2025-12-15T10:47:41-08:00 2025-01-31 050511194 PPA LLP 469 CENTERVILLE ROAD STE 203 WARWICK RI 02886 990 2024-02-01 050460482 ALS UNITED RHODE ISLAND ALSU 4017321609 2374 POST ROAD WARWICK RI 02886 JUDITH A PRATT BOARD PRESIDENT 4017321609 2025-10-20 true true Jo-Anne M Newton CPA P01753961 4017380010 2025-12-15 2024 2025-03-06 01:10:19Z CHRISTINA VILARDI 2374 POST ROAD WARWICK RI 02886 429338 false X alsunitedri.org X 1985 RI PUBLIC AWARENESS OF ALS DISEASE AND PATIENT AND FAMILY SUPPORT 6 6 8 125 0 0 614669 307909 0 6344 0 223790 114292 844803 422201 0 0 203530 263449 0 32636 375568 213486 579098 476935 265705 -54734 754049 672752 72772 46209 681277 626543 PUBLIC AWARENESS OF ALS DISEASE AND PATIENT AND FAMILY SUPPORT false false 267558 0 0 ALS UNITED RHODE ISLAND REACHED MORE THAN 300 PATIENTS AND PATIENTS FAMILIES THROUGH INFORMATION AND REFERRALS, HOME VISITS, SUPPORT GROUPS AS WELL AS PROVIDING EQUIPMENT LOANS, HANDICAPPED TRANSPORTION AND RESPITE CARE AT NO COST TO THE PATIENT. ALS UNITED RHODE ISLAND ALSO FUNDS AN ALS SPECIFIC MULTI-DISCIPLINARY MEDICAL CLINIC THAT PROVIDES THE SERVICES IN THE AREA OF NEUROLOGY, PULMONOLOGY, PHYISICAL, OCCUPATIONAL AND SPEECH THERAPY AND NUTRITION IN ONE LOCATION. 93456 0 0 THERE ARE NUMEROUS PROGRAMS THAT SUPPORT PROFESSIONAL AND PUBLIC AWARENESS OUTREACH. ALS AWARENESS DAY IS HELD ANNUALLY AT THE RHODE ISLAND STATE HOUSE DURING MAY. WHILE THIS PROGRAM IS ATTENDED BY OUR CONSTITUENTS, THERE IS ALSO A GREATER OUTREACH TO ANY MEMBERS OF THE GENERAL PUBLIC THAT ARE AT THE STATE HOUSE ON THAT DAY. THE ANNUAL ALS SYMPOSIUM INCLUDES SPEAKERS WHO PROVIDE ALS RESEARCH UPDATES AND GENERAL COPING SKILLS IN DEALING WITH THE DEVASTATION OF AN ALS DIAGNOSIS. THESE PROGRAMS ARE COMMUNICATED BY MAILINGS, SOCIAL MEDIA AND OUR WEBSITE TO OVER 1,200 CONSTITUENTS INCLUDING PATIENTS, FAMILIES, CAREGIVERS, MEDICAL PROFESSIONALS AND SUPPORTERS. WE ALSO CONDUCT INSERVICE PROGRAMS TO EDUCATE MEDICAL STAFF ABOUT DEALING WITH ALS PATIENTS AT HOSPICE AND OTHER CARE FACILITIES. 361014 true true false false false false false false false false true false false true true true false false false false false false false false true false false false false false false false false false false false false false false false false false false false false false false true 2 0 8 true false false false false false false false false false false X 6 6 false false false false false false false true true false true true true true true true true true true false false X CHRISTINA VILARDI 4017321609 2374 POST ROAD UNIT 103 WARWICK RI 02889 JUDITH PRATT BOARD CHAIR 1.00 X X 0 0 0 PJPROKOP VICE PRESIDENT 1.00 X X 0 0 0 JOHN FINNERTY TREASURER 1.00 X X 0 0 0 R ANDREW PELLETIERESQ SECRETARY 1.00 X X 0 0 0 KENNETH F MCGUNAGLE ESQ PRESIDENT EMERITUS 1.00 X X 0 0 0 JOHN GODIN PAST BOARD PRESIDENT 1.00 X 0 0 0 CAROL M FLANAGAN BOARD MEMBER 1.00 X 0 0 0 PAUL DESMARAIS BOARD MEMBER 1.00 X 0 0 0 TERRANCE MARTIESIAN ESQ BOARD MEMBER 1.00 X 0 0 0 ROBERT FAVICCHIO BOARD MEMBER 1.00 X 0 0 0 STEPHANIE A DE ABREU BOARD MEMBER 1.00 X 0 0 0 RICHARD HENTZ BOARD