2025-11-17T14:25:54-06:00 2025-06-30 621114363 HENDERSON HUTCHERSON & MCCULLOUGH PLLC 1200 MARKET STREET CHATTANOOGA TN 37402 990 2024-07-01 581309190 EPILEPSY FOUNDATION OF SOUTHEAST TENNESS EPIL 4233808545 PO BOX 4782 CHATTANOOGA TN 37405 DANIEL GRZESIK EXECUTIVE DIRECTOR 4233808545 2025-11-15 1 1 KIM HUSKEY CPA P00958962 4237567771 2025-11-15 2024 2025-03-06 01:10:19Z DANIEL GRZESIK PO BOX 4782 CHATTANOOGA TN 37405 181088 0 X WWW.EPILEPSY-SETN.ORG X 1977 TN AT THE EPILEPSY FOUNDATION SETN, WE ARE COMMITTED TO HELPING PEOPLE IN SOUTHEAST TENNESSEE AND NORTHWEST GEORGIA AFFECTED BY SEIZURES AND EPILEPSY. WE RECOGNIZE THAT A DIAGNOSIS OF EPILEPSY IS LIFE-CHANGING, AND OUR MISSION IS TO RAISE AWARENESS, REDUCE STIGMA, AND PROVIDE RESOURCES TO HELP BUILD A NETWORK OF SUPPORT FOR THOSE IMPACTED BY EPILEPSY AS THEY NAVIGATE THEIR JOURNEY. 11 11 7 30 1002 0 472308 164914 0 0 1047 1002 0 1890 473355 167806 63470 0 0 0 281842 206560 0 0 14388 166569 94831 511881 301391 -38526 -133585 149356 64259 0 1927 149356 62332 X AT THE EPILEPSY FOUNDATION SETN, WE ARE COMMITTED TO HELPING PEOPLE IN SOUTHEAST TENNESSEE AND NORTHWEST GEORGIA AFFECTED BY SEIZURES AND EPILEPSY. WE RECOGNIZE THAT A DIAGNOSIS OF EPILEPSY IS LIFE-CHANGING, AND OUR MISSION IS TO RAISE AWARENESS, REDUCE STIGMA, AND PROVIDE RESOURCES TO HELP BUILD A NETWORK OF SUPPORT FOR THOSE IMPACTED BY EPILEPSY AS THEY NAVIGATE THEIR JOURNEY. 0 0 168545 THE MEDICATION ASSISTANCE PROGRAM WAS SPECIFICALLY CREATED TO HELP INDIVIDUALS WITH EPILEPSY, WHO LIVE AT OR BELOW THE U.S. FEDERAL POVERTY LINE, WITH PURCHASING THEIR MEDICATION. EACH CLIENT WHO ENROLLS IN THIS PROGRAM IS ELIGIBLE FOR AN ANNUAL STIPEND OF $400 WHICH CAN BE USED AT THEIR DISCRETION. 71 TRANSACTIONS OF PRESCRIPTIONS WERE FILLED DURING THE 2024-2025 FISCAL YEAR, OVER $5,000. OUR NEUROLOGY ASSISTANCE PROGRAM PROVIDE SUPPORTS TO INDIVIDUALS LIVING WITH EPILEPSY WHO NEED FINANCIAL ASSISTANCE WITH EXAMINATION AND CONSULTATION APPOINTMENTS. THIS PAST FISCAL YEAR, WE SUPPORTED TEN VISITS TOTALLING OVER $2,500. THE FOUNDATION ALSO PROVIDES TRANSPORTATION WITH INDIVIDUALS LIVING WITH EPILEPSY WHO CAN NOT OR CHOOSE NOT TO DRIVE. WE HAD 89 TRANSACTIONS/REQUESTS BETWEEN UBER/LYFT AND CARTA SPENDING OVER $5,000 FOR MEMBERS OF OUR COMMUNITY. ART THERAPY IS A MULTI-WEEK ART PROGRAM THAT GIVES YOUTH, AGES 6-18, WITH EPILEPSY AND OTHER NEUROLOGICAL DISORDERS, THE OPPORTUNITY TO CREATIVELY EXPRESS THEMSELVES THROUGH ART AND TO CREATE A COMMUNITY OF SUPPORT AMOUNG THEIR PEERS. WITH A NEW FORMAT TO FURTHER CONNECTION AND COMMUNITY AMONG PARTICIPANTS, SEVEN YOUTH WERE PART OF THE ART PROGRAM DURING THE WINTER 2025 COHORT 3151 EACH QUARTER (AT LEAST ONCE), THE EPILEPSY FOUNDATION OF SOUTHEAST TENNESSEE HOSTS OUR SUPPORT GROUP MEETINGS FOR ANYONE WHO IS IMPACTED BY EPILEPSY. THESE MEETINGS ARE A GREAT PLACE TO CONNECT WITH OTHER PEOPLE WHO UNDERSTAND WHAT INDIVIDUALS ARE GOING THOUGH AS WELL AS HEAR EXPERT GUESTS FROM A WIDE VARIETY OF FIELDS. THESE GUESTS INCLUDE NEUROLOGISTS, SOCIAL WORKERS, ATTORNEYS, AND PHARMACISTS (AMONG OTHERS). WE ARE ALSO LOOKING AT NEW FORMATS AND OFFERINGS FOR THIS PROGRAM. 