIZATION. ALL DECISIONS REGARDING COMPENSATION ARE DOCUMENTED IN WRITING. NO BOARD MEMBERS ARE COMPENSATED. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST. THE ORGANIZATION'S FINANCIAL STATEMENTS ARE ALSO AVAILABLE ON THE ORGANIZATION'S WEBSITE. FORM 990, PART XI, LINE 9: RETURN OF PRIOR YEAR GRANT FUNDS GIVEN 246,051. FORM 990, PART XI, LINE 9: THE ORGANIZATION RECEIVED REFUNDS DURING THE FISCAL YEAR ENDING JUNE 30, 2025 IN THE AMOUNT OF $246,051 FOR PRIOR YEAR GRANT MONIES THAT WERE RETURNED.