2025-08-29T18:27:29-05:00 2024-12-31 THE MUMFORD GROUP PC 80 N MAIN ST BOUNTIFUL UT 840106132 990 2024-01-01 870492100 SUDDEN ARRHYTHMIA DEATH SYNDROMES SUDD 8015310937 4527 S 2300 E STE 104 SALT LAKE CITY UT 84117 WALKER FRAHM CEO 8019480654 2025-08-26 1 0 P00116553 8019282530 X 2024 2025-03-06 01:10:19Z WALKER FRAHM 4527 SOUTH 2300 EAST STE 104 SALT LAKE CITY UT 84117 933211 0 X WWW.SADS.ORG X 1991 UT THE ORGANIZATION'S MISSION IS TO SAVE THE LIVES OF CHILDREN AND YOUNG ADULTS WHO ARE GENETICALLY PREDISPOSED OR OTHERWISE SUSCEPTIBLE TO SUDDEN DEATH TO CARDIAC ARRHYTHMIAS AND TO PROVIDE EDUCATION AND SUPPORT TO FAMILIES AND THE MEDICAL COMMUNITY WHO ARE DEALING WITH THESE DISORDERS. THE SADS FOUNDATION IS DEDICATED TO PROVIDING INFORMATION, ASSISTANCE, AND HOPE. 11 11 9 85 0 0 892702 882872 0 23883 24826 26456 -107757 -94265 809771 838946 0 0 0 0 470501 542513 0 0 99922 341519 340754 812020 883267 -2249 -44321 891924 801083 142320 86484 749604 714599 X THE ORGANIZATION'S MISSION IS TO SAVE THE LIVES OF CHILDREN AND YOUNG ADULTS WHO ARE GENETICALLY PREDISPOSED OR OTHERWISE SUSCEPTIBLE TO SUDDEN DEATH TO CARDIAC ARRHYTHMIAS AND TO PROVIDE EDUCATION AND SUPPORT TO FAMILIES AND THE MEDICAL COMMUNITY WHO ARE DEALING WITH THESE DISORDERS. THE SADS FOUNDATION IS DEDICATED TO PROVIDING INFORMATION, ASSISTANCE, AND HOPE. 0 0 722218 THE SADS FOUNDATION PROVIDES INFORMATION, ASSISTANCE, AND HOPE RELATED TO THIS DISEASE. IN FULFILLING THIS MISSION, THE ORGANIZATION HAS THE FOLLOWING GOALS: EDUCATION: TO EDUCATE HEALTH CARE PROVIDERS AND LAY PUBLIC TO PROMOTE EARLY DIAGNOSIS AND TREATMENT. PATIENT SERVICES: TO SERVE AS A PHYSICIAN REFERRAL RESOURCE AND TO PROVIDE INFORMATION TO PHYSICIANS WHO CARE FOR PATIENTS WITH CARDIAC ARRHYTHMIAS. SUPPORT SERVICES: TO ASSIST ALL THOSE AFFECTED BY THE SUDDEN DEATH OF AN INFANT. PUBLIC AWARENESS: TO INFORM FAMILIES, PHYSICIANS, AND COMMUNITIES ABOUT THE GENETIC CARDIAC ARRHYTHMIAS IN THE YOUNG AND THEREBY PREVENT SUDDEN CARDIAC DEATH IN YOUNG PEOPLE. RESEARCH: TO ENCOURAGE RESEARCH ON GENETIC CARDIOVASCULAR DISEASES PREDISPOSING THE YOUNG TO SUDDEN DEATH. 722218 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 0 1 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 3 0 9 1 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 X 11 11 0 0 0 0 0 0 0 0 0 0 0 1 1 1 1 0 1 1 1 0 IL UT CA X WALKER FRAHM 8012723023 4527 S 2300 E SUITE 104 SALT LAKE CITY UT 84117 ALICE LARA ALICE LARA ALICE EXECUTIVE DIR. 40.00 X X 103751 0 0 MICHAEL J ACKERMAN MD PHD PRESIDENT 0.00 X X 0 0 0 SUSAN ETHERIDGE MD VICE PRESIDENT 0.00 X X 0 0 0 SCOTT DAILARD SECRETARY 0.00 X X 0 0 0 PHILIP MURRAY HOWARD III TREASURER 0.00 X X 0 0 0 JOANNA BEWICK BOARD MEMBER 0.00 X 0 0 0 BRYNN DECHERT-CROOKS RN MSN BOARD MEMBER 0.00 X 0 0 0 LAURIE SMITH HOOPER BOARD MEMBER 0.00 X 0 0 0 JEFFREY J KIM MD BOARD MEMBER 0.00 X 0 0 0 ANTHONY LUCATUORTO BOARD MEMBER 0.00 X 0 0 0 CHARLES BERUL MD BOARD MEMBER 0.00 X 0 0 0 GENEVIE ECHOLS BOARD MEMBER 0.00 X 0 0 0 103751 0 0 1 0 0 0 0 149888 