28576 15172 OUR 2024 WALK FOR EPILEPSY EVENT IN NOVEMBER SAW OVER 140 PEOPLE PARTICIPATING TO SUPPORT MEMBERS OF OUR COMMUNITY WITH EPILEPSY. OUR HELMET PROGRAM ALSO CONTINUES TO SEE AN INFLUX IN NEED AS WE CONTINUE TO BUILD COMMUNITY PARTNERSHIPS. EDUCATIONAL OPPORTUNITIES ARE CATERED TO SPECIFIC POPULATIONS/AGES AND WE PROVIDE TRAINING INFORMATION RELATED TO SEIZURE RECOGNITION AND FIRST-AID. THESE EDUCATIONAL OPPORTUNITIES ARE PERFECT FOR LAW ENFORCEMENT AND ALL FIRST-RESPONDERS, DAY CARE EMPLOYEES, COMMUNITY FOCUSED ORGANIZATIONS, AND ANY BUSINESSES THAT MAY WANT TO LEARN ABOUT EPILEPSY AND RESPONSE. THIS INCLUDED THE CITY OF CHATTANOOGA AND JERSEY COLLEGE NURSING STUDENTS IN 2024-2025. SEIZURE FIRST AID TRAININGS ARE NOW OFFERED ON-DEMAND THROUGH A LEARNING PORTAL ONLINE, THUS MAKING IT MORE ACCESSIBLE FOR MEMBERS OF OUR SERVICE AREA AND ACROSS THE STATE. ONE OF OUR TEEN'S LIVING WITH EPILEPSY WAS SELECTED TO REPRESENT THE 456,000 YOUTH LIVING WITH EPILEPSY IN THE U.S. TO PARTICIPATE IN THE TEEN SPEAK UP ADVOCACY PROGRAM IN WASHINGTON D.C. THIS INCLUDES A YEAR OF SERVICE TO THE LOCAL EFSETN CHAPTER. SHE WAS THE ONLY ONE FROM TN SELECTED. SHE WAS ONE OF SIXTY-THREE TOTAL PARTICIPANTS. 200272 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 4 0 7 0 0 0 0 0 0 0 0 0 0 0 X 11 11 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 0 0 0 TN X X BELINSCOTT BOOKKEEPING 2163338435 2288 GUNBARREL ROAD 154/133 CHATTANOOGA TN 37421 JEREMIAH FRAZIER INTERIM CHAIR 0.25 X X 0 0 0 MARIAH HAMON SECRETARY 0.25 X X 0 0 0 NICK POLLARD TREASURER 0.25 X X 0 0 0 ANNA PROTANO-BIGGS BOARD MEMBER 0.25 X 0 0 0 KIMBERLY HINES SMITH BOARD MEMBER 0.25 X 0 0 0 ANDREW DINSMORE BOARD MEMBER 0.25 X 0 0 0 AMANDA PUCKETT BOARD MEMBER 0.25 X 0 0 0 JUSTIN SMITH BOARD MEMBER 0.25 X 0 0 0 MARGARET ARMOUR BOARD MEMBER 0.25 X 0 0 0 JOY FIELDS DIRECTOR MEMPHIS 40.00 X 54200 0 4200 DANIEL GRZESIK EXECUTIVE DIRECTOR 40.00 X 12367 0 700 ANGELA FICCA EXECUTIVE DIRECTOR 40.00 X 59698 0 3675 126265 0 8575 0 1 0 0 0 6000 59167 99747 164914 1002 1002 15172 13282 1890 1890 167806 0 1002 1890 122190 72092 37879 12219 68811 61930 6881 15559 10627 4045 887 8434 8434 1486 1486 1920 1536 384 4131 3511 620 12515 10012 2503 340 340 3150 3150 18257 18257 CLIENT ASSISTANCE 23896 23896 SPECIAL EVENTS 11238 11238 SUPPORT GROUPS 2811 2811 DUES, MEMBERSHIPS, SUBS 2713 2713 3940 793 1865 1282 301391 200272 86731 14388 75255 54610 34249 39852 7649 2000 149356 64259 1927 0 1927 X 149356 62332 149356 62332 149356 64259 -133585 46561 0 X 0 0 0 X 156263 150836 340352 473355 164914 1285720 156263 150836 340352 473355 164914 1285720 1285720 7 12 69 1047 1002 2137 79081 79081 1366938 0.94060 0.93800 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED CHOCOLATE FLING 11329 11329 10058 2437 787 11329 11329 10058 2437 787 13282 -1953 0 0 0 0 0 0 0 0 0 ANGELA FICCA EXECUTIVE DIRECTOR 59698 0 0 0 0 0 0 0 3675 0 63373 0 0 0 FORM 990, PART VI, SECTION B, LINE 11B FORM 990 IS EMAILED TO BOARD MEMBERS IN ADVANCE, AND QUESTIONS ARE ADDRESSED AT THE FOLLOWING BOARD MEETING. FORM 990, PART VI, SECTION B, LINE 12C REVIEW OF THE CONFLICT OF INTEREST POLICY AND RELATED SITUATIONS ARE PERFORMED AS NEEDED AND ANNUALLY BY THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION C, LINE 18 FROM 990 IS AVAILABLE ON GUIDESTAR. YOU MAY ALSO OBTAIN A COPY BY CONTACTING EPILEPSY FOUNDATION OF SOUTHEAST TENNESSEE BY PHONE, EMAIL, OR THROUGH OUR WEBSITE, HTTPS://WWW.EPILEPSY-SETN.ORG. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS, FINANCIAL REPORTS, AND THE CONFLICT OF INTEREST POLICY MAY BE OBTAINED BY CONTACTING EPILEPSY FOUNDATION OF SOUTHEAST TENNESSEE BY PHONE, EMAIL, OR THROUGH OUR WEBSITE, HTTPS://WWW.EPILEPSY-SETN.ORG.