2025-04-14T01:11:29-07:00 2024-12-31 990 2024-01-01 921885014 TED COMMUNITY ORGANIZATION TEDC 8312412243 680 Lighthouse Avenue Unit 12 Pacific Grove CA 93950 Christine Gustafson CEO 8312412243 2025-04-14 1 2024 2025-03-06 01:10:19Z X Christine Gustafson 680 Lighthouse Avenue Unit 12 Pacific Grove CA 93950 359170 0 X https://tedcommunity.org X Organization 2023 CA TED Community Organization is comprised of patients, caregivers, medical professionals, and individuals who advocate for those dealing with Thyroid Eye Disease (TED). We offer emotional support as well as practical ideas for living with and finding solutions for TED. As a dedicated Thyroid Eye Disease (TED) 501c3 nonprofit, our vision and quest is to ensure that no one need ever walk alone through the arduous and often isolating TED journey. To this end, we provide education, support, and connection for all who are affected by TED. 3 3 0 20 0 0 359170 359170 0 0 0 0 0 0 359170 359170 0 0 0 0 0 0 0 0 0 154707 154707 154707 154707 204463 204463 7342 211805 0 0 7342 211805 X As a dedicated Thyroid Eye Disease (TED) 501c3 nonprofit, our vision and quest is to ensure that no one need ever walk alone through the arduous and often isolating TED journey. To this end, we provide education, support, and connection for all who are affected by TED. 1 0 85008 0 0 In 2024, the Thyroid Eye Disease Community (TEDCommunity.org) dedicated a majority of its resources to the development and expansion of free support services for individuals affected by thyroid eye disease (TED). These services provide support for a Global Community of TED patients and partners. These services were created in direct response to needs identified through our TED Survey and include a robust portfolio of educational, emotional, and peer-support resources. This investment supported the creation and enhancement of programs such as online support groups, educational webinars, patient story podcasts, TED Connect (one-on-one peer support), in-person workshops, a Research & Resources Library, and the "Dear TEDe" advice column. It also enabled the development of new initiatives including an 8-module TED Quality of Life Program, the TED ART & Creative Studio, and a Global Virtual TED Patient & Partner Conference scheduled for TED Awareness Week in November. All services are offered free of charge to ensure equitable access to support, connection, and education for the TED community. 48593 0 0 In 2024, the Thyroid Eye Disease Community (TEDCommunity.org) hosted two robust in-person workshops designed specifically for individuals living with thyroid eye disease (TED). These workshops, held in Chicago during the spring and New York City in the winter, provided participants with valuable educational sessions, opportunities for meaningful peer connection, and collaborative advocacy campaign development. Each event was carefully structured to foster community support while equipping attendees with tools and knowledge to better navigate their TED journey. A total of $48,593 was invested to cover all related expenses, including travel, lodging, meeting venues, and essential workshop materials, ensuring a high-quality, accessible experience for all participants. 9340 0 0 The Thyroid Eye Disease Community (TEDCommunity.org) allocated $10,000 in 2024 to attend and exhibit at thyroid eye disease-related medical and scientific conferences as well as advocacy events. This strategic investment supported our mission to raise awareness of the TED Community Organization within these highly esteemed communities. By maintaining a visible presence through informational booths and active participation, we strengthened our relationships with healthcare, scientific and advocacy professionals, increasing the likelihood of patient referrals and expanding our reach to those affected by TED. Additionally, our presence at these conferences enhances our organizational credibility among donors, partners, and supporters by demonstrating our ongoing commitment to growth, education, and community impact. 11766 0 0 Additional expenses for website and internet advertising. 11766 0 0 154707 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 X 3 3 0 0 0 0 0 0 0 1 1 0 0 1 1 1 0 0 0 0 0 0 CA X Christine Gustafson 8312412243 680 Lighthouse Avenue Unit 12 Pacific Grove CA 93950 X Christine Gustafson CEO 0 0 X 0 0 0 Megan Ryan Chief Financial Officer 0 0 X 0 0 0 Bette Nee-Williams Board Secretary 0 0 X 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 359170 0 359170 0 0 0 0 0 0 0 359170 0 0 0 X 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 85008 85008 0 0 9079 9079 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 57933 57933 0 0 0 0 0 0 0 0 2687 2687 0 0 154707 154707 0 0 7342 211805 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 7342 211805 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 7342 211805 0 0 7342 211805 7342 211805 204463 0 0 0 0 0 X 0 0 0 X 50000 359170 409170 0 0 0 50000 359170 409170 409170 0 0 0 50000 359170 409170 X Schedule A, Part I, Line 10 We are in our second year as a 501(c)3 nonprofit organization. Form 990, Part III, Line 2 The Thyroid Eye Disease Community (TEDCommunity.org) offers a comprehensive portfolio of free programs and services to support individuals affected by thyroid eye disease (TED). Our TED Care Portfolio includes educational webinars, patient story podcasts, online support groups, TED-focused videos, in-person workshops and conferences, a regular eNewsletter, and a curated Research & Resources Library including clinical trials. We also offer TED Connect, a one-on-one peer support program; TED ART Meet Ups; and "Dear TEDe," an online Q&A advice column. Our social media presence spans Facebook, TikTok, Instagram, and LinkedIn, helping foster connection and awareness. Our newest programs: We are launching an 8-module TED Quality of Life Program, a TED ART & Creative Studio, and a Global Virtual TED Patient & Partner Conference during TED Awareness Week in November. These services are built directly in response to community needs identified in our TED Survey, ensuring that our offerings are relevant, supportive, and empowering. Form 990, Part VI, Section B, Line 11b We review all forms during our regularly scheduled Board of Directors meeting. Form 990, Part VI, Section C, Line 19 We make these documents available upon request. Form 990, Part IX, Line 11g In 2024, the Thyroid Eye Disease Community (TEDCommunity.org) dedicated a majority of its resources to the development and expansion of free support services for individuals affected by thyroid eye disease (TED). These services provide support for a Global Community of TED patients and partners. These services were created in direct response to needs identified through our TED Survey and include a robust portfolio of educational, emotional, and peer-support resources. This investment supported the creation and enhancement of programs such as online support groups, educational webinars, patient story podcasts, TED Connect (one-on-one peer support), in-person workshops, a Research & Resources Library, and the "Dear TEDe" advice column. It also enabled the development of new initiatives including an 8-module TED Quality of Life Program, the TED ART & Creative Studio, and a Global Virtual TED Patient & Partner Conference scheduled for TED Awareness Week in November. All services are offered free of charge to ensure equitable access to support, connection, and education for the TED community.