2025-01-06T21:38:32-07:00 2024-06-30 861997703 Nonprofit Bookkeeping And Consulting 2901 Staffordshire Blvd Powell TN 37849 990 2023-07-01 581309190 EPILEPSY FOUNDATION OF SOUTHEAST TENNESSEE EPIL 9173730243 P O BOX 4782 CHATTANOOGA TN 37405 Daniel Grzesik Executive Director 4235519700 2024-12-10 1 1 Holly and Russ Fuquay P02279485 8656604058 2024-11-30 X 2023 2024-10-15 13:58:12Z X Daniel Grzisik 1719 Gunston Hall Road Hixton TN 37343 473355 0 X WWW.EPILEPSY-SETN.ORG X 1977 TN At the Epilepsy Foundation SETN, we are committed to helping people in Tennessee and Northwest Georgia affected by seizures and epilepsy. We recognize that a diagnosis of epilepsy is life-changing, and our mission is to raise awareness, reduce stigma, and provide resources to help build a network of support for those impacted by epilepsy as they navigate their journey. 9 9 6 30 0 0 429293 472308 0 0 69 1047 0 0 429362 473355 0 63470 0 0 240507 281842 0 0 34731 192410 166569 432917 511881 -3555 -38526 179249 149356 2335 0 176914 149356 At the Epilepsy Foundation SETN, we are committed to helping people in Southeast Tennessee and Northwest Georgia affected by seizures and epilepsy. We recognize that a diagnosis of epilepsy is life-changing, and our mission is to raise awareness, reduce stigma, and provide resources to help build a network of support for those impacted by epilepsy as they navigate their journey. 0 0 287497 0 355016 EDUCATIONAL OPPORTUNITIES ARE CATERED TO SPECIFIC POPULATIONS AND PROVIDE PROPER INFORMATION RELATED TO SEIZURE RECOGNITION AND FIRST-AID. THESE EDUCATIONAL OPPORTUNITIES ARE PERFECT FOR LAW ENFORCEMENT AND ALL FIRST-RESPONDERS, DAY CARE EMPLOYEES, COMMUNITY FOCUSED ORGANIZATIONS, AND ANY BUSINESSES THAT MAY WANT TO LEARN ABOUT EPILEPSY. APPROXIMATELY 12,000 INDIVIDUALS WERE IMPACTED BY THE EDUCATION/TRAINING PROGRAM IN THE 2022-2023 FISCAL YEAR. THE MEDICATION ASSISTANCE PROGRAM WAS SPECIFICALLY CREATED TO HELP INDIVIDUALS WITH EPILEPSY, WHO LIVE AT OR BELOW THE U.S. FEDERAL POVERTY LINE, WITH PURCHASING THEIR MEDICATION. EACH CLIENT WHO ENROLLS IN THIS PROGRAM IS ELIGIBLE FOR AN ANNUAL STIPEND OF $400 WHICH CAN BE USED AT THEIR DISCRETION. 56 PRESCRIPTIONS WERE FILLED DURING THE 2022-2023 FISCAL YEAR. STUDIO E ART THERAPY IS A MULTI-WEEK ART PROGRAM THAT GIVES CHILDREN, AGES 6-17, WITH EPILEPSY, THE OPPORTUNITY TO CREATIVELY EXPRESS THEMSELVES THROUGH ART AND ALSO CREATE A COMMUNITY OF SUPPORT AMOUNG THEIR PEERS. 35 CHILDREN WERE PART OF THE ART PROGRAM DURING THE 2021-2022 FISCAL YEAR. DURING THE SUMMER WE HOSTED A PHOTOGRAPHY CAMP FOR CHILDREN IMPACTED BY EPILEPSY. THIS IS A 4-WEEK PROGRAM WHERE CHILDREN ARE GIVEN AN OPPORTUNITY TO EXPRESS THEMSELVES THROUGH PHOTOGRAPHY, WHILE ALSO LEARNING PHOTOGRAPHY AND CAMERA SKILLS. IN THE 2022-2023 FISCAL YEAR, 35 CHILDREN ATTENDED OVER THE 4-WEEK PERIOD. EACH MONTH EFSETN HOSTS OUR CONNECTIONS SUPPORT GROUP MEETINGS FOR ANYONE WHO IS IMPACTED BY EPILEPSY. THESE MEETINGS ARE A GREAT PLACE TO CONNECT WITH OTHER PEOPLE WHO UNDERSTAND WHAT YOU'RE GOING THOUGH AS WELL AS EXPERT GUESTS FROM A WIDE VARIETY OF FIELDS. THESE GUESTS INCLUDE NEUROLOGISTS, SOCIAL WORKERS, ATTORNEYS, AND PHARMACISTS, JUST TO NAME A FEW. 241 PEOPLE WERE INVOLVED IN THESE SUPPORT GROUPS DURING THE 2021-2022 FISCAL YEAR. 95833 0 118339 EDUCATIONAL OPPORTUNITIES ARE CATERED TO SPECIFIC POPULATIONS AND PROVIDE PROPER INFORMATION RELATED TO SEIZURE RECOGNITION AND FIRST-AID. THESE EDUCATIONAL OPPORTUNITIES ARE PERFECT FOR LAW ENFORCEMENT AND ALL FIRST-RESPONDERS, DAY CARE EMPLOYEES, COMMUNITY FOCUSED ORGANIZATIONS, AND ANY BUSINESSES THAT MAY WANT TO LEARN ABOUT EPILEPSY. APPROXIMATELY 12,000 INDIVIDUALS WERE IMPACTED BY THE EDUCATION/TRAINING PROGRAM IN THE 2022-2023 FISCAL YEAR. THE MEDICATION ASSISTANCE PROGRAM WAS SPECIFICALLY CREATED TO HELP INDIVIDUALS WITH EPILEPSY, WHO LIVE AT OR BELOW THE U.S. FEDERAL POVERTY LINE, WITH PURCHASING THEIR MEDICATION. EACH CLIENT WHO ENROLLS IN THIS PROGRAM IS ELIGIBLE FOR AN ANNUAL STIPEND OF $400 WHICH CAN BE USED AT THEIR DISCRETION. 