2025-11-05T21:08:37-07:00 2024-12-31 990 2024-01-01 854057370 COALITION TO CURE CHD2 INC COAL 2143565925 302 EAST OGDEN AVENUE NAPERVILLE IL 60563 Christopher Huff Treasurer 3129090257 2025-10-25 1 2024 2025-03-06 01:10:19Z X Marni Warren 302 EAST OGDEN AVENUE NAPERVILLE IL 60563 250057 0 X www.curechd2.org X 2020 ID Our mission is to improve the lives of those affected by CHD2-related disorders by funding research necessary for uncovering a cure 7 7 0 26 0 0 154897 239367 6991 0 10690 0 161888 250057 5000 0 0 12897 0 33852 84038 157303 96935 162303 64953 87754 209561 269857 55000 27543 154561 242314 X The Coalition to Cure CHD2 (CCC)'s mission is to improve the lives of those affected by CHD2-related disorders by increasing education, building a community, and accelerating research to uncover a cure. 0 0 41876 0 0 Coalition to Cure CHD2 hosted a 3 day conference that brought together 25+ participants from the US and Europe, including PhD researchers and clinicians, to collaborate on research and priorities. These events are crucial for enabling scientists to work together and their understanding of the CHD2 gene. 33333 0 0 Part of the mission of Coalition to Cure CHD2 is to provide patient community education, advocacy and development of the research community. The organization contracted with an Executive Director consultant to work on these initiatives. 8012 0 0 Other science related collaboration and travel, such as attendance at the American Epilepsy Society conference, Ultragenyx Bootcamp, and Global Genes Rare Drug Development Symposium. The relationships forged at these events enables Coalition to Cure CHD2 to advance our mission of finding a cure. 5000 5000 0 Scientific research grant for studying treatment options for CHD2 genetic mutation. 5000 5000 0 88221 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 100000 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 7 7 0 0 0 0 0 0 0 1 1 0 0 1 1 1 0 0 0 0 0 0 ID X Christopher Huff 3129090257 302 EAST OGDEN AVENUE NAPERVILLE IL 60563 X Marni Warren Co-President and Director 15 0 X X 0 0 0 Brian Broadbent Co-President and Director 15 0 X X 0 0 0 Christopher Huff Treasurer and Director 5 0 X X 0 0 0 Stephanie Prince Director 5 0 X 0 0 0 Mike Fasolo Secretary and Director 5 0 X X 0 0 0 Christina SanInocencio Director 10 0 X 0 0 0 Carolyn Aronson Director 3 0 X 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 239367 0 239367 0 10690 10690 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 250057 10690 0 0 5000 5000 100000 33333 33333 33334 0 4509 4509 41876 41876 8012 8012 815 815 314 314 memberships 885 0 885 0 Fundraising fees 518 0 0 518 misc expense 374 0 374 0 162303 88221 40230 33852 44874 10247 164687 93849 165761 209561 269857 2543 55000 25000 55000 27543 X 0 0 0 0 154561 242314 154561 242314 209561 269857 87754 -1 0 0 0 0 X 0 0 0 X 160 53635 193480 161888 239367 648530 160 53635 193480 161888 239367 648530 217341 431189 10881 10881 659411 X Schedule A, Part II, Line 10 interest income RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Form 990, Part III, Line 2 Contracted Executive Director Laura Marks Form 990, Part VI, Section B, Line 11b The organization's Form 990 is prepared by the Treasurer. Once the draft is complete, it is reviewed internally by at least one other member of the board, for accuracy and completeness. The draft Form 990 is then circulated to all members of the governing board for review prior to filing. Board members are given the opportunity to ask questions and provide feedback. The Form 990 is filed with the IRS thereafter. Form 990, Part VI, Section C, Line 19 Governance documents and the conflict of interest policy are available upon request per the organization's Donor Confidence web page: https://www.curechd2.org/p/donor-confidence. The Form 990 is available via the web site. Extension was filed. Missed filing deadlines due to unfamiliarity with IRS requirements.