2025-10-13T07:50:49-07:00 2023-12-31 521196225 F S TAYLOR & ASSOCIATES P C 1420 N STREET NW SUITE 100 WASHINGTON DC 20005 990 2023-01-01 237175985 Sickle Cell Disease Association of America Inc SICK 4105281555 7240 Parkway Drive Hanover MD 21076 Regina Hartfield President and CEO 4105281555 2025-10-11 true true Terry W Tyler P02385825 2028980008 2023 2025-03-06 01:10:19Z Reginia Hartfield 7420 Parkway Dr Hanover MD 21076 1811601 false X www.sicklecelldisease.org X 1972 MD To advocate for people affected by sickle cell conditions and empower community-based organizations. 15 15 5 28 0 0 529276 624584 666861 1078650 -96347 83728 5005 24639 1104795 1811601 0 0 573055 588122 0 374611 769589 1222801 1342644 1810923 -237849 678 2111159 2256766 373807 518736 1737352 1738030 To advocate for people affected by sickle cell conditions and empower community-based organizations. false false 134272 0 1078650 SCDAA: SCDAA and its member organizations engage in community outreach and program efforts throughout the United States and Canada. These efforts include but not limited to: Educational campaigns that build awareness of SCD and related conditions and programs that provide services such as genetic testing and counseling, case management, and psychosocial support for individuals and families impacted by sickle cell disease. 134272 true false false false false false false false false false true true false true true true true false false false false false false false false false false true false true false false false false false false false false false false false false false false false false false true 0 0 5 true false false false false false false false false false false X 15 15 false false false false false false false true true false false true true true true true true true true false MD NY CA X The Organization 4105281555 7420 Parkway Dr Hanover MD 21076 X Thomas L Johnson JD Chair 5.00 X X 0 0 0 JaKela Walker Treasurer 5.00 X X 0 0 0 Bobby Staten III Vice Chair 5.00 X X 0 0 0 Bernie M Lawrence-Watkins Esq Secretary 5.00 X X 0 0 0 Ed Flowers Member 5.00 X 0 0 0 Lewis Hsu MD Vice Chief Medical Officer 5.00 X 0 0 0 Melissa Creary PhD Board Member Emeritus 5.00 X 0 0 0 Kim Smith-Whitley MD Member 5.00 X 0 0 0 Christopher Hollins MBA Member 5.00 X 0 0 0 Crystal Riley PharmD Member 5.00 X 0 0 0 Monica Mitchell EdD Member 5.00 X 0 0 0 TaLana Hill-Hughes MPH Member 5.00 X 0 0 0 Katherine Napier CPA MBA Member 5.00 X 0 0 0 Dr Edward Donnell Ivy Member 5.00 X 0 0 0 Lenneette J Benjamin MD Member 5.00 X 0 0 0 Tanique Mitchell Member 5.00 X 0 0 0 Regina Hartfield President & CEO 40.00 X X 185096 0 0 Reginald Hart CFO 40.00 X 135861 0 0 320957 0 0 2 false true false 25380 157822 441382 624584 Convention and special events 900099 1078650 0 0 1078650 83728 0 0 Other revenue 900099 24639 24639 0 0 24639 1811601 1187017 0 0 320657 0 320657 0 192618 0 192618 0 74847 0 74847 0 465874 91632 374242 0 6502 0 6502 0 6898 0 6898 0 19677 12 19665 0 360739 0 0 360739 27057 0 20441 6616 7901 2060 5841 0 Professional fees and insurance 91283 32525 52733 6025 Equipment 76410 1788 73503 1119 Other 9883 0 9771 112 Dues and subscriptions 45414 6255 39159 0 105163 0 105163 0 1810923 134272 1302040 374611 1195615 1207162 223695 363870 4213 4213 4945 4867 44443 24127 16543 20316 517411 580206 148737 76132 2111159 2256766 118545 91636 250000 111099 105542 144163 71558 373807 518736 X 1722352 1723030 15000 15000 1737352 1738030 2111159 2256766 678 X X false true X true true true X 0 3494048 362500 3380278 1196137 1703234 10136197 0 0 3494048 362500 3380278 1196137 1703234 10136197 0 10136197 19956 24555 113343 -96347 83728 145235 0 3891 5005 24639 33535 10314967 0.98270 0.98610 X 0 0 0 Pt II Ln 10 Other Income Part II, Line 10 Description: Other income 2019: 3891. 2022: 5005. 2023: 24639. 0 0 13998 6000 7998 30445 18127 12318 20316 Investments 580206 F 580206 Security deposits 4574 Right of use - assets- operating lease 71558 76132 Lease liability 71558 71558 1727873 1727873 1727873 1810923 1810923 1810923 true false false false false false false false false false Regina Hartfield 185096 0 0 0 0 0 0 0 0 0 185096 0 0 0 Pt VI, Line 11b Prior to filing, the Form 990 is presented at a special board meeting for review and comments. Pt VI, Line 12c Officers and directors are required to submit an annual questionnaire. Pt VI, Line 15a Compensation policy is reviewed and approved by the Board of Directors. Pt VI, Line 15b Compensation policy is reviewed and approved by the Board of Directors. Pt VI, Line 18 The organization makes its financial statements available to the public via the Federal Audit Clearinghouse. Pt VI, Line 19 Governing documents along with conflict of interest policy and financial statemennts are available to the public upon request. Pt XII, Line 2c The proces has not changed from prior year.