732984 39031 882872 SEMINARS 23883 23883 23883 26456 26456 0 149888 94265 -94265 -94265 838946 50339 0 -94265 X 103751 88188 5188 10375 397094 304524 24963 67607 41668 32672 2508 6488 20655 20655 120475 119608 867 102 102 57394 45002 3455 8937 25853 20272 1556 4025 43099 43099 51239 51239 227 227 389 305 23 61 2354 1845 142 367 BANK / CREDIT CARD FEE 10873 8525 655 1693 PROGRAM EXPENSE / AWARD 5802 5802 DUES / MEMBERSHIPS 2292 1035 888 369 883267 722218 61127 99922 318111 243463 39556 385 13246 13246 389 0 478073 525848 55795 31387 891924 801083 86888 55557 55432 30927 142320 86484 X 580437 614599 169167 100000 749604 714599 891924 801083 -44321 9316 0 X 0 1 X 1 0 X 881623 628174 785074 892702 882872 4070445 881623 628174 785074 892702 882872 4070445 4070445 18145 9806 40738 24998 26456 120143 856 59544 1900 62300 4252888 154872 0.95710 0.89730 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 13246 13246 0 0 OPERATING LEASE LIABILITIES 30927 30927 848262 9316 9316 838946 0 838946 883267 0 883267 0 883267 IL CA BRITTANY'S TREE 149888 149888 94265 149888 149888 94265 94265 -94265 X 14671 STOCK VALUE AS LISTED X SPEAKING HONORARIUMS 23000 0 X PRINTING SERVICES 1360 0 0 0 0 FORM 990, PART VI, SECTION A, LINE 8A THE ORGANIZATION DOES PREPARE AND DOCUMENT THE MEETINGS OF THE BOARD AND VARIOUS COMMITTEES OF THE ORGANIZATION. FORM 990, PART VI, SECTION A, LINE 8B EACH COMMITTEE HAS AUTHORITY TO ACT ON BEHALF OF THE GOVERNING BODY BASED ON THE COMMITTEE'S RESPONSIBILITIES. FORM 990, PART VI, SECTION B, LINE 11B THE BORAD DOES NOT CONDUCT A REVIEW OF THE FORM 990 PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C THE ORGANIZATION HAS A WRITTEN CONFLICT OF INTEREST POLICY. THE POLICYREQUIRES THAT ALL EMPLOYEES AND BOARD MEMBER DISCLOSE ACTUAL OR POTENTIALCONFLICTS OF INTEREST ANNUALLY. THE EXECUTIVE COMMITTEE REVIEWS THEDISCLOSURES AND DETERMINES WHETHER AN ACTUAL CONFLICT EXISTS AND WHATACTIONS MUST BE TAKEN TO MITIGATE THE RISKS IT POSES TO THE ORGANIZATION.SPECIFIC RESPONSES ARE DETERMINED ON A CASE BY CASE BASIS. FORM 990, PART VI, SECTION B, LINE 15 COMPENSATION FOR THE EXECUTIVE DIRECTOR IS SUBJECT TO REVIEW AND APPROVALBY THE BOARD. CURRENT MARKET RATES ARE CONSIDERED IN SETTING THISCOMPENSATION. THE DELIBERATION AND DETERMINATION OF THE EXECUTIVEDIRECTOR'S COMPENSATION IS DOCUMENTED IN THE BOARD MINUTES.OFFICERS ARE NOT GIVEN COMPENSATION FOR THE DUTIES AS OFFICERS.OCCASIONALLY BOARD MEMBERS ARE GIVEN PAYMENT FOR SERVICES OUTSIDE THE SCOPEOF THEIR OFFICER DUTIES. THESE PAYMENTS ARE SUBJECT TO REVIEW AND APPROVALBY THE REST OF THE BOARD AND ARE SUBJECT TO POLICIES AND PROCEDURES CREATEDBY THE BOARD. CURRENT MARKET RATES ARE CONSIDERED IN DETERMININGREASONABLE COMPENSATION FOR SERVICES. FORM 990, PART VI, SECTION C, LINE 19 NO DOCUMENTS ARE AVAILABLE TO THE PUBLIC FOR EXAMINATION. FORM 990, PART IX, LINE 11G PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 119,608. MANAGEMENT AND GENERAL EXPENSES 867. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 120,475.