2025-03-13T15:08:10-04:00 2024-04-30 474306215 Mullins PC 7625 Wisconsin Avenue Bethesda MD 20814 990 2023-05-01 834658977 CureGrin Foundation CURE 4845 Pearl East Circle PMB 364983 S Boulder CO 803016112 Keith McArthur CEO 7208975183 2025-03-13 true true John Mullins P01429307 2027706371 2025-03-13 2023 2025-03-06 01:10:19Z X Keith McArthur 538540 false X www.curegrin.org X 2019 CO Seeking treatments and cures for GRI Disorders. 13 11 4 20 0 0 374601 506231 48063 21856 64 4203 6250 422728 538540 446323 225000 0 121875 167930 0 45590 268218 106489 836416 499419 -413688 39121 903042 886582 495613 440033 407429 446549 Seeking treatments and cures for GRI Disorders. false false 225000 225000 CureGRIN awarded 2 grants worth $225,000 in the fiscal year. These included $200,000 to the University of Texas to develop and measure predictive analysis of GRIA variants, and $25,000 to 9462-7213 Quebec, a company affiliated with Dr. Derek Bowie and McGill University for research into a potential treatment for GRIN1 Disorder. 111687 CureGRINs programs fall into two categories. 1) Improving the lives of people around the world living with GRI Disorders (GRIN, GRIA, GRIK and GRID), and their families, through research, education and connectivity. These programs include GRIConnect, development of education content and the family ambassador program. 2) Working with scientists, clinicians and the biopharm industry to drive research and cures. These programs include in-house Research, GRI Genes Roundtable and biopharm engagement. 67622 21856 CureGRINs annual conference returned to virtual form in March of 2024, with 20+ speakers and hundreds of participants watching live or on replay. Participants included GRI families, researchers, clinicians and biopharm representatives. 404309 true true false false false false false false false false false false false false false false false false false true true true false false false false false true false false false false false false false false false false false false false false false false false false false true X 9 0 true 4 true false false false false false false false false false false false false X 13 11 false false false false false false false true true false false true true true false true false true false false CA CO FL NY X The Organization 7208975183 4845 Pearl East Cir Ste 118 Boulder CO 803016112 Keith McArthur CEO 40.00 0.00 X X 80000 0 0 Denise Rehner President 20.00 0.00 X X 39952 0 0 Leone Le Texier Board Member 2.00 0.00 X 0 0 0 Briana Kupras Board Member 2.00 0.00 X 0 0 0 Steve Rust Board Member 2.00 0.00 X 0 0 0 Abigail Levy Board Member 2.00 0.00 X 0 0 0 Lana Novakovic Board Member 2.00 0.00 X 0 0 0 Paulo Domingues Board Member 2.00 0.00 X 0 0 0 Natasha Lesmana Board Member 2.00 0.00 X 0 0 0 Kaitlyne Leblanc Board Member 2.00 0.00 X 0 0 0 Robert Yockey Treasurer 2.00 0.00 X X 0 0 0 Tina Roberts Secretary 2.00 0.00 X X 0 0 0 Heather Cartwright Board Chair 2.00 0.00 X X 0 0 0 119952 0 0 0 false false false 506231 506231 Conference 900099 21856 21856 21856 4203 4203 Miscellaneous 900099 6250 6250 6250 538540 28106 0 4203 200000 200000 25000 25000 119952 78902 23073 17977 39456 25954 7589 5913 8522 5606 1639 1277 701 701 4059 4059 8340 8340 16773 13629 3144 17811 515 5918 11378 9382 3481 5901 18645 16904 1741 29459 29459 1319 1319 499419 404309 49520 45590 855204 797516 47838 84066 5000 903042 886582 49320 116887 446293 323146 495613 440033 X 367165 322219 40264 124330 407429 446549 903042 886582 X 39121 -1 X true X false true false X 680838 237373 440648 374601 506231 2239691 680838 237373 440648 374601 506231 2239691 180278 2059413 66 64 4203 4333 6249 6249 2250273 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true North America Not the United States Grant making Program 25000 25000 25000 North America Not the United States Research 25000 false false false false false false true University of Texas Health Science PO Box 301418 Dallas TX 75303 741761309 501c3 200000 Research 1 Governing body meeting documentation Part VI line 8a Board meetings minutes are approved and available to public upon request. Form 990 governing body review Part VI line 11 The Organizations Board of Directors reviews the 990 for accuracy before the return is signed and filed. CEO executive director top management comp Part VI line 15a When hiring a new CEO, it is company policy that the Board of Directors does a review using comparative data with other non profit organizations. The Board sets compensation for the CEO.Officer compensation is set by the Board of Directors. Governing documents etc available to public Part VI line 19 The Organizations governing documents are available to the public upon request and are also available on the Attorney Generals Public Charities Division website. Explanation of other changes in net assets or fund balances Part XI line 9 $1 Adjustment to tie beginning net assets with financial review Part V response or note to any other line in Part V The CEO is an independent contractor living in Canada. CureGRIN added employees in FY24.