56 PRESCRIPTIONS WERE FILLED DURING THE 2021-2022 FISCAL YEAR. EACH MONTH EFSETN HOSTS OUR CONNECTIONS SUPPORT GROUP MEETINGS FOR ANYONE WHO IS IMPACTED BY EPILEPSY. THESE MEETINGS ARE A GREAT PLACE TO CONNECT WITH OTHER PEOPLE WHO UNDERSTAND WHAT YOU'RE GOING THOUGH AS WELL AS EXPERT GUESTS FROM A WIDE VARIETY OF FIELDS. THESE GUESTS INCLUDE NEUROLOGISTS, SOCIAL WORKERS, ATTORNEYS, AND PHARMACISTS, JUST TO NAME A FEW. 241 PEOPLE WERE INVOLVED IN THESE SUPPORT GROUPS DURING THE 2022-2023 FISCAL YEAR. 0 0 0 383330 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 2 0 1 6 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 9 9 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 0 0 0 TN X X X Nonprofit Bookkeeping and Consulting 8656604058 2901 Staffordshire Blvd Powell TN 37849 Angela Mininger Executive Director 40 0 X X X 60892 0 0 Joy Fields Director Memphis 40 0 X X 59017 0 0 Ellen Abarr Jones BOARD PRESIDENT 0.5 0 X X 0 0 0 Aaron Murray Treasurer 0.25 0 X X 0 0 0 Mariah Grimes BOARD MEMBER 0.25 0 X 0 0 0 Kimberly Hines Smith BOARD MEMBER 0.25 0 X 0 0 0 Anthony Cepak BOARD MEMBER 0.25 0 X 0 0 0 Jeremiah Frazier BOARD MEMBER 0.25 0 X 0 0 0 Esther Van Velze Sharpe BOARD MEMBER 0.25 0 X 0 0 0 Anna Prontano-Biggs Board Member 0.25 0 X 0 0 0 Amanda Goodhard BOARD MEMBER 0.25 0 X 0 0 0 119909 0 0 0 0 0 0 0 5000 0 58409 0 349880 59019 0 472308 0 1047 1047 0 0 0 0 0 0 0 0 0 0 0 0 0 0 58409 0 473355 1047 0 0 0 0 63470 63470 0 0 0 0 110659 65522 34604 10533 0 0 0 0 128931 116038 12893 0 0 0 0 0 22297 17838 4459 0 19955 15122 3956 877 0 0 0 0 0 0 0 0 13640 0 13640 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 8525 0 0 8525 4373 3499 874 0 2399 1919 480 0 0 0 0 0 48666 41535 5858 1273 10091 8073 2018 0 0 0 0 0 11391 9113 2278 0 0 0 0 0 3770 0 1885 1885 0 0 0 0 3875 0 3875 0 Helmets 25014 25014 0 0 Chocolate Fling fundraiser 16638 0 5000 11638 Client support group events 18187 16187 2000 0 511881 383330 93820 34731 83111 75255 43202 34249 52936 39852 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 179249 149356 2335 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 2335 0 X 176914 149356 0 0 176914 149356 179249 149356 -38526 0 0 0 10968 0 X 0 0 0 X 130234 156263 150836 340352 473355 1251040 0 0 0 0 0 0 0 0 0 0 0 0 130234 156263 150836 340352 473355 1251040 0 1251040 428 7 12 69 1047 1563 0 0 0 0 0 0 2025 0 0 79081 0 81106 1333709 0 0.93802 0.91896 X Schedule A, Part II, Line 10 Nothing qualifying as Other Income was received during this period. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Chocolate Fling 41145 0 41145 0 0 8100 2998 1700 3834 Strike Out Epilepsy 8845 0 8845 0 826 0 0 0 74 4 10261 0 10261 0 300 0 0 0 1186 60251 0 60251 0 1126 8100 2998 1700 5094 19018 41233 1 Seizure detection dog trained and matched to a client with Epilepsy. 1 18500 0 Direct expense No non-cash assistance provided. Schedule I, Part I, Line 2 Bookkeeping is contracted through Nonprofit Bookkeeping and Consulting. Generally Accepted Accounting Principles (GAAP) guidelines are carefully followed. Receipts are maintained in Quickbooks Online and in a separate digital file. Monthly, quarterly and annual financial reports are prepared for the Executive Director and the Board for use in managing and monitoring funds. The Executive Director, using an established set of guidelines, decides who qualifies for assistance. Form 990, Part VI, Section B, Line 11b Form 990 is emailed to board members in advance, and questions are addressed at the following board meeting. Form 990, Part VI, Section B, Line 12c Review of the Conflict of Interest policy and related situations are performed as needed and annually by the Board of Directors. Form 990, Part VI, Section C, Line 18 From 990 is available on Guidestar. You may also obtain a copy by contacting Epilepsy Foundation of Southeast Tennessee by phone, email, or through our website, https://www.epilepsy-setn.org. Form 990, Part VI, Section C, Line 19 Governing documents, financial reports, and the Conflict of Interest Policy may be obtained by contacting Epilepsy Foundation of Southeast Tennessee by phone, email, or through our website, https://www.epilepsy-setn.org. IRS form 8868, Extension Request for an automatic 6 month extension was filed and approved by the IRS on November 13, 2024.