MEMBER 1.00 X 0 0 0 JULIANNE LANGLAIS EXECUTIVE DIRECTOR 40.00 X 6417 0 0 CHRISTINA VILARDI EXECUTIVE DIRECTOR 40.00 X 95000 0 0 101417 0 0 false false false 4500 303409 307909 121429 7137 114292 0 114292 422201 0 114292 101417 81134 12170 8113 140539 112431 16865 11243 1575 1260 189 126 19918 15935 2390 1593 4468 3574 447 447 29881 23905 2988 2988 28546 22836 2855 2855 4323 3459 432 432 237 189 24 24 3676 2940 368 368 6070 4856 607 607 REVENUE SHARING 42545 10659 29051 2835 PATIENT ASSISTANCE 30977 30977 0 0 SERVICE CHARGES 14797 0 14797 0 CLINIC EXPENSES 15390 15390 0 0 32576 31469 102 1005 476935 361014 83285 32636 551676 416930 162781 245901 15 34 5628 4058 165342 164242 4776 1100 29173 4729 754049 672752 42713 41900 30059 4309 72772 46209 X 681277 626543 0 0 681277 626543 754049 672752 -54734 X false false false X 0 121896 178266 143059 614669 423713 1481603 0 0 121896 178266 143059 614669 423713 1481603 188358 1293245 2764 910 1100 6344 5625 16743 0 0 1498346 1189387 0.86310 0.91350 X 0 0 0 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 165342 164242 1100 1100 SECURITY DEPOSITS 5415 RIGHT OF USE: OPERATING LEASE -686 4729 FEDERAL INCOME TAXES 0 LEASE LIABILITY 4309 4309 X Pt X, Line 2 ALS UNITED RHODE ISLAND IS A RHODE ISLAND NONPROFIT CORPORATION EXEMPT FROM INCOME TAXES AS A PUBLIC CHARITY UNDER SECTION 501(C)3 OF THE INTERNAL REVENUE CODE. THE CHAPTER WAS AN AFFILIATE OF THE ALS ASSOCIATION HEADQUARTERED IN WASHINGTON, D.C. UNTIL AUGUST 2023 AT WHICH POINT THEY SECEDED FROM THE NATIONAL ORGANIZATION. A NEW LEGAL BUSINESS NAME BECAME EFFECTIVE SEPTEMBER 2023. THE ACCOUNTING STANDARD ON ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES ADDRESSES THE DETERMINATION OF WHETHER TAX BENEFITS CLAIMED OR UNEXPECTED CAN BE CLAIMED ON A TAX RETURN SHOULD BE RECORDED IN THE FINANCIAL STATEMENTS. UNDER THIS GUIDANCE, ALS UNITED RHODE ISLAND MAY RECOGNIZE THE TAX BENEFIT FROM AN UNCERTAIN TAX POSTION ONLY IF IT IS MORE LIKELY THAN NOT THAT THE POSITION WILL BE SUSTAINED UPON EXAMINATION BY TAXING AUTHORITIES, BASED ON THE TECHNICAL MERITS OF THE POSITION. EXAMPLES OF TAX POSITIONS INCLUDE TAX-EXEMPT STATUS OF THE ORGANIZATION AND VARIOUS POSITIONS RELATED TO POTENTIAL SOURCES OF UNRELATED BUSINESS TAXABLE INCOME (UBIT). CEO CHALLANGE 64265 64265 WALK TO DEFEAT ALS 39113 39113 2 13551 13551 116929 116929 116929 Pt VI, Line 11b THE EXECUTIVE DIRECTOR, BOARD PRESIDENT, OFFICE MANAGER AND BOOKKEEPER REVIEW FORM 990 PRIOR TO FILING. AFTER REVIEW, A COPY OF FORM 990 IS THEN DISTRIBUTED TO THE BOARD OF DIRECTORS. Pt VI, Line 12c BOARD MEMBERS ARE REQUIRED TO REVIEW AND SIGN THE ASSOCIATIONS CONFLICT OF INTEREST POLICY ANNUALLY AND DISCLOSE ANY CONFLICTS SHOULD THEY EXIST. Pt VI, Line 15a AFTER COMPARISON EFFORTS WITH OTHER NON-PROFIT ENTITIES AND BOARD REVIEW, THE BOARD OF DIRECTORS MEETS TO DELIBERATE AND APPROVE THE EXECUTIVE DIRECTORS SALARY EACH YEAR. DELIBERATONS AND DISCUSSIONS ARE EVIDENCED BY CONTEMPORANEOUS BOARD MEETING MINUTES. Pt VI, Line 19 ALS UNITED RHODE ISLAND MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST.